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Experiences with
Cyclophosphamide
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Stopping Thalidomide treatment; starting Cyclophosphamide (in addition to masses of other stuff)
Assuming my blood tests are ok I'm going to start
Cyclophosphamide
, in pill form, with Mesna prescribed as well to protect my bladder. This had always been ruled out for me before.
Assuming my blood tests are ok I'm going to start
Cyclophosphamide
, in pill form, with Mesna prescribed as well to protect my bladder. This had always been ruled out for me before.
vivdunstan
Volunteer
in
Vasculitis UK
12 years ago
remission
i have wg when i took ill my egfr was 14,i had 12 courses of
cyclophosphamide
and my egfr improved to 62,however it started dropping again to 52 and i waas told i had refractory vasculitis. i was then given rituxumab and my egfr has stabilised over the last 2 months to 52.
i have wg when i took ill my egfr was 14,i had 12 courses of
cyclophosphamide
and my egfr improved to 62,however it started dropping again to 52 and i waas told i had refractory vasculitis. i was then given rituxumab and my egfr has stabilised over the last 2 months to 52.
quinnster
in
Vasculitis UK
12 years ago
Early days - my story so far
The response to treatment (Pred. and
Cyclophosphamide
)seems to be going OK but the side effects (lack of sleep, night sweats leg cramps, mouth ulcers, bouts of tiredness etc.) are not a barrel of laughs. However compared to how I felt before the treatment it is a fair trade at the moment.
The response to treatment (Pred. and
Cyclophosphamide
)seems to be going OK but the side effects (lack of sleep, night sweats leg cramps, mouth ulcers, bouts of tiredness etc.) are not a barrel of laughs. However compared to how I felt before the treatment it is a fair trade at the moment.
Chris-Bromsgrove
in
Vasculitis UK
12 years ago
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Wegener's Granulomatosis: The Treatment (Podcast 2)
I myself have so far been on
Cyclophosphamide
, Prednisolone, Mycophenelate Mofeti and now Rituximab. Any response is appreciated and if you wish to email me rather than post on here or inbox me, feel free.
I myself have so far been on
Cyclophosphamide
, Prednisolone, Mycophenelate Mofeti and now Rituximab. Any response is appreciated and if you wish to email me rather than post on here or inbox me, feel free.
missm23
in
Vasculitis UK
12 years ago
Cyclophosphamide side effects
Hello all, I recently started Cyclo treatment in Dec, so far so good! But I have recently started to get little red spots appear on my arms and lots on my chest. Since last night, (my boyfriend noticed) that I now have a cluster of blood spots under my skin in the middle of my chest, about 20 or so
Hello all, I recently started Cyclo treatment in Dec, so far so good! But I have recently started to get little red spots appear on my arms and lots on my chest. Since last night, (my boyfriend noticed) that I now have a cluster of blood spots under my skin in the middle of my chest, about 20 or so
AshtonRains
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Peninusula Health Technology Commisioning Group Commissioning Decision:- Rituximab for Severe ANCA Associated Vasculitis
Rituximab may be offered to patients who have received a
Cyclophosphamide
-base reigmen for induction of remission and have a major relapse or persistently active disease. Informed consent must be obtained from the patient for this unlicensed use.
Rituximab may be offered to patients who have received a
Cyclophosphamide
-base reigmen for induction of remission and have a major relapse or persistently active disease. Informed consent must be obtained from the patient for this unlicensed use.
John_Mills
Vasculitis UK
in
Vasculitis UK
12 years ago
Anyone else got experience with Cyclophosphamide?
Hi all, I am starting Rituximab soon and then got told today that I will be given
Cyclophosphamide
as well.
Hi all, I am starting Rituximab soon and then got told today that I will be given
Cyclophosphamide
as well.
Karen34
in
LUPUS UK
12 years ago
neurologists letter
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
annie330
in
Hughes Syndrome APS Forum
12 years ago
neurologist's letter
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
annie330
in
LUPUS UK
12 years ago
Plasmapheresis
I was first given
cyclophosphamide
and then quite quickly Rituximab, once I had the Rituximab I was transferred to a different rheumy (something to do with biological drugs I think). I have brought up the plasmapheresis with his team once but they dismissed it.
I was first given
cyclophosphamide
and then quite quickly Rituximab, once I had the Rituximab I was transferred to a different rheumy (something to do with biological drugs I think). I have brought up the plasmapheresis with his team once but they dismissed it.
annie330
in
LUPUS UK
12 years ago
Thoughts on neurologists letter
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
annie330
in
Vasculitis UK
12 years ago
Seen this on the internet - positive as it Highlights Lupus. Men may find this useful with Lupus SLE
Immunosuppressive drugs may also be used (with or in place of steroid treatments), such as
cyclophosphamide
(Cytoxan®), azathioprine (Imuran®), cyclosporin A, and mycophenolate mofetil (CellCept®).
Immunosuppressive drugs may also be used (with or in place of steroid treatments), such as
cyclophosphamide
(Cytoxan®), azathioprine (Imuran®), cyclosporin A, and mycophenolate mofetil (CellCept®).
Lulabelle
in
LUPUS UK
12 years ago
Has anyone with any type of vasculitis suffered a Carcinoma of the bladder due to the side effects of the Cyclophosphamide?
John_Mills
Vasculitis UK
in
Vasculitis UK
13 years ago
Does plasmapheresis aid in the treatment of WG?
I was treated with the usual combination of
cyclophosphamide
and prednisolone. At the time there was no kidney involvement, and I spent a month in hospital.
I was treated with the usual combination of
cyclophosphamide
and prednisolone. At the time there was no kidney involvement, and I spent a month in hospital.
shanat19
in
Vasculitis UK
13 years ago
Has cyclophosphamide followed by azathioprine stopped being used for the treatment of WG?
In reading the recent question 'WG remission experiences', I wondered why nobody mentioned azathioprine - I was given azathioprine after being informed that being given
cyclophosphamide
long term caused more problems than it solved.
In reading the recent question 'WG remission experiences', I wondered why nobody mentioned azathioprine - I was given azathioprine after being informed that being given
cyclophosphamide
long term caused more problems than it solved.
shanat19
in
Vasculitis UK
12 years ago
new to website
hello everyone, have really enjoyed reading all your posts. i was admitted to tommies 8yrs ago by dr d'cruz for tests, had a positive mri and lumber puncture for ms but negative blood test for aps but had a history of 5 dvts and multiple miscarriage so needed to stay on warfarin forever . i was given
cyclophosphamide
hello everyone, have really enjoyed reading all your posts. i was admitted to tommies 8yrs ago by dr d'cruz for tests, had a positive mri and lumber puncture for ms but negative blood test for aps but had a history of 5 dvts and multiple miscarriage so needed to stay on warfarin forever . i was given
cyclophosphamide
mully
in
Hughes Syndrome APS Forum
13 years ago
Painting & decorating?
Before starting
cyclophosphamide
, I decided to blitz through painting all of my doors and frames. I thought I would get it out of the way before my lungs deteriorated any more (I have lung fibrosis as a result of scleroderma). To my astonishment, my breathing got easier with gloss paint fumes.
Before starting
cyclophosphamide
, I decided to blitz through painting all of my doors and frames. I thought I would get it out of the way before my lungs deteriorated any more (I have lung fibrosis as a result of scleroderma). To my astonishment, my breathing got easier with gloss paint fumes.
Geordie_Kate
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Has anyone taking cyclophosphamide suffered from tinnitus as a result?
I have CNS vasculitis and shortly after starting
cyclophosphamide
I developed tinnitus. I have had it for nearly 3 years now and I just wonder if it is a side effect of this particular drug?
I have CNS vasculitis and shortly after starting
cyclophosphamide
I developed tinnitus. I have had it for nearly 3 years now and I just wonder if it is a side effect of this particular drug?
LyndaGould
in
Vasculitis UK
13 years ago
Feeling like nobody cares?
I recently had a rather large argument with my boyfriend, as he told me that I talk about my Scleroderma and
Cyclophosphamide
treament too much and it 'tires' him. This made me feel like I winge and moan, when I know don't.
I recently had a rather large argument with my boyfriend, as he told me that I talk about my Scleroderma and
Cyclophosphamide
treament too much and it 'tires' him. This made me feel like I winge and moan, when I know don't.
AshtonRains
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Cyclophosphamide.... HELP
I have just been told I need to start
Cyclophosphamide
treatment once a month for 6-12 months, has anybody else had this? And what side effects are there? As I am worried about hair loss???
I have just been told I need to start
Cyclophosphamide
treatment once a month for 6-12 months, has anybody else had this? And what side effects are there? As I am worried about hair loss???
AshtonRains
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
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