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Post DBS Surgery
I am now nine weeks out from surgery. Last week I used my regulator to increase the voltage being sent to my brain. I was rewarded by feeling more energy and also being able to reduce my Sinemet 25/100 by one. Last week I walked to my mailbox and upon removing the mail, decided to walk a bit around
I am now nine weeks out from surgery. Last week I used my regulator to increase the voltage being sent to my brain. I was rewarded by feeling more energy and also being able to reduce my Sinemet 25/100 by one. Last week I walked to my mailbox and upon removing the mail, decided to walk a bit around
annmariebaird
in
Cure Parkinson's
6 years ago
W2R1 ankle pain
I'm loving the freedom of running, especially in the rain. I'm 44 and very unfit but this really feels doable. It makes me feel better in so many ways. However, I have a persistent pain in my right ankle- just above my foot and to the inside front of my leg. On W1R1,2&3 it didnt get any worse overvthe
I'm loving the freedom of running, especially in the rain. I'm 44 and very unfit but this really feels doable. It makes me feel better in so many ways. However, I have a persistent pain in my right ankle- just above my foot and to the inside front of my leg. On W1R1,2&3 it didnt get any worse overvthe
Squeakypoptest
Graduate
in
Couch to 5K
6 years ago
Gluten free diet?
Hi everyone, being newly diagnosed with endometriosis I really want to try and find things that help with the pain other than painkillers. Has anyone tried a gluten free diet? Has it helped? x
Hi everyone, being newly diagnosed with endometriosis I really want to try and find things that help with the pain other than painkillers. Has anyone tried a gluten free diet? Has it helped? x
Rae253
in
Endometriosis UK
6 years ago
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BRAIN FOG DISCUSSION - NUMEROUS REPORTS OF ABUSE
I'd like to remind members that it is expected that people will be courteous to others when posting comments. The topic of Brain Fog is very interesting but it seems that some people object to another's point of view and have become confrontational and dismissive of other peoples views. * Please do
I'd like to remind members that it is expected that people will be courteous to others when posting comments. The topic of Brain Fog is very interesting but it seems that some people object to another's point of view and have become confrontational and dismissive of other peoples views. * Please do
Irene
Administrator
in
Gluten Free Guerrillas
6 years ago
DBS
Is DBSgood? Iim diagnosed 7 years 1sinemet every 2and1/2 to 3 hrs. I have every symptom excpt tremors
Is DBSgood? Iim diagnosed 7 years 1sinemet every 2and1/2 to 3 hrs. I have every symptom excpt tremors
michaela13
in
Cure Parkinson's
6 years ago
DBS
Is DBSgood? Iim diagnosed 7 years 1sinemet every 2and1/2 to 3 hrs. I have every symptom excpt tremors
Is DBSgood? Iim diagnosed 7 years 1sinemet every 2and1/2 to 3 hrs. I have every symptom excpt tremors
michaela13
in
Cure Parkinson's
6 years ago
DBS
Is DBSgood? Iim diagnosed 7 years 1sinemet every 2and1/2 to 3 hrs. I have every symptom excpt tremors
Is DBSgood? Iim diagnosed 7 years 1sinemet every 2and1/2 to 3 hrs. I have every symptom excpt tremors
michaela13
in
Cure Parkinson's
6 years ago
Gluten-Free is Good!
I have noticed that many of us are on Gluten-Free diets. Are there any other big food item monsters out there that aggravate Behçet’s inflammation? Going Gluten-Free was a game changer for me, at least for a while. I definitely felt markedly better on the GF diet within about a week. Thanks! Dave
I have noticed that many of us are on Gluten-Free diets. Are there any other big food item monsters out there that aggravate Behçet’s inflammation? Going Gluten-Free was a game changer for me, at least for a while. I definitely felt markedly better on the GF diet within about a week. Thanks! Dave
OpsDave70
in
Behçet's UK
6 years ago
Arsenic in rice-is this a concern for those on Gluten-free diets
I saw a program on TV recently that talked about the danger people on GF diets might be exposed to because of arsenic in rice. I googled "rice and pregnancy" as well as "arsenic in rice" and found several articles on the subject. Boiled down (excuse the pun) eating too many rice products from the
I saw a program on TV recently that talked about the danger people on GF diets might be exposed to because of arsenic in rice. I googled "rice and pregnancy" as well as "arsenic in rice" and found several articles on the subject. Boiled down (excuse the pun) eating too many rice products from the
Rosemary76210
in
Hughes Syndrome APS Forum
6 years ago
Wearing a hat after DBS
Any comments, experiences good or bad? What type of hat?
Any comments, experiences good or bad? What type of hat?
Gobbsofjoy
in
Cure Parkinson's
6 years ago
Is my gluten free diet making any difference?
Hi all. I went on a strict gluten free diet on 30 October 2017 and I’ve just had my most recent results back. They look quite different than before, but not sure if it’s 1) an improvement, and 2) if this change is due to being GF. I did also start supplementing (Vit B Complex, Vit D, Selenium) before
Hi all. I went on a strict gluten free diet on 30 October 2017 and I’ve just had my most recent results back. They look quite different than before, but not sure if it’s 1) an improvement, and 2) if this change is due to being GF. I did also start supplementing (Vit B Complex, Vit D, Selenium) before
bell22
in
Thyroid UK
6 years ago
Gluten free and non hashis or coeliac- anyone tried and feel better?
Just wondering if anyone who isn't either hashis or coeliac has found a gluten free diet helpful. I've non stop issues with all the thyroid meds and pondering the root cause. Thx.
Just wondering if anyone who isn't either hashis or coeliac has found a gluten free diet helpful. I've non stop issues with all the thyroid meds and pondering the root cause. Thx.
Olsbird
in
Thyroid UK
6 years ago
Holiday
Hi everyone.ive been away on holiday for two weeks - Agadir and abu dhabi which was great! The only thing spoiling my holiday was my diet.the hotels hardly had anything gluten free and I found it so so difficult with my food in both countries.in agadir they didn't even know what my probly really was.in
Hi everyone.ive been away on holiday for two weeks - Agadir and abu dhabi which was great! The only thing spoiling my holiday was my diet.the hotels hardly had anything gluten free and I found it so so difficult with my food in both countries.in agadir they didn't even know what my probly really was.in
Hidden
in
Gluten Free Guerrillas
6 years ago
Absolute agony!......
So I am a complete novice runner! Im early forties and have completed week one with minimal aches and pains but this week.is something else! After week 2 run 2 my knees horrendously painful...I can't kneel only roll around the floor to stand up and rising from a chair is a struggle.....ive tried resting
So I am a complete novice runner! Im early forties and have completed week one with minimal aches and pains but this week.is something else! After week 2 run 2 my knees horrendously painful...I can't kneel only roll around the floor to stand up and rising from a chair is a struggle.....ive tried resting
Emmylou76
in
Couch to 5K
6 years ago
Post DBS Surgery
Good morning all! I am now 7 weeks since my DBS surgery. Yes! That is the answer if anyone asks if I am happy with my decision to have the surgery. I am now walking briskly each day, active with my bookkeeping clients, and have rejoined society as an active participant. I am also "in training"
Good morning all! I am now 7 weeks since my DBS surgery. Yes! That is the answer if anyone asks if I am happy with my decision to have the surgery. I am now walking briskly each day, active with my bookkeeping clients, and have rejoined society as an active participant. I am also "in training"
annmariebaird
in
Cure Parkinson's
6 years ago
Gastroscopy and colonoscopy, it says talk to doc if you have thyroid disease!!! Advice please!
I am having gastroscopy and colonoscopy on Tuesday. Reading notes for the preparation it says talk to doc or pharmacist if you have any of following, one being thyroid disease. I have had them before but not together and for me it is very painful. This time I will not be eating for nearly 30 hours, I
I am having gastroscopy and colonoscopy on Tuesday. Reading notes for the preparation it says talk to doc or pharmacist if you have any of following, one being thyroid disease. I have had them before but not together and for me it is very painful. This time I will not be eating for nearly 30 hours, I
Flecmac
in
Thyroid UK
6 years ago
Freezing more walking. Had dbs surgery in 2013 and am noticing more freezing when I have machine. Turning the stimualor makes waiting better
If turn or off walking especially grocery store when it is,full With stockers and other customers. !u left side is 2.90 and right side is s,2.60. Any suggestions Sid
If turn or off walking especially grocery store when it is,full With stockers and other customers. !u left side is 2.90 and right side is s,2.60. Any suggestions Sid
ccobroussard
in
Cure Parkinson's
6 years ago
New study suggests DBS should be used earlier.
DBS proved very effective in patients with average of 7.5 years since diagnosis. http://www.nejm.org/doi/full/10.1056/NEJMoa1205158?query=featured_home
DBS proved very effective in patients with average of 7.5 years since diagnosis. http://www.nejm.org/doi/full/10.1056/NEJMoa1205158?query=featured_home
jackedmonston
in
Cure Parkinson's
6 years ago
Help with dosing please
I am taking 125 mcg Levo and have been stable on this dose for a year. Vit and minerals all ok. Have Hashimoto's and am on a strictly gluten free diet since 6 weeks. I started t3 in August last year with 6,25 mcg. Results áfter 4 weeks on that dose was: Tsh < 0,005 (0,35-5,5) Ft4 15,5 (10-19,8) Ft3 4,9
I am taking 125 mcg Levo and have been stable on this dose for a year. Vit and minerals all ok. Have Hashimoto's and am on a strictly gluten free diet since 6 weeks. I started t3 in August last year with 6,25 mcg. Results áfter 4 weeks on that dose was: Tsh < 0,005 (0,35-5,5) Ft4 15,5 (10-19,8) Ft3 4,9
Sallyn
in
Thyroid UK
6 years ago
New : ?advised please post thyroid storm
Hi , I have been on the sidelines reading posts for just over a year or so. I am greateful for all the information that I have acquired over that time. But I am a bit confused at the moment and wonder if anyone can help me? This is my first post , so please bear with me. I was first diagnosed as hyperthyroid
Hi , I have been on the sidelines reading posts for just over a year or so. I am greateful for all the information that I have acquired over that time. But I am a bit confused at the moment and wonder if anyone can help me? This is my first post , so please bear with me. I was first diagnosed as hyperthyroid
Storm25
in
Thyroid UK
6 years ago
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