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Supplement Guidance
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Kimsy17
in
IBS Network
5 months ago
ZEJULA PROS AND CONS
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Mommashark6
in
SHARE Ovarian Cancer Support
8 months ago
What is role of hormonal therapy drug when taken with targeted therapy, eg Piqray or Ibrance?
I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with targeted therapy such as Ibrance. Does it just reduce the amount of estrogen available to the cell and “lightens the load” on the targeted therapy?
I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with targeted therapy such as Ibrance. Does it just reduce the amount of estrogen available to the cell and “lightens the load” on the targeted therapy?
HelenWi
in
SHARE Metastatic Breast Cancer
8 months ago
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Now in hospice
I try to keep posts short and concise so I’ll try to keep this as brief as possible. We recently returned from a 2 week trip to SoCal to visit family and friends. I was hoping to post some nice QOL pics but in actuality the trip was fraught with difficulties. On return we had a visit with my husband
I try to keep posts short and concise so I’ll try to keep this as brief as possible. We recently returned from a 2 week trip to SoCal to visit family and friends. I was hoping to post some nice QOL pics but in actuality the trip was fraught with difficulties. On return we had a visit with my husband
Blue-Mockingbird
in
Advanced Prostate Cancer
8 months ago
pinching on left side of abdomen
does anyone else have a pinching feeling on left side of abdomen more do when leaning over. I think everything is settling after a flare up but something else starts I’m taking buscopan and mebeverine for pain/spasms any help appreciated
does anyone else have a pinching feeling on left side of abdomen more do when leaning over. I think everything is settling after a flare up but something else starts I’m taking buscopan and mebeverine for pain/spasms any help appreciated
finsbury
in
IBS Network
5 months ago
Nees help
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
38yroldmale
in
Pernicious Anaemia Society
5 months ago
non responsive or refactory coeliac’s disease
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
RJane83
in
Gluten Free Guerrillas
5 months ago
12 year old suffering IBSD...and Aire2 breath tests. Are they any good?
Hi there, My daughter is now 12 and has suffered most of her life with cramps, loose stools/diarrhoea and bloating. After various tests throughout the years we were told last year it was ibs-d. We've been left to our devices with no support and for a while during the summer, she was symptom free
Hi there, My daughter is now 12 and has suffered most of her life with cramps, loose stools/diarrhoea and bloating. After various tests throughout the years we were told last year it was ibs-d. We've been left to our devices with no support and for a while during the summer, she was symptom free
Ceeative-cookie
in
IBS Network
5 months ago
Pain management
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
JustVisiting23
in
Restless Legs Syndrome
5 months ago
ReelRecovery
I spent the last two days having a great time learning to fly fish and meet with a wide variety of men with and surviving cancer. The majority of the men had prostate cancer including advanced PC. Reel Recovery is a non profit organization whose mission is to improve the lives of men with cancer using
I spent the last two days having a great time learning to fly fish and meet with a wide variety of men with and surviving cancer. The majority of the men had prostate cancer including advanced PC. Reel Recovery is a non profit organization whose mission is to improve the lives of men with cancer using
spencoid2
in
Advanced Prostate Cancer
8 months ago
Jakafi
It has been two weeks that I am taking one pill a day. My hemoglobin today was an8 and last week was 11 ,has anyone had a drop like this and one week with just one pill? My doctor does not seem concerned because I’m feeling fine. I am rechecking next week and just nervous about it going lower
It has been two weeks that I am taking one pill a day. My hemoglobin today was an8 and last week was 11 ,has anyone had a drop like this and one week with just one pill? My doctor does not seem concerned because I’m feeling fine. I am rechecking next week and just nervous about it going lower
Ggrana3192
in
MPN Voice
8 months ago
Has anyone experience of weekly rather than 3 weekly chemo sessions?
I have been diagnosed with Stage 3C ovarian cancer, after finding a smallish lump in my tum in July, which is now considerably larger (20cm). A ct scan showed abnormalites in several places, and this was followed by a laparoscopy to see the extent. I was told that I would be having 3 rounds of chemo
I have been diagnosed with Stage 3C ovarian cancer, after finding a smallish lump in my tum in July, which is now considerably larger (20cm). A ct scan showed abnormalites in several places, and this was followed by a laparoscopy to see the extent. I was told that I would be having 3 rounds of chemo
LovemyJackRussell
in
My Ovacome
8 months ago
Inflammation on colonoscopy
Hi everyone I had a colonoscopy today after around a year of diarrhoea, constipation, bleeding, tenesmus, BM at least 5x day and huge amounts of mucus. Lots of biopsies were taken and there were a couple areas of inflammation in my distal rectum, also some small haemorrhoids further down. The biopsy
Hi everyone I had a colonoscopy today after around a year of diarrhoea, constipation, bleeding, tenesmus, BM at least 5x day and huge amounts of mucus. Lots of biopsies were taken and there were a couple areas of inflammation in my distal rectum, also some small haemorrhoids further down. The biopsy
Eevee31
in
Crohn's and Colitis Support
5 months ago
Newly diagnosed seeking advice on surgical options
Hi, Recently diagnosed with S3 Ovarian Cancer and have been given a choice of primary debulking surgery followed by 6 rounds of chemo or interval debulking with the surgery in the middle of 6 rounds. Worried that PDS is more risky/ radical although I’ve been told that it wouldn’t be. Any advice/ experience
Hi, Recently diagnosed with S3 Ovarian Cancer and have been given a choice of primary debulking surgery followed by 6 rounds of chemo or interval debulking with the surgery in the middle of 6 rounds. Worried that PDS is more risky/ radical although I’ve been told that it wouldn’t be. Any advice/ experience
Bookclublover
in
My Ovacome
8 months ago
How can I support my brother?
My brother has advanced prostate cancer and has had surgery. New tests show it has metastasised in his hip. I want to be able to support him but also don't want to say the wrong thing or add to the stress he is already feeling. I would appreciate ANY advice ~ thank you so much.
My brother has advanced prostate cancer and has had surgery. New tests show it has metastasised in his hip. I want to be able to support him but also don't want to say the wrong thing or add to the stress he is already feeling. I would appreciate ANY advice ~ thank you so much.
wavedancers
in
Advanced Prostate Cancer
8 months ago
How to Navigate Prostate Cancers With Actionable Mutations - Grand Rounds Highlights, MedPage Today - 09/26/2023
I'm travelling and using an unfamiliar tablet, so no cut and paste from these linked articles. Note the access to a PDF of the full Grand Rounds paper in the second linked article. It has a useful table and simplified treatment algorithm for those mCRPCa with actionable genetic mutations. [i]
A Roadmap
I'm travelling and using an unfamiliar tablet, so no cut and paste from these linked articles. Note the access to a PDF of the full Grand Rounds paper in the second linked article. It has a useful table and simplified treatment algorithm for those mCRPCa with actionable genetic mutations. [i]
A Roadmap
cujoe
in
Fight Prostate Cancer
8 months ago
Symptoms of Vitamin B12 deficiency - that I cannot find an answer to....
I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it common to have more severe symptoms in one leg more than the other? I have quite severe pins and needs in my left leg, and milder pins and needles
I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it common to have more severe symptoms in one leg more than the other? I have quite severe pins and needs in my left leg, and milder pins and needles
Madman070578
in
Pernicious Anaemia Society
5 months ago
Unclear advice from doc
Had aches and pains in joints and raised ESR and CRP levels. After many discussions with GP, he decided I have Polymyalgic Rheumatica. I said i didnt think i did as the stiffness and aches had improved by 80% with no treatment. He had put me on sertraline and i told him it was affecting my bowel and
Had aches and pains in joints and raised ESR and CRP levels. After many discussions with GP, he decided I have Polymyalgic Rheumatica. I said i didnt think i did as the stiffness and aches had improved by 80% with no treatment. He had put me on sertraline and i told him it was affecting my bowel and
worrier62
in
IBS Network
5 months ago
Here we go again!
At my last hospital appointment in February I asked the consultant about his thoughts on masking still and he suggested that as we are having to live with it and the current variants are not serious for most people maybe relaxing with caution or words to that effect. I was happy with that and have enjoyed
At my last hospital appointment in February I asked the consultant about his thoughts on masking still and he suggested that as we are having to live with it and the current variants are not serious for most people maybe relaxing with caution or words to that effect. I was happy with that and have enjoyed
Jetliz
in
CLL Support
8 months ago
Liver and spine mets just started Gemzar and my hormone blocker tamoxifen stopped working so began letrazole. Is anyone taking this combo?
I just began Gemzar and Letrosole. My neutrophils are 0.4. Is anyone familiar with this combination and have advice on getting my immune system stronger so I can get treatment? Thank you.
I just began Gemzar and Letrosole. My neutrophils are 0.4. Is anyone familiar with this combination and have advice on getting my immune system stronger so I can get treatment? Thank you.
Buster2020
in
SHARE Metastatic Breast Cancer
8 months ago
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