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Cyclophosphamide
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NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Jm954
Administrator
in
CLL Support
3 years ago
In need of positive vibes!
🤦♀️ I posted a couple of months ago asking about ILD which I had just been diagnosed with and asked if anyone had received
cyclophosphamide
treatment for it. Well... I should have started treatment a month ago but due to one infection after another and two teeth extracted it has been delayed.
🤦♀️ I posted a couple of months ago asking about ILD which I had just been diagnosed with and asked if anyone had received
cyclophosphamide
treatment for it. Well... I should have started treatment a month ago but due to one infection after another and two teeth extracted it has been delayed.
Susieliz39
in
LUPUS UK
3 years ago
Inevitable, but still a blow and a huge disappointment
Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and release the pressure on my overactive brain at the moment. I think it may be referred to as a Blog. Over 10 years diagnosed with CLL and after
Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and release the pressure on my overactive brain at the moment. I think it may be referred to as a Blog. Over 10 years diagnosed with CLL and after
Rich316
in
CLL Support
3 years ago
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Lupus and Bowel Bleeding
She has had Rituximab and
cyclophosphamide
infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine.
She has had Rituximab and
cyclophosphamide
infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine.
chezevo
in
LUPUS UK
4 years ago
Scottish Medicines Agency has decided in favour of Venetoclax plus Obintuzumab for some patients.
together with obinutuzumab as a fixed term treatment in two subgroups of patients with CLL who have not yet had any treatment for their CLL: - patients with del(17p)/TP53 mutation - patients without del(17p)/TP53 mutation who are not fit enough to receive the chemo - immunotherapy FCR (fludarabine,
cyclophosphamide
together with obinutuzumab as a fixed term treatment in two subgroups of patients with CLL who have not yet had any treatment for their CLL: - patients with del(17p)/TP53 mutation - patients without del(17p)/TP53 mutation who are not fit enough to receive the chemo - immunotherapy FCR (fludarabine,
cyclophosphamide
Jm954
Administrator
in
CLL Support
3 years ago
First Time Post: CLL in full relapse mode + vaccines and Calquence next line of defense.
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
TimDeeSeattle
in
CLL Support
3 years ago
blood results after 9 week fcr finished
hi all,,, went for my blood review today 9 week after cycle 6 fcr finished ,,wbc.106....plts 34.....HB.108.....neuts.0.5........ not to happy with these results can anyone help me with these as iam thinking does the body take time to recover after 6 months of FCR,,,,got a couple of mouth ulcers and feeling
hi all,,, went for my blood review today 9 week after cycle 6 fcr finished ,,wbc.106....plts 34.....HB.108.....neuts.0.5........ not to happy with these results can anyone help me with these as iam thinking does the body take time to recover after 6 months of FCR,,,,got a couple of mouth ulcers and feeling
kel555
in
CLL Support
3 years ago
Which vaccine is better for CLL patients, Pfizer or Astra Zeneca ?
After 5 years of slow raising , at 134000 WBC I had FCR chemo, only two cycles, as I reacted with high fever to Rituximab and blood count droped down to 8000 immediately, so twice the second day of Cyclofosfamid was cancelled and unfortunately I did suffer from Clostridium Difficile after each treatment
After 5 years of slow raising , at 134000 WBC I had FCR chemo, only two cycles, as I reacted with high fever to Rituximab and blood count droped down to 8000 immediately, so twice the second day of Cyclofosfamid was cancelled and unfortunately I did suffer from Clostridium Difficile after each treatment
Ankakoza
in
CLL Support
3 years ago
Opinions about chemotherapy. Running out of options
(A good oncologist): "We can also consider changing Carboplatin to
Cyclophosphamide
or Mitoxantrone.
(A good oncologist): "We can also consider changing Carboplatin to
Cyclophosphamide
or Mitoxantrone.
abmicro
in
Advanced Prostate Cancer
4 years ago
Chest pain in CLL
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Daisy1993
in
CLL Support
3 years ago
Common Cold with Low Immune System
I have had
Cyclophosphamide
and currently on Azathioprine and for the first time in 11 months caught a cold. What happens? is it different? More severe? Just interested.
I have had
Cyclophosphamide
and currently on Azathioprine and for the first time in 11 months caught a cold. What happens? is it different? More severe? Just interested.
Investigator1
in
Vasculitis UK
4 years ago
not sure
I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
kel555
in
CLL Support
3 years ago
Astra Zeneca - any reactions?
Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired and headachy today. Hopefully it just means it’s just doing it’s job. I am so much more sensitive to all kinds of things since FCR two and a
Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired and headachy today. Hopefully it just means it’s just doing it’s job. I am so much more sensitive to all kinds of things since FCR two and a
Mandy56
in
CLL Support
3 years ago
Strange case of CLL remission
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
mkawass
in
CLL Support
3 years ago
Rituximab
Hi has anyone been having Rituximab alongside
Cyclophosphamide
pulse infusions? This maybe my next course of action as I have just had my 5th
cyclophosphamide
infusion & there’s some improvement in my skin but not with my ILD. Many thanks.
Hi has anyone been having Rituximab alongside
Cyclophosphamide
pulse infusions? This maybe my next course of action as I have just had my 5th
cyclophosphamide
infusion & there’s some improvement in my skin but not with my ILD. Many thanks.
cheryldn
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
How things have changed
Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated at the King Edward VII Hospital in London under Sir Ronald Bodley-Scott with cortisone and blood transfusions (Cortisone and Soda as he described
Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated at the King Edward VII Hospital in London under Sir Ronald Bodley-Scott with cortisone and blood transfusions (Cortisone and Soda as he described
SERVrider
in
CLL Support
3 years ago
Side effects of RCD Chemotherapy
I have undergone 2 cycles of rituximab,
cyclophosphamide
and dexamethasone (RCD) chemotherapy. This alternative therapy was decided by treating Hematologist after discontinuing Ibrutinib due to intolerance.
I have undergone 2 cycles of rituximab,
cyclophosphamide
and dexamethasone (RCD) chemotherapy. This alternative therapy was decided by treating Hematologist after discontinuing Ibrutinib due to intolerance.
CLL4
in
CLL Support
4 years ago
WBC over 200.000
He told me he meant Chlorambucil, not
Cyclophosphamide
. He wants to start Chlorambucil + Rituximab. Sorry for mistake. I confused :(
He told me he meant Chlorambucil, not
Cyclophosphamide
. He wants to start Chlorambucil + Rituximab. Sorry for mistake. I confused :(
cllmeonmycellphone
in
CLL Support
4 years ago
Does Azathioprine ever fail?
I had got myself into a good position with my ANCA marker after
Cyclophosphamide
and Prednisolone and after monthly blood tests it’s started to creep up from 40 to 51 to 62. Not a massive increase and no returning symptoms.
I had got myself into a good position with my ANCA marker after
Cyclophosphamide
and Prednisolone and after monthly blood tests it’s started to creep up from 40 to 51 to 62. Not a massive increase and no returning symptoms.
Investigator1
in
Vasculitis UK
4 years ago
unmutated
hi all is there any members who has had fcr who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5 yrs plus and also which treatment would be best after fcr ,,thank you ,,kel
hi all is there any members who has had fcr who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5 yrs plus and also which treatment would be best after fcr ,,thank you ,,kel
kel555
in
CLL Support
3 years ago
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