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Help with a gluten free diet? Any gluten ataxia support groups?
After nearly 3 years of gluten free and dairy free diet, I would like to hear from others. Their personal stories and any support groups. There is so much information and knowledge to share with each other. Thank you.
After nearly 3 years of gluten free and dairy free diet, I would like to hear from others. Their personal stories and any support groups. There is so much information and knowledge to share with each other. Thank you.
penelope2
in
Ataxia UK
1 year ago
is it common for coeliacs to have crohns or colitis as well?
hi Coeliac disease runs strongly in my family, my Nan, mom and brother all have it - I had been tested regularly for it over the last 30 years but had severe food poisoning in November 2018 which triggered coeliac disease and a lactose intolerance. Tests always came back negative but never had any
hi Coeliac disease runs strongly in my family, my Nan, mom and brother all have it - I had been tested regularly for it over the last 30 years but had severe food poisoning in November 2018 which triggered coeliac disease and a lactose intolerance. Tests always came back negative but never had any
RJane83
in
Gluten Free Guerrillas
1 year ago
chatGPT's opinion on PD - Simple and wise
Unfortunately, there is no cure for Parkinson's disease, but there are several treatments available that can help manage the symptoms and improve quality of life. Here are some of the most common approaches to treating Parkinson's disease: Medications: There are several types of medications that
Unfortunately, there is no cure for Parkinson's disease, but there are several treatments available that can help manage the symptoms and improve quality of life. Here are some of the most common approaches to treating Parkinson's disease: Medications: There are several types of medications that
Xenos
in
Cure Parkinson's
1 year ago
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feeling grim after levo increase
have been struggling to find right treatment for months levothyroxine since august last year initially helped a lot with low energy and muscle pain but didn’t last. After several posts on here I have now gone up to 100 mcg for a week with a view to re testing in 2 months to see if my t3 has moved at
have been struggling to find right treatment for months levothyroxine since august last year initially helped a lot with low energy and muscle pain but didn’t last. After several posts on here I have now gone up to 100 mcg for a week with a view to re testing in 2 months to see if my t3 has moved at
Mag999
in
Thyroid UK
1 year ago
Would t3 benefit me? Latest bloods
hi, I have hashinotos and take 125mcg of thyroxine. I don’t feel great. I’ve just started a gluten free diet and take iron and folate as both were low. I’ve been taking them for 8 weeks and have just had the levels tested so can share all those results when I have them. I wondered if t3 may help me
hi, I have hashinotos and take 125mcg of thyroxine. I don’t feel great. I’ve just started a gluten free diet and take iron and folate as both were low. I’ve been taking them for 8 weeks and have just had the levels tested so can share all those results when I have them. I wondered if t3 may help me
HiRach
in
Thyroid UK
1 year ago
Gluten free diet
Hi just wondering if anyone has tried a gluten free diet to reduce inflammation? I’m off steroids now so would like at least a change from low carbs . Just interested in other opinions
Hi just wondering if anyone has tried a gluten free diet to reduce inflammation? I’m off steroids now so would like at least a change from low carbs . Just interested in other opinions
Devoid
in
PMRGCAuk
1 year ago
A further review please.
Latest results from medichecks: TSH 3.32 (0.274.2) Free T3 3.3 (3.1-6.8). T4 18.1 (12-22). CPR 3.61 (0.5). Ferritin 286 (13-150). Folate 7.66 (3.89-19.45). Vitamin B12 active. 87.7 (25.1-165). VitaminD 78 (50-200). TAB <13 TPA <9. Bloods taken
Latest results from medichecks: TSH 3.32 (0.274.2) Free T3 3.3 (3.1-6.8). T4 18.1 (12-22). CPR 3.61 (0.5). Ferritin 286 (13-150). Folate 7.66 (3.89-19.45). Vitamin B12 active. 87.7 (25.1-165). VitaminD 78 (50-200). TAB <13 TPA <9. Bloods taken
Sycamore33
in
Thyroid UK
1 year ago
Blood results
Hello, I know I have asked for advice before but wanted to clarify please. My recent bloods have been re-tested ;- I have Hashimoto's and on 100 of Levothyroxine. TSH - 4.6 (0.27-4.2) FT4-25.6 (12-22) T3- 3.0 (3.1-6.8) The Doctor says these are abnormal and not borderline as they were before Christmas
Hello, I know I have asked for advice before but wanted to clarify please. My recent bloods have been re-tested ;- I have Hashimoto's and on 100 of Levothyroxine. TSH - 4.6 (0.27-4.2) FT4-25.6 (12-22) T3- 3.0 (3.1-6.8) The Doctor says these are abnormal and not borderline as they were before Christmas
goofball
in
Thyroid UK
1 year ago
Health update
Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hidden
in
Functional Neurological Disorder - FND Hope
1 year ago
PREPARING FOR DBS SURGERY. VERY WORRIED ABOUT THE INEVITABLE SIDE EFFECTS.
Hi every Parkies on this forum. If you are a PIGD non tremor dominant, young onset PD person, and have done Deep brain stimulation, please respond to my questions, How was your experience with the Neuropsychologist? What was the computer test like? Please share the negatives, if any post surgery.
Hi every Parkies on this forum. If you are a PIGD non tremor dominant, young onset PD person, and have done Deep brain stimulation, please respond to my questions, How was your experience with the Neuropsychologist? What was the computer test like? Please share the negatives, if any post surgery.
OREOLU
in
Cure Parkinson's
1 year ago
I despise to the stigma of mental illness
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
jnelson66
in
Major Depressive Disorder (MDD) Support
1 year ago
Treatment Resistant Major Depressive Disorder: I am proof that there is hope.
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
jnelson66
in
Major Depressive Disorder (MDD) Support
1 year ago
Gluten-free diet for picky eaters?
I have celiac disease and my 5 year old was recently diagnosed with it. He also has autism so he's very picky about textures in food and has a limited amount of things that he will eat before his diagnosis. His favorite right now is avocado toast, but he won't eat any gluten-free bread I've found (and
I have celiac disease and my 5 year old was recently diagnosed with it. He also has autism so he's very picky about textures in food and has a limited amount of things that he will eat before his diagnosis. His favorite right now is avocado toast, but he won't eat any gluten-free bread I've found (and
redmama2
in
Gluten Free Guerrillas
1 year ago
“Non-celiac wheat sensitivity: rationality and irrationality of a gluten-free diet…”
“Non-celiac wheat sensitivity: rationality and irrationality of a gluten-free diet in individuals affected with non-celiac disease: a review” https://bmcgastroenterol.biomedcentral.com/articles/10.1186/s12876-020-01568-6 . The above is a review article about the complications and clinical aspects
“Non-celiac wheat sensitivity: rationality and irrationality of a gluten-free diet in individuals affected with non-celiac disease: a review” https://bmcgastroenterol.biomedcentral.com/articles/10.1186/s12876-020-01568-6 . The above is a review article about the complications and clinical aspects
Researchfan
in
Gluten Free Guerrillas
1 year ago
PLEASE REPLY IF YOU ARE A NON TREMOR DOMINANT PARKISON'S PATIENT WHO HAD DEEP BRAIN STIMULATION DONE.
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
OREOLU
in
Cure Parkinson's
1 year ago
RLS newbie
Hi all, I was hoping you could give me some advice about where to begin, as I'm finding reading through the posts, although very helpful, also overwhelming! I have self diagnosed as having RLS for about 20 years. It has been relatively ignorable until the last few years. Now it is affecting my sleep
Hi all, I was hoping you could give me some advice about where to begin, as I'm finding reading through the posts, although very helpful, also overwhelming! I have self diagnosed as having RLS for about 20 years. It has been relatively ignorable until the last few years. Now it is affecting my sleep
Awakeat3am
in
Restless Legs Syndrome
2 years ago
PD-related acronyms
I had compiled this list for another forum. Trust it will be helpful for heathunlocked readers, too. BBB = Blood Brain Barrier CD = Carbidopa CD/LD = Comination of carbidopa and levodopa C/L = Carbidopa/levodopa CNS = Central Nervous System CR = Controlled Relase DA = Dopamine agonist DBS
I had compiled this list for another forum. Trust it will be helpful for heathunlocked readers, too. BBB = Blood Brain Barrier CD = Carbidopa CD/LD = Comination of carbidopa and levodopa C/L = Carbidopa/levodopa CNS = Central Nervous System CR = Controlled Relase DA = Dopamine agonist DBS
Bennorca
in
Cure Parkinson's
1 year ago
Anyone going through DEIVF with an underactive thyroid?
I was recently diagnosed with an underactive thyroid (over 7) in Spain during the process of deivf. I'm from the UK and my GP wanted to repeat the tests and is confirmed thyroid is low and I'm now on medication. Has anyone had a similar experience going through DEIVF? Any successful stories? I'm also
I was recently diagnosed with an underactive thyroid (over 7) in Spain during the process of deivf. I'm from the UK and my GP wanted to repeat the tests and is confirmed thyroid is low and I'm now on medication. Has anyone had a similar experience going through DEIVF? Any successful stories? I'm also
Stagefourendo
in
Thyroid UK
1 year ago
Recording now available for NoSilverBullet presentation by Dr A Fasano on "DBS, Focused Ultrasound and Infusion Pumps"
Dr. Fasano is Professor of Neurology at the University of Toronto and one of the world leaders in deep brain stimulation. Watch his presentation on YouTube here https://www.youtube.com/watch?v=g5z7tYJrxsU Or listen to it as a podcast on Spotify here https://open.spotify.com/show/6WIgOhwJemjqE2bnDPu44P
Dr. Fasano is Professor of Neurology at the University of Toronto and one of the world leaders in deep brain stimulation. Watch his presentation on YouTube here https://www.youtube.com/watch?v=g5z7tYJrxsU Or listen to it as a podcast on Spotify here https://open.spotify.com/show/6WIgOhwJemjqE2bnDPu44P
Michel0220
in
Cure Parkinson's
1 year ago
Can T3 reduce thyroglobulin antibodies?
I was diagnosed in 2018 with Hashimoto's. Had Hypothyroidism since 2002. My thyroglobulin antibodies were over 4000 at diagnosis. Over the years I've slowly managed to reduce them by changing my diet, introducing T3 etc. My last blood test in September 2022 showed slightly elevated T3 levels so since
I was diagnosed in 2018 with Hashimoto's. Had Hypothyroidism since 2002. My thyroglobulin antibodies were over 4000 at diagnosis. Over the years I've slowly managed to reduce them by changing my diet, introducing T3 etc. My last blood test in September 2022 showed slightly elevated T3 levels so since
ceedee81
in
Thyroid UK
1 year ago
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