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Deep brain stimulation (DBS)
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apomorphine, anyone on this?
Also been offered
DBS
done all the tests and stuff but wanted to try apomorphine before
DBS
. the AbbVie levodopa pump is only available if you are not suitable for
DBS
due to it being a new expensive treatment. which i find surprising i would've thought
DBS
is the last option. thanks guys
Also been offered
DBS
done all the tests and stuff but wanted to try apomorphine before
DBS
. the AbbVie levodopa pump is only available if you are not suitable for
DBS
due to it being a new expensive treatment. which i find surprising i would've thought
DBS
is the last option. thanks guys
Todd-pw
in
Cure Parkinson's
3 days ago
DBS. Did it improve your life as much as you hoped?
Can anyone reading this who has had the surgery give me their honest thoughts as to whether the
DBS
surgery has improved them and If so how? Cheers
Can anyone reading this who has had the surgery give me their honest thoughts as to whether the
DBS
surgery has improved them and If so how? Cheers
gingerj
in
Cure Parkinson's
2 months ago
DBS??
I’m seriously considering
DBS
. Would love some feedback from people who have had it done.
I’m seriously considering
DBS
. Would love some feedback from people who have had it done.
CostaVal
in
Cure Parkinson's
2 months ago
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deep brain stimulation
I am considering
DBS
. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
I am considering
DBS
. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
DonnaMc1968
in
Cure Parkinson's
9 days ago
Meds not working well again
The neurologist is suggesting
dbs
and doesn't seem interested in working with the meds anymore. My husband doesn't want
dbs
, and I am trying to find out what do people do when meds don't work anymore? What else can be done that's not invasive? Thanks for any help 🙏
The neurologist is suggesting
dbs
and doesn't seem interested in working with the meds anymore. My husband doesn't want
dbs
, and I am trying to find out what do people do when meds don't work anymore? What else can be done that's not invasive? Thanks for any help 🙏
PDsux_10
in
Cure Parkinson's
6 days ago
addicted to C/L?
i have
DBS
3.5 years ago.th
DBS
doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
i have
DBS
3.5 years ago.th
DBS
doing quite well during night time when i am completely off C/L feeling almost normal. when in the morning after taking 25/100 madopar when wearing off, my symptoms magnified, i become very off, my fingers jam together. so wearing off is much worse than being off, if
limcheeese22
in
Cure Parkinson's
2 months ago
Insomnia
Or maybe
DBS
tunning? Thanks for any advice.
Or maybe
DBS
tunning? Thanks for any advice.
carlosgarcia2048
in
Cure Parkinson's
27 days ago
I’m scheduled to have DBS surgery February 29 - if you have had DBS, is there anything you wish you‘d known beforehand?
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of
DBS
surgery. Thank you in advance. Wayne
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of
DBS
surgery. Thank you in advance. Wayne
Megafone
in
Cure Parkinson's
3 months ago
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory
Theta frequency STN-
DBS
boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
Theta frequency STN-
DBS
boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
nednedned
in
Cure Parkinson's
3 months ago
DBS awake or under general anesthesia
I've been told that for my
DBS
operation I will be under general anesthesia. I'm just wondering what others have experienced.
I've been told that for my
DBS
operation I will be under general anesthesia. I'm just wondering what others have experienced.
gingerj
in
Cure Parkinson's
2 months ago
DBS: Medtronic question re. voice
Things went ok until about February this year: I felt that my off times were too marked in comparison to what
DBS
declared it would achieve and so a week ago, had another appointment with my ‘team’.
Things went ok until about February this year: I felt that my off times were too marked in comparison to what
DBS
declared it would achieve and so a week ago, had another appointment with my ‘team’.
jeeves19
in
Cure Parkinson's
21 days ago
i know this is going to sound weird but…….
Ever since I had the
DBS
I’ve had rhinitis, itchy eyes, itchy skin. I assumed that I needed to hoover up etc, get my dogs bedding changed etc. I’ve done all of these but I’m still symptomatic. I thought to myself the other day: this started pretty soon after the
DBS
.
Ever since I had the
DBS
I’ve had rhinitis, itchy eyes, itchy skin. I assumed that I needed to hoover up etc, get my dogs bedding changed etc. I’ve done all of these but I’m still symptomatic. I thought to myself the other day: this started pretty soon after the
DBS
.
jeeves19
in
Cure Parkinson's
6 months ago
Treatment for severe OCD
I don't exactly know what it is said about
DBS
in FDA's guidelines, but they consider this surgery as an exception if no other method helps.
I don't exactly know what it is said about
DBS
in FDA's guidelines, but they consider this surgery as an exception if no other method helps.
languageteacher
in
My OCD Community
4 months ago
DBS update
For those in the U.K. considering FUS v
DBS
: FUS sounds good but costs £25000 for each side if I understand that correctly.
DBS
, available on the NHS. What’s not to like?
For those in the U.K. considering FUS v
DBS
: FUS sounds good but costs £25000 for each side if I understand that correctly.
DBS
, available on the NHS. What’s not to like?
jeeves19
in
Cure Parkinson's
5 months ago
No more earwax
Dx 8 years ago,
DBS
1/2023, only take c/l
Dx 8 years ago,
DBS
1/2023, only take c/l
Lbi1608
in
Cure Parkinson's
6 months ago
AAV-GAD Gene Therapy
Infusion of the gene is much like
DBS
. Any information or thoughts would be helpful. Thanks
Infusion of the gene is much like
DBS
. Any information or thoughts would be helpful. Thanks
JohnP65
in
Cure Parkinson's
4 months ago
pain?
Was diagnosed in 2016, had
DBS
in December, med regime is mucuna and amino acids (currently tapering down).
Was diagnosed in 2016, had
DBS
in December, med regime is mucuna and amino acids (currently tapering down).
ottercat
in
Cure Parkinson's
2 months ago
DBS switch on news.
So with no
dbs
: I get meds that work, but with
dbs
, they don’t? Bit weird. Last night I was totally exhausted. I went to bed at about 9 and woke up at 8 without any sleeping aids whatsoever. Took a couple of Madopar but they don’t seem to have worked, at least with bradykinesia.
So with no
dbs
: I get meds that work, but with
dbs
, they don’t? Bit weird. Last night I was totally exhausted. I went to bed at about 9 and woke up at 8 without any sleeping aids whatsoever. Took a couple of Madopar but they don’t seem to have worked, at least with bradykinesia.
jeeves19
in
Cure Parkinson's
7 months ago
#1 Symptom Reducer
B1, Fish Oil, CDP Choline, Infrared, FUS,
DBS
etc.
B1, Fish Oil, CDP Choline, Infrared, FUS,
DBS
etc.
staceysack
in
Cure Parkinson's
2 months ago
Foslevodopa-Foscarbidopa (Vyalev)
or potential to replace
DBS
? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
or potential to replace
DBS
? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
bcjlynne
in
Cure Parkinson's
7 months ago
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