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Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like
TiredTavern
in
Myalgic Encephalomyelitis Community
1 month ago
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid?
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid? Answered by Michelle Kilmer Moser https://youtu.be/HldwdGvCPwA
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid? Answered by Michelle Kilmer Moser https://youtu.be/HldwdGvCPwA
Shewulf
Administrator
in
LDN Research Trust
1 month ago
COVID
I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie
I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie
lbenmaor
in
My MSAA Community
1 month ago
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New medication for boosting immunity against covid19
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Gardner-NY
in
Kidney Transplant
1 month ago
starting again!
hello, I was running around 10 miles in my mid fifties following post surgical PE at 50. Covid in 2022 set off severe flare of Ulcerative Colitis (had since 25) and PE. Spent a year recovering started couch to 5k in January having built up fitness walking and cycling. Doing well then got knocked back
hello, I was running around 10 miles in my mid fifties following post surgical PE at 50. Covid in 2022 set off severe flare of Ulcerative Colitis (had since 25) and PE. Spent a year recovering started couch to 5k in January having built up fitness walking and cycling. Doing well then got knocked back
Aclotintrainers
in
Anticoagulation Support
1 month ago
bursitis of hip
After many X-rays and scans b’cos of hip pain and mobility problems I was told I had osteoarthritis and would need hip op, now after visit to MSK clinic I have tranch ??? Bursitis of hip and an op would not make any difference! I am now waiting for a steroid injection and more painkillers And on list
After many X-rays and scans b’cos of hip pain and mobility problems I was told I had osteoarthritis and would need hip op, now after visit to MSK clinic I have tranch ??? Bursitis of hip and an op would not make any difference! I am now waiting for a steroid injection and more painkillers And on list
Margie21
in
Osteoarthritis Action
2 months ago
Lurgy again!
I had a trip to London on Tuesday to work on a show and that was pretty tiring. I'd run on Monday, hoping for 30 minutes, but surrendering at 23. So the 30 minute run was Wednesday ... but no, just too tired. Thursday? Nah. So today, for sure. I got up early and put my running gear on, did two lots of
I had a trip to London on Tuesday to work on a show and that was pretty tiring. I'd run on Monday, hoping for 30 minutes, but surrendering at 23. So the 30 minute run was Wednesday ... but no, just too tired. Thursday? Nah. So today, for sure. I got up early and put my running gear on, did two lots of
Gthants
in
Bridge to 10K
1 month ago
Help needed! 😔
Wondered if anyone could relate or any advice? OK so back in Dec 2021 I started with a runny nose, sneezing, blocked, and neuralgia - I thought I was getting a cold, so a few days passed and still all the same symptoms but I noticed my smell had started to go, which is strange because I've never really
Wondered if anyone could relate or any advice? OK so back in Dec 2021 I started with a runny nose, sneezing, blocked, and neuralgia - I thought I was getting a cold, so a few days passed and still all the same symptoms but I noticed my smell had started to go, which is strange because I've never really
Leey2k
in
Lung Conditions Community Forum
10 months ago
Covid injections
Are the next covid injections due soon
Are the next covid injections due soon
Spacecat1
in
Lung Conditions Community Forum
1 month ago
Hepatitis B and alcohol
I was wondering what are your views on alcohol use for people with hepatitis B. I am feeling a bit disappointed that my Dr never has discussed this with me. I try not to drink at most of the times. However, I would have a few drinks on special occasions, such as birthdays or holidays. Should I go tea
I was wondering what are your views on alcohol use for people with hepatitis B. I am feeling a bit disappointed that my Dr never has discussed this with me. I try not to drink at most of the times. However, I would have a few drinks on special occasions, such as birthdays or holidays. Should I go tea
LittleShrew
in
British Liver Trust
5 months ago
After 10+ years I've been discharged from the Vascular Department
Morning AllI live in London, UK and just before Christmas was discharged from a Vascular Department in a London hospital. I had been under their care for over 10 years, this was the place I went to have the xray where they inject the dye between your toes that will show how and light up how your lymphatic
Morning AllI live in London, UK and just before Christmas was discharged from a Vascular Department in a London hospital. I had been under their care for over 10 years, this was the place I went to have the xray where they inject the dye between your toes that will show how and light up how your lymphatic
Applekenke172
in
LSN
2 months ago
Chest specialists Cyprus/Holiday insurance advice
Hi, I haven't travelled abroad since late 2019, when I was diagnosed with bronchiectasis, due to Covid concerns. I know many people on this forum have travelled extensively since the start of the pandemic and I'm planning to go to wedding in Cyprus in June - I understand Greek Cypriots are more
Hi, I haven't travelled abroad since late 2019, when I was diagnosed with bronchiectasis, due to Covid concerns. I know many people on this forum have travelled extensively since the start of the pandemic and I'm planning to go to wedding in Cyprus in June - I understand Greek Cypriots are more
Leafsweeper
in
Lung Conditions Community Forum
2 months ago
Hypothyroid symptoms but normal test results
Thank you in advance for any insight. These are my test results, sourced from a private company - Randox. I would be hugely grateful for any help in interpreting these or my symptoms. I have experienced severe weight gain - which NOTHING will shift including weight loss drugs. I have had a hormonal
Thank you in advance for any insight. These are my test results, sourced from a private company - Randox. I would be hugely grateful for any help in interpreting these or my symptoms. I have experienced severe weight gain - which NOTHING will shift including weight loss drugs. I have had a hormonal
Scribed
in
Thyroid UK
2 months ago
Covid for 3rd time
hi I have just tested positive for Covid can I get anti virals for a 3rd time. Going to call dr but I thought I'd ask you guys first
hi I have just tested positive for Covid can I get anti virals for a 3rd time. Going to call dr but I thought I'd ask you guys first
Dawnee28
in
NRAS
2 months ago
Smell Training (Olfactory Training)
Smell Training (Olfactory Training)
March 18, 2024
This post is about Smell Training and is building on an earlier HU post “Olfactory enrichment improves olfactory ability in humans with olfactory loss due to Parkinson’s”
https://healthunlocked.com/cure-parkinsons/posts/150588869/olfactory-enrichment-improves-olfactory-ability-in-humans-with-olfactory-loss-due-to-parkinson-s
Smell Training (Olfactory Training)
March 18, 2024
This post is about Smell Training and is building on an earlier HU post “Olfactory enrichment improves olfactory ability in humans with olfactory loss due to Parkinson’s”
https://healthunlocked.com/cure-parkinsons/posts/150588869/olfactory-enrichment-improves-olfactory-ability-in-humans-with-olfactory-loss-due-to-parkinson-s
Bolt_Upright
in
Cure Parkinson's
2 months ago
My CLL, where is the finishing line?
Just over a year ago my “Abnormal CLL” took off. I lost weight rapidly and my 22 cm spleen hurt. I was glad to be offered V+O and after a bad initial reaction settled into the routine. Then the sinusitis and upper respiratory tract infections set in and the cough…. Fair to say I have endured the year
Just over a year ago my “Abnormal CLL” took off. I lost weight rapidly and my 22 cm spleen hurt. I was glad to be offered V+O and after a bad initial reaction settled into the routine. Then the sinusitis and upper respiratory tract infections set in and the cough…. Fair to say I have endured the year
carolly
in
CLL Support
10 months ago
first orthotics
disappointed. The podiatrist hardly looked at the foot and spent most of the appointment typing then without any measurements or gait test said he’s ordered me a pair that would arrive by post in the fullness of time. I suspect these will be no better than the well known brand I ordered online and
disappointed. The podiatrist hardly looked at the foot and spent most of the appointment typing then without any measurements or gait test said he’s ordered me a pair that would arrive by post in the fullness of time. I suspect these will be no better than the well known brand I ordered online and
Stills
in
NRAS
2 months ago
covid and metratrexate for RA
morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and just take painkillers which that is what I’ve been doing!I'm having a massive flur up as I haven’t had any RA meds for over a month as before the
morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and just take painkillers which that is what I’ve been doing!I'm having a massive flur up as I haven’t had any RA meds for over a month as before the
Mybirthday1975
in
NRAS
2 months ago
Totally distraught and worried!!!
Hi everyone, I’m so scared. I really need someone to tell me everything will be okay. I keep crying as I’m so distraught this has happened. My husband is amazing but can only do and say so much as this isn’t happening to him. I really need hope right now. I’m soon to be 42 and am 5 months postpartum
Hi everyone, I’m so scared. I really need someone to tell me everything will be okay. I keep crying as I’m so distraught this has happened. My husband is amazing but can only do and say so much as this isn’t happening to him. I really need hope right now. I’m soon to be 42 and am 5 months postpartum
monkee641
in
Pregnancy and Parenting Support
5 months ago
No Spring Covid Vaccination for AF patients
I had a Covid vaccination in January of this year and, fortunately, didn’t get any ectopics or other side-effects which I have had in the past following the vaccine. I was told to have another jab after 90 days (that is how long the vaccine is effective for, apparently), but it seems that the Spring
I had a Covid vaccination in January of this year and, fortunately, didn’t get any ectopics or other side-effects which I have had in the past following the vaccine. I was told to have another jab after 90 days (that is how long the vaccine is effective for, apparently), but it seems that the Spring
Samazeuilh2
in
Atrial Fibrillation Support
2 months ago
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