Search
Search
About
Log in
Join
Experiences with
Deep brain stimulation (DBS)
Posts
Communities
1,034 public posts
Filter results
Any info or experience with light headedness and circulation issues with PD?
My husband has PD, 9 years in, He had
DBS
surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
My husband has PD, 9 years in, He had
DBS
surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
whitdemo
in
Cure Parkinson's
4 days ago
DBS switch on news.
So with no
dbs
: I get meds that work, but with
dbs
, they don’t? Bit weird. Last night I was totally exhausted. I went to bed at about 9 and woke up at 8 without any sleeping aids whatsoever. Took a couple of Madopar but they don’t seem to have worked, at least with bradykinesia.
So with no
dbs
: I get meds that work, but with
dbs
, they don’t? Bit weird. Last night I was totally exhausted. I went to bed at about 9 and woke up at 8 without any sleeping aids whatsoever. Took a couple of Madopar but they don’t seem to have worked, at least with bradykinesia.
jeeves19
in
Cure Parkinson's
7 months ago
Collagen powder and increased stiffness?
We couldn't figure out why this was happening because we haven't changed anything with medication or setting on his
DBS
device. We called his neurologist and she recommended adding Azilect.
We couldn't figure out why this was happening because we haven't changed anything with medication or setting on his
DBS
device. We called his neurologist and she recommended adding Azilect.
1rocketman
in
Cure Parkinson's
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
DBS stopped working
I’m looking to see if anyone has experienced similar
DBS
results, I had my
DBS
(GPI) surgery on 7/31 and immediately had positive results before the switch on. It felt like I was cured but I knew that this was the honeymoon phase.
I’m looking to see if anyone has experienced similar
DBS
results, I had my
DBS
(GPI) surgery on 7/31 and immediately had positive results before the switch on. It felt like I was cured but I knew that this was the honeymoon phase.
robclem
in
Cure Parkinson's
5 months ago
Foslevodopa-Foscarbidopa (Vyalev)
or potential to replace
DBS
? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
or potential to replace
DBS
? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
bcjlynne
in
Cure Parkinson's
7 months ago
DBS should I or should I not??
I went for my assessment for
dbs
this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking to myself is my condition severe enough to have brain surgery!!
I went for my assessment for
dbs
this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking to myself is my condition severe enough to have brain surgery!!
MARC1
in
Cure Parkinson's
6 months ago
DBS energy
I keep reading about people who -post
DBS
- went and ran a marathon etc and appear to have gallons of energy. Should I be feeling this? No, I don’t think that they’ve got the program right yet but running a marathon? Ay ay ay
I keep reading about people who -post
DBS
- went and ran a marathon etc and appear to have gallons of energy. Should I be feeling this? No, I don’t think that they’ve got the program right yet but running a marathon? Ay ay ay
jeeves19
in
Cure Parkinson's
7 months ago
DBS journey
Anyway, things were awful the last two days: I was slurring and couldn’t organise my sentences and so I spoke to the
DBS
nurse this afternoon: she suggested that i take the power down a couple of notches on either side. Worked out so well.
Anyway, things were awful the last two days: I was slurring and couldn’t organise my sentences and so I spoke to the
DBS
nurse this afternoon: she suggested that i take the power down a couple of notches on either side. Worked out so well.
jeeves19
in
Cure Parkinson's
7 months ago
Heart pacemaker and DBS
Are there individuals or patients who have had heart pacemakers and
DBS
? Any thoughts, suggestions or comments.
Are there individuals or patients who have had heart pacemakers and
DBS
? Any thoughts, suggestions or comments.
surdug1
in
Cure Parkinson's
8 months ago
Heart pacemaker and DBS
Are there individuals or patients who have had heart pacemakers and
DBS
? Any thoughts, suggestions or comments. and are making use of them?
Are there individuals or patients who have had heart pacemakers and
DBS
? Any thoughts, suggestions or comments. and are making use of them?
surdug1
in
British Heart Foundation
8 months ago
The problematic 2nd dose of the day
The second thought is really bad: after my first dose I go badly off (it’s been getting worse as the life of the
DBS
goes on, but this is only 5 months old. Surely I should still be in the honeymoon period now?!) and take 350 mg. But it’s always a challenge to know if it’s going to work or not.
The second thought is really bad: after my first dose I go badly off (it’s been getting worse as the life of the
DBS
goes on, but this is only 5 months old. Surely I should still be in the honeymoon period now?!) and take 350 mg. But it’s always a challenge to know if it’s going to work or not.
jeeves19
in
Cure Parkinson's
2 months ago
Has anyone tried “compassionate use” or “right to try” laws?
Due to his cognitive decline, he’s not eligible for
DBS
, FUS, most trials, and my guess is even stem cell therapies would cause him trouble as tiny increases in dopamine make him crazy, Curious your thoughts?
Due to his cognitive decline, he’s not eligible for
DBS
, FUS, most trials, and my guess is even stem cell therapies would cause him trouble as tiny increases in dopamine make him crazy, Curious your thoughts?
LeharLover62
in
Cure Parkinson's
5 months ago
Working full-time with a DBS
DBS
Deep Brain Stimulation. 1) Are there any warriors who have received
DBS
and are still employed full-time? 2) Are there any IT/computers warriors who have received
DBS
and are still working? Just wondering if that's humanly possible. Thank you for your time.
DBS
Deep Brain Stimulation. 1) Are there any warriors who have received
DBS
and are still employed full-time? 2) Are there any IT/computers warriors who have received
DBS
and are still working? Just wondering if that's humanly possible. Thank you for your time.
surdug1
in
Cure Parkinson's
10 months ago
Kinder , Gentler and harmless Alternative of DBS
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Farooqji
in
Cure Parkinson's
3 months ago
Too much C\L worsens symptoms?
Dx 6 years ago
DBS
3 years ago . lately take extra dose for some occasions, my body becomes more tense, stiffer and slower no dskynesia though then I take another dose to address it ,sometimes work sometimes don’t, it confuses me, Does anyone have experience to share?
Dx 6 years ago
DBS
3 years ago . lately take extra dose for some occasions, my body becomes more tense, stiffer and slower no dskynesia though then I take another dose to address it ,sometimes work sometimes don’t, it confuses me, Does anyone have experience to share?
limcheeese22
in
Cure Parkinson's
8 months ago
DBS on the leg trial
https://parkinsonsnewstoday.com/news/noninvasive-way-deep-brain-stimulation-parkinsons-trial/
https://parkinsonsnewstoday.com/news/noninvasive-way-deep-brain-stimulation-parkinsons-trial/
MARC1
in
Cure Parkinson's
6 months ago
DBS in restless legs syndrome: a new therapeutic approach
has anyone any information on Deep Brain Stimulation (
DBS
) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
has anyone any information on Deep Brain Stimulation (
DBS
) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
thorp
in
Restless Legs Syndrome
8 months ago
DBS effectiveness.
Was
DBS
effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
Was
DBS
effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
cjCardio53
in
Cure Parkinson's
9 months ago
DBS and balance
My left side is amore severe than right hence the voltage is higher and more contact points . My body tends to tilt to the right’ and I tend to fall backward on the right, My neurologist tried to reduce the frequency, it helps with the balance but not so good at reducing stiffness. Any insight?
My left side is amore severe than right hence the voltage is higher and more contact points . My body tends to tilt to the right’ and I tend to fall backward on the right, My neurologist tried to reduce the frequency, it helps with the balance but not so good at reducing stiffness. Any insight?
limcheeese22
in
Cure Parkinson's
8 months ago
Let's share your DBS settings
I start first. Vendor: Medtronics Right STN: 4.5 - 4.9v STN (2+1 interleaving) Left STN :3.6v STN double mono polar Frequency: 125hz pulse width: 90 μs
I start first. Vendor: Medtronics Right STN: 4.5 - 4.9v STN (2+1 interleaving) Left STN :3.6v STN double mono polar Frequency: 125hz pulse width: 90 μs
limcheeese22
in
Cure Parkinson's
7 months ago
1
2
3
...
52
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
788 results
IBS Network
39 results
Restless Legs Syndrome
28 results
View top 10 communities
Sort by
Most Relevant
Newest