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Experiences with
Erleada
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Long Journey
I was placed on Lupron, Xgeva and
Erleada
(apalutamide). That worked for 5.5 years until we figured out
Erleada
was making me dizzy. Tried Zytiga, S/E were too much. My Dad passed 5/22. One month later had my first PSMA PET. Found out I had mets to my bones. I freaked out. Had Provenge.
I was placed on Lupron, Xgeva and
Erleada
(apalutamide). That worked for 5.5 years until we figured out
Erleada
was making me dizzy. Tried Zytiga, S/E were too much. My Dad passed 5/22. One month later had my first PSMA PET. Found out I had mets to my bones. I freaked out. Had Provenge.
MJCA
in
Prostate Cancer And Gay Men
3 months ago
Questions
And finally on October 12 was able to start on
Erleada
. The delay in
Erleada
was due to cost and my ability to pay for it. Fortunately the manufacturer had a program to provide it for a year.
And finally on October 12 was able to start on
Erleada
. The delay in
Erleada
was due to cost and my ability to pay for it. Fortunately the manufacturer had a program to provide it for a year.
Cleantop
in
Advanced Prostate Cancer
4 months ago
is erleada good ?
scheduled to take
Erleada
soon Does anyone have any advice or suggestion ? Thank you
scheduled to take
Erleada
soon Does anyone have any advice or suggestion ? Thank you
Raminagrobis
in
Advanced Prostate Cancer
8 months ago
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My dear father is ill
Erleada
240mg daily was added. His PSA yesterday was 6.7. He is otherwise healthy and fit man, still working but now very concerned an depressed. Any advice, opinion and consolation is much appreciated.
Erleada
240mg daily was added. His PSA yesterday was 6.7. He is otherwise healthy and fit man, still working but now very concerned an depressed. Any advice, opinion and consolation is much appreciated.
Sleepingbeauty47
in
Advanced Prostate Cancer
5 months ago
Orgovyx and stage four
I have been taking this plus
Erleada
but then stopped that one after two years per doctor. I still get that hot flashes and fatigue, body aches etc. Not the best quality of life on these things for now going on 4 years. Anyone else have experience or comments in this regard?
I have been taking this plus
Erleada
but then stopped that one after two years per doctor. I still get that hot flashes and fatigue, body aches etc. Not the best quality of life on these things for now going on 4 years. Anyone else have experience or comments in this regard?
crony
in
Advanced Prostate Cancer
4 months ago
Update to: "Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?"
My UCLA second opinion MO, who prescribed the
Erleada
, is comfortable with off-label use when suggestive data for it's use exists and potential side effects are taken into consideration.
My UCLA second opinion MO, who prescribed the
Erleada
, is comfortable with off-label use when suggestive data for it's use exists and potential side effects are taken into consideration.
Brokedown_Palace
in
Advanced Prostate Cancer
8 months ago
Provenge Complete
Currently on Orgovyx (joy) and have done
Erleada
and Zytiga,but not Xtandi. Any thoughts on possible options?
Currently on Orgovyx (joy) and have done
Erleada
and Zytiga,but not Xtandi. Any thoughts on possible options?
Pmann
in
Advanced Prostate Cancer
5 months ago
Age and timing for Triplet therapy?
The urologist has set up the addition of the ARI
Erleada
in 3 weeks, though I would now prefer Nubeqa because it does not cross the blood-brain barrier. Nubequa would take another 2 weeks to get (or 7 weeks after start of Orgovyx).
The urologist has set up the addition of the ARI
Erleada
in 3 weeks, though I would now prefer Nubeqa because it does not cross the blood-brain barrier. Nubequa would take another 2 weeks to get (or 7 weeks after start of Orgovyx).
vintage42
in
Advanced Prostate Cancer
4 months ago
Medicare Part D decision
There are some what looks like minor differences in the formularies for each plan but the second tier ADT drugs, Abi, Xtandt,
Erleada
, etc are on both plan's formularies. The primary difference between the 2 plans is the deductible and the co-pays.
There are some what looks like minor differences in the formularies for each plan but the second tier ADT drugs, Abi, Xtandt,
Erleada
, etc are on both plan's formularies. The primary difference between the 2 plans is the deductible and the co-pays.
fireandice123
in
Advanced Prostate Cancer
2 months ago
Erleada...anyone?
I am going off
Erleada
and have an almost full bottle of tablets. I offer them free to someone in need. Please, only those that can't afford them. I will ship via priority mail.
I am going off
Erleada
and have an almost full bottle of tablets. I offer them free to someone in need. Please, only those that can't afford them. I will ship via priority mail.
sillyoyster
in
Advanced Prostate Cancer
8 months ago
Zytiga ,xtandi or erleada
Kaiser MO plan says will add Zytiga ,xtandi or
erleada
Been on lupron 2 months, MO now adding zytiga. 2nd opinion from UCSF concurs. Any opinions why they choose Zytiga I have seen a recent study saying Xtandi or
Erleada
might be better.
Kaiser MO plan says will add Zytiga ,xtandi or
erleada
Been on lupron 2 months, MO now adding zytiga. 2nd opinion from UCSF concurs. Any opinions why they choose Zytiga I have seen a recent study saying Xtandi or
Erleada
might be better.
pj1121
in
Advanced Prostate Cancer
9 months ago
Darolutamide and Desunomab Questions
Should I change my statin to simvastatin, or choose the ARI to be
Erleada
(apalutamide)? He also proposes adding Prolia (desunamab) to head off bone loss. He does not want to do a DEXA bone density test first because it would show no bone loss yet, which might prevent approval of Prolia.
Should I change my statin to simvastatin, or choose the ARI to be
Erleada
(apalutamide)? He also proposes adding Prolia (desunamab) to head off bone loss. He does not want to do a DEXA bone density test first because it would show no bone loss yet, which might prevent approval of Prolia.
vintage42
in
Advanced Prostate Cancer
4 months ago
Have You Heard and has Anyone Tried This
mibextid=rS40aB7S9Ucbxw6v Currently on 3 mo Eligard and 4xd
Erleada
for a yr 4mo Can you take Ivermectin with this cocktail and are any urology Dr prescribing it
mibextid=rS40aB7S9Ucbxw6v Currently on 3 mo Eligard and 4xd
Erleada
for a yr 4mo Can you take Ivermectin with this cocktail and are any urology Dr prescribing it
Praying2BHealthy
in
Advanced Prostate Cancer
8 months ago
What to do ?
and go for chemo . she took his PSA on 5 October and it was 87 so another big jump . now my question is he is castrate resistant or is the big jump something to do with the fact that he stopped
Erleada
?
and go for chemo . she took his PSA on 5 October and it was 87 so another big jump . now my question is he is castrate resistant or is the big jump something to do with the fact that he stopped
Erleada
?
palser1
in
Advanced Prostate Cancer
6 months ago
Now what?
Lupron,
Erleada
, Provenge, Lynparza (still on), Zytiga/Pred (still on). PSA rose from 2.64 Feb 2023 to 44 Sept 2023. Biggest jumps on the last three months, 10 to 44. He is approved for 177lu, but there are a lot of unsuccessful stories on this blog with 177lu. Thoughts?
Lupron,
Erleada
, Provenge, Lynparza (still on), Zytiga/Pred (still on). PSA rose from 2.64 Feb 2023 to 44 Sept 2023. Biggest jumps on the last three months, 10 to 44. He is approved for 177lu, but there are a lot of unsuccessful stories on this blog with 177lu. Thoughts?
Hidden
in
Advanced Prostate Cancer
8 months ago
New to Medicare
Does Medicare part B and D cover all the major PC drug treatments with a minimal co-pay and minimal approvals i.e.Taxotere,
Erleada
, Xtandi, Pluvicto (Lu177), Dapolutamide, AC 225 etc. Also are PSMA scans covered?Thanks for your help.
Does Medicare part B and D cover all the major PC drug treatments with a minimal co-pay and minimal approvals i.e.Taxotere,
Erleada
, Xtandi, Pluvicto (Lu177), Dapolutamide, AC 225 etc. Also are PSMA scans covered?Thanks for your help.
Lefty26
in
Advanced Prostate Cancer
9 months ago
is Farmagon better than Lupron ?
i have been on Farmagon for 3 months and feels much better and supposed to take
Erleada
Apalutamide 60 mg also. My PSA is 2.9 and my testosterone is low. Now another doctor wants me to switch me to Lupron. Which one would be better .?
i have been on Farmagon for 3 months and feels much better and supposed to take
Erleada
Apalutamide 60 mg also. My PSA is 2.9 and my testosterone is low. Now another doctor wants me to switch me to Lupron. Which one would be better .?
Raminagrobis
in
Advanced Prostate Cancer
8 months ago
Too many vitamins ?
I am now on
Erleada
and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still now the following supplements : Resverstrol, coenxymeQ10 ,K2 , D3 ,B12 , D, Complex B50 , Lycopene, Calcium ,Tumeric ,C.
I am now on
Erleada
and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still now the following supplements : Resverstrol, coenxymeQ10 ,K2 , D3 ,B12 , D, Complex B50 , Lycopene, Calcium ,Tumeric ,C.
Raminagrobis
in
Advanced Prostate Cancer
7 months ago
Erleada side effects
Would like to hear from those with personal experience that have added
Erleada
to ADT ( Lupron, Firmagon, Orgovyx). What additional side effects did you experience ( fatigue, cognitive, lab test changes, rash, etc). Not looking for studies or drug mfg info, I'm able to look at that.
Would like to hear from those with personal experience that have added
Erleada
to ADT ( Lupron, Firmagon, Orgovyx). What additional side effects did you experience ( fatigue, cognitive, lab test changes, rash, etc). Not looking for studies or drug mfg info, I'm able to look at that.
wilcoxsaw
in
Advanced Prostate Cancer
9 months ago
Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?
Second opinion MO at UCLA recommends adding
Erleada
to ADT based on unpublished data from EMBARK and FORMULA 509. Primary MO discussed my case with 3 colleagues at other centers and says there is insufficient evidence for adding
Erleada
. Thoughts?
Second opinion MO at UCLA recommends adding
Erleada
to ADT based on unpublished data from EMBARK and FORMULA 509. Primary MO discussed my case with 3 colleagues at other centers and says there is insufficient evidence for adding
Erleada
. Thoughts?
Brokedown_Palace
in
Advanced Prostate Cancer
9 months ago
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