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Covid recovery and steroids
using the dsns method I had got down to 0.5 mg steroids in December but then I got covid. The first symptoms that I experienced were like a pmr flare. I increased the steroids to 5 mg . After two weeks of slow recovery I then went rapidly downhill and went to the doctor. I have asthma and was very breathless
using the dsns method I had got down to 0.5 mg steroids in December but then I got covid. The first symptoms that I experienced were like a pmr flare. I increased the steroids to 5 mg . After two weeks of slow recovery I then went rapidly downhill and went to the doctor. I have asthma and was very breathless
Yellow-dog
in
PMRGCAuk
4 months ago
Buprenorphine...help with prescription please!!
Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the pharmacy is saying something about it is for pain but since this new neurologist isn't a pain doctor, he said he can't prescribe it that way even though
Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the pharmacy is saying something about it is for pain but since this new neurologist isn't a pain doctor, he said he can't prescribe it that way even though
LanaCSR
in
Restless Legs Syndrome
2 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
5 months ago
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Update: x-ray shock 😲
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Kristi74
in
British Heart Foundation
5 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
7 months ago
one year olds vaccines
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Mozart150
in
NRAS
7 months ago
A suggestion that is working well, for me at least. AT least for now.
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
lauraflora
in
Restless Legs Syndrome
5 months ago
CHANGING Room CHAT...WEEK 3.... Taking time out...to...
Hello, people... ! Welcome to the changing room on this very cold and snowy day here in the Staffs Moorlands. I am a tad late today,,, whizzing around and here and there... and ready for a sit down! Take a seat and a warm or cold drink, and relax. A bit of an odd subject today and one I did not really
Hello, people... ! Welcome to the changing room on this very cold and snowy day here in the Staffs Moorlands. I am a tad late today,,, whizzing around and here and there... and ready for a sit down! Take a seat and a warm or cold drink, and relax. A bit of an odd subject today and one I did not really
Oldfloss
Administrator
in
Strength & Flex
5 months ago
stomach acid
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
fiftyone
in
Thyroid UK
7 months ago
New Diagnosis: Right Eye Normal Pressure Glaucoma.
Apparently two yrs ago at my previous eye test with photos of the back of my eye, a note was made that there seemed to be something going on with the optic nerve. I wasn't informed. At my last eye test the new optician reported the same and told me of the previous photo. She referred me to the hospital
Apparently two yrs ago at my previous eye test with photos of the back of my eye, a note was made that there seemed to be something going on with the optic nerve. I wasn't informed. At my last eye test the new optician reported the same and told me of the previous photo. She referred me to the hospital
Timesarrow
in
Glaucoma UK
10 months ago
Menopause and covid
Hi. I’m 59 & post menopause for years now but had Covid in December and still getting over it. I’ve noticed that I appear to have hormonal symptoms and a pattern. I’m weepy, get blocked, feel slight ovary pain etc. Was wondering if anyone else experienced this after having Covid? I had slight bleeds
Hi. I’m 59 & post menopause for years now but had Covid in December and still getting over it. I’ve noticed that I appear to have hormonal symptoms and a pattern. I’m weepy, get blocked, feel slight ovary pain etc. Was wondering if anyone else experienced this after having Covid? I had slight bleeds
Dham
in
Menopause and Perimenopause Support
5 months ago
COVID
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Guinness4822
in
CLL Support
5 months ago
Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
TiredTavern
in
Myalgic Encephalomyelitis Community
5 months ago
Covid vaccine decision time…
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
Samazeuilh2
in
AF Association
5 months ago
Ectropion eye
Has anyone any advice on ectropion eye? I have glaucoma and diplopia and have been advised to have an operation to tighten the bottom eyelid. This is on my good eye, so I am rather nervous about it.
Has anyone any advice on ectropion eye? I have glaucoma and diplopia and have been advised to have an operation to tighten the bottom eyelid. This is on my good eye, so I am rather nervous about it.
Tequilasunrise
in
Glaucoma UK
10 months ago
touched a nerve
Hi you wonderful people. I’m overwhelmed by your responses and support resulting from my recent post concerning doctors refusal to prescribe Buprenorphine and it’s moved me m ok re than I can say but I think it’s time to close it down now, I didn’t realise I had poked a hornets 🐝 nest and but realise
Hi you wonderful people. I’m overwhelmed by your responses and support resulting from my recent post concerning doctors refusal to prescribe Buprenorphine and it’s moved me m ok re than I can say but I think it’s time to close it down now, I didn’t realise I had poked a hornets 🐝 nest and but realise
HipHop1972
in
Restless Legs Syndrome
2 months ago
Living with Long Covid but now Tinnitus too!
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
santosha72
in
Tinnitus UK
5 months ago
upping steroids short term to boost recovery?
writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and is constantly trying to reduce pred. I recall reading in this forum a recommendation to temporarily increase dose when ill / having surgery etc
writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and is constantly trying to reduce pred. I recall reading in this forum a recommendation to temporarily increase dose when ill / having surgery etc
Gottarelax
in
PMRGCAuk
7 months ago
Oxygen levels after pneumonia
I was discharged from hospital one week ago having suffered a bout of pneumonia and a RSV I was treated in isolation. I know it will take weeks to recover, but I’m concerned about my oxygen level which hovers around 87-89. Any advice?
I was discharged from hospital one week ago having suffered a bout of pneumonia and a RSV I was treated in isolation. I know it will take weeks to recover, but I’m concerned about my oxygen level which hovers around 87-89. Any advice?
Nanny49
in
Lung Conditions Community Forum
7 months ago
Covid and prednisone
Hi, Covid finally got me 10 days ago for the first time and today I'm still testing positive and I'm still isolating from everyone else in the house. Prior to getting Covid, I've been on DL's 5 week taper with me being at the 5 week mark of 12 mg's that began two weeks ago Sunday. By Thursday of that
Hi, Covid finally got me 10 days ago for the first time and today I'm still testing positive and I'm still isolating from everyone else in the house. Prior to getting Covid, I've been on DL's 5 week taper with me being at the 5 week mark of 12 mg's that began two weeks ago Sunday. By Thursday of that
perceptual63
in
PMRGCAuk
5 months ago
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