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Intrinsic factor test and diagnosis
Hi guys, I'm new to the forum. Basically I've had all of the standard pernicious anaemia symptoms for about 2.5 years now, but not yet 'officially' diagnosed. I had been diagnosed with chronic fatigue syndrome, but rest didn't seem to help. 3 weeks or so ago I discovered pernicious anaemia and took
Hi guys, I'm new to the forum. Basically I've had all of the standard pernicious anaemia symptoms for about 2.5 years now, but not yet 'officially' diagnosed. I had been diagnosed with chronic fatigue syndrome, but rest didn't seem to help. 3 weeks or so ago I discovered pernicious anaemia and took
JSD100
in
Pernicious Anaemia Society
3 years ago
Undiagnosed chronic pain
Hi all my names Chloe and I'm new here and was wondering if anyone had any tips on coping with undiagnosed chronic pain. When I was younger (primary school age) I started to develop pretty much every symptom possible of Juvenile Idiopathic Arthritis I had the swellings, aching, everything in my knees
Hi all my names Chloe and I'm new here and was wondering if anyone had any tips on coping with undiagnosed chronic pain. When I was younger (primary school age) I started to develop pretty much every symptom possible of Juvenile Idiopathic Arthritis I had the swellings, aching, everything in my knees
CaSRobbins
in
Pain Concern
3 years ago
INTRINSIC FACTOR ANTIBODIES
Hi all, if you have tested negative to these several times does that mean they dont need testing again , or could they change? Any advice greatly appreciated please. G
Hi all, if you have tested negative to these several times does that mean they dont need testing again , or could they change? Any advice greatly appreciated please. G
Gillybean1
in
Pernicious Anaemia Society
3 years ago
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Very high anti-CCP results
Hello, I hope you are all well. I want to ask for my Father. He was diagnosed with RA in Dec 2020. At that point his anti-CCP was 256. His ESR and rheumatoid factor were also very high. He has been injecting Metoject for 3 months now, first 12.5mg, now 10mg. His ESR and rheumatoid factor have now
Hello, I hope you are all well. I want to ask for my Father. He was diagnosed with RA in Dec 2020. At that point his anti-CCP was 256. His ESR and rheumatoid factor were also very high. He has been injecting Metoject for 3 months now, first 12.5mg, now 10mg. His ESR and rheumatoid factor have now
temirzhan
in
NRAS
3 years ago
Negative ANA
Hi! I was recently diagnosed with PA because I have an antibody to parietal cell but I don’t have an antibody to intrinsic factor. I was just tested for a full ANA and it was negative, does this mean I don’t have pernicious anemia? I have so many of the pernicious anemia symptoms.
Hi! I was recently diagnosed with PA because I have an antibody to parietal cell but I don’t have an antibody to intrinsic factor. I was just tested for a full ANA and it was negative, does this mean I don’t have pernicious anemia? I have so many of the pernicious anemia symptoms.
Spidey313
in
Pernicious Anaemia Society
3 years ago
Odd results after supplements?
Would anyone be able to comment on why despite supplementing for two month my B12 Active result has gone down? Feb results 91.7 (37.5-187.5) March result 51.5 (37.5-187.5) Daily tablet of methylcobalamin 1000mcg My latest vitamin d has also gone down despite having a spray daily 3000 + k2. Sept 2020
Would anyone be able to comment on why despite supplementing for two month my B12 Active result has gone down? Feb results 91.7 (37.5-187.5) March result 51.5 (37.5-187.5) Daily tablet of methylcobalamin 1000mcg My latest vitamin d has also gone down despite having a spray daily 3000 + k2. Sept 2020
Pinky3
in
Pernicious Anaemia Society
3 years ago
Intrinsic Factor Test
If a person is on daily or EOD B12 injections, could that affect an intrinsic factor test? Meaning, could that result in a false positive?
If a person is on daily or EOD B12 injections, could that affect an intrinsic factor test? Meaning, could that result in a false positive?
NJPoet
in
Pernicious Anaemia Society
3 years ago
Not getting very far with Doc intrinsic factor
Spoke to doc this morning about all the symptoms I have been having over past 8 months Won’t check my intrinsic factor Cos he says it’s only done when the b12 comes back low .Ha. He says that 2 monthly jabs are only for those with pernicious anaemia .But I read out all the symptoms and when I had them
Spoke to doc this morning about all the symptoms I have been having over past 8 months Won’t check my intrinsic factor Cos he says it’s only done when the b12 comes back low .Ha. He says that 2 monthly jabs are only for those with pernicious anaemia .But I read out all the symptoms and when I had them
may61
in
Pernicious Anaemia Society
3 years ago
Trebuie anticoagulant
Hi! after a 24-hour holter, thousands of ventricular extrasystoles were detected. Because they are symptomatic (I have strong palpitations at night) I was prescribed beta-blockers and ACE inhibitors. Do I also need anticoagulants? I have a pacemaker, I had bradycardia, my heart is healthy, the mitral
Hi! after a 24-hour holter, thousands of ventricular extrasystoles were detected. Because they are symptomatic (I have strong palpitations at night) I was prescribed beta-blockers and ACE inhibitors. Do I also need anticoagulants? I have a pacemaker, I had bradycardia, my heart is healthy, the mitral
Pearipile-55
in
AF Association
3 years ago
FET...it begins all over again!
Hi girls! Wow it’s been ages since I’ve put anything on here or since I’ve even last felt comfortable discussing my IVF/ICSE journey. So in the last 3 years, I’ve gone through a fresh cycle and a frozen cycle, both of which were unsuccessful. Then last year we went through a new fresh cycle but I had
Hi girls! Wow it’s been ages since I’ve put anything on here or since I’ve even last felt comfortable discussing my IVF/ICSE journey. So in the last 3 years, I’ve gone through a fresh cycle and a frozen cycle, both of which were unsuccessful. Then last year we went through a new fresh cycle but I had
Sophie249
in
Fertility Network UK
3 years ago
B12 is 118, should I be having injections?
Hi, symptoms are: Severe Fatigue Muscle weakness Sleepiness, excessive yawning Memory and cognitive problems, mental slowness Blurred vision Bumping into things/ balance Kyleena coil fit 2 years ago but bleeding daily for past 2 mths I cannot function or do my job I had various bloods tested on Monday
Hi, symptoms are: Severe Fatigue Muscle weakness Sleepiness, excessive yawning Memory and cognitive problems, mental slowness Blurred vision Bumping into things/ balance Kyleena coil fit 2 years ago but bleeding daily for past 2 mths I cannot function or do my job I had various bloods tested on Monday
B12-118
in
Pernicious Anaemia Society
3 years ago
Intrinsic Factor Pills + B12 + Folic acid combination tablets for PA. Does it work?
Hi, I got diagnosed with PA recently. I am in monthly shots for now after the loading doses. While browsing through, I saw the B12 tablets combined with Folic acid and Intrinsic factor. Has anyone tried these combination and effective for PA on absorption? Are there any side effects if it works? Does
Hi, I got diagnosed with PA recently. I am in monthly shots for now after the loading doses. While browsing through, I saw the B12 tablets combined with Folic acid and Intrinsic factor. Has anyone tried these combination and effective for PA on absorption? Are there any side effects if it works? Does
Vinpkd
in
Pernicious Anaemia Society
3 years ago
Free ebook of 300 pages:"Parkinson's here and now. 27 years searching for a cure for Parkinson's disease (1994-2021)."
This coming Monday (if everything goes as planned) I will publish on my blog "Parkinson's here and now" the link to a free book of about 250-300 pages and in printable pdf format, which collects the most interesting of the book I published in 2015 (now translated into English) as a tribute to my father
This coming Monday (if everything goes as planned) I will publish on my blog "Parkinson's here and now" the link to a free book of about 250-300 pages and in printable pdf format, which collects the most interesting of the book I published in 2015 (now translated into English) as a tribute to my father
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Intrinsic factor
Had low b12 in 2014 seems to run in family,have had injections every 3 months since ,have not been diagnosed with PA .But have always been ok after my injection for three weeks then it down hill and have to take sublingualsalways take my folic acid Last year in middle of the 30 weeks that I never had
Had low b12 in 2014 seems to run in family,have had injections every 3 months since ,have not been diagnosed with PA .But have always been ok after my injection for three weeks then it down hill and have to take sublingualsalways take my folic acid Last year in middle of the 30 weeks that I never had
may61
in
Pernicious Anaemia Society
3 years ago
High Intrinsic Factor Result?
Question: trying to help my sister understand these results. What does a high intrinsic factor Abs result mean?
Question: trying to help my sister understand these results. What does a high intrinsic factor Abs result mean?
NJPoet
in
Pernicious Anaemia Society
3 years ago
Should You Get the COVID-19 Vaccine If You Have a History of Allergic Reactions to Infused or Injectable Medications?
Here’s what you need to know about the current guidance and potential risks of getting a COVID-19 vaccine if you’ve had allergic reactions to infused or injectable medication. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Biologic Infusions
Here’s what you need to know about the current guidance and potential risks of getting a COVID-19 vaccine if you’ve had allergic reactions to infused or injectable medication. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Biologic Infusions
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
So many symptoms, does it sound like b12 😣
My last b12 bloods were 314 pretty much exactly 2 years ago. I've had so many scans, tests for what started out as extreme fatigue and frequent urination. Never had a solid diagnosis. Around 2 months ago the fatigue got worse and I noticed weakness/numbness tingling in my legs in a morning. I've not
My last b12 bloods were 314 pretty much exactly 2 years ago. I've had so many scans, tests for what started out as extreme fatigue and frequent urination. Never had a solid diagnosis. Around 2 months ago the fatigue got worse and I noticed weakness/numbness tingling in my legs in a morning. I've not
Kizzik
in
Pernicious Anaemia Society
3 years ago
Doctor not reinstating b12 injections
So been to doctors today to discuss my recent blood test and intrinsic factor antibody (came back negative)she’s happy with my b12 level of 532 so is not willing to reinstate my injections,she just told me to continue with my oral b12 supplement and have a blood test in a months time. Said to monitor
So been to doctors today to discuss my recent blood test and intrinsic factor antibody (came back negative)she’s happy with my b12 level of 532 so is not willing to reinstate my injections,she just told me to continue with my oral b12 supplement and have a blood test in a months time. Said to monitor
Dragon_mum
in
Pernicious Anaemia Society
3 years ago
Vaccine
Feeling apprehensive now about having the jab when I get the notice. I had covid back in march/,April. Reading some of your reactions. I have the flu jab each year with no symptoms apart from sore arms. Fingers cross the vaccine will be the same. I was told none have a live thing in? I'm also not allowed
Feeling apprehensive now about having the jab when I get the notice. I had covid back in march/,April. Reading some of your reactions. I have the flu jab each year with no symptoms apart from sore arms. Fingers cross the vaccine will be the same. I was told none have a live thing in? I'm also not allowed
Bull5160
in
LUPUS UK
3 years ago
High blood levels of B12
Hi everyone, Not new here but just a little background - I was diagnosed with B12 deficiency back in 2014, I managed to produce enough evidence to satisfy my GP that I could not manage on 2 - 3 monthly injections and so I am able (currently) to access enough B12 for my needs, but this could soon change
Hi everyone, Not new here but just a little background - I was diagnosed with B12 deficiency back in 2014, I managed to produce enough evidence to satisfy my GP that I could not manage on 2 - 3 monthly injections and so I am able (currently) to access enough B12 for my needs, but this could soon change
Wierdorwhat
in
Pernicious Anaemia Society
3 years ago
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