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Experiences with
Dimethyl fumarate
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Dimethyl fumarate
This article about DMF was released on 2020 : https://adrenoleukodystrophynews.com/2020/01/28/
dimethyl
-
fumarate
-earns-orphan-drug-designation-ald-european-medicines-agency/#:~:text=
Dimethyl
%20fumarate%20%E2%80%94%20an%20approved%20therapy%20for%20multiple,Medicines%20Agency%20for%20the%20treatment%20of
This article about DMF was released on 2020 : https://adrenoleukodystrophynews.com/2020/01/28/
dimethyl
-
fumarate
-earns-orphan-drug-designation-ald-european-medicines-agency/#:~:text=
Dimethyl
%20fumarate%20%E2%80%94%20an%20approved%20therapy%20for%20multiple,Medicines%20Agency%20for%20the%20treatment%20of
Yevgenii
in
AMN EASIER
7 months ago
Generics of Tecfidera not available in Europe until at least 2025
Received an email about this today: European Commission decision supports Biogen's pursuit of market exclusivity The European Commission (EC) has withdrawn its marketing authorizations for generic versions of Tecfidera (
dimethyl
fumarate
), an oral therapy approved in Europe for relapsing-remitting
Received an email about this today: European Commission decision supports Biogen's pursuit of market exclusivity The European Commission (EC) has withdrawn its marketing authorizations for generic versions of Tecfidera (
dimethyl
fumarate
), an oral therapy approved in Europe for relapsing-remitting
bxrmom
in
My MSAA Community
5 months ago
Been away for a bit...depression hit hard
I just tried the
dimethyl
fumarate
(generic Tecfidera) which made me break out in severe hives. So right now I am on no drugs and must say I feel really good being drug free. My neurologist feels that she wants me on a DMT for at least a few more years (I am 64).
I just tried the
dimethyl
fumarate
(generic Tecfidera) which made me break out in severe hives. So right now I am on no drugs and must say I feel really good being drug free. My neurologist feels that she wants me on a DMT for at least a few more years (I am 64).
Helpmeup
in
My MSAA Community
11 months ago
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Dimethyl fumarate : increases NRF2 , already in use for MS
Dimethyl
fumarate
has been effective in animal models of PD.
Dimethyl
fumarate
has been effective in animal models of PD.
Little_apple
in
Cure Parkinson's
1 year ago
Should I stop Ferrous Fumarate before Blood Test?
Hi, I was prescribed Ferrous Fumarate after my last bloods showed very low in ferritin levels (I'm Hashi's). I'm due my follow up routine blood test for thyroid levels and ferritin / iron next week. Do I need to stop taking the Ferrous Fumarate ahead of the blood test? Thanks so much
Hi, I was prescribed Ferrous Fumarate after my last bloods showed very low in ferritin levels (I'm Hashi's). I'm due my follow up routine blood test for thyroid levels and ferritin / iron next week. Do I need to stop taking the Ferrous Fumarate ahead of the blood test? Thanks so much
SleepingDisco
in
Thyroid UK
5 hours ago
Low B12 and ferritin questions
Over the past year I have had frequent respiratory infections and when not ill, I am always exhausted. I often need to stay in bed on my days off recovering. Alongside the exhaustion and frequent infections I have dealt with nausea and gastric problems which I always thought were due to IBS. I faint
Over the past year I have had frequent respiratory infections and when not ill, I am always exhausted. I often need to stay in bed on my days off recovering. Alongside the exhaustion and frequent infections I have dealt with nausea and gastric problems which I always thought were due to IBS. I faint
bakedbean5007
in
Pernicious Anaemia Society
2 days ago
Help please
I've been in 2 x 88 microgram of pramipexole for about a year, I'm anemic and have just been prescribed ferrous fumarate 210mg a day, I have hated the pramipexole it's made me gain weight, dizzy and isn't really working now, so I have gone back in to gabapentin, first night, last night took 300mg of
I've been in 2 x 88 microgram of pramipexole for about a year, I'm anemic and have just been prescribed ferrous fumarate 210mg a day, I have hated the pramipexole it's made me gain weight, dizzy and isn't really working now, so I have gone back in to gabapentin, first night, last night took 300mg of
Mittons
in
Restless Legs Syndrome
2 days ago
ferritin levels before starting T3
Just received a letter from NHS endo giving me a trail on T3 it’s been a battle.. medichecks test done last July showed ferritin at 25.9 (30-300) TSH 0.796 (027-4.2) T3. 3.9 (3.1-6.8) Ft 21.1 (12- 22) Starting taking ferrous fumarate Then test September nhs ferritin 33 (10-300.) Medichecks
Just received a letter from NHS endo giving me a trail on T3 it’s been a battle.. medichecks test done last July showed ferritin at 25.9 (30-300) TSH 0.796 (027-4.2) T3. 3.9 (3.1-6.8) Ft 21.1 (12- 22) Starting taking ferrous fumarate Then test September nhs ferritin 33 (10-300.) Medichecks
JadeFox
in
Thyroid UK
10 days ago
Iron supplementation
Hi I have Hashimoto's - as yet untreated due to fluctuating TSH levels. My symptoms are numerous, and due to low levels of B12 and vitamin D, I am supplementing those. I am gluten Soy and Dairy free. My ferritin has been historically low and the GPs have frequently me prescribed Ferrous Fumarate.
Hi I have Hashimoto's - as yet untreated due to fluctuating TSH levels. My symptoms are numerous, and due to low levels of B12 and vitamin D, I am supplementing those. I am gluten Soy and Dairy free. My ferritin has been historically low and the GPs have frequently me prescribed Ferrous Fumarate.
Justine_Case
in
Thyroid UK
12 days ago
Accessing Iron Infusion
hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid 20s and it has slowly gotten worse. I am now 35 and have tried a number of different medications one being ropinirole which I have successfully
hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid 20s and it has slowly gotten worse. I am now 35 and have tried a number of different medications one being ropinirole which I have successfully
Xicara
in
Restless Legs Syndrome
18 days ago
Switching from Levothyroxine to Liothyronine
Hello, I hope everyone is well. I haven’t written on here for a while as I’ve been feeling quite well so hope you don’t mind me coming back to you now. Although I feel good on my current dose of thyroxine and definitely don’t feel I’m taking too much, my endocrinologist wants to lower my thyroxine
Hello, I hope everyone is well. I haven’t written on here for a while as I’ve been feeling quite well so hope you don’t mind me coming back to you now. Although I feel good on my current dose of thyroxine and definitely don’t feel I’m taking too much, my endocrinologist wants to lower my thyroxine
Cathrd
in
Thyroid UK
22 days ago
Border line Anaemia
Can anyone help me please? I have just been diagnosed with border line anaemia. I had a message from my surgery that a prescription had been left at the pharmacy for me to collect. I haven’t even seen a doctor. The prescription is 210mgs Ferrous Fumarate twice a day. I have taken them for two days
Can anyone help me please? I have just been diagnosed with border line anaemia. I had a message from my surgery that a prescription had been left at the pharmacy for me to collect. I haven’t even seen a doctor. The prescription is 210mgs Ferrous Fumarate twice a day. I have taken them for two days
Cavalierrubie
in
Acid Reflux Support
28 days ago
Can anyone help interpret my iron panel results 🙏
I managed to get my doctor to do a full iron panel due to my ferritin being at only 43 (20.0 - 130.0) I have attached a the results of the iron panel test, can anyone interpret these?? I am wondering whether to start back on my ferrous fumarate 210mg tablets…. I stopped these quite a few years back
I managed to get my doctor to do a full iron panel due to my ferritin being at only 43 (20.0 - 130.0) I have attached a the results of the iron panel test, can anyone interpret these?? I am wondering whether to start back on my ferrous fumarate 210mg tablets…. I stopped these quite a few years back
ThyroidObsessed
in
Thyroid UK
2 months ago
3 am protocol for T3, please tell me about it?
Please could you tell me what I need to know about the 3 am protocol for T3? Does there need to be a gradual transition from split dosing? Anything else I should know? I have been on T3 only for some years and recently have been very tired and depressed, for me the usual symptoms of being hypo. T3
Please could you tell me what I need to know about the 3 am protocol for T3? Does there need to be a gradual transition from split dosing? Anything else I should know? I have been on T3 only for some years and recently have been very tired and depressed, for me the usual symptoms of being hypo. T3
thyr01d
in
Thyroid UK
2 months ago
advice needed please re iron and thyroxine
hi there, I’d really appreciate some advice. I’ve been on Thyroxine for a number of years and have been fine, I’ve just been told that I have Anaemia and have started on Ferrous Fumarate tabs 210 mg. I’ve started to feel tearful and anxious this last week and wonder if the iron is affecting my thyroid
hi there, I’d really appreciate some advice. I’ve been on Thyroxine for a number of years and have been fine, I’ve just been told that I have Anaemia and have started on Ferrous Fumarate tabs 210 mg. I’ve started to feel tearful and anxious this last week and wonder if the iron is affecting my thyroid
Poppyqueen
in
Thyroid UK
3 months ago
Ferritin and depression anxiety!
Does anyone have any experience or opinions on the link between low ferritin and depression and anxiety! It seems I have had my thyroid levels optimal for a while now… me being me thought that because I had raise my ferritin from 40 to 80 that it would stay there with a measly maintenance dose of 20mg
Does anyone have any experience or opinions on the link between low ferritin and depression and anxiety! It seems I have had my thyroid levels optimal for a while now… me being me thought that because I had raise my ferritin from 40 to 80 that it would stay there with a measly maintenance dose of 20mg
ThyroidObsessed
in
Thyroid UK
3 months ago
Folate test prep
I’ve been asked to retest my folate as this was rejected from my latest batch of blood tests, earlier this month. I’ve not had just folate tested before (only as part of a wider set of tests) please can you advise on any prep I need to do for just folate? Assuming I should stop Thorne Basic B
I’ve been asked to retest my folate as this was rejected from my latest batch of blood tests, earlier this month. I’ve not had just folate tested before (only as part of a wider set of tests) please can you advise on any prep I need to do for just folate? Assuming I should stop Thorne Basic B
SleepingDisco
in
Thyroid UK
3 months ago
Iron deficiency
After blood tests showed low ferritin and other values indicating iron deficient anaemia, the NHS did a fairly thorough job over 6 months with various tests and procedures to eliminate internal bleeds as a cause ( anticoagulant doesn't help!). Finally given the all clear and advised that iron supplementation
After blood tests showed low ferritin and other values indicating iron deficient anaemia, the NHS did a fairly thorough job over 6 months with various tests and procedures to eliminate internal bleeds as a cause ( anticoagulant doesn't help!). Finally given the all clear and advised that iron supplementation
50568789
in
Restless Legs Syndrome
3 months ago
Advice regarding Thyroid levels
Hi Could do with some advice regarding my thyroid test levels. I have Hashimoto's but am not taking thyroid medication due to my TSH levels not being high enough yet. I was diagnosed just over 2 years ago after my health had declined for several years. My GP did however agree to a 25mcg Levothyroxine
Hi Could do with some advice regarding my thyroid test levels. I have Hashimoto's but am not taking thyroid medication due to my TSH levels not being high enough yet. I was diagnosed just over 2 years ago after my health had declined for several years. My GP did however agree to a 25mcg Levothyroxine
Justine_Case
in
Thyroid UK
4 months ago
Beware of Lansoprazole
I have taken this drug for years for acid reflux. Last year, during a medical check, it was found that my blood count was so low it was almost at needing a transfusion level. I was put on Ferrous Fumarate which brought my level up but my ferritin level is still low. I had an endoscopy and it was discovered
I have taken this drug for years for acid reflux. Last year, during a medical check, it was found that my blood count was so low it was almost at needing a transfusion level. I was put on Ferrous Fumarate which brought my level up but my ferritin level is still low. I had an endoscopy and it was discovered
Hidden
in
Acid Reflux Support
4 months ago
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