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Cyclophosphamide
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Please ask your friends and famly to give blood this holiday season
RED CROSS https://www.redcrossblood.org/local-homepage/news/article/red-cross-urges-blood-donation-as-one-last-gift-to-give-this-holiday-season.html 💉 NHS https://www.blood.co.uk 💉 Canada Blood Services https://blood.ca/en 💉 Australian Blood Services https://www.donateblood.com.au
PLEASE REMEMBER
RED CROSS https://www.redcrossblood.org/local-homepage/news/article/red-cross-urges-blood-donation-as-one-last-gift-to-give-this-holiday-season.html 💉 NHS https://www.blood.co.uk 💉 Canada Blood Services https://blood.ca/en 💉 Australian Blood Services https://www.donateblood.com.au
PLEASE REMEMBER
Cllcanada
Top Poster CURE Hero
in
CLL Support
5 years ago
90 days on Ibrutinib
Today marks the 90th day I have been on Ibrutinib. I feel blessed that I've only had a mild reaction and then only in the first month. I still suffer from Infections because of low immunity. This has been demonstrated in the last week with a sickness and diahorrea bug which lasted a week for me but 24
Today marks the 90th day I have been on Ibrutinib. I feel blessed that I've only had a mild reaction and then only in the first month. I still suffer from Infections because of low immunity. This has been demonstrated in the last week with a sickness and diahorrea bug which lasted a week for me but 24
Mick491
in
CLL Support
5 years ago
IR vs FCR - PFS Sub-Group Analysis
Thanks to twitter users posting slides from the late-breaking ASH 2018 presentation! In all sub-groups IR was better. I presume the dotted vertical line is the indicator of statistical significance. https://twitter.com/TeamHaem/status/1069990083946733568
Thanks to twitter users posting slides from the late-breaking ASH 2018 presentation! In all sub-groups IR was better. I presume the dotted vertical line is the indicator of statistical significance. https://twitter.com/TeamHaem/status/1069990083946733568
avzuclav
in
CLL Support
5 years ago
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Starting chemotherapy (Cyclophosphamide)
Hi everyone, I hope you are all having a good week :) I will be starting my first round of chemo next week with
cyclophosphamide
as my scleroderma is affecting my lungs. I wondered if anyone has been through it or has any advice/tips?
Hi everyone, I hope you are all having a good week :) I will be starting my first round of chemo next week with
cyclophosphamide
as my scleroderma is affecting my lungs. I wondered if anyone has been through it or has any advice/tips?
Maryam_a
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Looking for hope
She is also on
cyclophosphamide
once a month for 6 months, she has 5 to go !.. Curious to know if her foot drop will improve and will her strength come back. We have never heard of CSS untill she goes diagnosed with it, so ive been desperately searching for answers.
She is also on
cyclophosphamide
once a month for 6 months, she has 5 to go !.. Curious to know if her foot drop will improve and will her strength come back. We have never heard of CSS untill she goes diagnosed with it, so ive been desperately searching for answers.
Miriii
in
Vasculitis UK
6 years ago
Chemo cycles
I would just like to let everyone know my experience regarding completion of chemo cycles. I am on the Flair trial having FCR and have now had three cycles fourth one today and my bloods are back to normal white cell count and platelets are a perfect score , so I asked the question why then do I need
I would just like to let everyone know my experience regarding completion of chemo cycles. I am on the Flair trial having FCR and have now had three cycles fourth one today and my bloods are back to normal white cell count and platelets are a perfect score , so I asked the question why then do I need
dandelup
in
CLL Support
5 years ago
Stay positive and you can get though it
Can’t remember the level of the medications that I originally was on but it was a high dose of Prednisolone and
Cyclophosphamide
and Valproate.
Can’t remember the level of the medications that I originally was on but it was a high dose of Prednisolone and
Cyclophosphamide
and Valproate.
phil3
in
Vasculitis UK
6 years ago
Late breaking CLL abstract at ASH 2018 (FCR vs IR for untreated younger patients)
https://ash.confex.com/ash/2018/webprogram/Paper120779.html CONCLUSIONS: The combination of ibrutinib and rituximab provides superior PFS and OS relative to FCR for patients with previously untreated CLL age ≤70. These findings have immediate practice changing implications and establish ibrutinib-based
https://ash.confex.com/ash/2018/webprogram/Paper120779.html CONCLUSIONS: The combination of ibrutinib and rituximab provides superior PFS and OS relative to FCR for patients with previously untreated CLL age ≤70. These findings have immediate practice changing implications and establish ibrutinib-based
avzuclav
in
CLL Support
6 years ago
Transition from Cyclophosphamide to Mycophenolate
Hello, I am due to complete my 10th and final cycle of
cyclophosphamide
in a few weeks. My rheumatologist proposes to then start me on mycophenolate. I am wondering how this transition may affect me. Assuming it takes several weeks to build up in my system am I at risk of my GPA flaring?
Hello, I am due to complete my 10th and final cycle of
cyclophosphamide
in a few weeks. My rheumatologist proposes to then start me on mycophenolate. I am wondering how this transition may affect me. Assuming it takes several weeks to build up in my system am I at risk of my GPA flaring?
Hidden
in
Vasculitis UK
6 years ago
First Cycle of FCR (IV)
I am writing this to document what I am going through and maybe compare with others experiences with FCR treatment for CLL. Intro: USA Male Diagnosed 2 years ago (age 50) with routine CBC labs and small swollen lymph nodes. CLL recently went from slow to rapid growth (Last 6 months). Hemo Dr. decided
I am writing this to document what I am going through and maybe compare with others experiences with FCR treatment for CLL. Intro: USA Male Diagnosed 2 years ago (age 50) with routine CBC labs and small swollen lymph nodes. CLL recently went from slow to rapid growth (Last 6 months). Hemo Dr. decided
Hidden
in
CLL Support
6 years ago
Inbrutnib side effects
Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit of history about my condition, I had FCR 5 years ago and after the 3 treatment I got very sick and this lead me to throwing out my back. To this today, I had fractures
Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit of history about my condition, I had FCR 5 years ago and after the 3 treatment I got very sick and this lead me to throwing out my back. To this today, I had fractures
Turntwo
in
CLL Support
6 years ago
Cough post FCR
Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty
Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty
Eebie1234
in
CLL Support
6 years ago
Front Line Treatment in Canada?
My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib are not approved in Canada unless you are 17p deleted. What are members in Canada using a front line treatment? Is it all just FCR even if you unmutated? Is Ibrutnib
My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib are not approved in Canada unless you are 17p deleted. What are members in Canada using a front line treatment? Is it all just FCR even if you unmutated? Is Ibrutnib
alpek
in
CLL Support
6 years ago
Confused about treatment option
Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolytic anemia now ok after prednisone,but treatment on horizon.I am unmuteted no 17p only good one 13qI live I Ontario and this qualifies me for treatment with Imbruvica I am 67 years in good health otherwise.My onc feels that
Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolytic anemia now ok after prednisone,but treatment on horizon.I am unmuteted no 17p only good one 13qI live I Ontario and this qualifies me for treatment with Imbruvica I am 67 years in good health otherwise.My onc feels that
Kotek
in
CLL Support
6 years ago
U-MRD6 is the new MRD-
U-MRD6 = Undetectable-Minimal Residual Disease (U-MRD6) (10-6 sensitivity) Discussion The majority of pts with BM U-MRD4 after first-line FCR were MRD6+ and these patients had shorter PFS; MRD analysis with a more sensitive assay may therefore more accurately assign prognosis. Not accounting for
U-MRD6 = Undetectable-Minimal Residual Disease (U-MRD6) (10-6 sensitivity) Discussion The majority of pts with BM U-MRD4 after first-line FCR were MRD6+ and these patients had shorter PFS; MRD analysis with a more sensitive assay may therefore more accurately assign prognosis. Not accounting for
avzuclav
in
CLL Support
6 years ago
Fcr update
I thought I would let you all know how my fcr is going hopefully to give those that are soon to be starting treatment some encouragement . I am currently at my treatment centre just about to be plugged in to start my 3 rd course, I will be honest the first course wasn’t great but I think that was due
I thought I would let you all know how my fcr is going hopefully to give those that are soon to be starting treatment some encouragement . I am currently at my treatment centre just about to be plugged in to start my 3 rd course, I will be honest the first course wasn’t great but I think that was due
dandelup
in
CLL Support
6 years ago
FLAIR Trial 2018 update
This trial is comparing ibrutinib alongside rituximab with fludarabine,
cyclophosphamide
, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who haven’t yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research.
This trial is comparing ibrutinib alongside rituximab with fludarabine,
cyclophosphamide
, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who haven’t yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research.
Myrddin
in
CLL Support
6 years ago
Neulasta side effects
I am going through FCR and I had a rough time after the 4th round. I am thinking that it was the Neulasta shot that did the most damage. Earlier in my treatment, my oncologist mentioned a possibility of reducing the dosage of pegfilgrastim. I was wondering if anybody else has had similar issues or
I am going through FCR and I had a rough time after the 4th round. I am thinking that it was the Neulasta shot that did the most damage. Earlier in my treatment, my oncologist mentioned a possibility of reducing the dosage of pegfilgrastim. I was wondering if anybody else has had similar issues or
gfreiman
in
CLL Support
6 years ago
Newly diagnosed with systemic scleroderma
I have poor lung function tests and will be starting a round of
cyclophosphamide
soon to slow down lung disease. I am nervous as I don’t have children yet and I’m scared about the future regarding fertility. Has anyone got any experience with this?
I have poor lung function tests and will be starting a round of
cyclophosphamide
soon to slow down lung disease. I am nervous as I don’t have children yet and I’m scared about the future regarding fertility. Has anyone got any experience with this?
Maryam_a
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Update: No FCR, we will start Ibrutinib
Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and enlarged spleen, 68 years old. The doctor suggested FCR will be most efficient but due to the age we will try Ibrutinib (which is a relief since I
Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and enlarged spleen, 68 years old. The doctor suggested FCR will be most efficient but due to the age we will try Ibrutinib (which is a relief since I
paula_dae
in
CLL Support
6 years ago
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