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Thyroid Trust Talk by Professor Karol Sikora
Professor Karol Sikora is giving a talk on ‘The Key to getting the best care: Making the system work for you’ on Monday 19th June 2023. https://www.thyroidtrust.org/events-listings.html (this is a link to the latest talks so will go out of date) I think this will be a very useful talk as we need
Professor Karol Sikora is giving a talk on ‘The Key to getting the best care: Making the system work for you’ on Monday 19th June 2023. https://www.thyroidtrust.org/events-listings.html (this is a link to the latest talks so will go out of date) I think this will be a very useful talk as we need
jimh111
in
Thyroid UK
1 year ago
Your thoughts on next course of action
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
GBMV
in
Advanced Prostate Cancer
9 months ago
UCLA RO says that since it's been only 4 mo since stop of 4 ms RT & 4ms orgo and my T is 80 - more t than baseline (286) may trigger cancer
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
JWS13
in
Advanced Prostate Cancer
7 months ago
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Hot flushes after ovarian cancer surgery
Hi ladies, struggling with hot flushes keeping me awake most of the night following surgery for ovarian cancer few months back. Anyone found a good supplement that can be used by those of us for whom HRT is contraindicated ( alot I read about have natural ingredients which mimic oestrogen so are advised
Hi ladies, struggling with hot flushes keeping me awake most of the night following surgery for ovarian cancer few months back. Anyone found a good supplement that can be used by those of us for whom HRT is contraindicated ( alot I read about have natural ingredients which mimic oestrogen so are advised
Jholly4
in
Menopause and Perimenopause Support
9 months ago
hrt/menopause and lupus
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
Babycakes1971
in
LUPUS UK
9 months ago
Oar Gel and gold placements for beginners on this journey
I am a beginner on this PC journey but feel fortunate that I caught my cancer before it had spread beyond the prostate. I caught sepsis from my directed transrectal biopsy and spent a lovely few days in ICU flirting with the nurses and trying not to mess up the bed and floor too much. I have 9 weeks
I am a beginner on this PC journey but feel fortunate that I caught my cancer before it had spread beyond the prostate. I caught sepsis from my directed transrectal biopsy and spent a lovely few days in ICU flirting with the nurses and trying not to mess up the bed and floor too much. I have 9 weeks
Eadgbe
in
Prostate Cancer Network
9 months ago
Thyroid and the Menstrual Cycle?
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
JUUJOO
in
Thyroid UK
9 months ago
ART Favorable Prognosis Adjuvant Androgen Deprivation Therapy A-ADT after Radiotherapy
Additional information for PCa patients under AS (active surveillance) regarding the length of ADT and PSA nadir achieved, versus outcomes. Biochemical failure-free survival (BCFFS), clinical failure-free survival, distant metastasis-free survival, cancer-specific survival, and overall survival (OS)
Additional information for PCa patients under AS (active surveillance) regarding the length of ADT and PSA nadir achieved, versus outcomes. Biochemical failure-free survival (BCFFS), clinical failure-free survival, distant metastasis-free survival, cancer-specific survival, and overall survival (OS)
RMontana
in
Active Surveillance - Prostate Cancer
9 months ago
What age to start HRT
Hi I just want to ask is 44 to young to start HRT ?? I had a hysterectomy a year ago (kept my ovaries) however my peri menopause symptoms are becoming worse and are affecting my daily life. Doctors has palmed me off with blood test and SSRI medication which am not taking, I explained to her when
Hi I just want to ask is 44 to young to start HRT ?? I had a hysterectomy a year ago (kept my ovaries) however my peri menopause symptoms are becoming worse and are affecting my daily life. Doctors has palmed me off with blood test and SSRI medication which am not taking, I explained to her when
Bassem1979
in
Menopause and Perimenopause Support
9 months ago
Kratom anti-depressant, anti-psychotic, anti-anxiety herb!
I've recently come across an herbal suppliment that has realy helped me. If you research it you'll find that it has some potential for abuse. It effects opioid receptors. Just like opiod meds. For pain you take a large dose. In large doses it also has a sedating effect. That is were the addiction lays
I've recently come across an herbal suppliment that has realy helped me. If you research it you'll find that it has some potential for abuse. It effects opioid receptors. Just like opiod meds. For pain you take a large dose. In large doses it also has a sedating effect. That is were the addiction lays
PureOCDdude
in
My OCD Community
9 months ago
Weird 6 day Miracale
The weirdest thing one of my peeps . Multiple failed back surgeries spondylitis ,sciatica , severe RLS ,Menenigioma {brain cancer remisssion } She is drenched in sweat Hormone replacement ceased due to cancer RLS 24/7 Horrific Pain score 10 vomits daily from the pain ,can no longer eat lives on
The weirdest thing one of my peeps . Multiple failed back surgeries spondylitis ,sciatica , severe RLS ,Menenigioma {brain cancer remisssion } She is drenched in sweat Hormone replacement ceased due to cancer RLS 24/7 Horrific Pain score 10 vomits daily from the pain ,can no longer eat lives on
Shumbah
in
Restless Legs Syndrome
9 months ago
Latest Treatments for Advanced Prostate Cancer
I asked my computer (Bing) for the latest treatments for advanced prostate cancer. Response follows: [i]There are several treatments available for advanced prostate cancer, which is prostate cancer that has spread beyond the prostate to other parts of the body. The choice of treatment depends on many
I asked my computer (Bing) for the latest treatments for advanced prostate cancer. Response follows: [i]There are several treatments available for advanced prostate cancer, which is prostate cancer that has spread beyond the prostate to other parts of the body. The choice of treatment depends on many
NecessarilySo
in
Advanced Prostate Cancer
11 months ago
5 months after stopping the 4 mos of taking orgovyx still very symptomatic of low t (miserable)..told t may never recover (79),take trt? ?
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
JWS13
in
Advanced Prostate Cancer
7 months ago
question for you all. Do you know of any insurance type policies that cover age care or long term care ?
Do you know of any insurance type policies that cover age care or long term care ? I asked chatGPT if there is such a thing and it lists the following but won’t give me links to any actual products! I can’t find any in NZ even though it gives me a list of companies that sell them. Apparently news
Do you know of any insurance type policies that cover age care or long term care ? I asked chatGPT if there is such a thing and it lists the following but won’t give me links to any actual products! I can’t find any in NZ even though it gives me a list of companies that sell them. Apparently news
LAJ12345
in
Cure Parkinson's
1 year ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
8 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
9 months ago
Help! Hubby's PSA doubling time one week!
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
cancervictim
in
Advanced Prostate Cancer
9 months ago
Endo & HRT
Hi Please can you advise regarding someone who has had endometriosis rather badly can safely take any form of HRT? My daughter suffered from severe endo since she was 14 years old. After having many operations she was finally fitted with a Mirena Coil at the age of 40 and eventually this was quite
Hi Please can you advise regarding someone who has had endometriosis rather badly can safely take any form of HRT? My daughter suffered from severe endo since she was 14 years old. After having many operations she was finally fitted with a Mirena Coil at the age of 40 and eventually this was quite
meme2
in
Endometriosis UK
9 months ago
Music Therapy
Thinking of Music therapist and it says they deal with challenging behaviour and trauma - does music make you calm or is there good feelings that's why it helps. Your thoughts please
Thinking of Music therapist and it says they deal with challenging behaviour and trauma - does music make you calm or is there good feelings that's why it helps. Your thoughts please
Hidden
in
Autism Support
1 year ago
degeralix vs lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Oatmeal2
in
Prostate Cancer Network
9 months ago
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