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CLL Society Tribune!
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
lankisterguy
Volunteer
in
CLL Support
5 years ago
IBS Cured
Just to update on my previous post: https://healthunlocked.com/theibsnetwork/posts/140191583/fybogel-not-effective-anymore For the past week I've been having normal bowel movements (every two days, at same time, normal consistency) without the use of fybogel or any supplements, medication etc. What
Just to update on my previous post: https://healthunlocked.com/theibsnetwork/posts/140191583/fybogel-not-effective-anymore For the past week I've been having normal bowel movements (every two days, at same time, normal consistency) without the use of fybogel or any supplements, medication etc. What
toffee1010
in
IBS Network
5 years ago
Does anyone have recurring oral thrush?
Hi, I've had oral thrush regularly, the liquid medicine (can't remember the name but it's yellow) doesn't touch it and I've had oral medication to clear it. My GP suggested I use Chlorodyl to keep it at bay but so far doesn't seem to touch it. I do eat plain yoghurt 3 or 4 times a week but he didn't
Hi, I've had oral thrush regularly, the liquid medicine (can't remember the name but it's yellow) doesn't touch it and I've had oral medication to clear it. My GP suggested I use Chlorodyl to keep it at bay but so far doesn't seem to touch it. I do eat plain yoghurt 3 or 4 times a week but he didn't
Heatheric
in
LUPUS UK
5 years ago
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Dutasteride & prostate-specific membrane antigen (PSMA) expression.
New study below [1]. "A short-term treatment of patients with high doses of dutasteride {Avodart} might increase the detection rate of PSMA-based imaging and increase the effect of 177Lu -PSMA-617 therapy via upregulation of PSMA expression." -Patrick [1] https://www.ncbi.nlm.nih.gov/pubmed/31233227
New study below [1]. "A short-term treatment of patients with high doses of dutasteride {Avodart} might increase the detection rate of PSMA-based imaging and increase the effect of 177Lu -PSMA-617 therapy via upregulation of PSMA expression." -Patrick [1] https://www.ncbi.nlm.nih.gov/pubmed/31233227
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Case Report: Combined Treatment with Buserelin+Cabergoline in Patient with Prostate Cancer -- Cure
" In conclusion: Combined buserelin + cabergoline treatment proved a highly successful procedure to cure this patient with prostate carcinoma and subsequent pituitary macroprolactinoma. " https://www.researchgate.net/publication/272669947_Combined_Treatment_with_BuserelinCabergoline_in_Patient_with_Prostate_Cancer_and_Pituitary_Macroprolactinoma
" In conclusion: Combined buserelin + cabergoline treatment proved a highly successful procedure to cure this patient with prostate carcinoma and subsequent pituitary macroprolactinoma. " https://www.researchgate.net/publication/272669947_Combined_Treatment_with_BuserelinCabergoline_in_Patient_with_Prostate_Cancer_and_Pituitary_Macroprolactinoma
George71
in
Advanced Prostate Cancer
5 years ago
Published 2019 May 8: A Novel Patient Case Report to Show the Successful Termination of Untreatable Androgen-independent Prostate Cancer:
Newly proposed treatment: Patient had “terminal” mCRPC -- all treatments failed -- surgery, radiation, ADT, Zytiga, LU-177 – given less that 2 years to live -- last ditch treatment resulted in– no sign of cancer 4 months later. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6578577/ see also: Published
Newly proposed treatment: Patient had “terminal” mCRPC -- all treatments failed -- surgery, radiation, ADT, Zytiga, LU-177 – given less that 2 years to live -- last ditch treatment resulted in– no sign of cancer 4 months later. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6578577/ see also: Published
George71
in
Advanced Prostate Cancer
5 years ago
social anxiety /phobia
I am five years on c/l I wonder what's causing social phobia to get worse as time passes on c/l or pd any suggestions any natural remedies ? thanks
I am five years on c/l I wonder what's causing social phobia to get worse as time passes on c/l or pd any suggestions any natural remedies ? thanks
Yhae
in
Cure Parkinson's
5 years ago
Low Grade & Cyclophosphamide
Hello ladies. Had anyone with Low Grade Serous Ovarian Cancer had oral chemotherapy called “Cyclophosphamide”. It’s an old chemo drug that apparently works on slower growing cancer cells. My oncologist suggested it to me a while ago and said it had been trialed at some point in the past but not really
Hello ladies. Had anyone with Low Grade Serous Ovarian Cancer had oral chemotherapy called “Cyclophosphamide”. It’s an old chemo drug that apparently works on slower growing cancer cells. My oncologist suggested it to me a while ago and said it had been trialed at some point in the past but not really
Levanah
in
My Ovacome
5 years ago
Sore/sensitive mouth
Hi, Does anyone get a sore mouth? As my skin on face is sore and swollen my lips are cut and sore however my mouth is also extra sensitive and sore. The edges and underside of my tongue is sore and my eyes water just cleaning my teeth. Does anyone else suffer from this and what do you do to ease/treat
Hi, Does anyone get a sore mouth? As my skin on face is sore and swollen my lips are cut and sore however my mouth is also extra sensitive and sore. The edges and underside of my tongue is sore and my eyes water just cleaning my teeth. Does anyone else suffer from this and what do you do to ease/treat
Woods01
in
LUPUS UK
5 years ago
Brachytherapy Boost
I am hoping to find useful information to help my husband who has prostrate cancer. He is also on this site. Hoping to learn more about best places to go for brachytherapy boost. I understand that experience is important here as it is with surgery. Gleason 9, (4+5) 12 cores, two 8’s and three 7’s.
I am hoping to find useful information to help my husband who has prostrate cancer. He is also on this site. Hoping to learn more about best places to go for brachytherapy boost. I understand that experience is important here as it is with surgery. Gleason 9, (4+5) 12 cores, two 8’s and three 7’s.
Badnews4me2
in
Advanced Prostate Cancer
5 years ago
Holiday Insurance blues!
We have been trying to get insurance for a cruise, but its either thousands of pounds or they will not cover at all. We finally did no medical cover with Bupa worldwide but they could still come back and refuse the cover even though pre-existing conditions not covered. My husband is now having palliative
We have been trying to get insurance for a cruise, but its either thousands of pounds or they will not cover at all. We finally did no medical cover with Bupa worldwide but they could still come back and refuse the cover even though pre-existing conditions not covered. My husband is now having palliative
caz-stoke
in
Lung Conditions Community Forum
5 years ago
Sore nose
Does anyone diagnosed with Sjogrens have issues with a sore nose? Not from blowing your nose too much, or as far as I know, from nasal dryness. The fleshy part of my nostril is sore and sometimes swollen. It is not always sore. My rheumy's assistant didn't seem to think too much of it after I told
Does anyone diagnosed with Sjogrens have issues with a sore nose? Not from blowing your nose too much, or as far as I know, from nasal dryness. The fleshy part of my nostril is sore and sometimes swollen. It is not always sore. My rheumy's assistant didn't seem to think too much of it after I told
SamTheTurtle
in
The Australian Sjögren's Syndrome Association
5 years ago
New Hope For Darvon / Co-proxamol Prescribing
Manufacture and sale of Dextropropoxyphene based products. (Darvon / Co-proxamol) was banned in India during 2013 by the Drugs Technical Advisory Board (DTAB). The UK 'Named Patient' facility relied on imports from India from 2008. In order for the 'Named Patient' scheme to continue the NHS had to
Manufacture and sale of Dextropropoxyphene based products. (Darvon / Co-proxamol) was banned in India during 2013 by the Drugs Technical Advisory Board (DTAB). The UK 'Named Patient' facility relied on imports from India from 2008. In order for the 'Named Patient' scheme to continue the NHS had to
Whowillgiveastuff
in
Pain Concern
5 years ago
Long Overdue Update
I’ve been hiding from this site because sometimes I feel like I’m already drowning in cancer. Yet, I find whenever I post I have received useful information, kind support, and I hope pieces of our experience may benefit others. We are nearing 2 years since my husband was diagnosed. At time of diagnosis
I’ve been hiding from this site because sometimes I feel like I’m already drowning in cancer. Yet, I find whenever I post I have received useful information, kind support, and I hope pieces of our experience may benefit others. We are nearing 2 years since my husband was diagnosed. At time of diagnosis
joekaty
in
Advanced Prostate Cancer
5 years ago
Has anyone tried quercetin?
If yes, did you notice any change in your endometriosis symptoms? I'm asking because I came across a mouse study that indicates it might be useful. Quercetin is an OTC supplement here in the US; people often take it for seasonal allergy relief. Here's the study abstract link: https://www.ncbi.nlm.nih.gov
If yes, did you notice any change in your endometriosis symptoms? I'm asking because I came across a mouse study that indicates it might be useful. Quercetin is an OTC supplement here in the US; people often take it for seasonal allergy relief. Here's the study abstract link: https://www.ncbi.nlm.nih.gov
Rhyothemis
in
Endometriosis UK
5 years ago
Osteoporosis/PMR treatment
Good morning all, I wondered if you can give me some guidance please. I have PMR and have been taking Pred for 10 weeks now, started on 20mg, tapered to 17.5 after 4 weeks which increased pain and stiffness and reduced agin to 15mg 5 weeks later but this again increased pain and stiffness and I have
Good morning all, I wondered if you can give me some guidance please. I have PMR and have been taking Pred for 10 weeks now, started on 20mg, tapered to 17.5 after 4 weeks which increased pain and stiffness and reduced agin to 15mg 5 weeks later but this again increased pain and stiffness and I have
Birdyloo
in
PMRGCAuk
5 years ago
Baseline SIBO test - Hydrogen Sulfide SIBO?
Hey Everyone, I'm interested to hear from anyone regarding SIBO tests - I've had the same result twice now with my SIBO tests Very, very minimal amount of Hydrogen & methane in the small intestine (Basically, a baseline SIBO), before elevation of Hydrogen in transit (which I'm told is perfectly normal
Hey Everyone, I'm interested to hear from anyone regarding SIBO tests - I've had the same result twice now with my SIBO tests Very, very minimal amount of Hydrogen & methane in the small intestine (Basically, a baseline SIBO), before elevation of Hydrogen in transit (which I'm told is perfectly normal
Briggsy0304
in
IBS Network
5 years ago
Aloe Vera and thyroid health
Izabella Wentz is claiming that aloe can be good for people with thyroid/Hashimoto's issues. https://thyroidpharmacist.com/articles/aloe-vera-thyroid-digestion-immune-support/
Izabella Wentz is claiming that aloe can be good for people with thyroid/Hashimoto's issues. https://thyroidpharmacist.com/articles/aloe-vera-thyroid-digestion-immune-support/
Eddie83
in
Thyroid UK
5 years ago
opioid induced hyperalgesia
Hey guys, So we've been in a weird lull, no new news yet, but scans upcoming which are causing us a lot of anxiety. Most recently my mom has been in constant pain and discomfort and I thought it might be the meds she has been on for so long. Turns out I was right. They have been making her feel worse
Hey guys, So we've been in a weird lull, no new news yet, but scans upcoming which are causing us a lot of anxiety. Most recently my mom has been in constant pain and discomfort and I thought it might be the meds she has been on for so long. Turns out I was right. They have been making her feel worse
H_Daughter
in
Melanoma Caregivers
5 years ago
Sore gums
Hi folks. Just wondering if any of you have experienced sore/inflamed gums. Not sure if the Imraldi has anything to do with it, or could be just run down....
Hi folks. Just wondering if any of you have experienced sore/inflamed gums. Not sure if the Imraldi has anything to do with it, or could be just run down....
Loura
in
NRAS
5 years ago
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