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Webinar: What causes photopsia and photophobia in patients with Stargardt and what impact does it have on their lives?
Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist
Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist
Carol_MacularSociety
Partner
in
Macular Society
6 months ago
Vitamin B2 Deficiency Can Cause B6 Toxicity! PWP Are Commonly Deficient In B2.
Vitamin B6 recycling. Image credit https://www.frontiersin.org/files/Articles/276491/fneur-08-00333-HTML/image_m/fneur-08-00333-g002.jpg From: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2017.00333/full Vitamin B6 is a coenzyme required for over 100 different biochemical transformations
Vitamin B6 recycling. Image credit https://www.frontiersin.org/files/Articles/276491/fneur-08-00333-HTML/image_m/fneur-08-00333-g002.jpg From: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2017.00333/full Vitamin B6 is a coenzyme required for over 100 different biochemical transformations
park_bear
in
Cure Parkinson's
6 months ago
Achille, fingers and now eye Inflammation need hope it will stop.
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Shadow35
in
NRAS
6 months ago
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GCA and hair loss
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Groda
in
PMRGCAuk
6 months ago
Mouth dryness no saliva
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
KnitSewPurl
in
LUPUS UK
7 months ago
Please help 🙏 Im trying to find HOPE. Has anyone had successful surgical treatments following very long standing AF due to Cardiomyopathy.
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Yellowmango99
in
AF Association
7 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
7 months ago
Dry mouth
Thank you all for the sugg for coping with dry mouth and throat. Lots to choose from. I will try the sugar free chewing gum and Boots throat spray. I also have dry eyes and use a gel prescribed from the GP. I will ask to be checked for diabeties. All your help is much appreciated.
Thank you all for the sugg for coping with dry mouth and throat. Lots to choose from. I will try the sugar free chewing gum and Boots throat spray. I also have dry eyes and use a gel prescribed from the GP. I will ask to be checked for diabeties. All your help is much appreciated.
veggiefan70
in
Fibromyalgia Action UK
7 months ago
Webinar: Covid-19 and mental health
He will be discussing his research on the effects of degenerative
eye
conditions
on a patient’s mental health, looking in particular at the Covid-19 pandemic.
He will be discussing his research on the effects of degenerative
eye
conditions
on a patient’s mental health, looking in particular at the Covid-19 pandemic.
Carol_MacularSociety
Partner
in
Macular Society
9 months ago
Rainbows in the morning
Hello all, I have my next appointment with the consultant at the hospital on the 28th November. I have been on various eye drops, tablets since my iridotomy… 1st one in November 2022 and then an enlargement in March due the original holes sealing over. Since then my pressure has been on the high side
Hello all, I have my next appointment with the consultant at the hospital on the 28th November. I have been on various eye drops, tablets since my iridotomy… 1st one in November 2022 and then an enlargement in March due the original holes sealing over. Since then my pressure has been on the high side
KBIOW
in
Glaucoma UK
7 months ago
Bloodshot eyes
I've accidentally got shampoo in my dry eyes and made them bloodshot I'm really fatigued today and yesterday
I've accidentally got shampoo in my dry eyes and made them bloodshot I'm really fatigued today and yesterday
Oldbloke1
in
PBC Foundation
7 months ago
High ferritin and high TSH
I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks
I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks
Dylan555
in
Thyroid UK
7 months ago
Metastic clear cell...
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
carrotmunch5
in
My Ovacome
7 months ago
Prednisolene
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Portopetro
in
PMRGCAuk
7 months ago
Fluid at back of eye
Hello everyone, I have advanced glaucoma in both eyes only diagnosed six months ago after a very late eye test at the opticians, and use monopost once a day. My left eye is the weakest by far and I have lost some central vision. I have fluid at the back of this eye and was told it looked like diabetic
Hello everyone, I have advanced glaucoma in both eyes only diagnosed six months ago after a very late eye test at the opticians, and use monopost once a day. My left eye is the weakest by far and I have lost some central vision. I have fluid at the back of this eye and was told it looked like diabetic
Hidden
in
Glaucoma UK
7 months ago
when to call your neurologist
I recently started seeing a new neurologist this year. Since then I’ve had a flare up of eye problems. I have been having severe double vision and eye pain. I contacted my neurologist a few months ago and they (the Pa) ordered a 3 day round of steroids which didn’t help at all. I called them back and
I recently started seeing a new neurologist this year. Since then I’ve had a flare up of eye problems. I have been having severe double vision and eye pain. I contacted my neurologist a few months ago and they (the Pa) ordered a 3 day round of steroids which didn’t help at all. I called them back and
Littledeer
in
My MSAA Community
7 months ago
Blood test results.. 🤦♀️
Hi everyone 😠 Well this merry-go-round never seems to end, and with everything else going on with my health at the moment ( diagnosis of primary hyperparathyroidism in June 2023 and recently an inferior hemiretinal vein occlusion, with clots and inflammation in optic disc) the thyroid medication thing
Hi everyone 😠 Well this merry-go-round never seems to end, and with everything else going on with my health at the moment ( diagnosis of primary hyperparathyroidism in June 2023 and recently an inferior hemiretinal vein occlusion, with clots and inflammation in optic disc) the thyroid medication thing
birkie
in
Thyroid UK
7 months ago
Ptosis
Hello, This post is going to sound really trivial and vain, however I promise I am not at all in the slightest. I am 33 and have recently had double presserflo micro shunts fitted and we are 9 months on and my eyes still feel tender when I touch my eye lids. My consultants response was not to
Hello, This post is going to sound really trivial and vain, however I promise I am not at all in the slightest. I am 33 and have recently had double presserflo micro shunts fitted and we are 9 months on and my eyes still feel tender when I touch my eye lids. My consultants response was not to
Bec8891
in
Glaucoma UK
7 months ago
How to increase scarring after trabeculectomy
My husband (30m) had a trabeculectomy in his left eye in August 2023. It is now November 2023 and the IOP is only up to 7. His vision in that eye has never recovered (it does temporarily if he does something a little strenuous like walking up a steep hill). The consultant has said that to prevent
My husband (30m) had a trabeculectomy in his left eye in August 2023. It is now November 2023 and the IOP is only up to 7. His vision in that eye has never recovered (it does temporarily if he does something a little strenuous like walking up a steep hill). The consultant has said that to prevent
CurioK
in
Glaucoma UK
7 months ago
Oral care tip
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Martina_MP
in
PSP Association
7 months ago
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