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belimumab Infusions
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
MaryannM
in
LUPUS UK
1 month ago
thrush in mouth
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
Karate-Kid1
in
Lung Conditions Community Forum
1 month ago
Anxiety
Good evening all, last week I faced panic attack, after anytime In my mind thinking my heart is palpitations and there is something worng with my heart after that I went gp for consult and I shared him everything , after gp told me you have anxiety and he suggested me cipralex medicine, I want knows
Good evening all, last week I faced panic attack, after anytime In my mind thinking my heart is palpitations and there is something worng with my heart after that I went gp for consult and I shared him everything , after gp told me you have anxiety and he suggested me cipralex medicine, I want knows
Rajlover
in
Anxiety and Depression Support
1 month ago
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so many questions
hi all, I posted about 6 weeks ago regarding my mum who’s ca125 was raised and from that they found a large growth. She had her surgery today for total abdominal hysterectomy and they removed a tumour the size of a melon. The cancer nurse specialist has already been round and confirmed it is cancerous
hi all, I posted about 6 weeks ago regarding my mum who’s ca125 was raised and from that they found a large growth. She had her surgery today for total abdominal hysterectomy and they removed a tumour the size of a melon. The cancer nurse specialist has already been round and confirmed it is cancerous
Kerri1402
in
My Ovacome
7 months ago
Recently started Acalabrutinib
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Healthgiddy
in
CLL Support
1 month ago
interesting
So far, Hifas da Terra has shown mushroom formulas to complement chemotherapy and radiation therapy by countering the side- effects of cancer, such as nausea, bone marrow suppression, anaemia, and lowered resistance, as well as enhancing the effectiveness of the conventional treatment. The current
So far, Hifas da Terra has shown mushroom formulas to complement chemotherapy and radiation therapy by countering the side- effects of cancer, such as nausea, bone marrow suppression, anaemia, and lowered resistance, as well as enhancing the effectiveness of the conventional treatment. The current
Mostew
in
MPN Voice
8 months ago
Foraminotomy
has anybody had a posterior endoscopic foraminotomy? In particular for bone spurs. I could be looking at this surgery once injections have been exhausted. Would be interested in hearing from people about how they found it, did it work, and crucially what was your post op experience like, pain levels,
has anybody had a posterior endoscopic foraminotomy? In particular for bone spurs. I could be looking at this surgery once injections have been exhausted. Would be interested in hearing from people about how they found it, did it work, and crucially what was your post op experience like, pain levels,
yorkshirelad1
in
Pain Concern
5 months ago
Buprenorphine and Nausea
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
davchar23
in
Restless Legs Syndrome
1 month ago
Hello
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
chancemiracle12
in
SHARE Metastatic Breast Cancer
8 months ago
Xmas worries?
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
bungi1961
in
Bowel Disease Support
5 months ago
psma mri vs psma ct
I am confused about the differences between the two scanning procedures and the sensitivity of finding new metastases.
I am confused about the differences between the two scanning procedures and the sensitivity of finding new metastases.
myamic
in
Advanced Prostate Cancer
8 months ago
enlarged lymph node
Hi Ladies I was diagnosed with stage 2B ovarian cancer in April 2022. I had surgery and 6 rounds of Chemo. NED. On my final scan Jan. 2023. I’ve been doing really well. I’ve recently had an MRI scan for back pain after lifting a sofa. I’ve been for the results this morning and it shows degenerative
Hi Ladies I was diagnosed with stage 2B ovarian cancer in April 2022. I had surgery and 6 rounds of Chemo. NED. On my final scan Jan. 2023. I’ve been doing really well. I’ve recently had an MRI scan for back pain after lifting a sofa. I’ve been for the results this morning and it shows degenerative
Hota
in
My Ovacome
8 months ago
First SI, the pain, ouch!
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Bertiepuss
in
Pernicious Anaemia Society
5 months ago
Urologist recommendation at Johns Hopkins
Hello All, Many thanks for all the great advice and support on this great site. It encouraged me to be less stressed out and research more to understand this disease. My first biopsy indicated Gleeson 6 in one core out of 12. The second opinion at Johns Hopkins was not conclusive with the following
Hello All, Many thanks for all the great advice and support on this great site. It encouraged me to be less stressed out and research more to understand this disease. My first biopsy indicated Gleeson 6 in one core out of 12. The second opinion at Johns Hopkins was not conclusive with the following
nvidia-ati
in
Prostate Cancer Network
8 months ago
Better taper management
Hello again helpful people. I thought I'd update on my progress managing PMR, which was not going well 3 months ago. I took your advice and visited the dentist, to have a wisdom tooth out and no prospect of Alendronic Acid for at least 3 months, so that was worth it. But after I failed at reducing
Hello again helpful people. I thought I'd update on my progress managing PMR, which was not going well 3 months ago. I took your advice and visited the dentist, to have a wisdom tooth out and no prospect of Alendronic Acid for at least 3 months, so that was worth it. But after I failed at reducing
MarionA
in
PMRGCAuk
10 months ago
weird mouth symptoms on Sulfasalazine
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Charlongo79
in
NRAS
5 months ago
Movicol/colonoscopy prep for IBS relief
Hi all, I have predominantly IBS-D but occasionally I have bouts of horrific IBS-C (I can go up to a week without any bowel movements). This is accompanied by horrific bloating/acid reflux and uncontrollable eggy gas. It can go from a few days to months. I’ve had to be signed off work before because
Hi all, I have predominantly IBS-D but occasionally I have bouts of horrific IBS-C (I can go up to a week without any bowel movements). This is accompanied by horrific bloating/acid reflux and uncontrollable eggy gas. It can go from a few days to months. I’ve had to be signed off work before because
Book_Worm5
in
IBS Network
5 months ago
Going round in circles
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Helliborous
in
Pernicious Anaemia Society
5 months ago
Supplement Guidance
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Kimsy17
in
IBS Network
5 months ago
clavicle/collar bone swelling - YouTube Vid
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
Regenallotment
in
Thyroid UK
2 months ago
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