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Update post follow up PSMA PET/CT
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
slpdvmmd
in
Advanced Prostate Cancer
9 months ago
Finished ADT /Orgovyx One month ago....Need to lose weight (15 lbs)= having back sciatica ..is it possible while getting testosterone back.
Finished ADT /Orgovyx One month ago..I took it for only 4 months..How long until Testosterone is back to baseline with only 4 months use?I am in the process (hopefully) of getting my testosterone back to baseline..I need to lose weight (15 lbs) as I am having debilitating sciatica back pain from extra
Finished ADT /Orgovyx One month ago..I took it for only 4 months..How long until Testosterone is back to baseline with only 4 months use?I am in the process (hopefully) of getting my testosterone back to baseline..I need to lose weight (15 lbs) as I am having debilitating sciatica back pain from extra
JWS13
in
Advanced Prostate Cancer
11 months ago
Warning! HealthUnlocked communities impact anxiety levels.
HealthUnlocked can have several positive impacts on anxiety, here are a few!
Support and Validation:
Online health communities provide a platform where individuals can connect with others who have similar experiences. This sense of community and understanding can be immensely comforting and
HealthUnlocked can have several positive impacts on anxiety, here are a few!
Support and Validation:
Online health communities provide a platform where individuals can connect with others who have similar experiences. This sense of community and understanding can be immensely comforting and
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
11 months ago
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Micronized Progesterone - Does it do anything?
I started taking HRT a while ago and I felt was all over the place, sometimes on top of the world. sometimes awful - it took me a lot longer than it ought to have done to figure out that in the 2 weeks that I take Oestrogen only I'm amazing, and when I take Utrogestan with Oestrogen I can barely function
I started taking HRT a while ago and I felt was all over the place, sometimes on top of the world. sometimes awful - it took me a lot longer than it ought to have done to figure out that in the 2 weeks that I take Oestrogen only I'm amazing, and when I take Utrogestan with Oestrogen I can barely function
Abra_ka_dabra
in
Menopause and Perimenopause Support
11 months ago
Endo and Mental health
Hello all, Just wondering if anyone diagnosed or suffering with Endo has a similar problem with thier Mental health around the time of a cycle ? Aswell as the physical pain side it feels like Just before I am due it feels like my mind goes into overdrive I think all the horrid things about myself that
Hello all, Just wondering if anyone diagnosed or suffering with Endo has a similar problem with thier Mental health around the time of a cycle ? Aswell as the physical pain side it feels like Just before I am due it feels like my mind goes into overdrive I think all the horrid things about myself that
Jajo1987
in
Endometriosis UK
1 year ago
Multivitamins/Supplements
My 5 year old son was recently diagnosed with combined ADHD, and his dad and I are holding off on medication for now. I'd love to hear what vitamins, supplements, and or diet changes you all are doing for a kiddo this age? I read a recommendation for the OLLY brand "Chillax" vitamins that we've been
My 5 year old son was recently diagnosed with combined ADHD, and his dad and I are holding off on medication for now. I'd love to hear what vitamins, supplements, and or diet changes you all are doing for a kiddo this age? I read a recommendation for the OLLY brand "Chillax" vitamins that we've been
Danni246
in
CHADD's ADHD Parents Together
1 year ago
Surprising Test results
I've just had my thyroid retested at the doctors' and was very surprised at the results. TSH 0.01 (0.38-5.33), FT4 14.8 ( 7.9-14.4) FT3 5.0 (3.8-6.0). In March I did a finger prick test with Monitor My Health TSH 0.01 (0.27-4.2) FT4 21.2 (12-22), FT3 6.1 (3.1-6.8) I had mistakenly not taken my 5pm
I've just had my thyroid retested at the doctors' and was very surprised at the results. TSH 0.01 (0.38-5.33), FT4 14.8 ( 7.9-14.4) FT3 5.0 (3.8-6.0). In March I did a finger prick test with Monitor My Health TSH 0.01 (0.27-4.2) FT4 21.2 (12-22), FT3 6.1 (3.1-6.8) I had mistakenly not taken my 5pm
wisewoman108
in
Thyroid UK
11 months ago
Proton therapy finally starts
After a failed Space OAR gel placement back in October 2022 I finally started my proton therapy today (4-17-2023). Twenty proton treatments scheduled. Onward!
After a failed Space OAR gel placement back in October 2022 I finally started my proton therapy today (4-17-2023). Twenty proton treatments scheduled. Onward!
BB_1
in
Advanced Prostate Cancer
1 year ago
IDH2 R172 Linked With Improved Survival in Myeloid Neoplasms from April 14, 2023 Hematology Advisor- More r/t AML than MPNs- look below it..
Among patients with myeloid neoplasms
including
acute myeloid leukemia (AML), IDH2 R172 mutations (mR172) appear to be linked with improved overall survival, and moreover represent a distinct clinical disease subtype, according to research published in the American Journal of Clinical Pathology
Among patients with myeloid neoplasms
including
acute myeloid leukemia (AML), IDH2 R172 mutations (mR172) appear to be linked with improved overall survival, and moreover represent a distinct clinical disease subtype, according to research published in the American Journal of Clinical Pathology
PhysAssist
in
MPN Voice
1 year ago
pain while swallowing
Has anyone experienced pain with swallowing? My dad mentioned that he’s been having some pain in his throat that radiates down his chest when he swallows. The pain is palpable in his neck to where he grunts in pain if he presses there. He’s currently on Erleada + ADT but we are still waiting to switch
Has anyone experienced pain with swallowing? My dad mentioned that he’s been having some pain in his throat that radiates down his chest when he swallows. The pain is palpable in his neck to where he grunts in pain if he presses there. He’s currently on Erleada + ADT but we are still waiting to switch
StayingSTRNG
in
Advanced Prostate Cancer
11 months ago
metformin
ADT has blown up my diabetes pros and cons of using metformin to control blood sugar…
ADT has blown up my diabetes pros and cons of using metformin to control blood sugar…
rogerandme
in
Advanced Prostate Cancer
11 months ago
TA Stampede Trial Q
Hey Tall guy When "3 years of ADT and 2 years of abiraterone is standard-of-care" How is that timed? Start ADT and Abi together, and stop Abi at 2 years leaving ADT by itself for the last year? How would that work in my case? I started ADT and Abi at the same time, then RT after 6 months. My
Hey Tall guy When "3 years of ADT and 2 years of abiraterone is standard-of-care" How is that timed? Start ADT and Abi together, and stop Abi at 2 years leaving ADT by itself for the last year? How would that work in my case? I started ADT and Abi at the same time, then RT after 6 months. My
Hidden
in
Advanced Prostate Cancer
11 months ago
Bowel irrigation (Not "colonic irrigation")
I have obstructed defecation (anismus) which has not responded to biofeedback etc. The next step is at home bowel irrigation and I am just waiting for an appointment with the bowel nurse to issue me with the equipment. It would be helpful to hear of anyone`s experience with this. I don`t know which
I have obstructed defecation (anismus) which has not responded to biofeedback etc. The next step is at home bowel irrigation and I am just waiting for an appointment with the bowel nurse to issue me with the equipment. It would be helpful to hear of anyone`s experience with this. I don`t know which
janke
in
IBS Network
1 year ago
Irrational emotional mood swings on ADT
I have recently had some irrational emotional mood swings . I had a similar experience about 6 months ago, they went away within the week. I did not equate it then with my total lack of Testosterone but after seeing some discussions on this board I realized that it was my female side in full bloom. Thankfully
I have recently had some irrational emotional mood swings . I had a similar experience about 6 months ago, they went away within the week. I did not equate it then with my total lack of Testosterone but after seeing some discussions on this board I realized that it was my female side in full bloom. Thankfully
Scout4answers
in
Fight Prostate Cancer
11 months ago
Irrational emotional mood swings on ADT
I have recently had some irrational emotional mood swings . I had a similar experience about 6 months ago, they went away within the week. I did not equate it then with my total lack of Testosterone but after seeing some discussions on this board I realized that it was my female side in full bloom. Thankfully
I have recently had some irrational emotional mood swings . I had a similar experience about 6 months ago, they went away within the week. I did not equate it then with my total lack of Testosterone but after seeing some discussions on this board I realized that it was my female side in full bloom. Thankfully
Scout4answers
in
Advanced Prostate Cancer
11 months ago
Can symptoms come and go?
Hello everyone, At the moment I'm waiting to see the gp tomorrow about thyroid and b12. I'm having various symptoms but they are coming and going. They may not be B12 related. Or they may. Eg.I just did about 20 mins of putting a wash on, making up a bed, not rushing. I've had to lie down because
Hello everyone, At the moment I'm waiting to see the gp tomorrow about thyroid and b12. I'm having various symptoms but they are coming and going. They may not be B12 related. Or they may. Eg.I just did about 20 mins of putting a wash on, making up a bed, not rushing. I've had to lie down because
Sneedle
in
Pernicious Anaemia Society
11 months ago
Weird ADT Side Effects
I have some of the predicted SE’s of ADT: loss of libido & loss of body hair. My testicles are more like two little peas in a pod now. ED meds are helping in that department. Hair loss has all been below the neck. My sister used to tell me I could win the “harriest legs contest”! Not anymore!
I have some of the predicted SE’s of ADT: loss of libido & loss of body hair. My testicles are more like two little peas in a pod now. ED meds are helping in that department. Hair loss has all been below the neck. My sister used to tell me I could win the “harriest legs contest”! Not anymore!
Gym-rat
in
Advanced Prostate Cancer
11 months ago
Simultaneous vs Sequential Rad and ADT
I'm trying to find out whether or not simultaneous rad and ADT is efficacious. Most people seem to feel that there is a synergistic effect to having rad and ADT at the same time, but I can't seem to find the mechanism for how that synergy occurs. I have a hunch that it doesn't really exist, or if
I'm trying to find out whether or not simultaneous rad and ADT is efficacious. Most people seem to feel that there is a synergistic effect to having rad and ADT at the same time, but I can't seem to find the mechanism for how that synergy occurs. I have a hunch that it doesn't really exist, or if
ElRanchoDePoisonIvy
in
Advanced Prostate Cancer
11 months ago
HRT & Decapeptyl
So last year I went on Decapeptyl injections on their own to try and manage pain. I came off them after 4 injections due to my mood being worse. I went back to the consultant in May who suggested I try them again alongside HRT until I had my MRI scan and have a follow up with him 3 months later (so
So last year I went on Decapeptyl injections on their own to try and manage pain. I came off them after 4 injections due to my mood being worse. I went back to the consultant in May who suggested I try them again alongside HRT until I had my MRI scan and have a follow up with him 3 months later (so
x_b_x
in
Endometriosis UK
11 months ago
Tried it all
I've had depression for 27 years now. I've had 3 major episodes and am going through one right now. I think the best word is torture. My mind is being tortured and all I want to do is sleep. I do get up and do things, but time moves so, so slowly! I did ECT back in 2005 and did 14 sessions and it
I've had depression for 27 years now. I've had 3 major episodes and am going through one right now. I think the best word is torture. My mind is being tortured and all I want to do is sleep. I do get up and do things, but time moves so, so slowly! I did ECT back in 2005 and did 14 sessions and it
Livetorunruntolive
in
Major Depressive Disorder (MDD) Support
1 year ago
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