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Diamine oxidase
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How can I get some real relief from this RLS torture?
I am pleased , but also envious, to see that many people have benefited from medicinal marijuana. I finally managed to obtain some THC/CBD oil here in Sydney in the hope it would help me get off Pregabalin which is no longer working for me after many years on 300mg nightly, but I have found that, not
I am pleased , but also envious, to see that many people have benefited from medicinal marijuana. I finally managed to obtain some THC/CBD oil here in Sydney in the hope it would help me get off Pregabalin which is no longer working for me after many years on 300mg nightly, but I have found that, not
feetgrind
in
Restless Legs Syndrome
2 years ago
Gene therapy for genetic disorder affecting brain dopamine metabolism shows success; same delivery technique being investigated for PD
Really exciting report of disease reversal in children with AADC (aromatic L-amino acid decarboxylase deficiency); article mentions same delivery technique is being used for GDNF gene therapy in Parkinson's. https://wexnermedical.osu.edu/departments/innovations/neuronews/gene-therapy-new-approach
Really exciting report of disease reversal in children with AADC (aromatic L-amino acid decarboxylase deficiency); article mentions same delivery technique is being used for GDNF gene therapy in Parkinson's. https://wexnermedical.osu.edu/departments/innovations/neuronews/gene-therapy-new-approach
Rhyothemis
in
Cure Parkinson's
2 years ago
Instant help
I would like to inform you about a funny instant release that I came across recently. When I am in bed trying to sleep and my legs are jumping because my dopamine agonist doesn’t work, then I stand on my cold balcony only in my underwear for about 5 minutes (at the moment it is maybe about 0 and 8 degree
I would like to inform you about a funny instant release that I came across recently. When I am in bed trying to sleep and my legs are jumping because my dopamine agonist doesn’t work, then I stand on my cold balcony only in my underwear for about 5 minutes (at the moment it is maybe about 0 and 8 degree
Happyfriday123
in
Restless Legs Syndrome
2 years ago
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DAO test
I have been reading that people with a deficiency in
Diamine
Oxidase
(DAO)can have too much histamine in their body which could cause migrianes I have asked my gp about testing this and they had no knowledge of this Does anyone now where I could get this tested privately Thanks
I have been reading that people with a deficiency in
Diamine
Oxidase
(DAO)can have too much histamine in their body which could cause migrianes I have asked my gp about testing this and they had no knowledge of this Does anyone now where I could get this tested privately Thanks
jojomac23
in
National Migraine Centre
3 years ago
Lower lip
Lower lip curls inward over teeth, I get both shots in feet and calves, but Dr . Said he didn't want to do lower lip, because one side could be uneven. Dr. Said we'll talk about it when I go in for next appointment. This is very uncomfortable, I have to pull lip down to talk, another low dopamine
Lower lip curls inward over teeth, I get both shots in feet and calves, but Dr . Said he didn't want to do lower lip, because one side could be uneven. Dr. Said we'll talk about it when I go in for next appointment. This is very uncomfortable, I have to pull lip down to talk, another low dopamine
akgirlsrock
in
Cure Parkinson's
2 years ago
Recording now available of presentation by Prof Barker - Cambridge University: "Can we repair the brain in PD using cell-based therapies?"
Thank you to all of you who joined us on Monday evening. We were all treated to an amazing presentation by Professor Roger Barker, explaining in great depth and with simplicity the journey so far and future hopes of cell-based dopamine replacement therapies. It is certainly an exciting area of research
Thank you to all of you who joined us on Monday evening. We were all treated to an amazing presentation by Professor Roger Barker, explaining in great depth and with simplicity the journey so far and future hopes of cell-based dopamine replacement therapies. It is certainly an exciting area of research
Michel0220
in
Cure Parkinson's
2 years ago
Monoamine Oxidase Inhibitors: A Review of Their Anti-Inflammatory Therapeutic Potential and Mechanisms of Action
Article from 30 April 2021 https://www.frontiersin.org/articles/10.3389/fphar.2021.676239/full
Concluding Remarks and Future Perspectives
MAO inhibitors have a long history of successful clinical use to manage CNS diseases such as depression, Parkinson’s, and Alzheimer’s.
There is also an
Article from 30 April 2021 https://www.frontiersin.org/articles/10.3389/fphar.2021.676239/full
Concluding Remarks and Future Perspectives
MAO inhibitors have a long history of successful clinical use to manage CNS diseases such as depression, Parkinson’s, and Alzheimer’s.
There is also an
Hidden
in
Cure Parkinson's
2 years ago
How do I setup cues and systems in place to be able to exercise more often?
I recently listened to this podcast and I liked the idea. https://open.spotify.com/episode/2TqH8caM1EfY2xTUXd5vnK?si=ghqIhNazSqa-keWokeneUA (Summary: Make it harder to do the thing you tend to do and make it easier to do the thing you want to. And plan ahead and setup systems and cues to make that
I recently listened to this podcast and I liked the idea. https://open.spotify.com/episode/2TqH8caM1EfY2xTUXd5vnK?si=ghqIhNazSqa-keWokeneUA (Summary: Make it harder to do the thing you tend to do and make it easier to do the thing you want to. And plan ahead and setup systems and cues to make that
shnamb
in
CHADD's Adult ADHD Support
2 years ago
Dopamine Patch versus tablets your experience?
Hi, I am seeking your experience as to whether Patches are safe and do or do not cause more complications than the tablets. I was diagnosed with PD 6 years ago and my Neurologist has suggested a Neupro patch 2mg/24h because I reported no real on and off periods on the Madopar tablets and no real difference
Hi, I am seeking your experience as to whether Patches are safe and do or do not cause more complications than the tablets. I was diagnosed with PD 6 years ago and my Neurologist has suggested a Neupro patch 2mg/24h because I reported no real on and off periods on the Madopar tablets and no real difference
Coling
in
Cure Parkinson's
2 years ago
High Dose B2 ?
I noticed this paragraph from the following report https://www.askdrray.com/parkinsons-disease-from-too-much-meat-and-too-little-vitamin-b2/ "Riboflavin (=vitamin B2) is an important ingredient in a number of metabolic processes in brain cells that result in the production of dopamine, a brain hormone
I noticed this paragraph from the following report https://www.askdrray.com/parkinsons-disease-from-too-much-meat-and-too-little-vitamin-b2/ "Riboflavin (=vitamin B2) is an important ingredient in a number of metabolic processes in brain cells that result in the production of dopamine, a brain hormone
JustJeff
in
Cure Parkinson's
2 years ago
Obstructive Sleep Apnea (OSA) and RLS - article
My recent sleep study concluded I have mild-to-moderate obstructive sleep apnea (OSA), in addition to RLS, of course. It turns out there is a higher than average prevalence of RLS in OSA patients (~8%), although they are not causally related. I am awaiting delivery and fitting of a CPAP machine (there
My recent sleep study concluded I have mild-to-moderate obstructive sleep apnea (OSA), in addition to RLS, of course. It turns out there is a higher than average prevalence of RLS in OSA patients (~8%), although they are not causally related. I am awaiting delivery and fitting of a CPAP machine (there
PoorRichard
in
Restless Legs Syndrome
2 years ago
Dopamine Vs long term pain
Hi everyone. First time post so be gentle, but I discovered something new which I wondered if any of you had knowledge of Based on a hunch after many years of self managing pain as a lot of us have to, I got myself on to a sleep study. Having never been a good sleeper and having noticed curious patterns
Hi everyone. First time post so be gentle, but I discovered something new which I wondered if any of you had knowledge of Based on a hunch after many years of self managing pain as a lot of us have to, I got myself on to a sleep study. Having never been a good sleeper and having noticed curious patterns
Labrat80
in
Pain Concern
2 years ago
Herantis Marks A Successful 2021; An Ambitious and Promising 2022 Ahead to Advance Robust CNS Pipeline
Herantis Pharma Plc, Press Release, 13 January 2022 at 09:00 EET Dr Craig Cook, CEO, commented ”2021 was indeed a defining year for Herantis as we move into the next chapter for the company and our programs. The year saw us focus all our research and resources on the key value drivers of the company
Herantis Pharma Plc, Press Release, 13 January 2022 at 09:00 EET Dr Craig Cook, CEO, commented ”2021 was indeed a defining year for Herantis as we move into the next chapter for the company and our programs. The year saw us focus all our research and resources on the key value drivers of the company
Hidden
in
Cure Parkinson's
2 years ago
Apathy
Hi Lovely Group. Has anyone any experience with Apathy. My husband had a planned admission yesterday for about a week to the neurology ward that he was in nmduring his acute stages . They wanted to get him an MRI but also look into starting a dopamine trial... Levadopa to be exact. Today they did
Hi Lovely Group. Has anyone any experience with Apathy. My husband had a planned admission yesterday for about a week to the neurology ward that he was in nmduring his acute stages . They wanted to get him an MRI but also look into starting a dopamine trial... Levadopa to be exact. Today they did
ored13
in
Headway
2 years ago
How I went from 13 to 4 a day (Carbidopa 25/Levodopa 100)?
I started taking my L-dopa on an empty stomach (no eating 30 minutes before or 1 hour after). My prescription was written for 1-1/2 tablets 6 times a day (9 a day). With my Movement Disorder Specialist’s knowledge, I was taking 1 tablet every 50 minutes using keeping my neck pain to a medium as a gauge
I started taking my L-dopa on an empty stomach (no eating 30 minutes before or 1 hour after). My prescription was written for 1-1/2 tablets 6 times a day (9 a day). With my Movement Disorder Specialist’s knowledge, I was taking 1 tablet every 50 minutes using keeping my neck pain to a medium as a gauge
Gcf51
in
Cure Parkinson's
2 years ago
Update on BlueRock Therapeutics stem-cell Phase 1 trial (which uses Human Embryonic Stem Cell-Derived Midbrain Dopamine Neurons)
"BlueRock Therapeutics’ Phase 1 trial testing DA01 ... has completed enrolling its first group of patients with advanced Parkinson’s disease. Meanwhile, enrolment for the second and final high-dose cohort of the open-label trial (NTC04802733) is still ongoing at sites in the U.S. and Canada." https:/
"BlueRock Therapeutics’ Phase 1 trial testing DA01 ... has completed enrolling its first group of patients with advanced Parkinson’s disease. Meanwhile, enrolment for the second and final high-dose cohort of the open-label trial (NTC04802733) is still ongoing at sites in the U.S. and Canada." https:/
jeffreyn
in
Cure Parkinson's
2 years ago
Update on Japanese stem cell trial
Following update has been provided today by Jun Takahashi (who is leading the trial) In our clinical trial of cell transplantation for Parkinson's disease, we have completed all seven transplant operations scheduled by the end of last year. We would like to express our deep gratitude to the patients,
Following update has been provided today by Jun Takahashi (who is leading the trial) In our clinical trial of cell transplantation for Parkinson's disease, we have completed all seven transplant operations scheduled by the end of last year. We would like to express our deep gratitude to the patients,
Farooqji
in
Cure Parkinson's
2 years ago
Educating my Canadian Dr on opioids and RLS
I have suffered with RKS for about 10 years.I believe mine is caused by a dopamine deficiency.I live in Canada and I’m not sure my Dr woukd prescribe an opioid .. my guess is he wouldn’t.Is there any kind of literature or study that I can refer too to perhaps ask him to educate himself on RLS, as I can
I have suffered with RKS for about 10 years.I believe mine is caused by a dopamine deficiency.I live in Canada and I’m not sure my Dr woukd prescribe an opioid .. my guess is he wouldn’t.Is there any kind of literature or study that I can refer too to perhaps ask him to educate himself on RLS, as I can
Knittingasweater
in
Restless Legs Syndrome
2 years ago
SHARING A SUCCESSFUL EXPERIENCE
I was going to answer Shumbah, but then I thought that the answer could be interesting for all RLS sufferers. Hello Shumbah and other sufferers: I´m RLS since 30 years ago , I have never taken buprenorphine or any other opioid. I used Dopamine Agonists (in pills and patches) for years, but when the
I was going to answer Shumbah, but then I thought that the answer could be interesting for all RLS sufferers. Hello Shumbah and other sufferers: I´m RLS since 30 years ago , I have never taken buprenorphine or any other opioid. I used Dopamine Agonists (in pills and patches) for years, but when the
Arjiji
in
Restless Legs Syndrome
2 years ago
The revolution we are living through, the need for simplicity and a few controversial considerations.
"And those who were seen dancing, were considered mad by those who who could not hear the music." Friedrich Nietzsche 1. Learn about the revolution we are living through, but which will not reach the sick for a long time if we don't do something about it. If you are tired of looking for information
"And those who were seen dancing, were considered mad by those who who could not hear the music." Friedrich Nietzsche 1. Learn about the revolution we are living through, but which will not reach the sick for a long time if we don't do something about it. If you are tired of looking for information
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
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