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Personal insights into late stage PD thoughts
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
beehive23
in
Cure Parkinson's
7 months ago
B1 Therapy #Case 1 * Manuela Correia
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
Markbit
in
Cure Parkinson's
7 months ago
Headaches - just started a week ago - is it hypo related
Last Thursday I developed a really bad headache - I was at a wedding and the music was loud and I blamed that (I don't drink so it's not related to that). The headache has never left - I have had it every day since although not just as bad. I believe I have Hashimotos although never diagnosed - just
Last Thursday I developed a really bad headache - I was at a wedding and the music was loud and I blamed that (I don't drink so it's not related to that). The headache has never left - I have had it every day since although not just as bad. I believe I have Hashimotos although never diagnosed - just
Sunflower535
in
Thyroid UK
9 months ago
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B1 and anti anxiety pills
My HWP, diagnosed 30 years ago, DBS 18 years ago, has been going through a very difficult period with his PD for the past 3 months. His knees keep collapsing and his 'offs' have become very bad. I am having to lift him from his falls and helping him get out of his chair, bed etc. This has been a real
My HWP, diagnosed 30 years ago, DBS 18 years ago, has been going through a very difficult period with his PD for the past 3 months. His knees keep collapsing and his 'offs' have become very bad. I am having to lift him from his falls and helping him get out of his chair, bed etc. This has been a real
JeanieBeanie
in
Cure Parkinson's
7 months ago
Help please with thyroid test interpretation and supplements guidance
Hello everyone, I am new here and learning such a lot from the hugely valuable resource that is this forum - thank you all for the time you take to help people like me. Please could I have some help in interpreting my recent Medichecks advanced thyroid panel and how to move forward from this assessment
Hello everyone, I am new here and learning such a lot from the hugely valuable resource that is this forum - thank you all for the time you take to help people like me. Please could I have some help in interpreting my recent Medichecks advanced thyroid panel and how to move forward from this assessment
eggsforlunch
in
Thyroid UK
9 months ago
What I learned about steroids and blood sugar levels from wearing a continuous glucose monitor (CGM) on the ZOE program
I’ve just finished using a CGM for 2 weeks as a paying participant in the ZOE study, which I mentioned in a previous post: https://healthunlocked.com/pmrgcauk/posts/149526653/ive-signed-up-for-tim-spectors-zoe-study-looking-at-blood-sugars-and-gut-health Many PMR and GCA patients, self-included, have
I’ve just finished using a CGM for 2 weeks as a paying participant in the ZOE study, which I mentioned in a previous post: https://healthunlocked.com/pmrgcauk/posts/149526653/ive-signed-up-for-tim-spectors-zoe-study-looking-at-blood-sugars-and-gut-health Many PMR and GCA patients, self-included, have
tangocharlie
in
PMRGCAuk
9 months ago
Newby
Hi Have been following a low-carb diet for several years to lose weight because of heart problems. Just had Hb1ac test and my results are going 38, 39, 40, 41! Nurse at surgery said it is my body shutting down! At 80, I really hope not
Hi Have been following a low-carb diet for several years to lose weight because of heart problems. Just had Hb1ac test and my results are going 38, 39, 40, 41! Nurse at surgery said it is my body shutting down! At 80, I really hope not
Hylda2
in
iDEAL Diabetes
9 months ago
Let's share your DBS settings
I start first. Vendor: Medtronics Right STN: 4.5 - 4.9v STN (2+1 interleaving) Left STN :3.6v STN double mono polar Frequency: 125hz pulse width: 90 μs
I start first. Vendor: Medtronics Right STN: 4.5 - 4.9v STN (2+1 interleaving) Left STN :3.6v STN double mono polar Frequency: 125hz pulse width: 90 μs
limcheeese22
in
Cure Parkinson's
7 months ago
sweating and tired
I’m having masses of hot flashes and I’m really tired. I’ve lost 10kg over the last three months (deliberately through low carb diet) but I’m thinking that might mean I’m now over medicated because I am less kilos than before. The other possibility is that I’ve not used my hrt patch for a few weeks
I’m having masses of hot flashes and I’m really tired. I’ve lost 10kg over the last three months (deliberately through low carb diet) but I’m thinking that might mean I’m now over medicated because I am less kilos than before. The other possibility is that I’ve not used my hrt patch for a few weeks
Pearlteapot
in
Thyroid UK
9 months ago
swelling around DBS battery 5 weeks after surgery
It’s been 5 weeks since my battery placement surgery and when I woke up this morning my battery site is puffy. The incision has healed and looks fine. No redness or fever either. I’m not sure what caused this. I called my surgeon and sent pictures and they are going to see me Monday morning. But they
It’s been 5 weeks since my battery placement surgery and when I woke up this morning my battery site is puffy. The incision has healed and looks fine. No redness or fever either. I’m not sure what caused this. I called my surgeon and sent pictures and they are going to see me Monday morning. But they
Nurse7
in
Cure Parkinson's
7 months ago
DBS energy
Hi guys. I keep reading about people who -post DBS - went and ran a marathon etc and appear to have gallons of energy. Should I be feeling this? No, I don’t think that they’ve got the program right yet but running a marathon? Ay ay ay
Hi guys. I keep reading about people who -post DBS - went and ran a marathon etc and appear to have gallons of energy. Should I be feeling this? No, I don’t think that they’ve got the program right yet but running a marathon? Ay ay ay
jeeves19
in
Cure Parkinson's
8 months ago
Symptom Help
Morning everyone, I don’t want to sound rude, but before everyone jumps on and asks what my tests results have been lately I am waiting for a copy of them as they do not show on my hospital app. i am just posting to see if anyone has ever experienced anything similar as I am becoming extremely annoyed
Morning everyone, I don’t want to sound rude, but before everyone jumps on and asks what my tests results have been lately I am waiting for a copy of them as they do not show on my hospital app. i am just posting to see if anyone has ever experienced anything similar as I am becoming extremely annoyed
Zoey92
in
Thyroid UK
11 months ago
change in IBS symptoms
Hi I am totally confused and a bit bewildered. So I have had IBS with terrible bouts of diarrhoea for over three years. During which time I definitely had trigger foods which made it a lot worse. Going on a gluten free diet seemed to help slightly as did a fructan free diet. Also low fodmap. But didn
Hi I am totally confused and a bit bewildered. So I have had IBS with terrible bouts of diarrhoea for over three years. During which time I definitely had trigger foods which made it a lot worse. Going on a gluten free diet seemed to help slightly as did a fructan free diet. Also low fodmap. But didn
Junkjournal1
in
IBS Network
9 months ago
Hashimoto ?
Hi Everyone, I was diagnosed with Hashimoto based on these results. The GP said that the lets get checked ranges weren't exact. Does this definitely mean I definitely have Hashimoto ? I was put on NP Thyroid and now my Antibodies have gone up. I'm not sure why. I was doing gluten free diet. Another
Hi Everyone, I was diagnosed with Hashimoto based on these results. The GP said that the lets get checked ranges weren't exact. Does this definitely mean I definitely have Hashimoto ? I was put on NP Thyroid and now my Antibodies have gone up. I'm not sure why. I was doing gluten free diet. Another
Cait23
in
Thyroid UK
9 months ago
DBS journey
Hey Gang. I thought I’d post something as I’m aware that a few of you are following my story with a mind to seeing how it fits into your own life? So, turned on Friday, felt awful Saturday (as you know) better Sunday. But yesterday and today I had awful issues with my voice. The programmer had asked
Hey Gang. I thought I’d post something as I’m aware that a few of you are following my story with a mind to seeing how it fits into your own life? So, turned on Friday, felt awful Saturday (as you know) better Sunday. But yesterday and today I had awful issues with my voice. The programmer had asked
jeeves19
in
Cure Parkinson's
8 months ago
How flexible can you be .....
Not quite the normal post I guess but just wanted others thoughts on this .I had my HA on 27th February and 3 stents. I think I'm making a decent recovery, and have re run and completed couch to 5k again . Soon after leaving hospital my blood sugar levels peaked into the diabetic range and then within
Not quite the normal post I guess but just wanted others thoughts on this .I had my HA on 27th February and 3 stents. I think I'm making a decent recovery, and have re run and completed couch to 5k again . Soon after leaving hospital my blood sugar levels peaked into the diabetic range and then within
Instructor57
in
British Heart Foundation
9 months ago
Diagnosis help
Hi,This might turn out to be very long. I was diagnosed with coeliac disease 12 years ago, and my brother was diagnosed 29 years ago. My daughter has suffered with stomach issues all her life. Pain, bloating, diarrhoea, constipation. She is also deficient in various vitamins and is always anaemic. She
Hi,This might turn out to be very long. I was diagnosed with coeliac disease 12 years ago, and my brother was diagnosed 29 years ago. My daughter has suffered with stomach issues all her life. Pain, bloating, diarrhoea, constipation. She is also deficient in various vitamins and is always anaemic. She
roobiedoobie
in
Gluten Free Guerrillas
10 months ago
Foslevodopa-Foscarbidopa (Vyalev)
Sign of a new delivery system for levodopa coming down the pike? or potential to replace DBS? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
Sign of a new delivery system for levodopa coming down the pike? or potential to replace DBS? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
bcjlynne
in
Cure Parkinson's
8 months ago
DBS switch on news.
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
jeeves19
in
Cure Parkinson's
8 months ago
'Abnormal' TSH result
Just received online results of my recent annual blood test. I have Hashimoto's (16 years) and on levothyroxine. Serum Free T4 14pmol/L [9-23] Serum Free T3 4.3pmol/L [2.4-6] TSH 0.18 [0.3 - 4.2] - with a note of 'abnormal - need to speak to doctor. I know they will be pressing for me to
Just received online results of my recent annual blood test. I have Hashimoto's (16 years) and on levothyroxine. Serum Free T4 14pmol/L [9-23] Serum Free T3 4.3pmol/L [2.4-6] TSH 0.18 [0.3 - 4.2] - with a note of 'abnormal - need to speak to doctor. I know they will be pressing for me to
Kacey12
in
Thyroid UK
10 months ago
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