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COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
Starting to struggle
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Penelopepitstoq1uk
in
NRAS
1 year ago
A very special interview with Dr Patrick Harrington regarding Covid vaccines and MPN patients
In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed
In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed
Mazcd
MPNVoice
in
MPN Voice
8 months ago
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First Post
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Ryshta
in
NRAS
8 months ago
eye problem
Hi all, any advice as it being Saturday. Yesterday, right eye got a swelling at the side of eyebrow, not painful just hurt to touch. By last night small lump which then became very itchy developed. Thought it may be a bite. Woke up this am. Small lump or spot still there, still itchy but eyelid all puffy
Hi all, any advice as it being Saturday. Yesterday, right eye got a swelling at the side of eyebrow, not painful just hurt to touch. By last night small lump which then became very itchy developed. Thought it may be a bite. Woke up this am. Small lump or spot still there, still itchy but eyelid all puffy
lennysmummy
in
PMRGCAuk
1 year ago
Scared my AFib will come back due to very nasty cough.
i had an Ablation in September and have developed this horrendous cough, that’s causing me to nearly throw up. My AFib started in 2014, when I had a nasty coughing virus, so I’m scared this coughing virus will bring it back. This one seems much worse. Has anyone else had this horrible cough. ? Any tips
i had an Ablation in September and have developed this horrendous cough, that’s causing me to nearly throw up. My AFib started in 2014, when I had a nasty coughing virus, so I’m scared this coughing virus will bring it back. This one seems much worse. Has anyone else had this horrible cough. ? Any tips
Sixtychick
in
AF Association
4 months ago
Seeing an MPN Specialist tomorrow!
I have an appointment at Stanford with an MPN Specialist tomorrow. Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of Pegasys once a week. We are in a transitional period right now and I will eventually just be taking Pegasys and aspirin. Took my 4th dose
I have an appointment at Stanford with an MPN Specialist tomorrow. Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of Pegasys once a week. We are in a transitional period right now and I will eventually just be taking Pegasys and aspirin. Took my 4th dose
Zeppelin11
in
MPN Voice
1 year ago
Flu and Covid vaccine
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
kali9
in
LUPUS UK
7 months ago
Drew Weissman, Katalin Karikó win Nobel in medicine for enabling mRNA COVID vaccines
[i]
A screen at the Karolinska Institute shows this year's laureates Katalin Kariko of Hungary (L) and Drew Weissman of the US during the announcement of the winners of the 2023 Nobel Prize in Physiology or Medicine at the Karolinska Institute in Stockholm on October 2, 2023.(Jonathan Nackstrand/AFP
[i]
A screen at the Karolinska Institute shows this year's laureates Katalin Kariko of Hungary (L) and Drew Weissman of the US during the announcement of the winners of the 2023 Nobel Prize in Physiology or Medicine at the Karolinska Institute in Stockholm on October 2, 2023.(Jonathan Nackstrand/AFP
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
Seem to be stuck at 7.5mg
Hello my friends , I have been stuck at this dose for approaching 3 years . Sometimes going a little higher on sick days and throughout extremely stressful times. I’ve lost my Mum this year after years of caring , grief is a dreadful experience, the price we pay for love eh ! I only have to drop
Hello my friends , I have been stuck at this dose for approaching 3 years . Sometimes going a little higher on sick days and throughout extremely stressful times. I’ve lost my Mum this year after years of caring , grief is a dreadful experience, the price we pay for love eh ! I only have to drop
Greensleeves
in
PMRGCAuk
8 months ago
Hanging on
Remarkably mum is still hanging on through sheer grit we think.She's very weak and frail, had another couple of falls. Been in hospital with pneumonia before xmas and had pneumonia again 2 weeks ago. The care home are great but the frustration is the loss of speech for over 2 years now, no way to communicate
Remarkably mum is still hanging on through sheer grit we think.She's very weak and frail, had another couple of falls. Been in hospital with pneumonia before xmas and had pneumonia again 2 weeks ago. The care home are great but the frustration is the loss of speech for over 2 years now, no way to communicate
MRSYafffle
in
PSP Association
4 months ago
Post Covid
Morning all ,hoping for advice plz. I had covid 6 weeks ago,it was very unpleasant. Worse still is now ive been left with vertigo. Im actually struggling more with this than the covid. My RA nurse also stopped my meds due to how poorly i was. So far no flare. Please has anyone else had vertigo and how
Morning all ,hoping for advice plz. I had covid 6 weeks ago,it was very unpleasant. Worse still is now ive been left with vertigo. Im actually struggling more with this than the covid. My RA nurse also stopped my meds due to how poorly i was. So far no flare. Please has anyone else had vertigo and how
Ninnin67
in
NRAS
8 months ago
Targinact
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
Quiltingmum
in
Restless Legs Syndrome
7 months ago
itch and bilirubin, long covid
1) since startin* urso I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage. Enzymes starting to come down but the gi doc says nothing gets added or changed until we see how I do after being on it for a
1) since startin* urso I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage. Enzymes starting to come down but the gi doc says nothing gets added or changed until we see how I do after being on it for a
Artsy123
in
PBCers Organization
8 months ago
Thoughts on Lignosus
Hello, I have just been in hospital for a week with a bad case of pneumonia, which came out of nowhere. I am only 44 and have no history of respiratory problems. The CT scan also showed mild bronchiectasis, which I am now finding out lots more about thanks to forums like this.I am now being bombarded
Hello, I have just been in hospital for a week with a bad case of pneumonia, which came out of nowhere. I am only 44 and have no history of respiratory problems. The CT scan also showed mild bronchiectasis, which I am now finding out lots more about thanks to forums like this.I am now being bombarded
PuzzlePuff
in
Lung Conditions Community Forum
4 months ago
Home now
Hi I would like to share what I've encountered the last 6 months and would love some feedback from anyone I fell ill back in late June 23 It seemed like a cold or flu coming on which turned into pneumonia in both lungs followed by a anti resistant bacterial infection baumanni that led to ards sepsis
Hi I would like to share what I've encountered the last 6 months and would love some feedback from anyone I fell ill back in late June 23 It seemed like a cold or flu coming on which turned into pneumonia in both lungs followed by a anti resistant bacterial infection baumanni that led to ards sepsis
Gl76
in
ICUsteps
4 months ago
mixing meds
if my husband and i have a cold--virus temperature we take lemsips xxx
if my husband and i have a cold--virus temperature we take lemsips xxx
Tut7iFru7i
in
AF Association
4 months ago
Taking Ibuprofen whilst on Cosopt eye drops
Good morning, I am suffering from bad lower backache, I wanted to check if I am ok to take Ibuporfen whilst taking Cosopt eye drops twice a day. I have looked online etc but cannot find anything. I have taken Paracetamol but it’s just not shifting. Many thanks
Good morning, I am suffering from bad lower backache, I wanted to check if I am ok to take Ibuporfen whilst taking Cosopt eye drops twice a day. I have looked online etc but cannot find anything. I have taken Paracetamol but it’s just not shifting. Many thanks
KBIOW
in
Glaucoma UK
10 months ago
Covid prior to FET with a positive outcome
Hope everyone is doing ok! I just wondered if anyone tested positive for covid the month before their FET and then had a positive result? I know it’s different for everyone but just making sure it has actually happened and if I go ahead with my FET next month I’m not starting on the back foot! (Well
Hope everyone is doing ok! I just wondered if anyone tested positive for covid the month before their FET and then had a positive result? I know it’s different for everyone but just making sure it has actually happened and if I go ahead with my FET next month I’m not starting on the back foot! (Well
Booda21
in
Fertility Network UK
8 months ago
immunosuppressants and Covid vaccine
I was told by my nephrologist that I should wait 3 months to get the current Covid vaccine until my immunosuppressive medication (rituximab) wears off because I won’t mount a good response if I get it now. Has anyone been told similar advice?
I was told by my nephrologist that I should wait 3 months to get the current Covid vaccine until my immunosuppressive medication (rituximab) wears off because I won’t mount a good response if I get it now. Has anyone been told similar advice?
MsAmyM
in
Kidney Disease
8 months ago
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