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Anyone else seem to have some sort of “triggered” intrinsic factor blocking antibody?
I’m 21 years old, an athlete and up until a couple months ago completely healthy. Then I got mono and 12 weeks later the fatigue had not gone away and the dr found I had a b12 deficiency (135 pg/mL). She then gave me a double dose of B12 shot and then I got blood drawn for an IFBA test. It came back
I’m 21 years old, an athlete and up until a couple months ago completely healthy. Then I got mono and 12 weeks later the fatigue had not gone away and the dr found I had a b12 deficiency (135 pg/mL). She then gave me a double dose of B12 shot and then I got blood drawn for an IFBA test. It came back
merpit349
in
Pernicious Anaemia Society
4 years ago
3rd time.
Hi folks hope ur coping well. 1st time had my doses I think 2 three times a week then 1 every 2 months I started to feel better then after 2 months it was stopped. Then back to the doctors weeks later after more or less begging it was reinstated BUT every 3 months now it’s better than nowt. Then 3 months
Hi folks hope ur coping well. 1st time had my doses I think 2 three times a week then 1 every 2 months I started to feel better then after 2 months it was stopped. Then back to the doctors weeks later after more or less begging it was reinstated BUT every 3 months now it’s better than nowt. Then 3 months
Chance15
in
Pernicious Anaemia Society
4 years ago
Blood Results Antibodies Positive..Any Help or Guidance?
Below are my lab results. Diagnosed Graves Disease February 2019. Off thyroid medication. Feel awful. Pain left side of my head, shoulder, arm, hip and thigh. Itchy eyebrows. Also flush cheeks. Have deviated septum and possible TMJ. Recently put on estrogen patch. Been a year of feeling sick. Why if
Below are my lab results. Diagnosed Graves Disease February 2019. Off thyroid medication. Feel awful. Pain left side of my head, shoulder, arm, hip and thigh. Itchy eyebrows. Also flush cheeks. Have deviated septum and possible TMJ. Recently put on estrogen patch. Been a year of feeling sick. Why if
Kim327
in
Thyroid UK
4 years ago
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CD1 is here- FET pending
I’m so nervous! CD1 is here so starting elleste tomorrow! I’m hoping and praying this cycle works after my failed first fresh transfer in November. This time im adding baby aspirin, castor oil packs, raspberry leaf tea and Pom juice! Also have a prescription for Lubion in case my progesterone levels
I’m so nervous! CD1 is here so starting elleste tomorrow! I’m hoping and praying this cycle works after my failed first fresh transfer in November. This time im adding baby aspirin, castor oil packs, raspberry leaf tea and Pom juice! Also have a prescription for Lubion in case my progesterone levels
Hidden
in
Fertility Network UK
4 years ago
Functional doctor checking everything!
I posted here before about my suspected low B12 and my experience with my unsympathetic GP. I visited my consultant who was also not interested in listening to me. In fact he was taking blood while I was telling him I was sure I was low in B12 again and he didn't bother to even check it even though I
I posted here before about my suspected low B12 and my experience with my unsympathetic GP. I visited my consultant who was also not interested in listening to me. In fact he was taking blood while I was telling him I was sure I was low in B12 again and he didn't bother to even check it even though I
MariaMe
in
Pernicious Anaemia Society
4 years ago
Castor oil packs for FET
Am thinking of using castor oil packs before my FET this time round. Any experience with them or advice? Do I need a specific pack or can I just get one on Amazon? Thanks all😊
Am thinking of using castor oil packs before my FET this time round. Any experience with them or advice? Do I need a specific pack or can I just get one on Amazon? Thanks all😊
hifer
in
Fertility Network UK
4 years ago
Intrinsic factor antibody
Hi guys I’ve just had an intrinsic factor antibody blood test came back as 1.45U/ml with I think a reference range of 0.00-6.00 can anyone explain what that means?
Hi guys I’ve just had an intrinsic factor antibody blood test came back as 1.45U/ml with I think a reference range of 0.00-6.00 can anyone explain what that means?
Pixielula
in
Pernicious Anaemia Society
4 years ago
Pernicious anemia with "normal" B12, MMA, and homocysteine
https://www.ncbi.nlm.nih.gov/pubmed/20587489 "Serum B(12) levels ranged from 267 to 447 pg/ml. Homocysteine and methylmalonic acid levels were normal. Testing for antibody to intrinsic factor was positive, consistent with pernicious anaemia. After treatment with intramuscular B(12) injections (1000
https://www.ncbi.nlm.nih.gov/pubmed/20587489 "Serum B(12) levels ranged from 267 to 447 pg/ml. Homocysteine and methylmalonic acid levels were normal. Testing for antibody to intrinsic factor was positive, consistent with pernicious anaemia. After treatment with intramuscular B(12) injections (1000
genesurf
in
Pernicious Anaemia Society
4 years ago
End of the road - unresponsive thin endometrium
So after failed cancel after failed cancel due to thin lining I have just returned from a scan after trying Tamoxifen but the lining was worse than ever. I have tried everything; vit e, l’argine, additional Estrogen, castor oil packs, acupuncture, reflexology, additional protein, a hysterscopy which
So after failed cancel after failed cancel due to thin lining I have just returned from a scan after trying Tamoxifen but the lining was worse than ever. I have tried everything; vit e, l’argine, additional Estrogen, castor oil packs, acupuncture, reflexology, additional protein, a hysterscopy which
Prayingforafamily
in
Fertility Network UK
4 years ago
Confused person!
Due to terrible brain fog, confusion and memory problems - I am trying to take stock of where I am. If this is repetitive, I am sorry. Brief history: ME/CFS diagnosed 15 years ago (although having obtained my blood test results recently my B12 was 165 ng/L in 2005), 2 years ago diagnosis of colorectal
Due to terrible brain fog, confusion and memory problems - I am trying to take stock of where I am. If this is repetitive, I am sorry. Brief history: ME/CFS diagnosed 15 years ago (although having obtained my blood test results recently my B12 was 165 ng/L in 2005), 2 years ago diagnosis of colorectal
sea55red
in
Pernicious Anaemia Society
4 years ago
Really constipated
I have lately been going 4-5 days without a BM. Today is day 5. My wife wanted to go to the beach, so I took her. Around 1pm I told her I needed to get back to our unit to take care of business. She knows it's day 5. I tried to dissuade her, but she insisted on coming back. I took a TBSP of castor oil
I have lately been going 4-5 days without a BM. Today is day 5. My wife wanted to go to the beach, so I took her. Around 1pm I told her I needed to get back to our unit to take care of business. She knows it's day 5. I tried to dissuade her, but she insisted on coming back. I took a TBSP of castor oil
Billsfriend
in
IBS Network
4 years ago
Sudden fatigue and aches
On Monday I felt fine by Monday night I was not sleeping and had severe fatigue and muscle aches. Was starting to worry I had some some of silent event! As I had a similar fatigue issue prior to my heart attack. ( I suspect this was a small attack) Then the stomach cramps and diarrhoea kicked in. As
On Monday I felt fine by Monday night I was not sleeping and had severe fatigue and muscle aches. Was starting to worry I had some some of silent event! As I had a similar fatigue issue prior to my heart attack. ( I suspect this was a small attack) Then the stomach cramps and diarrhoea kicked in. As
jobe1968
in
British Heart Foundation
5 years ago
GCA worries
Hi. I’ve been hiding in the wings here for a while, gleaning information. My GP has now been treating me for PMR and, according to her Temporal arteritis/GCA symptoms for about 3 weeks now but I’ve had symptoms on and off for some time. I’m almost 50 and have always been healthy apart from having Sjogren
Hi. I’ve been hiding in the wings here for a while, gleaning information. My GP has now been treating me for PMR and, according to her Temporal arteritis/GCA symptoms for about 3 weeks now but I’ve had symptoms on and off for some time. I’m almost 50 and have always been healthy apart from having Sjogren
JustKath
in
PMRGCAuk
4 years ago
B12 injections been stopped
Hoping for some advice please. My apologies for the length. I have hypothyroidism and B12 deficiency diagnosed in 2017. I also have IBS with a dairy sensitivity since I was 15. I have a healthy balanced diet but cannot digest red meat and have to monitor my dairy input daily. I have been having B12
Hoping for some advice please. My apologies for the length. I have hypothyroidism and B12 deficiency diagnosed in 2017. I also have IBS with a dairy sensitivity since I was 15. I have a healthy balanced diet but cannot digest red meat and have to monitor my dairy input daily. I have been having B12
puddings1
in
Pernicious Anaemia Society
4 years ago
Intrinsic factor test reliability
Would one of you very knowledgeable people please remind me why the anti parietal cell/intrinsic factor test isn’t to be relied upon please. I’m trying to prepare for tomorrow’s fight with GP. Thank you.
Would one of you very knowledgeable people please remind me why the anti parietal cell/intrinsic factor test isn’t to be relied upon please. I’m trying to prepare for tomorrow’s fight with GP. Thank you.
Parlay
in
Pernicious Anaemia Society
4 years ago
Blood Test results - Please Advise...
Hi, I had a blood test at my GP surgery in September and my results were: Serum B12 level: 119 ng/L (150-900) Serum Folate level: 2.3 ug/L (3.1-19.9) I did a thriva blood test after supplementing 5mg folic acid for 4 weeks and 1000mcg Jarrows B12 for 3 weeks and my results are: Total B12: 352 pmol
Hi, I had a blood test at my GP surgery in September and my results were: Serum B12 level: 119 ng/L (150-900) Serum Folate level: 2.3 ug/L (3.1-19.9) I did a thriva blood test after supplementing 5mg folic acid for 4 weeks and 1000mcg Jarrows B12 for 3 weeks and my results are: Total B12: 352 pmol
Sarahlouise1980
in
Pernicious Anaemia Society
4 years ago
latest bloods
stopped ALL supplements including spatone and b12 blood results...holy moly no wonder i feel like poop SERUM B12 AND FOLATE Serum vitamin B12 level 745 ng/L [180.0 - 915.0] Serum folate level 6.5 ug/L [3.1 - 19.9] SERUM FOLATE COMMENT Please note new reference range due to restandardisation to World
stopped ALL supplements including spatone and b12 blood results...holy moly no wonder i feel like poop SERUM B12 AND FOLATE Serum vitamin B12 level 745 ng/L [180.0 - 915.0] Serum folate level 6.5 ug/L [3.1 - 19.9] SERUM FOLATE COMMENT Please note new reference range due to restandardisation to World
mandy72
in
Thyroid UK
4 years ago
Advice needed please
Hi, I have been experiencing various problems over the years but the last couple of months I seem to have crashed. I tested positive for Parietal cell and Intrinsic Factor antibodies about 5 years ago but I didn't think too much about it at the time and my GP dismissed it as not important. I suffer from
Hi, I have been experiencing various problems over the years but the last couple of months I seem to have crashed. I tested positive for Parietal cell and Intrinsic Factor antibodies about 5 years ago but I didn't think too much about it at the time and my GP dismissed it as not important. I suffer from
Fallingapart0627
in
Pernicious Anaemia Society
4 years ago
Tinnitus
It’s been a lot time since I posted anything . I have been feeling really sick for a long time thought it was my medication, Thyroxine, changed to Eltroxin, felt worse. Got high blood pressure, and bad tinnitus, tried every BP medication there is , arbs, ace inhibitors, vasilators, beta blockers .,
It’s been a lot time since I posted anything . I have been feeling really sick for a long time thought it was my medication, Thyroxine, changed to Eltroxin, felt worse. Got high blood pressure, and bad tinnitus, tried every BP medication there is , arbs, ace inhibitors, vasilators, beta blockers .,
Margjeans
in
Thyroid UK
5 years ago
B12 Deficient Newby - More Questions
So I recently posted about getting the intrinsic factor test and how long to stop injections before taking it. So had the test, and of course it has come back negative. Doctor originally was going to stop the injections, but after I protested and showed him current documentation he relented and is allowing
So I recently posted about getting the intrinsic factor test and how long to stop injections before taking it. So had the test, and of course it has come back negative. Doctor originally was going to stop the injections, but after I protested and showed him current documentation he relented and is allowing
Wolf79
in
Pernicious Anaemia Society
4 years ago
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