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ET: Changing from HU to Jakafi or an Interferon treatment
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Bodensee
in
MPN Voice
5 months ago
does having endo mean I am at high risk for ovarian cancer?
hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I came across studies that show endo is a precursor to ovarian cancer and increases risk. I already have health anxiety however now I have gotten
hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I came across studies that show endo is a precursor to ovarian cancer and increases risk. I already have health anxiety however now I have gotten
JS1001
in
Endometriosis UK
5 months ago
delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
5 months ago
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Genetic Testing?
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
janebob99
in
Prostate Cancer Network
5 months ago
lung nodule / proposed surgery / scared and confused
Hello, thank you for this site. My best to all on this site for health and happiness. I’m not even sure where I may be at on this journey but am certainly scared and confused . In March of 2022 I had a kidney stone and a lung nodule was detected on right lower lobe and suggested follow up in 3 -6 months
Hello, thank you for this site. My best to all on this site for health and happiness. I’m not even sure where I may be at on this journey but am certainly scared and confused . In March of 2022 I had a kidney stone and a lung nodule was detected on right lower lobe and suggested follow up in 3 -6 months
ghostyinmass
in
Lung Cancer Support
5 months ago
Update finally on treatment
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
monkeygirl62
in
SHARE Metastatic Breast Cancer
5 months ago
Update following meeting with MO
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
Benkaymel
in
Advanced Prostate Cancer
5 months ago
How bad are these PSMA Pet Scan Results?
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
hiker75
in
Advanced Prostate Cancer
5 months ago
HCCsurgery
I am interested in the pros and cons of liver surgery for a small single primary HCC versus chemotherapy.
I am interested in the pros and cons of liver surgery for a small single primary HCC versus chemotherapy.
LittleMeadow
in
British Liver Trust
5 months ago
Eczema
Hello! My 18-week old daughter was diagnosed with baby eczema last month. Her dad has eczema too. We have been on and off the steroid cream since :( Any tips on how to manage it and what has worked best for your little ones? I am off dairy, eggs and soy, also gluten-intolerant so no wheat and oats either
Hello! My 18-week old daughter was diagnosed with baby eczema last month. Her dad has eczema too. We have been on and off the steroid cream since :( Any tips on how to manage it and what has worked best for your little ones? I am off dairy, eggs and soy, also gluten-intolerant so no wheat and oats either
Eloquentia
in
Pregnancy and Parenting Support
5 months ago
A Bladder Cancer Update.
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
Ern007
in
Lung Conditions Community Forum
5 months ago
Failed on Piqray... off to xeloda I go....
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
DianaSav
in
SHARE Metastatic Breast Cancer
5 months ago
Mother diagnosed with HG Ovarian cancer. Current Chemo not fully responding (reocurrence). Need suggestions/Guidance - Alternate treatments
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
akhilsalwan
in
My Ovacome
5 months ago
Happy New Year
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
10Ronnies
in
My Ovacome
5 months ago
Where's the fire in delaying/pausing chemo?
3 weeks ago I started chemo with the Cabazitaxel/Carboplatin combination (I'd rather not name the hospital for now) I had a bad reaction to the first infusion (it turned out that I had an undetected infection, so my immunity was rock-bottom) As a result of that experience (10 days in hospital, wiped
3 weeks ago I started chemo with the Cabazitaxel/Carboplatin combination (I'd rather not name the hospital for now) I had a bad reaction to the first infusion (it turned out that I had an undetected infection, so my immunity was rock-bottom) As a result of that experience (10 days in hospital, wiped
CrocodileShoes
in
Fight Prostate Cancer
5 months ago
Weird tingling (not just peripheral neuropathy)
Happy New Year to fellow warriors - I hope for your continued good health as we engage in common cause against our common foe. I start the New Year with an odd query: I'm now on Day 21 of a Cabazitaxel/Carboplatin combination chemo. I was due to have infusion #2 today, but because of a bad reaction,
Happy New Year to fellow warriors - I hope for your continued good health as we engage in common cause against our common foe. I start the New Year with an odd query: I'm now on Day 21 of a Cabazitaxel/Carboplatin combination chemo. I was due to have infusion #2 today, but because of a bad reaction,
CrocodileShoes
in
Fight Prostate Cancer
5 months ago
Invasive Breast Cancer her 2 P+ E+1 lymph node Metastatic spread after chemo & Mastectomy
Hi Guys, I’m struggling here. . I was diagnosed with Invasive Breast Cancer her 2 , P+ E+ positive. I had docetaxel carboplatin and ohesgo and straight in for a single mastectomy and a couple of lymph nodes out. 1 came back with a 4mm Metastatic spread after chemo and 3 weeks ago I had a full
Hi Guys, I’m struggling here. . I was diagnosed with Invasive Breast Cancer her 2 , P+ E+ positive. I had docetaxel carboplatin and ohesgo and straight in for a single mastectomy and a couple of lymph nodes out. 1 came back with a 4mm Metastatic spread after chemo and 3 weeks ago I had a full
GillyGangGong
in
SHARE Metastatic Breast Cancer
5 months ago
Genetic testing and Second Opinion – A result!
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Benkaymel
in
Advanced Prostate Cancer
5 months ago
First treatment of Taxotere
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
MsHope
in
Advanced Prostate Cancer
5 months ago
Any insight into # platinum chemo cycles?
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
skiingfiend
in
Advanced Prostate Cancer
3 months ago
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