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Understanding the way forward
I am an 81 year old female. My Thyroid/2nd goitre was removed about 7 years ago. Prescribed Levothyroxine and seemed to recover OK for a while. About 5 years ago experienced tiredness, and a long-standing viral respiratory infection. GP referred me to consultant but usual blood tests etc rated as normal
I am an 81 year old female. My Thyroid/2nd goitre was removed about 7 years ago. Prescribed Levothyroxine and seemed to recover OK for a while. About 5 years ago experienced tiredness, and a long-standing viral respiratory infection. GP referred me to consultant but usual blood tests etc rated as normal
cogacc
in
Thyroid UK
7 months ago
PA, or just getting older?
I recently came across an article about PA and back pain. I wonder if I can blame my B12 deficiency for my sciatica and wrist tendonitis? I had thought of them as unrelated. In a way this would be good news as it means they might improve as I get my B12 levels back up. PA seems to cause so many symptoms
I recently came across an article about PA and back pain. I wonder if I can blame my B12 deficiency for my sciatica and wrist tendonitis? I had thought of them as unrelated. In a way this would be good news as it means they might improve as I get my B12 levels back up. PA seems to cause so many symptoms
Permexpi
in
Pernicious Anaemia Society
7 months ago
following first 10 S/Is now totally exhausted
have now been S/I ing EOD for the last 20 days, and am feeling mentally uplifted and hopeful and done some housework, ( my home had turned itself into a tip over the last 10 years or so) but last 3 days feeling really exhausted, cannot wake up or get out of bed in the morning, in a peculiar way worse
have now been S/I ing EOD for the last 20 days, and am feeling mentally uplifted and hopeful and done some housework, ( my home had turned itself into a tip over the last 10 years or so) but last 3 days feeling really exhausted, cannot wake up or get out of bed in the morning, in a peculiar way worse
totallyFrustrated
in
Pernicious Anaemia Society
7 months ago
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Watch Out for Vit B12 Deficiency on PPIs & Vit D3
Hi all I had 2 stents in 2020 and as usual was on cocktail of drugs. At present only on 75 mg Apsirin & Ivabradine 5 mg OD along with Omeprozole - PPI 20 mg. Been on PPIs for 3 years as Aspirin doesn't go well with my tummy. Recently started to feel bit nervous, tired, recurrent headaches & unproductive
Hi all I had 2 stents in 2020 and as usual was on cocktail of drugs. At present only on 75 mg Apsirin & Ivabradine 5 mg OD along with Omeprozole - PPI 20 mg. Been on PPIs for 3 years as Aspirin doesn't go well with my tummy. Recently started to feel bit nervous, tired, recurrent headaches & unproductive
Hidden
in
British Heart Foundation
7 months ago
B12 deficiency - it’s official! What next?
Thank you to all the kind people who responded to my first enquiry seven months ago - you can see the history here https://healthunlocked.com/pasoc/posts/149321418/should-i-be-asking-for-a-test-for-pa?responses=149357417 After correcting a folate deficiency at the beginning of the year my B12 levels
Thank you to all the kind people who responded to my first enquiry seven months ago - you can see the history here https://healthunlocked.com/pasoc/posts/149321418/should-i-be-asking-for-a-test-for-pa?responses=149357417 After correcting a folate deficiency at the beginning of the year my B12 levels
Realtiger
in
Pernicious Anaemia Society
7 months ago
Help for my 31 year old son please. First post.
He has just had some blood test results, would appreciate any ideas because of the low Ferritin and Folate. He is a Type 1 diabetic. He became ill in the Spring, had been working very long and unsocial hours in hospitality. He has symptoms of Fibromyalgia and his GP is close to giving him the diagnosis
He has just had some blood test results, would appreciate any ideas because of the low Ferritin and Folate. He is a Type 1 diabetic. He became ill in the Spring, had been working very long and unsocial hours in hospitality. He has symptoms of Fibromyalgia and his GP is close to giving him the diagnosis
Lexa22
in
Fibromyalgia Action UK
7 months ago
my results today
Hi everyone, From the Thyroid clinic uk My results are as follows, I am confused now as to what is causing my awful symptoms. TSH 2.34 range 0.27 - 4.2 Free T3 3.9 range 3.1 - 6.8 FT4 15.7 range 12 -22 TPA <9 range 0 - 34 Folate serum 37.4 range 8.83 - 60.8 B12 792 range 145 - 769 (HIGH)
Hi everyone, From the Thyroid clinic uk My results are as follows, I am confused now as to what is causing my awful symptoms. TSH 2.34 range 0.27 - 4.2 Free T3 3.9 range 3.1 - 6.8 FT4 15.7 range 12 -22 TPA <9 range 0 - 34 Folate serum 37.4 range 8.83 - 60.8 B12 792 range 145 - 769 (HIGH)
FoxyTed
in
Thyroid UK
7 months ago
Fading away
Hi I'm going to jump straight into this. I collapsed and the hospital diagnosed b12 disorder from the p anemia and gave me loading doses, followed by a year of 12 weekly injections. Then they say I was cured and stopped giving me them which brought back all my symptoms. I then got NAFLD (non alcoholic
Hi I'm going to jump straight into this. I collapsed and the hospital diagnosed b12 disorder from the p anemia and gave me loading doses, followed by a year of 12 weekly injections. Then they say I was cured and stopped giving me them which brought back all my symptoms. I then got NAFLD (non alcoholic
Danni455
in
Pernicious Anaemia Society
7 months ago
New small sub cut needles..
I've recently bought the small needles after advice on this platform to change from IM to Subcutaneous and advised not to pinch skin. However yesterday my daughter was discharged from hospital following surgery and the nurse demonstrated giving blood thinning injections with longer needle pinching
I've recently bought the small needles after advice on this platform to change from IM to Subcutaneous and advised not to pinch skin. However yesterday my daughter was discharged from hospital following surgery and the nurse demonstrated giving blood thinning injections with longer needle pinching
pinkpaddleboarder
in
Pernicious Anaemia Society
7 months ago
Regenerus cortisol has flatlined, low ferritin but other results seem normal.Gastritis, ‘fizzing’ legs
I will post now and try again later to attach the results PDFs, as it won’t let me at the mo. [u]GP Tests :[/u] Ferritin 21 ( 13 - 150 ) Folate 4 ( 3.8 - 26 ) B12 514. ( 180 - 999 ) GP told me to improve ferritin with diet. I then had acute [u]gastritis[/u]. I’ve stopped omeprazole and will do
I will post now and try again later to attach the results PDFs, as it won’t let me at the mo. [u]GP Tests :[/u] Ferritin 21 ( 13 - 150 ) Folate 4 ( 3.8 - 26 ) B12 514. ( 180 - 999 ) GP told me to improve ferritin with diet. I then had acute [u]gastritis[/u]. I’ve stopped omeprazole and will do
Applethorpe
in
Thyroid UK
7 months ago
stopping Hydrea for 8 weeks…
Good evening from Queensland 🌼 Just sharing that I saw Dr Cleary, my haematologist, today. She decided to take me off Hydrea for 8 weeks to see if my symptoms subside and if the Hydrea is causing them. I haven’t been on a high dose of Hydrea. I began in May on 500mg every 2nd day. Then the past 2
Good evening from Queensland 🌼 Just sharing that I saw Dr Cleary, my haematologist, today. She decided to take me off Hydrea for 8 weeks to see if my symptoms subside and if the Hydrea is causing them. I haven’t been on a high dose of Hydrea. I began in May on 500mg every 2nd day. Then the past 2
Pachena
in
MPN Voice
7 months ago
Which Martyn Hooper book?
Hi people. Please could someone remind me of the title of the Martyn Hooper book about b12? There seems to be more than one available? Many thanks!
Hi people. Please could someone remind me of the title of the Martyn Hooper book about b12? There seems to be more than one available? Many thanks!
luckymaria
in
Pernicious Anaemia Society
7 months ago
Would someone be able to look at my results please?
I had these tests done last week, at 8 am, fasting and 36 hours or so after my last dose of 125mcg Levothyroxine. I stopped taking my B complex a week before. TSH (0.55-4.78) <0.02 FT4 (11.5-22.7) 19.6 Hb (120-150) 136 B12 (211-911) 449 {this was 1625 on last test in 2019] Folate (>5.4) 15.8 Ferritin
I had these tests done last week, at 8 am, fasting and 36 hours or so after my last dose of 125mcg Levothyroxine. I stopped taking my B complex a week before. TSH (0.55-4.78) <0.02 FT4 (11.5-22.7) 19.6 Hb (120-150) 136 B12 (211-911) 449 {this was 1625 on last test in 2019] Folate (>5.4) 15.8 Ferritin
AngelRain
in
Thyroid UK
7 months ago
Interesting Dynamic
Least I think so. If I felt as good as I have in the two months at any time prior I would have been ecstatic. Now that has become the standard I understand I am feeling and doing better and still have a long way to go. I am starting to have the head space to start the grieving process of my loss
Least I think so. If I felt as good as I have in the two months at any time prior I would have been ecstatic. Now that has become the standard I understand I am feeling and doing better and still have a long way to go. I am starting to have the head space to start the grieving process of my loss
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
B12 or folic acid first?
My daughter has just been diagnosed with B12 and folate deficiency, The likely cause is poor diet so I’m happy not to pursue injections at this stage. Her GP has prescribed B12 and 5mg folic acid, both in tablet form. Please can anyone confirm which she should take first and for how long before
My daughter has just been diagnosed with B12 and folate deficiency, The likely cause is poor diet so I’m happy not to pursue injections at this stage. Her GP has prescribed B12 and 5mg folic acid, both in tablet form. Please can anyone confirm which she should take first and for how long before
JanD236
in
Pernicious Anaemia Society
7 months ago
Ongoing saga of getting back my b12 prescription.
Pharmacy telephone appointment on having to change surgeries. B12 reinstated May 2023 The removed in Ausgust Then reinstated The removed. Told I needed s Gps appointment . Reinstated 12/10 Removed 27/ 10 3 letters. No reply. Then 1 ampoule reinstated. The one I geg at the surgery I presume.
Pharmacy telephone appointment on having to change surgeries. B12 reinstated May 2023 The removed in Ausgust Then reinstated The removed. Told I needed s Gps appointment . Reinstated 12/10 Removed 27/ 10 3 letters. No reply. Then 1 ampoule reinstated. The one I geg at the surgery I presume.
Nackapan
in
Pernicious Anaemia Society
7 months ago
Trying to balancing T3 and T4
Sad and disappointed to be here asking for help yet again. Yes, I have been chopping and changing my doses desperately trying to find my sweet spot, not knowing who or what to believe. My latest results are : June 23 (0n 118mcg T4 and 17.5mcg T3) (bloods taken 9am before morning meds) TSH 0.01
Sad and disappointed to be here asking for help yet again. Yes, I have been chopping and changing my doses desperately trying to find my sweet spot, not knowing who or what to believe. My latest results are : June 23 (0n 118mcg T4 and 17.5mcg T3) (bloods taken 9am before morning meds) TSH 0.01
hobbycat
in
Thyroid UK
7 months ago
Anomalous results - follow up
Hello everyone, This is a follow up to my last post two months ago which described the anomalous results from two tests one NHS and one Medichecks only one day apart and both done following the usual protocol. These were done following an increase in levo to 100mcg on 1 June. As I expected when my GP
Hello everyone, This is a follow up to my last post two months ago which described the anomalous results from two tests one NHS and one Medichecks only one day apart and both done following the usual protocol. These were done following an increase in levo to 100mcg on 1 June. As I expected when my GP
Italiangirl123
in
Thyroid UK
7 months ago
Updated Results
Results advice would be appreciated. Yearly boods By GP 27.July.23 Serum TSH 0.30 mIU/L (Range: 0.35 - 4.94) Serum Free T3 3.9 pmol/L (Range: 2.4- 6.0) Serum Free T4 12.6 pmol/L (Range: 8.0 - 19.1) Receptionist called to say my bloods were fine. Still on 50mg Levo. Stopped 24 hours prior
Results advice would be appreciated. Yearly boods By GP 27.July.23 Serum TSH 0.30 mIU/L (Range: 0.35 - 4.94) Serum Free T3 3.9 pmol/L (Range: 2.4- 6.0) Serum Free T4 12.6 pmol/L (Range: 8.0 - 19.1) Receptionist called to say my bloods were fine. Still on 50mg Levo. Stopped 24 hours prior
Albaangel
in
Thyroid UK
7 months ago
Need Help Please
Hi all. My story is long so here goes. In 2010 I was hit twice by the same car on a hwy and had a lot of issues and pain etc. Ten mths later I literally thought I was going to die. Was off work for 14 mths w/ b12 def. My dad has PA and to my knowledge I was never tested but assume I have it. Life
Hi all. My story is long so here goes. In 2010 I was hit twice by the same car on a hwy and had a lot of issues and pain etc. Ten mths later I literally thought I was going to die. Was off work for 14 mths w/ b12 def. My dad has PA and to my knowledge I was never tested but assume I have it. Life
Swift20
in
Pernicious Anaemia Society
7 months ago
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