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Collagen powder and increased stiffness?
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
Recently, my husband experienced a distressing episode of extreme stiffness. He described it as a sensation of having someone squeeze him at the base of his brain (he had DBS in 2022), causing him to feel extremely stiff in his head, shoulders, neck and arms. In general, stiffness is his issue, but
1rocketman
in
Cure Parkinson's
3 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
3 months ago
DBS??
I’m seriously considering DBS. Would love some feedback from people who have had it done.
I’m seriously considering DBS. Would love some feedback from people who have had it done.
CostaVal
in
Cure Parkinson's
4 months ago
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addicted to C/L?
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
i have DBS 3.5 years ago.th DBS doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
limcheeese22
in
Cure Parkinson's
4 months ago
DBS. Did it improve your life as much as you hoped?
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
Well I feel the DBS conveyor belt moving again, bringing me closer to the surgery date. I have an appointment with Professor Silverdale in a couple of weeks and I have questions to ask. Can anyone reading this who has had the surgery give me their honest thoughts as to whether the DBS surgery has improved
gingerj
in
Cure Parkinson's
4 months ago
Painful sciatica
I don't take painkillers -- they hurt my stomach -- but in the evenings sit on a heating pad and have started using
Deep
Heat
. I had a pre-injection assessment yesterday and can only hope the appointment will come soon. Has anyone had these injections? Have they worked? Thanks very much.
I don't take painkillers -- they hurt my stomach -- but in the evenings sit on a heating pad and have started using
Deep
Heat
. I had a pre-injection assessment yesterday and can only hope the appointment will come soon. Has anyone had these injections? Have they worked? Thanks very much.
Harefieldfan
in
Arthritis Action
1 year ago
I’m scheduled to have DBS surgery February 29 - if you have had DBS, is there anything you wish you‘d known beforehand?
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery. Thank you in advance. Wayne
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery. Thank you in advance. Wayne
Megafone
in
Cure Parkinson's
4 months ago
Kinder , Gentler and harmless Alternative of DBS
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Farooqji
in
Cure Parkinson's
4 months ago
Next NoSilverBullet webinar on 12th of February: Dr Raul Martinez on “The role of Focused Ultrasound in the management of Parkinson's”
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 12th of February. Dr Raul Martinez Will be talking to us about “The role of Focused Ultrasound in the management of Parkinson's Disease”. Please use the Eventbrite link below
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 12th of February. Dr Raul Martinez Will be talking to us about “The role of Focused Ultrasound in the management of Parkinson's Disease”. Please use the Eventbrite link below
Michel0220
in
Cure Parkinson's
4 months ago
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
nednedned
in
Cure Parkinson's
5 months ago
AAV-GAD Gene Therapy
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
JohnP65
in
Cure Parkinson's
5 months ago
Understanding listening time at certain Db?
Hi guys, So, I'm trying to understand how things work with noise levels and HOW LONG I can listen for. I do gigs for 1 hour at a time approximately 8 times per week. These are nearly all solo gigs in care homes. For many years I did this with amplified acoustic instruments and what I thought to
Hi guys, So, I'm trying to understand how things work with noise levels and HOW LONG I can listen for. I do gigs for 1 hour at a time approximately 8 times per week. These are nearly all solo gigs in care homes. For many years I did this with amplified acoustic instruments and what I thought to
Fulltimemuso
in
Tinnitus UK
5 months ago
Sometimes the solution is simple !
Getting through the winter isn’t isn’t easy, is it friends ? This one was a long one and once the spring is on its way my energy levels, enthusiasm and motivation get going and life opens up again. It didn’t happen this year though. Asthma COPD for 21 years….was it all getting to the body ? No energy
Getting through the winter isn’t isn’t easy, is it friends ? This one was a long one and once the spring is on its way my energy levels, enthusiasm and motivation get going and life opens up again. It didn’t happen this year though. Asthma COPD for 21 years….was it all getting to the body ? No energy
PaulineHM
in
Lung Conditions Community Forum
12 hours ago
Small thyroid gland question......
What does it mean if your Free Thyroxine is low (10.8 pmol/L - 12 - 22 R ) and your Thyroid is small ? My Dr is telling me he is unable to except my recent private blood tests which is annoying as I sent bloods of to MediChecks only this morning to check my Thyroid Antibodies which are normally
What does it mean if your Free Thyroxine is low (10.8 pmol/L - 12 - 22 R ) and your Thyroid is small ? My Dr is telling me he is unable to except my recent private blood tests which is annoying as I sent bloods of to MediChecks only this morning to check my Thyroid Antibodies which are normally
Jillymo
in
Thyroid UK
18 hours ago
Anxiety & Heart failure
hello all. I have suffered from depression and anxiety for ages. My anxiety has been much worse in the past few years. Now I’ve been diagnosed with heart failure and can’t tell when my chest pain is because of my anxiety or my heart. Anyone out there on same boat? 😬🤔
hello all. I have suffered from depression and anxiety for ages. My anxiety has been much worse in the past few years. Now I’ve been diagnosed with heart failure and can’t tell when my chest pain is because of my anxiety or my heart. Anyone out there on same boat? 😬🤔
InglesitaUK
in
Anxiety Support
1 day ago
aortic valve stenosis
In 2022 I had a hip replacement following covid infection as it affected the synovial hip fluid and was then alerted to the fact that there was a problem with my aortic valve. I need to have aortic valve replacement and am currently on the waiting list. In my first consultation the cardiologist said
In 2022 I had a hip replacement following covid infection as it affected the synovial hip fluid and was then alerted to the fact that there was a problem with my aortic valve. I need to have aortic valve replacement and am currently on the waiting list. In my first consultation the cardiologist said
Greatoak1
in
British Heart Foundation
2 days ago
Sir Ranulph Fiennes
If you are interested he is on the National Geographical channel tonight at 8pm This of course is the man that after his heart bypass ran 7 marathons in seven days in seven different countries . I must admit he was a great inspiration to me when I was feeling very sorry for myself after my triple bypass
If you are interested he is on the National Geographical channel tonight at 8pm This of course is the man that after his heart bypass ran 7 marathons in seven days in seven different countries . I must admit he was a great inspiration to me when I was feeling very sorry for myself after my triple bypass
Pollypuss
in
British Heart Foundation
3 days ago
AF & AV node ablation confusion
Hi,So I have had pace n ablate, pacemaker dependent also have HF. Does anyone know if you can still be in AF after AV node ablation and pacemaker dependent? I was informed by a doctor after a recent visit to A&E that due to AV node ablation and being dependent on a pacemaker that AF shouldn't occur
Hi,So I have had pace n ablate, pacemaker dependent also have HF. Does anyone know if you can still be in AF after AV node ablation and pacemaker dependent? I was informed by a doctor after a recent visit to A&E that due to AV node ablation and being dependent on a pacemaker that AF shouldn't occur
Nomis21
in
Atrial Fibrillation Support
3 days ago
pacemaker
There is a forum, I think, for pacemaker discussion, however I couldn't figure out how to ask question on that forum. Many of you have pacemakers so maybe you can answer my question. My pacemaker is working about 85% of the time and keeps my heart rate at 60bpm. Lately I have been getting extremely
There is a forum, I think, for pacemaker discussion, however I couldn't figure out how to ask question on that forum. Many of you have pacemakers so maybe you can answer my question. My pacemaker is working about 85% of the time and keeps my heart rate at 60bpm. Lately I have been getting extremely
Tux18
in
Atrial Fibrillation Support
3 days ago
pacing wires
anyone had pacing wires poking up under the skin , I had one that came out completely and now I’ve got another one that’s poking up but that’s being taken out or cut short in a weeks time at the hospital . They can be quite painful at times when I’m working Anyone else had the same issue Oh for information
anyone had pacing wires poking up under the skin , I had one that came out completely and now I’ve got another one that’s poking up but that’s being taken out or cut short in a weeks time at the hospital . They can be quite painful at times when I’m working Anyone else had the same issue Oh for information
Lawnmower22
in
British Heart Foundation
4 days ago
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