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Experiences with
Electric Defibrillation
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Communities
18 public communities
Atrial Fibrillation Support
31,500 members
AF Association supports individuals affected by, or involved in the care of atrial fibrillation (AF). We are an international charity providing support through various means, including a helpline and comprehensive resources written by experts in the field and endorsed by the Department of Health.
Anticoagulation Support
3,818 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk
British Heart Foundation
50,818 members
We are the British Heart Foundation (BHF), the largest independent funder of cardiovascular research. We fund research into life saving cures to beat heart disease, stroke and vascular dementia, and stop conditions like diabetes from causing them, to help people and families live longer, better lives. Over the years, our pioneering research has helped to transform the lives of people living with heart and circulatory conditions. As well funding ground-breaking research, we’re here to support people affected by heart and circulatory diseases and their risk factors. So whether you're living with a heart or circulatory disease, or just want to find out more about them, this is the place to be. If you have any questions or concerns, and would like to speak with one of our cardiac nurses, please do contact our Heart Helpline team on 0300 330 3311 Mon-Fri 9-5pm or email hearthelpline@bhf.org.uk This community is moderated by HU_Moderator
Heart Rhythm Disorders Support
6,785 members
We are an international charity working to support early diagnosis and improve outcomes for arrhythmia patients and carers worldwide. Please share your experiences below or give us a call on +44 (0)1789 867 501 if you would like further info or advice on arrhythmia care and treatments. We are here to help.
Heart Failure Support
818 members
We are an international charity working to support early diagnosis and improve outcomes for heart failure patients and carers worldwide. Please share your experiences below or give us a call on +44 (0)1789 867 501 if you would like further info or advice on arrhythmia care and treatments. We are here to help.
Australian Pain Management Association
341 members
APMA is a health promotion charity providing advocacy, information and practical support for people living with persistent (chronic) pain and their families. APMA is the consumer health organisation for all Australians who live with persistent pain. APMA is your voice. APMA provides advice, assistance and advocacy, and works with governments, health clinicians and researchers to deliver evidence-based pain management services and ameliorate the personal and economic impact for people living with severe pain.
Arthritis New Zealand
86 members
Arthritis Ireland
455 members
Arthritis Ireland works to reduce the pain and improve the lives of almost one million children and adults in Ireland with arthritis.
Endometriosis New Zealand
1,285 members
Endometriosis New Zealand is New Zealand’s national endometriosis organisation and has affiliated Support Networks throughout the country. We represent the tens of thousands of girls and women with endometriosis in New Zealand and we work with those who treat the condition and researchers to find solutions. We provide unique and professional services and programs to reach individuals, communities, schools, workplaces and all stakeholders involved in improving health outcomes for those with endometriosis and persistent pelvic pain.
Not Defined By Endometriosis
433 members
We are a peer-support group providing support to fellow endometriosis warriors and advocating and fighting for better research, funding and an eventual cure for endometriosis.
Andover Fibromyalgia & ME Community Group
2,784 members
Welcome to AFMCG community! :) Here you can share your experiences about living with Fibromyalgia & M.E in a non-judgemental friendly environment. AFMCG members can be from all over UK, the world however the group was initially founded for a place in Hampshire called Andover, The philosophy of the group to treat one another with respect & understanding focusing on bringing the FMS/ME community together to provide support for one another. We aim to post relevant information or signpost members to other organisations that may give the appropriate advice. We are passionate about raising awareness & often post relevant campaigns to help spread the word including petitions. To find out more please visit www.afmcg.org. Please can we kindly ask you adhere to the guidelines to make the community a supportive place for one & all. Any questions please contact our Volunteer Admin via the private message facility or alternatively email admin@afmcg.org
The Endometriosis Foundation
1,107 members
The Endometriosis Foundation (also known as women with endometriosis) is a Charity dedicated to raising awareness, informing and supporting those affected by endometriosis, and right now, we're needed more than ever.
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