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Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
9 months ago
change of meds
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
mitty
in
LUPUS UK
7 months ago
Auto Immune Hepatitis
hi I am new here diagnosis in July Would love to connect with people with this disease Hear stories of ups & downs I need so much information and have lots of questions Thank you
hi I am new here diagnosis in July Would love to connect with people with this disease Hear stories of ups & downs I need so much information and have lots of questions Thank you
DebbyJ1
in
British Liver Trust
9 months ago
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PIP when on oxygen 24/7
What a shocking past week! I've had COPD ( emphysema ) for several years but over the course of the last few weeks I've experienced a rapid decline in my breathing to the degree I could only walk a few metres before being totally out of breath. On Wednesday I attended a routine appointment at Sevenoaks
What a shocking past week! I've had COPD ( emphysema ) for several years but over the course of the last few weeks I've experienced a rapid decline in my breathing to the degree I could only walk a few metres before being totally out of breath. On Wednesday I attended a routine appointment at Sevenoaks
Nickcv
in
Lung Conditions Community Forum
6 months ago
Could I have portal hypertension
Looking for any advice please. Not sure if I need to seek a second opinion from another Gastroenterologist. I had symptoms that could point to Cirrhosis or stages leading up to that. URQ pain, fatigue, malaise, GI issues with poor absorption (streatosis looking stools) and bloating, weight loss, shortness
Looking for any advice please. Not sure if I need to seek a second opinion from another Gastroenterologist. I had symptoms that could point to Cirrhosis or stages leading up to that. URQ pain, fatigue, malaise, GI issues with poor absorption (streatosis looking stools) and bloating, weight loss, shortness
Shoe2
in
British Liver Trust
9 months ago
Ferritin levels
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
Suesue246
in
Pernicious Anaemia Society
7 months ago
UKIVAS Vasculitis Educational Course - Manchester November 2023
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
Suzi70
Administrator
in
Vasculitis UK
6 months ago
New PAS blog posts
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Sleepybunny
in
Pernicious Anaemia Society
7 months ago
Sources and experiences of LDN
Hi again, Just one more sourcing question - does anyone have any recommendations of UK sources of low dose naltrexone? I would also love to hear of anyone's experiences of taking LDN. I have hashimoto's underactive thyroid and am also trying to conceive and have read that it could be v beneficial
Hi again, Just one more sourcing question - does anyone have any recommendations of UK sources of low dose naltrexone? I would also love to hear of anyone's experiences of taking LDN. I have hashimoto's underactive thyroid and am also trying to conceive and have read that it could be v beneficial
Becsf
in
Thyroid UK
7 months ago
Post ablation (1 week) and back in AFib. How often is this likely to happen over next few weeks?
Have had PAF for a few years and this year episodes became lengthier and more frequent, the latest lasting 4 weeks. Had a Cryo-ablation last Tuesday at Lancashire Cardiac Centre and was ok for a week, albeit with a few spells of ectopic beats and a very short run of AF (30-40 seconds only). Went on
Have had PAF for a few years and this year episodes became lengthier and more frequent, the latest lasting 4 weeks. Had a Cryo-ablation last Tuesday at Lancashire Cardiac Centre and was ok for a week, albeit with a few spells of ectopic beats and a very short run of AF (30-40 seconds only). Went on
Sorre1
in
AF Association
6 months ago
Newly diagnosed PAF by GP
Hi everyone, i was diagnosed with PAF by GP after 24hr holter monitor and referred to cardiology in July. Still waiting for cardio appt but have had s 72hr monitor in the meantime. No idea about results of that yet. My question is how do you all tell what is an Afib episode and what is eptopics or other
Hi everyone, i was diagnosed with PAF by GP after 24hr holter monitor and referred to cardiology in July. Still waiting for cardio appt but have had s 72hr monitor in the meantime. No idea about results of that yet. My question is how do you all tell what is an Afib episode and what is eptopics or other
Tropicaltaurus
in
AF Association
6 months ago
Cardiolipin antibodies
Hi guys, I’m very new to this but wondering if anyone could help me out with info on Cardiolipin antibodies levels, I have just had a result of 45 and awaiting a doctors appointment. Having been ill for years with systemic symptoms, blocked blood vessels, small bowel resection,, Addisons disease with
Hi guys, I’m very new to this but wondering if anyone could help me out with info on Cardiolipin antibodies levels, I have just had a result of 45 and awaiting a doctors appointment. Having been ill for years with systemic symptoms, blocked blood vessels, small bowel resection,, Addisons disease with
BenBiscuit
in
Hughes Syndrome APS Forum
9 months ago
Swollen knees
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
Bailybiscuit
in
NRAS
7 months ago
declining psa #6
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Nfler
in
Advanced Prostate Cancer
9 months ago
Help with results please
Hi I wonder if anyone can help? I have just received these Blood Test results from my GP. My rheumatologist asked my doctor to do the Coeliac panel tests. The doctor's receptionist states that the nurse has checked and it is negative. I have continued to have multiple symptoms over the years, which
Hi I wonder if anyone can help? I have just received these Blood Test results from my GP. My rheumatologist asked my doctor to do the Coeliac panel tests. The doctor's receptionist states that the nurse has checked and it is negative. I have continued to have multiple symptoms over the years, which
lownook
in
Gluten Free Guerrillas
9 months ago
York Lupus Group Coffee and Chat meeting - 9th December at 11.30
Come join the York Lupus Group for our next Coffee and Chat meeting on the 9th December, 11.30 until 1.30 at Sledmere House Cafe, Sledmere, Driffield, Yorkshire, YO25 3XG. This is a great opportunity to meet others with lupus or associated conditions, friends and family also welcome! For more information
Come join the York Lupus Group for our next Coffee and Chat meeting on the 9th December, 11.30 until 1.30 at Sledmere House Cafe, Sledmere, Driffield, Yorkshire, YO25 3XG. This is a great opportunity to meet others with lupus or associated conditions, friends and family also welcome! For more information
michaellasmith
Administrator
in
LUPUS UK
7 months ago
Question on Varicies
As most here know Margaret is no longer with us. And I am still digging more and more to understand what happened. Reading through her reports back in Oct of 2020, she had a fatty mass compressing the IVC and Portal. Which led to development of Varices. By December 2020 the fatty masses had vanished
As most here know Margaret is no longer with us. And I am still digging more and more to understand what happened. Reading through her reports back in Oct of 2020, she had a fatty mass compressing the IVC and Portal. Which led to development of Varices. By December 2020 the fatty masses had vanished
Wolivere
in
British Liver Trust
9 months ago
Polymyalgia and Rheumatoid arthritis
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
Deemar
in
PMRGCAuk
7 months ago
Acute on Chronic Steroids
brother has had cirrhosis for last 3 years. Still drinking. Admitted to hospital Friday jaundice. Confusion HE I believe! Now on steroids. Has anyone any experience of this. Know that they are only given to certain people! Do you think this is now certain decline? Consultant said too early to tell
brother has had cirrhosis for last 3 years. Still drinking. Admitted to hospital Friday jaundice. Confusion HE I believe! Now on steroids. Has anyone any experience of this. Know that they are only given to certain people! Do you think this is now certain decline? Consultant said too early to tell
DQ33
in
British Liver Trust
9 months ago
Post Ablation Hypertension
I'm a male, age 88 who had persistent AF of unknown cause for 3 years, at the time on Dyazide and 10 mg Bystolic for mild essential hypertension. I had a successful RF ablation in May 2023, after which Dyazide was replaced by 20 mg Lasix, and the Bystolic was increased to 30 mg. Immediately after the
I'm a male, age 88 who had persistent AF of unknown cause for 3 years, at the time on Dyazide and 10 mg Bystolic for mild essential hypertension. I had a successful RF ablation in May 2023, after which Dyazide was replaced by 20 mg Lasix, and the Bystolic was increased to 30 mg. Immediately after the
RevDoc
in
AF Association
6 months ago
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