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Bad Week
Back story - May 2023 Suffered from Aortic Aneurysm, Hole in heart (since birth unknown prior), tear in left ventricle, thrombosis clot, failure of mitral valve . Suffered 4 cardiac arrests placed into an induced coma and transported to a Heart Institute where l had OHS. I have since had AF , heart burn
Back story - May 2023 Suffered from Aortic Aneurysm, Hole in heart (since birth unknown prior), tear in left ventricle, thrombosis clot, failure of mitral valve . Suffered 4 cardiac arrests placed into an induced coma and transported to a Heart Institute where l had OHS. I have since had AF , heart burn
Hugomum
in
British Heart Foundation
3 months ago
PNH - blood test
I just received this PNH test result and was wondering if anyone knows what it was testing for. I don't see my doctor until next week and I am curious. Thanks, Jack INTERPRETATION Flow Cytometry analysis did not detect RBC and WBC with PNH-associated phenotype. RBC, Granulocytes and Monocytes show
I just received this PNH test result and was wondering if anyone knows what it was testing for. I don't see my doctor until next week and I am curious. Thanks, Jack INTERPRETATION Flow Cytometry analysis did not detect RBC and WBC with PNH-associated phenotype. RBC, Granulocytes and Monocytes show
rcusher
in
CLL Support
3 months ago
High Cystatin C, low creatinine
My wife's(GFR 13) started the transplant process in November 2023. Her identical twin has been through extensive testing for donor acceptability. She is a 6 for 6 match. Her GFR based on creatinine is over 90 and all of her tests have neen positive. Yesterday, she got one of her final blood test results
My wife's(GFR 13) started the transplant process in November 2023. Her identical twin has been through extensive testing for donor acceptability. She is a 6 for 6 match. Her GFR based on creatinine is over 90 and all of her tests have neen positive. Yesterday, she got one of her final blood test results
alperk
in
Kidney Transplant
3 months ago
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Fast heart rate after eating sugar
Hi everyone, I have a history of a fast heart rate for unknown reasons, and have had short episodes of svt. Generally it has been under control recently due to taking a beta blocker. I have had it checked by an electrophysiologist and had an echo. This morning however I’m back to noticing my heart
Hi everyone, I have a history of a fast heart rate for unknown reasons, and have had short episodes of svt. Generally it has been under control recently due to taking a beta blocker. I have had it checked by an electrophysiologist and had an echo. This morning however I’m back to noticing my heart
Cookieisland
in
British Heart Foundation
3 months ago
No progress with Dr...and other possible symptoms?
My last posts explained my blood test results which show high antibodies but everything else within range. On this basis my Dr is not willing to do any other testing, even though I do suffer with joint pain, fatigue, hair loss etc and have a family history of hypothyroidism. I have given up gluten
My last posts explained my blood test results which show high antibodies but everything else within range. On this basis my Dr is not willing to do any other testing, even though I do suffer with joint pain, fatigue, hair loss etc and have a family history of hypothyroidism. I have given up gluten
Greyhound197
in
Thyroid UK
3 months ago
Meds & raised blood sugar
My 86 year old brother, who has heart failure, was found at a routine blood test to have raised blood sugar in the prediabetic range. In response to this, he received a standard letter from the practice with the website of diabetes UK to consult for info. He can't use the internet and I was concerned
My 86 year old brother, who has heart failure, was found at a routine blood test to have raised blood sugar in the prediabetic range. In response to this, he received a standard letter from the practice with the website of diabetes UK to consult for info. He can't use the internet and I was concerned
45sue
in
British Heart Foundation
3 months ago
Should I tell my rheumatologist?
Morning everyone, after 7 years I eventually got a diagnosis of mctd and secondary Fybromyalgia in November. Things had started to settle, but was feeling quite unwell Xmas week and finally after calling 111 was taken to A n E by paramedics. My blood pressure was through the roof, I couldn't beneath
Morning everyone, after 7 years I eventually got a diagnosis of mctd and secondary Fybromyalgia in November. Things had started to settle, but was feeling quite unwell Xmas week and finally after calling 111 was taken to A n E by paramedics. My blood pressure was through the roof, I couldn't beneath
Mctd
in
LUPUS UK
3 months ago
Pre diabetes update , raised uric acid,
About 2 weeks ago I had some blood tests at the GP surgery , received a text telling me I was pre diabetic and offering me to join a program to make health choices etc. I was shocked, so was my GP. She went through my history, current rehab, nutrition etc and thought the result was a false positive.
About 2 weeks ago I had some blood tests at the GP surgery , received a text telling me I was pre diabetic and offering me to join a program to make health choices etc. I was shocked, so was my GP. She went through my history, current rehab, nutrition etc and thought the result was a false positive.
DWizza
in
British Heart Foundation
3 months ago
diabetes & B12 Deficiency
Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better. I’ve had all the classic symptoms. I’ve had the 6 loading doses, 2 further jabs at 6 weeks apart and I’m now on a 4 weekly regime with the UK
Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better. I’ve had all the classic symptoms. I’ve had the 6 loading doses, 2 further jabs at 6 weeks apart and I’m now on a 4 weekly regime with the UK
Pa234aw
in
Pernicious Anaemia Society
3 months ago
Nighttime symptoms
Hi I am hoping for understanding of symptoms which occur about 04.30 most mornings. I awake with a frontal headache and a pounding heart. This has been getting more frequent over almost 3 years. All blood tests have been normal. It’s been put down to health anxiety but I feel it’s a physical condition
Hi I am hoping for understanding of symptoms which occur about 04.30 most mornings. I awake with a frontal headache and a pounding heart. This has been getting more frequent over almost 3 years. All blood tests have been normal. It’s been put down to health anxiety but I feel it’s a physical condition
AHG123
in
Thyroid UK
3 months ago
Immunoglobulin tests
Hi again. Yesterday I asked my GP if I could have my blood immunoglobulin levels checked as I like to keep a handle on those parameters which can indicate the status of my immune system. To be honest, I thought this would be done without question and routinely. However, my doc prefers that my CLL haematologist
Hi again. Yesterday I asked my GP if I could have my blood immunoglobulin levels checked as I like to keep a handle on those parameters which can indicate the status of my immune system. To be honest, I thought this would be done without question and routinely. However, my doc prefers that my CLL haematologist
Fogey
in
CLL Support
3 months ago
B12 over 4000 with injections, any need to worry?
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Bertiepuss
in
Pernicious Anaemia Society
3 months ago
think I’ve found my trigger.
I have posted on here before asking for advice. Have always suffered on and off but the last 18 months have been awful. Saw a dctr last year who just gave me sleeping tablets, saw a dctr a few weeks ago who gave me pramipexole but after reading on here and other sites about the side effects decided
I have posted on here before asking for advice. Have always suffered on and off but the last 18 months have been awful. Saw a dctr last year who just gave me sleeping tablets, saw a dctr a few weeks ago who gave me pramipexole but after reading on here and other sites about the side effects decided
Patters56
in
Restless Legs Syndrome
9 months ago
Recently Diagnosed
Hi There, I have recently been diagnosed with PV, I am JAk2 V617F positive 61% and my blood cells are all within normal levels, even my hematocrit. 3 years ago I suffered with portal and splenic vein thrombosis and have been on appixaban ever since. A few months before the thrombosis appeared blood
Hi There, I have recently been diagnosed with PV, I am JAk2 V617F positive 61% and my blood cells are all within normal levels, even my hematocrit. 3 years ago I suffered with portal and splenic vein thrombosis and have been on appixaban ever since. A few months before the thrombosis appeared blood
DarcyShepp
in
MPN Voice
3 months ago
Amiodarone
Hi I was on Amiodarone for at least 2 years with regular blood tests. The main side affect that I had was I couldn’t go in the sun. I could even fill the sun burning me though my trousers. Being a naturist I hated not being able to go to the beach. I hadn’t been feeling unwell for a while and losing
Hi I was on Amiodarone for at least 2 years with regular blood tests. The main side affect that I had was I couldn’t go in the sun. I could even fill the sun burning me though my trousers. Being a naturist I hated not being able to go to the beach. I hadn’t been feeling unwell for a while and losing
56dick19
in
British Heart Foundation
3 months ago
Frustrated with hospital appointment
I had a cardiologist appointment by phone yesterday. It wasn’t done by a doctor, it was one of those physician associates. They hadn’t read my notes until the call happened. They told me the bubble study echo showed I had a thrombus in the heart but the MRI in October had said it was gone and I’m on
I had a cardiologist appointment by phone yesterday. It wasn’t done by a doctor, it was one of those physician associates. They hadn’t read my notes until the call happened. They told me the bubble study echo showed I had a thrombus in the heart but the MRI in October had said it was gone and I’m on
Coffeelover2
in
British Heart Foundation
3 months ago
Grandfather FIT test result of 200...
Pretty worried right now.My grandad is 86. Has type 2 diabetes and so has regular bloods. In a blood test about 3 months ago, the GP noticed his iron was low. They re tested it again and it was falling dramatically. He feels tired and breathless also. He did a FIT stool test and it came back as 200.
Pretty worried right now.My grandad is 86. Has type 2 diabetes and so has regular bloods. In a blood test about 3 months ago, the GP noticed his iron was low. They re tested it again and it was falling dramatically. He feels tired and breathless also. He did a FIT stool test and it came back as 200.
Fenella34
in
Colon Cancer Connected
3 months ago
A positive tale...so far
Hi all, I wanted to share a positive story of B12 deficiency diagnosis and treatment. My GP started me on loading doses in mid December after a serum B12 result of 202. Since then I've had every blood test under the sun which have all showed normal. Meanwhile he kept me on twice weekly injections after
Hi all, I wanted to share a positive story of B12 deficiency diagnosis and treatment. My GP started me on loading doses in mid December after a serum B12 result of 202. Since then I've had every blood test under the sun which have all showed normal. Meanwhile he kept me on twice weekly injections after
Myoldcat
in
Pernicious Anaemia Society
3 months ago
Confused!
Was told I had under active thyroid after many blood tests, started on Levothyroxine 25mcgs took for four days then had awful palpitations and fast heart rate, told to stop bloods and have blood tests and check antibodies. Waited four weeks for tests, got results today, bloods normal no action required
Was told I had under active thyroid after many blood tests, started on Levothyroxine 25mcgs took for four days then had awful palpitations and fast heart rate, told to stop bloods and have blood tests and check antibodies. Waited four weeks for tests, got results today, bloods normal no action required
Allcraft
in
Thyroid UK
3 months ago
GCA confirmed after Ear pain
Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after initially going to the GP with earache. I am amazed actually as it was a result of knowledge on this forum that prompted me to go back to my GP, after
Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after initially going to the GP with earache. I am amazed actually as it was a result of knowledge on this forum that prompted me to go back to my GP, after
kalgoorlie
in
PMRGCAuk
3 months ago
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