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looking for positive stories….
Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My chemo ( 3rd line carbo then cisplatin and Gemcitabine) has been stopped after 3 treatments due to toxicity. I was really unwell on it . Ct shows
Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My chemo ( 3rd line carbo then cisplatin and Gemcitabine) has been stopped after 3 treatments due to toxicity. I was really unwell on it . Ct shows
Laz66
in
My Ovacome
6 months ago
Heterogeneity and genomic evolution of metastatic prostate cancer, bioRxiv Preprint, Posted September 04, 2023.
A fine example of evolutionary principles applied to metastatic PCa with the development of a method (Mscore) for risk assessment based on key gene mutations. (U of Texas and Chinese U collaboration.) * * * [i]
Abstract
[/i] [i]
Background
[/i][i] Metastasis is the primary cause of prostate
A fine example of evolutionary principles applied to metastatic PCa with the development of a method (Mscore) for risk assessment based on key gene mutations. (U of Texas and Chinese U collaboration.) * * * [i]
Abstract
[/i] [i]
Background
[/i][i] Metastasis is the primary cause of prostate
CaptnMojoe
in
Fight Prostate Cancer
6 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
18 days ago
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Help I don’t understand
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
Jadaboo4
in
LUPUS UK
19 days ago
Antiinflammatory medications with Jakafi
I've read that there is a moderate risk of bleeding after using ibuprofen with Jakafi. I'd appreciate hearing reactions from people on Jakafi who have taken ibuprofen and other anti-inflammatory medications. Which anti-inflammatory medications would minimize the risk of such interactions? Thanks, Steve
I've read that there is a moderate risk of bleeding after using ibuprofen with Jakafi. I'd appreciate hearing reactions from people on Jakafi who have taken ibuprofen and other anti-inflammatory medications. Which anti-inflammatory medications would minimize the risk of such interactions? Thanks, Steve
sbs_patient
in
MPN Voice
6 months ago
Oral B12
So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in
So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in
FatThumbs
in
Pernicious Anaemia Society
3 months ago
nausea and tmi (diarrhea) 4dp5dt FET
is it a positive sign? Or is it too early and I have a stomach bug ? Does diarrhea affects implantation 😭
is it a positive sign? Or is it too early and I have a stomach bug ? Does diarrhea affects implantation 😭
amalhope
in
Fertility Network UK
3 months ago
laxido liquid
hello, for the past 6 months I’ve been suffering from bad constipation, my gp suspected diverticulitis and I have been referred to a specialist, I’ve now had my first appointment and waiting on a date for a colonoscopy. The doctor prescribed laxido liquid and I took my first dose on Monday, by Tuesday
hello, for the past 6 months I’ve been suffering from bad constipation, my gp suspected diverticulitis and I have been referred to a specialist, I’ve now had my first appointment and waiting on a date for a colonoscopy. The doctor prescribed laxido liquid and I took my first dose on Monday, by Tuesday
Chazz30xx
in
IBS Network
3 months ago
I am urging more members to respond. 🙏
I am reposting the link put on by
Sleepybunny 5 days ago........
Hi, I've posted about Care Opinion before but look every now and then to see if any stories have been posted about B12 deficiency. They want people to share good and bad experiences of health care in UK. Sometimes the GP surgeries
I am reposting the link put on by
Sleepybunny 5 days ago........
Hi, I've posted about Care Opinion before but look every now and then to see if any stories have been posted about B12 deficiency. They want people to share good and bad experiences of health care in UK. Sometimes the GP surgeries
Jillymo
in
Pernicious Anaemia Society
3 months ago
Vitamin Results
Hi, I’ve just had some private test results following a low ferritin result from the GP: TIBC - 64umol/L - 45-81 Transferrin saturation - 18.3% - 25-45 Ferritin - 49ug/L - 44-150 Iron - 11.7umol/L - 10-30 Unsaturated iron binding capacity- 52.3umol/L Vitamin D - 43.6umol/L - normal 50-75, optimal
Hi, I’ve just had some private test results following a low ferritin result from the GP: TIBC - 64umol/L - 45-81 Transferrin saturation - 18.3% - 25-45 Ferritin - 49ug/L - 44-150 Iron - 11.7umol/L - 10-30 Unsaturated iron binding capacity- 52.3umol/L Vitamin D - 43.6umol/L - normal 50-75, optimal
Smartypants1
in
Thyroid UK
3 months ago
Hello. Low grade Serous
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
GoldieH
in
My Ovacome
6 months ago
Colon Journey
I thought I’d share my journey leading up to this point and I hope to continue to update as things move along. I hate it when nobody updates. Timeline: 12 years ago: After my first daughter turned 1 I went to the bathroom with blood in stool. It was super bright red and a lot. Went to the doctor and
I thought I’d share my journey leading up to this point and I hope to continue to update as things move along. I hate it when nobody updates. Timeline: 12 years ago: After my first daughter turned 1 I went to the bathroom with blood in stool. It was super bright red and a lot. Went to the doctor and
Cleaneats
in
Colon Cancer Connected
3 months ago
diverticulitis
hello Well.., diverticulitis is not nice at all. New to me and having got to age 64 fairly unscathed apart from anxiety, am feeling a bit vulnerable. Woke with abdo pain +++ and was away visiting family struggled on but when I got home pain was worse and went to see Dr. Given abx and pain subsided
hello Well.., diverticulitis is not nice at all. New to me and having got to age 64 fairly unscathed apart from anxiety, am feeling a bit vulnerable. Woke with abdo pain +++ and was away visiting family struggled on but when I got home pain was worse and went to see Dr. Given abx and pain subsided
YogaFriend
in
Bowel Disease Support
3 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
26 days ago
Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
6 months ago
Prostate cancer in liver
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Parscore
in
Advanced Prostate Cancer
6 months ago
Thank you all
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
Justme153
in
SHARE Metastatic Breast Cancer
6 months ago
B12 Crashing symptoms
can anybody else tell me their symptoms during B12 deficiency crash. I’m trying to figure out how bad I should be in order to request another shot.
can anybody else tell me their symptoms during B12 deficiency crash. I’m trying to figure out how bad I should be in order to request another shot.
Skieblue
in
Pernicious Anaemia Society
3 months ago
Active B12 blood result.
A friend’s ‘Active’ Vitamin B12 blood test result has fallen within the lower quarter of the Active B12 blood range. Anyone have any good advice please.
A friend’s ‘Active’ Vitamin B12 blood test result has fallen within the lower quarter of the Active B12 blood range. Anyone have any good advice please.
Coastwalker
in
Thyroid UK
3 months ago
Bile acid malabsorption
I got diagnosed with bam over a year ago taking colesevelam for it i take 1 or 2 a day but it has my bowel movements all over the place its all or nothing and usually in a formed mush and sticky i try to eat healthy but just wondering if any one else has bowel movements like this i have ibs aswell and
I got diagnosed with bam over a year ago taking colesevelam for it i take 1 or 2 a day but it has my bowel movements all over the place its all or nothing and usually in a formed mush and sticky i try to eat healthy but just wondering if any one else has bowel movements like this i have ibs aswell and
Netbet22
in
IBS Network
3 months ago
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