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Peripheral neuropathy and neurology's response
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
LizWilsonpa
in
Pernicious Anaemia Society
1 hour ago
B12 - advice on injections please
Hi, can anyone tell me if there is a reason you should have Hydroxycobalbumin rather than Methylcobalbumin form of B12 injected..? Hydroxycobalbumin is the precursor of the other with Methylcovalbumin being the active form (from what I can tell) and both seem to be available in the UK for injection.
Hi, can anyone tell me if there is a reason you should have Hydroxycobalbumin rather than Methylcobalbumin form of B12 injected..? Hydroxycobalbumin is the precursor of the other with Methylcovalbumin being the active form (from what I can tell) and both seem to be available in the UK for injection.
TheMudRunner
in
Thyroid UK
47 minutes ago
First BMD in 8 years
I got a BMD and have been considering echolyte in the year ahead to inform my numbers with more information. I wonder what some of your concerns for me might be as I debate medication or no medication. I am an active 68 year old woman. I walked 920 miles in 8 weeks in a wellness competition. I am
I got a BMD and have been considering echolyte in the year ahead to inform my numbers with more information. I wonder what some of your concerns for me might be as I debate medication or no medication. I am an active 68 year old woman. I walked 920 miles in 8 weeks in a wellness competition. I am
Mindy777
in
Osteoporosis Support
4 hours ago
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More b12 injections
I'm currently on loading dose 5 out of 6. The doctor said to have 6 loading doses followed by one every 12 weeks. I'm feeling worse from the loading doses what happens if the doctor won't give me more so I have the injection every 2 days rather than wait the 12 weeks each time? I can't afford to buy
I'm currently on loading dose 5 out of 6. The doctor said to have 6 loading doses followed by one every 12 weeks. I'm feeling worse from the loading doses what happens if the doctor won't give me more so I have the injection every 2 days rather than wait the 12 weeks each time? I can't afford to buy
gemmacampbell
in
Pernicious Anaemia Society
3 hours ago
Does this look more Euthyroid and less central hypo now?
Hello everyone, This is my 4th thyroid test (all testing advice adhered to, tests between 9.00-9.40am) over the last 6 months since joining HU and asking for advice. It looks to me like T4 has started to raise. I've listed below all 4 tests for comparison. It's now 47% through the range which seems
Hello everyone, This is my 4th thyroid test (all testing advice adhered to, tests between 9.00-9.40am) over the last 6 months since joining HU and asking for advice. It looks to me like T4 has started to raise. I've listed below all 4 tests for comparison. It's now 47% through the range which seems
Bertiepuss
in
Thyroid UK
12 hours ago
Lab Cut Backs (blood testing)!
I've read on here numerous times about people being refused T3 tests because "we're not allowed to test that any more" etc etc. Clearly appalling when trying to get a full picture of what's going on with your thyroid. I've just spoken to the GP about some other blood tests I'm having done tomorrow (
I've read on here numerous times about people being refused T3 tests because "we're not allowed to test that any more" etc etc. Clearly appalling when trying to get a full picture of what's going on with your thyroid. I've just spoken to the GP about some other blood tests I'm having done tomorrow (
Fluffysheep
in
Thyroid UK
14 hours ago
Wits end
I need some advice please. I am currently on 300mg of pregabalin and one codeine tablet a day but this has stopped working. I struggle to get to sleep and when I do I am woken after 1 - 2 hours with restless legs and sometimes arms. I am at my wits end with exhaustion. I had a full blood count recently
I need some advice please. I am currently on 300mg of pregabalin and one codeine tablet a day but this has stopped working. I struggle to get to sleep and when I do I am woken after 1 - 2 hours with restless legs and sometimes arms. I am at my wits end with exhaustion. I had a full blood count recently
Carolinetidy
in
Restless Legs Syndrome
14 hours ago
Understanding Thyroid Test Results
This is the first time I have posted on this site. I have had hypothyroidism for 17 years now and had yearly blood tests. I must admit I have never understood what the result has meant other than the GP saying it's satisfactory. My recent test was Serum TSH level 2.14 mu/1. This means nothing to me and
This is the first time I have posted on this site. I have had hypothyroidism for 17 years now and had yearly blood tests. I must admit I have never understood what the result has meant other than the GP saying it's satisfactory. My recent test was Serum TSH level 2.14 mu/1. This means nothing to me and
Rozzy57
in
Thyroid UK
16 hours ago
Questions for Endocrinologist
Today is the day, I am finally seeing an endocrinologist. Any suggestions of things to ask? Trying to be optimistic about the appointment but quietly cautious. Below are the questions I have so far: - FT3 measurement to ensure adequate conversion - Pregnancy monitoring and appropriate FT4 and TSH levels
Today is the day, I am finally seeing an endocrinologist. Any suggestions of things to ask? Trying to be optimistic about the appointment but quietly cautious. Below are the questions I have so far: - FT3 measurement to ensure adequate conversion - Pregnancy monitoring and appropriate FT4 and TSH levels
Curious123
in
Thyroid UK
17 hours ago
History of continued low and fluctuating iron levels - advice?
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
Starseed56
in
Thyroid UK
1 day ago
Should I see an endocrinologist ?and if so can anyone recommend a good one I'm ased in South wales but willing to travel.
Hi allSo I've been publishing my results for many weeks now and have had fantastic advice from this page. Following on from my private blood test which I've attached, I booked to see a Gp but I tried a different one as I've been seeing the same one for 18 months. Well I feel absolutely deflated. I've
Hi allSo I've been publishing my results for many weeks now and have had fantastic advice from this page. Following on from my private blood test which I've attached, I booked to see a Gp but I tried a different one as I've been seeing the same one for 18 months. Well I feel absolutely deflated. I've
Tinkerbell_84
in
Thyroid UK
1 day ago
B12 loading doses feeling worse
I've been getting headaches daily for the last 4 weeks now. Had bloods done and my b12 is at 77 so I'm on my second week of loading doses and I feel awful worse than before I started! Before was headaches everyday now I've still got the headaches and sometimes my arms feel tingly and weak. Do I need
I've been getting headaches daily for the last 4 weeks now. Had bloods done and my b12 is at 77 so I'm on my second week of loading doses and I feel awful worse than before I started! Before was headaches everyday now I've still got the headaches and sometimes my arms feel tingly and weak. Do I need
gemmacampbell
in
Pernicious Anaemia Society
1 day ago
Post-private GP update
Evening. A few people asked me to post an update following on from my visit to a private GP today. Well, it certainly wasn’t what I’d expected, which is to say I hadn’t expected much to happen other than another another blood test being needed and possibly a plan of action. What actually happened
Evening. A few people asked me to post an update following on from my visit to a private GP today. Well, it certainly wasn’t what I’d expected, which is to say I hadn’t expected much to happen other than another another blood test being needed and possibly a plan of action. What actually happened
TheMudRunner
in
Thyroid UK
1 day ago
warning re gastroscopy and gastrografin for ME/CFS sufferers . Plus neuropathy ?
I saw a very nice colorectal surgeon who arranged a CT colonography - as I thought this would be physically less demanding than a full colonoscopy. Two days after the scan I spent the whole day throwing up violently. You can get a ‘rare’ delayed reaction to Gastrografin, the iodine contrast medium.
I saw a very nice colorectal surgeon who arranged a CT colonography - as I thought this would be physically less demanding than a full colonoscopy. Two days after the scan I spent the whole day throwing up violently. You can get a ‘rare’ delayed reaction to Gastrografin, the iodine contrast medium.
Applethorpe
in
Pernicious Anaemia Society
1 day ago
numb fingers while asleep
hi , I had a HA end of nov last year , while returning from an off-road motorbike session, rushed to hospital in Tenerife as we have a holiday home there, I received one stent and sent home after 5 days , at first all was good then after a while had anxiety and didn’t feel good , went back to hospital
hi , I had a HA end of nov last year , while returning from an off-road motorbike session, rushed to hospital in Tenerife as we have a holiday home there, I received one stent and sent home after 5 days , at first all was good then after a while had anxiety and didn’t feel good , went back to hospital
Jas4321
in
British Heart Foundation
2 days ago
Elderly mum exhausted, overweight, unmotivated, yellow tinge skin on sides of face
Hello, I'm really struggling trying to get the GP to sort my mum out. She's nearly 88yrs old and in the last few years has put on an excessive amount of weight, she was a size 12, now she is almost a 20! She is absolutely exhausted, just says she has no energy at all and barely gets dressed each day
Hello, I'm really struggling trying to get the GP to sort my mum out. She's nearly 88yrs old and in the last few years has put on an excessive amount of weight, she was a size 12, now she is almost a 20! She is absolutely exhausted, just says she has no energy at all and barely gets dressed each day
Pinkpetite
in
Thyroid UK
2 days ago
Latest blood tests
Hi everyone, I posted a while ago about getting all my underactive thyroid symptoms back, joint pains, fatigue, anxiety and others. I’d had test results saying my TSH was low, but the dr was saying that it was satisfactory. I managed to speak to another dr and she ordered full blood tests. My results
Hi everyone, I posted a while ago about getting all my underactive thyroid symptoms back, joint pains, fatigue, anxiety and others. I’d had test results saying my TSH was low, but the dr was saying that it was satisfactory. I managed to speak to another dr and she ordered full blood tests. My results
Button83
in
Thyroid UK
2 days ago
B12 and Folate
hi everyone I’ve now decided after lots of help from the very knowledgeable people on this forum that I need Vit supplements Can I take B12 and Folate? My folate is really quite low but also need B12 Thanks in advance
hi everyone I’ve now decided after lots of help from the very knowledgeable people on this forum that I need Vit supplements Can I take B12 and Folate? My folate is really quite low but also need B12 Thanks in advance
wolthebuilder
in
Thyroid UK
2 days ago
Medscape article on RLS
Restless legs Medscape Medscape is the leading online global destination for physicians and healthcare professionals worldwide, offering the latest medical news and expert perspectives; essential point-of-care drug and disease information; and relevant professional education and CME. This is
Restless legs Medscape Medscape is the leading online global destination for physicians and healthcare professionals worldwide, offering the latest medical news and expert perspectives; essential point-of-care drug and disease information; and relevant professional education and CME. This is
thorp
in
Restless Legs Syndrome
3 days ago
High Blood Pressure In Between injections
Hi , I’m newly diagnosed with PA, Still having neurological symptoms of para thesis in my arm/ hand - I’ve now had 22 injections of B12 since the end of Feb and continuing whilst my GP awaits advice from a haematologist. Every time the injections are stopped or a gap longer than a week my BP shoots
Hi , I’m newly diagnosed with PA, Still having neurological symptoms of para thesis in my arm/ hand - I’ve now had 22 injections of B12 since the end of Feb and continuing whilst my GP awaits advice from a haematologist. Every time the injections are stopped or a gap longer than a week my BP shoots
Karenedawson
in
Pernicious Anaemia Society
3 days ago
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