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combo Jakafi and Pegasys
i am just stated the combo treatment of Jakafi 20mg twice perday + Pegasys 135mcg weekly for PV and it success to reduce my PLT from 1.2mi to 300k; HCT from 47 to 41,3; WBC from 27 to 16 and HGB from 18 to 14. does anyone with same treatment can share their experience with this combo...? thanks
i am just stated the combo treatment of Jakafi 20mg twice perday + Pegasys 135mcg weekly for PV and it success to reduce my PLT from 1.2mi to 300k; HCT from 47 to 41,3; WBC from 27 to 16 and HGB from 18 to 14. does anyone with same treatment can share their experience with this combo...? thanks
william-Indo
in
MPN Voice
2 years ago
My eyesight problems
Hi everybody, I have normal pressure glaucoma. I use Monoprost drops in my right eye. I have had a trab in my left eye since January 2019. My pressures are fairly stable though the damage to my left eye is getting worse. I've always been shortsighted and obviously wear prescription specs. The last
Hi everybody, I have normal pressure glaucoma. I use Monoprost drops in my right eye. I have had a trab in my left eye since January 2019. My pressures are fairly stable though the damage to my left eye is getting worse. I've always been shortsighted and obviously wear prescription specs. The last
Quiet_Lin
in
Glaucoma UK
2 years ago
CHEC community health eye clinics, poor service?
My NHS hospital appointment was cancelled and without explanation I was referred to the above service recently commissioned by the NHS to reduce the NHS load of eye patients. Communication with them is almost impossible and my urgent diagnosis for glaucoma (imperative to enable treatment to begin) was
My NHS hospital appointment was cancelled and without explanation I was referred to the above service recently commissioned by the NHS to reduce the NHS load of eye patients. Communication with them is almost impossible and my urgent diagnosis for glaucoma (imperative to enable treatment to begin) was
tincress
in
Glaucoma UK
2 years ago
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Peripheral Neuropathy PN Activist
PN at Mayo Clinic offers better care and definition - see Peripheral Neuropathy. John Hopkins Medicine https://www.hopkinsmedicine.org/health/conditions-and-diseases/peripheral-neuropathy Peripheral Neuropathy | Johns Hopkins Medicinereports “Usually a peripheral neuropathy can’t be cured, but you
PN at Mayo Clinic offers better care and definition - see Peripheral Neuropathy. John Hopkins Medicine https://www.hopkinsmedicine.org/health/conditions-and-diseases/peripheral-neuropathy Peripheral Neuropathy | Johns Hopkins Medicinereports “Usually a peripheral neuropathy can’t be cured, but you
CIPN
in
Neuropathy Support
2 years ago
any advice please
I’ve had these oct scans done yearly and no one else picked up on this even though I complained of
pain
in the
eye
.,that’s been 5 years now since the original head trauma..
I’ve had these oct scans done yearly and no one else picked up on this even though I complained of
pain
in the
eye
.,that’s been 5 years now since the original head trauma..
Thrones12
in
Pernicious Anaemia Society
1 year ago
Struggling seriously with no medication. I therefore write with bith tears and pain.
Hello everyone. I stumbled onto this platform. I was diagnosed with Glaucoma about four years ago. I was placed on an eyedrop—Cusimolo and a drop Optic nerve.W was aorking and afforded them. But, I went back to school for advanced study—MSc.it has not been easy but I am going forward. And, presently
Hello everyone. I stumbled onto this platform. I was diagnosed with Glaucoma about four years ago. I was placed on an eyedrop—Cusimolo and a drop Optic nerve.W was aorking and afforded them. But, I went back to school for advanced study—MSc.it has not been easy but I am going forward. And, presently
CindyKatherine
in
Glaucoma UK
2 years ago
help what painkillers best for flares and fibro
spent yesterday with the world going on and me out of it tramadol seems to be losing effect started antidepressant not sure if its doing anything any ideas
spent yesterday with the world going on and me out of it tramadol seems to be losing effect started antidepressant not sure if its doing anything any ideas
pauluk60
in
NRAS
2 years ago
sjorgen testing
Hi, I have a question for those diagnosed with sjorgens. What tests do they use to diagnose you? My eyes have been dry for some time. I have Hashimotos and I kinda always blamed it on that, but I think dry eye is more related to graves. I've always had trouble with sunlight sensitivity and Rosacea
Hi, I have a question for those diagnosed with sjorgens. What tests do they use to diagnose you? My eyes have been dry for some time. I have Hashimotos and I kinda always blamed it on that, but I think dry eye is more related to graves. I've always had trouble with sunlight sensitivity and Rosacea
Zelda5
in
PBC Foundation
2 years ago
Is this a flare
Hi all thought I’d update you on my post is this a flare!!!! As no painkillers helped just wondered if I was having a flare but thank goodness no I’m not. I’ve had an MRI and found a disc pressing on a nerve but requires no surgery at the moment. however my ESR was raised as was my CRP. Have been
Hi all thought I’d update you on my post is this a flare!!!! As no painkillers helped just wondered if I was having a flare but thank goodness no I’m not. I’ve had an MRI and found a disc pressing on a nerve but requires no surgery at the moment. however my ESR was raised as was my CRP. Have been
Reddev
in
PMRGCAuk
2 years ago
National Eye Exam Month and Diabetes
August is National Eye Exam Month.
If you have
Diabetes and/or other types of health conditions, such as Glaucoma and/or Diabetic Retinopathy, you may be asked by your eye doctor to schedule follow up appointments more than once a year.
Here’s some information about
National Eye Exam
August is National Eye Exam Month.
If you have
Diabetes and/or other types of health conditions, such as Glaucoma and/or Diabetic Retinopathy, you may be asked by your eye doctor to schedule follow up appointments more than once a year.
Here’s some information about
National Eye Exam
Activity2004
Administrator
in
Diabetes India
2 years ago
I had the worst pain of my life last night. I couldn’t get out of bed for 1.5 hrs!
I come on here sometimes to have a good moan. I’ve had RA since i was 21. (30 yrs). Plus Iritis & Glaucoma. I’ve had an awful time the last month. First i had a very painful flare of my Iritis. Deep throbbing, burning, aching in my right eye, very bad vision. Had to go to Moorfields a&e. Went at about
I come on here sometimes to have a good moan. I’ve had RA since i was 21. (30 yrs). Plus Iritis & Glaucoma. I’ve had an awful time the last month. First i had a very painful flare of my Iritis. Deep throbbing, burning, aching in my right eye, very bad vision. Had to go to Moorfields a&e. Went at about
Vixen2
in
NRAS
2 years ago
tooth extraction
yesterday I went to the emergency dentist-I was referred there by my city main emergency dentist. Anyway it was because of an away night and day off tooth pain I had I just could not Cope with. The dentist said what was wrong and told me the best thing was to take it out. I agreed and it was obviously
yesterday I went to the emergency dentist-I was referred there by my city main emergency dentist. Anyway it was because of an away night and day off tooth pain I had I just could not Cope with. The dentist said what was wrong and told me the best thing was to take it out. I agreed and it was obviously
Junny123
in
Pain Concern
2 years ago
RLS what works for me
After bilateral hip replacement in 2015, I developed RLS in both legs, seem to hit at once when it attacks. Mainly at night of course or during meetings or when I'm still too long. I take a plant product called kratom. It might not be legal in all states but is in mine (for now). I learned about it
After bilateral hip replacement in 2015, I developed RLS in both legs, seem to hit at once when it attacks. Mainly at night of course or during meetings or when I'm still too long. I take a plant product called kratom. It might not be legal in all states but is in mine (for now). I learned about it
restle
in
Restless Legs Syndrome
2 years ago
GCA at young age?
pain
.
pain
.
Capybara95
in
PMRGCAuk
2 years ago
Medical cannabis
Hi everyone you might find interesting this article regarding the benefits of medical cannabis https://www.thecourier.co.uk/fp/lifestyle/health-wellbeing/3561418/angus-woman-benefits-of-medical-cannabis/ unfortunately it seems the article is now only for subscribers but basically talks about a woman
Hi everyone you might find interesting this article regarding the benefits of medical cannabis https://www.thecourier.co.uk/fp/lifestyle/health-wellbeing/3561418/angus-woman-benefits-of-medical-cannabis/ unfortunately it seems the article is now only for subscribers but basically talks about a woman
JoseT
in
Fibromyalgia Action UK
2 years ago
I’m currently on Latanoprost until I see my consultant
I’m currently on Latanaprost 1 drop both eyes per night until I see my consultant next Thursday. I’m newly diagnosed and been on them a week and a half. Will they keep the pressures reduced so as to not cause any more damage until I can get surgery? Anyone know how long it takes latanaprost to reduce
I’m currently on Latanaprost 1 drop both eyes per night until I see my consultant next Thursday. I’m newly diagnosed and been on them a week and a half. Will they keep the pressures reduced so as to not cause any more damage until I can get surgery? Anyone know how long it takes latanaprost to reduce
ChrisNorthEast
in
Glaucoma UK
2 years ago
New to pmr, advice please
When I was first diagnosed with pmr, I was put on 15mg pred, I felt better so I tried to taper down to 10mg ….big mistake! The pmr came back with a vengeance and my doctor put me on 20mg pred. After 3 weeks, I am still suffering even worse, it feels like I’m having the inside of my body stretched and
When I was first diagnosed with pmr, I was put on 15mg pred, I felt better so I tried to taper down to 10mg ….big mistake! The pmr came back with a vengeance and my doctor put me on 20mg pred. After 3 weeks, I am still suffering even worse, it feels like I’m having the inside of my body stretched and
Sueloobyloo
in
PMRGCAuk
2 years ago
Avastin Sore Mouth
Hi there, my mum has had 2 infusions of Avastin and although seems to be tolerating it well she has developed a really sore mouth and eating is really painful. Can anyone recommend anything to help and does this settle down as the treatment progresses? Thanks in advance for any advice. Ashleigh x
Hi there, my mum has had 2 infusions of Avastin and although seems to be tolerating it well she has developed a really sore mouth and eating is really painful. Can anyone recommend anything to help and does this settle down as the treatment progresses? Thanks in advance for any advice. Ashleigh x
Pitchperfec
in
My Ovacome
2 years ago
coping
does anyone else on here think glaucoma feels like a death sentence? How do you cope? do many ppl mange to stop vision loss in its tracks?
does anyone else on here think glaucoma feels like a death sentence? How do you cope? do many ppl mange to stop vision loss in its tracks?
ChrisNorthEast
in
Glaucoma UK
2 years ago
HCQ: do we need to pay more attention to serious ocular side effects!👆
Many lupus sufferers are prescribed Hydroxychloroquine to manage their lupus and a common side effect most often reported is gastrointestinal disturbances eg stomach churning, pain, wind, digestive problems etc BUT prescribers never seem to liaise with ophthalmologists to establish baseline observations
Many lupus sufferers are prescribed Hydroxychloroquine to manage their lupus and a common side effect most often reported is gastrointestinal disturbances eg stomach churning, pain, wind, digestive problems etc BUT prescribers never seem to liaise with ophthalmologists to establish baseline observations
Betty909090
in
LUPUS UK
2 years ago
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