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Clean PET/CT Scan - Why no treatment change?
I was diagnosed Stage 4 in 2019 and have been getting Lupron shots and taking Erleada ever since. My PSA went down to undetectable within about six months and has stayed there. I have very mild side effects (other than the loss of libido). I had bone scans in 2019 and 2020. The 2020 scan showed significant
I was diagnosed Stage 4 in 2019 and have been getting Lupron shots and taking Erleada ever since. My PSA went down to undetectable within about six months and has stayed there. I have very mild side effects (other than the loss of libido). I had bone scans in 2019 and 2020. The 2020 scan showed significant
NorYug
in
Advanced Prostate Cancer
8 months ago
ulcers and inflammed gums
Hey guys I’m having a flare , I have bleeding gums that are inflame and ulcers all on the roof of my mouth and all inside my mouth , it’s so painful can anyone suggest anything that could help ?
Hey guys I’m having a flare , I have bleeding gums that are inflame and ulcers all on the roof of my mouth and all inside my mouth , it’s so painful can anyone suggest anything that could help ?
Tigerlilly20
in
LUPUS UK
5 months ago
upper GI symptoms
Does anyone have upper gastro stomach symptoms? I’m currently going through horrible heartburn, gurgling and nausea. Already take 10mg omeprazole a day and now they’ve upped it to 30mg. Still churning and nauseous! It’s the daily nausea that gets me down the most
Does anyone have upper gastro stomach symptoms? I’m currently going through horrible heartburn, gurgling and nausea. Already take 10mg omeprazole a day and now they’ve upped it to 30mg. Still churning and nauseous! It’s the daily nausea that gets me down the most
binks
in
IBS Network
5 months ago
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Iron deficiency problem? But told satisfactory . Please can anyone advise
Hi everyone, Hope you are all keeping well as we can be. Apologies for this long post I recently requested in Sep to have my VIT D levels checked as I recognised some of the symptoms from when I was deficient. And for some reason my levels had dropped so started 5 weeks ago to take a twice weekly
Hi everyone, Hope you are all keeping well as we can be. Apologies for this long post I recently requested in Sep to have my VIT D levels checked as I recognised some of the symptoms from when I was deficient. And for some reason my levels had dropped so started 5 weeks ago to take a twice weekly
PJDJ_08
in
Thyroid UK
5 months ago
Dissecated liver for iron
Hello, I’ve had issues with my ferritin being low, even though I’ve been supplementing with iron for a while. Has anyone tried dissecated liver to get their iron levels up? If so, do you have one that you would recommend?
Hello, I’ve had issues with my ferritin being low, even though I’ve been supplementing with iron for a while. Has anyone tried dissecated liver to get their iron levels up? If so, do you have one that you would recommend?
Alex_p
in
Thyroid UK
5 months ago
Too much B12??
Can high serum and active B12 levels (above recommended levels) cause the nerve damage? I recently had to visit my GP clinic and couldn’t get my favourite doctor so, agreed to seeing another doctor. Upon looking at my file he was shocked to see my apparently ‘very high B12’ results. In his opinion, too
Can high serum and active B12 levels (above recommended levels) cause the nerve damage? I recently had to visit my GP clinic and couldn’t get my favourite doctor so, agreed to seeing another doctor. Upon looking at my file he was shocked to see my apparently ‘very high B12’ results. In his opinion, too
GoneWithTheWind1972
in
Pernicious Anaemia Society
5 months ago
Ibs pain
I have recently been diagnosed with ibs, well my doctor has said it’s ibs but I am awaiting further tests. I have been following a gluten free diet for about 2 months now, I have noticed that I am less bloated but that has been the only change. I am wanting to ask, does anyone else get woke up through
I have recently been diagnosed with ibs, well my doctor has said it’s ibs but I am awaiting further tests. I have been following a gluten free diet for about 2 months now, I have noticed that I am less bloated but that has been the only change. I am wanting to ask, does anyone else get woke up through
Pink_Lover
in
IBS Network
5 months ago
1 year since my operation so celebrated on holiday's 🙌🌄 🇬🇷
Just an update, it was a year on 7th September that I had my debulking after 4 chemo then 2 following the operation with avastin added to last infusion. I'm also on olaparib, it's been a battle with joint pains and fatigue but I'm still here!!. I was stage 4 hgsc brca negative but hrd positive at diagnosis
Just an update, it was a year on 7th September that I had my debulking after 4 chemo then 2 following the operation with avastin added to last infusion. I'm also on olaparib, it's been a battle with joint pains and fatigue but I'm still here!!. I was stage 4 hgsc brca negative but hrd positive at diagnosis
Newbery3
in
My Ovacome
8 months ago
SGLT-2 Inhibitors to (partially) “Starve” Glucose Dependent Cancers
There has been many theories proposed about how to “starve cancer”. And many have gone down rabbit holes chasing unproven theories about how to do so. Unfortunately, IMO, they simply do not work. Cancers are very metabolically flexible. They will take what they need to survive and grow and adapt to whatever
There has been many theories proposed about how to “starve cancer”. And many have gone down rabbit holes chasing unproven theories about how to do so. Unfortunately, IMO, they simply do not work. Cancers are very metabolically flexible. They will take what they need to survive and grow and adapt to whatever
MateoBeach
in
Fight Prostate Cancer
8 months ago
Non-Functional B12 Cellular Activity.
Non-Functional B12 Cellular Activity. A study posted by technoid. https://pure.tudelft.nl/ws/portalfiles/portal/153859755/Design_of_a_treatment_protocol_to_improve_the_health_of_B12_deficient_patients.pdf It is a study of the biochemistry of vitamin B12 cellular metabolism. 4 years of treating B12
Non-Functional B12 Cellular Activity. A study posted by technoid. https://pure.tudelft.nl/ws/portalfiles/portal/153859755/Design_of_a_treatment_protocol_to_improve_the_health_of_B12_deficient_patients.pdf It is a study of the biochemistry of vitamin B12 cellular metabolism. 4 years of treating B12
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Giant ovarian cyst- very worried
Hi Everyone , Its my first time posting here but I read some posts and it seems like a very supportive community . I am 42 and not menopausal. I ended up in hospital due to severe pain in my right ovary . After scan I was told this was as due to a raptured cyst in my ovary and nothing to worry
Hi Everyone , Its my first time posting here but I read some posts and it seems like a very supportive community . I am 42 and not menopausal. I ended up in hospital due to severe pain in my right ovary . After scan I was told this was as due to a raptured cyst in my ovary and nothing to worry
martiksa
in
My Ovacome
8 months ago
Scared
Have stage 4 breast cancer which has spread to both lungs and have mental health problems as well.. Question is worried that Maybe having a psychoctic episode with all the stress
Have stage 4 breast cancer which has spread to both lungs and have mental health problems as well.. Question is worried that Maybe having a psychoctic episode with all the stress
Iamhealthy123
in
Lung Conditions Community Forum
8 months ago
Loose stool and Diarrhoea. Metgyl 400mg
I have had loose stools for awhile now cant really recall when it started but have noticed a few weeks ago. When to the doctor, did a stool parasite test came back positive for Blastocystis hominis and Endolimax nana. Started me on Metgyl 400mg 3x a day 10 days. No blood, only once have I noticed mucas
I have had loose stools for awhile now cant really recall when it started but have noticed a few weeks ago. When to the doctor, did a stool parasite test came back positive for Blastocystis hominis and Endolimax nana. Started me on Metgyl 400mg 3x a day 10 days. No blood, only once have I noticed mucas
Bm_90
in
Colon Cancer Connected
5 months ago
ive lost myself
hi guys. just came back to give an update. so i got diagnosed with ocd, panic disorder, gad, whatever. i started buspirone because im generally sensitive to ssris and i thought it was working for a bit, but then it started giving me problems. i went off of it and then it gave me more problems. now i
hi guys. just came back to give an update. so i got diagnosed with ocd, panic disorder, gad, whatever. i started buspirone because im generally sensitive to ssris and i thought it was working for a bit, but then it started giving me problems. i went off of it and then it gave me more problems. now i
thegoat123
in
Anxiety and Depression Support
6 hours ago
takotsubo Cardiomyopathy phobia
I have panic disorder and agoraphobia. They say that stress can cause heart attack takotsubo syndrome even if I have a healthy heart. I'm constantly afraid of being scared because of this situation, please help me in case I get too scared and die.
I have panic disorder and agoraphobia. They say that stress can cause heart attack takotsubo syndrome even if I have a healthy heart. I'm constantly afraid of being scared because of this situation, please help me in case I get too scared and die.
nananwaq
in
Anxiety and Depression Support
5 days ago
I don’t have fibromyalgia ( I am so sorry you do) but yes my blood pressure medicine Clonidine makes me shake (my insides shake) .it’s awful
check the side effects of your medicine ( all of them) perhaps your doctor can switch you to something else with less side effects 🙏I’ll pray for you. I can relate
check the side effects of your medicine ( all of them) perhaps your doctor can switch you to something else with less side effects 🙏I’ll pray for you. I can relate
Skylane2
in
Fibromyalgia Action UK
6 days ago
small cell pc options?
my father has been treating this for 5 years. New biopsy revealed small cell pc which was also in the initial biopsy. The rechallenge of carboplatin and etoposide doesn’t seem to be working. They have suggested immunotherapy ( not sure what type). Thoughts? Also any research out there regarding PRRT?
my father has been treating this for 5 years. New biopsy revealed small cell pc which was also in the initial biopsy. The rechallenge of carboplatin and etoposide doesn’t seem to be working. They have suggested immunotherapy ( not sure what type). Thoughts? Also any research out there regarding PRRT?
Poppi07
in
Advanced Prostate Cancer
8 months ago
well here IAM…
back at it with anxiety and sudden Panic attack symptoms! I was at a restaurant with my family I was eating and suddenly this [i]
IMPENDING DOOM
[/i]feeling came over me! I thought I was gonna blackout! It scared me so bad I ended up with racing heart I felt it in my neck! And Hot Flash in my back
back at it with anxiety and sudden Panic attack symptoms! I was at a restaurant with my family I was eating and suddenly this [i]
IMPENDING DOOM
[/i]feeling came over me! I thought I was gonna blackout! It scared me so bad I ended up with racing heart I felt it in my neck! And Hot Flash in my back
Mindfulnessxo
in
Anxiety and Depression Support
6 days ago
Panic Attacks and Obsessive thoughts
hello everyone! So glad to be joining this group. I had health with panic disorder, anxiety, and Tourette’s for some time now, but have noticed a big turn in how I can manage. Last year I began planning a trip to Australia so my partner and I could go and meet his family. That trip ended a month ago
hello everyone! So glad to be joining this group. I had health with panic disorder, anxiety, and Tourette’s for some time now, but have noticed a big turn in how I can manage. Last year I began planning a trip to Australia so my partner and I could go and meet his family. That trip ended a month ago
Yummypancake
in
Anxiety and Depression Support
7 days ago
Buprenorphine, Nausea & Zofran (Ondansetron)
I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to get the better of it. I have unsuccessfully tried many anti nausea drugs and methods including Symprove probiotic and seem to be left with only
I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to get the better of it. I have unsuccessfully tried many anti nausea drugs and methods including Symprove probiotic and seem to be left with only
davchar23
in
Restless Legs Syndrome
10 days ago
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