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First appointment with nhs Rheumy
Hi, I had my first nhs appointment with the Rheumy who is based at the same health centre as the one I have seen privately. He did say to me that he was aware that I had seen one, I had already had my bloods done prior to the appointment. He said my RF was 170 which is high, he gave me two booklets
Hi, I had my first nhs appointment with the Rheumy who is based at the same health centre as the one I have seen privately. He did say to me that he was aware that I had seen one, I had already had my bloods done prior to the appointment. He said my RF was 170 which is high, he gave me two booklets
Wonderfullifeandmore
in
PMRGCAuk
3 days ago
Chemo Side Effects
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
Joeym1040
in
Advanced Prostate Cancer
4 days ago
Retinal Vein Occlusion Treatments?
Hi. I am looking for people who have or have had RVO (retinal vein occlusion) and have had Ozurdex injections to treat this issue. I'm working with a pharma client on an educational video for their website and I need to connect with people with RVO who would like to share their experience. I can provide
Hi. I am looking for people who have or have had RVO (retinal vein occlusion) and have had Ozurdex injections to treat this issue. I'm working with a pharma client on an educational video for their website and I need to connect with people with RVO who would like to share their experience. I can provide
BluePE
in
Glaucoma UK
4 days ago
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Occupational health
F 58 years old UK As per previous posts I have RLS at least 14 years every day. Am currently on Ropinirol and Gabapentin. I'm experiencing refractory RLS. I have been sleep deprived for years, 4 hours sleep or less means I don't dream, now I'm getting 5 hours I do dream and wake up exhausted! I have
F 58 years old UK As per previous posts I have RLS at least 14 years every day. Am currently on Ropinirol and Gabapentin. I'm experiencing refractory RLS. I have been sleep deprived for years, 4 hours sleep or less means I don't dream, now I'm getting 5 hours I do dream and wake up exhausted! I have
Louless9
in
Restless Legs Syndrome
4 days ago
Prednisone vs Acterma with steroid induced diabetes. Really terrified
Update: April 2024 was scheduled for eye surgery for Strabismus which was canceled days before when in the same week I was determined by my Endocrinologist to have steroid induced diabetes which makes the general anesthesia too risky at this point. Rescheduled for August tentatively while we work on
Update: April 2024 was scheduled for eye surgery for Strabismus which was canceled days before when in the same week I was determined by my Endocrinologist to have steroid induced diabetes which makes the general anesthesia too risky at this point. Rescheduled for August tentatively while we work on
JanetGarrettN
in
PMRGCAuk
5 days ago
The honey bee
I have been looking at the delightful picture of the Italian honey bee with pollen on its legs. What I am puzzled about is on the right. I cannot make out what it is hovering over. Can someone enlighten me? Years ago my father used to keep bees and I used to watch him and also help put the honey in
I have been looking at the delightful picture of the Italian honey bee with pollen on its legs. What I am puzzled about is on the right. I cannot make out what it is hovering over. Can someone enlighten me? Years ago my father used to keep bees and I used to watch him and also help put the honey in
prunus
in
PMRGCAuk
5 days ago
Is lactose intolerance and soya sensitivity affecting absorption of T4?
SlowDragon If I have a lactose intolerance and sensitivity to soya, could this be affecting my T4 absorption or conversion to T3? If so, would liquid thyroxine help or do I need T3 added? I recall reading a post regarding this from you but I am unsure where it is now. I avoid lactose and soya but
SlowDragon If I have a lactose intolerance and sensitivity to soya, could this be affecting my T4 absorption or conversion to T3? If so, would liquid thyroxine help or do I need T3 added? I recall reading a post regarding this from you but I am unsure where it is now. I avoid lactose and soya but
Sailing14
in
Thyroid UK
6 days ago
Seeking pain relief tips bowel movements
Im currently on my last week of RT treatment (38 sessions). Last week has been tough everytime I need to make a bowel movent. Painful to the point Im thinking of going on a liquid diet. Anyone else exp this and have any tips. Im using Aquaphor which was recommended by nurse but hasnt really helped
Im currently on my last week of RT treatment (38 sessions). Last week has been tough everytime I need to make a bowel movent. Painful to the point Im thinking of going on a liquid diet. Anyone else exp this and have any tips. Im using Aquaphor which was recommended by nurse but hasnt really helped
Drago101
in
Advanced Prostate Cancer
7 days ago
Trabeculectomy tips?
Hi I was diagnosed two or three years ago just prior to my 50th birthday. Drops have been ok but left eye seems to be deteriorating quite rapidly. I am having a trabeculectomy in my left eye in a couple of weeks. I know surgery is experienced differently for everyone but wondered if anyone had any tips
Hi I was diagnosed two or three years ago just prior to my 50th birthday. Drops have been ok but left eye seems to be deteriorating quite rapidly. I am having a trabeculectomy in my left eye in a couple of weeks. I know surgery is experienced differently for everyone but wondered if anyone had any tips
RobMitchell
in
Glaucoma UK
7 days ago
Glaucoma dvla test
Hi, just have been getting treatment for pigment dispersion glaucoma for 6 year. I've had full field of vision. I've had one lot of bilateral selective laser surgery back in 2017.I've recently had a new doctor and he has decided it's time to inform the dvla although my tests have been fine. I'm getting
Hi, just have been getting treatment for pigment dispersion glaucoma for 6 year. I've had full field of vision. I've had one lot of bilateral selective laser surgery back in 2017.I've recently had a new doctor and he has decided it's time to inform the dvla although my tests have been fine. I'm getting
WillyC75
in
Glaucoma UK
8 days ago
Avastin + Taxol + Carbo & eye problems
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Kazzh
in
My Ovacome
8 days ago
Never ending circle
Morning everyone, just looking for advice and to vent a little. I have posted a few times about my journey but finally thought I had got some answers. Quick recap- after years of being fobbed off by my GP, I eventually went private to see a rheumatologist who actually listened. Initially he diagnosed
Morning everyone, just looking for advice and to vent a little. I have posted a few times about my journey but finally thought I had got some answers. Quick recap- after years of being fobbed off by my GP, I eventually went private to see a rheumatologist who actually listened. Initially he diagnosed
Mctd
in
LUPUS UK
8 days ago
Can you help regarding symptoms?
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
FreeWolf
in
PMRGCAuk
9 days ago
Paul Tube implant for Glaucoma
Hello, I am new here and wonder if anyone else has experience of having this surgery? After many years of using various eye drops and also an unsuccessful SLT on my right eye, my consultant advised me to have this surgery in an attempt to lower my IOP thus preventing even further loss of vision. He chose
Hello, I am new here and wonder if anyone else has experience of having this surgery? After many years of using various eye drops and also an unsuccessful SLT on my right eye, my consultant advised me to have this surgery in an attempt to lower my IOP thus preventing even further loss of vision. He chose
Rainyday2024
in
Glaucoma UK
10 days ago
Hemosiderin staining?
Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from anything I’ve touched. Googling seems to suggest it is hemosiderin staining, though they are mainly US sites. This could make sense as I still
Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from anything I’ve touched. Googling seems to suggest it is hemosiderin staining, though they are mainly US sites. This could make sense as I still
Allotmental
in
Vasculitis UK
10 days ago
Hydration (again)
Following yesterday’s post, I’m puzzled why we need to obsessively drink so much water for good cardiac health if we have atrial fibrillation and take anticoagulants. I try to drink 2 litres a day but it’s becoming very inconvenient, because of urinary frequency, urgency and nocturia. No gp or consultant
Following yesterday’s post, I’m puzzled why we need to obsessively drink so much water for good cardiac health if we have atrial fibrillation and take anticoagulants. I try to drink 2 litres a day but it’s becoming very inconvenient, because of urinary frequency, urgency and nocturia. No gp or consultant
Rambler398
in
Atrial Fibrillation Support
11 days ago
Newbie help for my partner
Hi All, My wife has just been diagnosed with raynauds by the doctor ... her hands get so cold they hurt and so do her feet How do you all manage it in the colder months?... tips, tricks, products We've suspected she had it for a while but it's gotten worse and painful when she warms up. Shes against
Hi All, My wife has just been diagnosed with raynauds by the doctor ... her hands get so cold they hurt and so do her feet How do you all manage it in the colder months?... tips, tricks, products We've suspected she had it for a while but it's gotten worse and painful when she warms up. Shes against
Chip_y2kuk
in
Scleroderma & Raynaud's UK (SRUK)
11 days ago
Decipher this cholesterol reading please
I know there are plenty of knowledgeable people reading these posts so can you decipher this please Chol 3.5 mmol/L, LDL , HDL 1.78 mmol/L,Chol:HDL ratio , Tri 0.51 mmol/L. I don’t understand this. I’m guessing my cholesterol reading is 3.5, but what are HDL and LDL readings individually?
I know there are plenty of knowledgeable people reading these posts so can you decipher this please Chol 3.5 mmol/L, LDL , HDL 1.78 mmol/L,Chol:HDL ratio , Tri 0.51 mmol/L. I don’t understand this. I’m guessing my cholesterol reading is 3.5, but what are HDL and LDL readings individually?
IsleofWight1
in
LUPUS UK
11 days ago
Discomfort
Hi all. I'm getting discomfort in my upper abdomen. It's not pain exactly but it's uncomfortable. It's like IBS, which I suffer with, but can't take peppermint oil anymore. Has anyone else experienced this? Is it normal? It's not bloated like I had when I was diagnosed with cirrhosis. Apart from this
Hi all. I'm getting discomfort in my upper abdomen. It's not pain exactly but it's uncomfortable. It's like IBS, which I suffer with, but can't take peppermint oil anymore. Has anyone else experienced this? Is it normal? It's not bloated like I had when I was diagnosed with cirrhosis. Apart from this
Littlelizzy11
in
British Liver Trust
11 days ago
hair loss
hello, has anyone with decompensated cirrhosis discovered hair loss? My hair is so thin or snapped or fell out, besides eating more protein I have biotin injections but it’s getting worse, would not be so bad if I was a man but unfortunately am not!
hello, has anyone with decompensated cirrhosis discovered hair loss? My hair is so thin or snapped or fell out, besides eating more protein I have biotin injections but it’s getting worse, would not be so bad if I was a man but unfortunately am not!
Kingbilly3
in
British Liver Trust
11 days ago
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