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Covid
Just had COVID and weirdly no RLS for the whole time. Ok I'm taking 0.09mg mirapex every evening. Nothing else works except tramadol which I alternate with every so often. Is there anything else that works. I've tried pregabalin and the others but nothing. I would like to stop mirapexin completely but
Just had COVID and weirdly no RLS for the whole time. Ok I'm taking 0.09mg mirapex every evening. Nothing else works except tramadol which I alternate with every so often. Is there anything else that works. I've tried pregabalin and the others but nothing. I would like to stop mirapexin completely but
Memmy
in
Restless Legs Syndrome
1 year ago
Parenting advice for ADHD child (9)
hello I am new to this community and accidentally found this resource while doing research for better parenting techniques and advice for dealing with a child with ADHD. My son who will be 9 in a few days, has had his ADHD diagnosis since right before COVID shut down (January 2020) by a psychiatrist
hello I am new to this community and accidentally found this resource while doing research for better parenting techniques and advice for dealing with a child with ADHD. My son who will be 9 in a few days, has had his ADHD diagnosis since right before COVID shut down (January 2020) by a psychiatrist
Boy_mom95
in
CHADD's ADHD Parents Together
1 year ago
last run week 8
after coming back from Thailand and ran wow that was shock to the system. Had to have a few days off of running due to covid 🤦♀️😱 Today was two days clear of covid thought I’d give it a go and stop if I had to but I took it easy and did it woohoo 🥳 And in good time tbh I must say I feel proud
after coming back from Thailand and ran wow that was shock to the system. Had to have a few days off of running due to covid 🤦♀️😱 Today was two days clear of covid thought I’d give it a go and stop if I had to but I took it easy and did it woohoo 🥳 And in good time tbh I must say I feel proud
Sparkles22
in
Couch to 5K
1 year ago
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Covid and Asthma
I am on day 7 of covid. It lowers my peak flow by 30 percent or so and makes me routinely breathless. The thing that gets me is that any asthma triggers then take my breathing very quickly into dangerous territory. So I am a bit confined to no activity, very irritating.
I am on day 7 of covid. It lowers my peak flow by 30 percent or so and makes me routinely breathless. The thing that gets me is that any asthma triggers then take my breathing very quickly into dangerous territory. So I am a bit confined to no activity, very irritating.
Homely2
Administrator
in
Asthma Community Forum
1 year ago
BBC World Service~ findings so far from current Long Covid Trials. (off topic~but potentially of interest to those with ?ME/CFS/?Thyroid)
https://www.bbc.co.uk/programmes/w3ct56hd "The Documentary ~ The Long Haul of Long Covid" BBC World Service ~ first aired Tuesday 3rd March 2023 early a.m. ) will be repeated ... also available on BBC Sounds.
"....When we walk them up and down for 6 minutes their blood looks like they've
https://www.bbc.co.uk/programmes/w3ct56hd "The Documentary ~ The Long Haul of Long Covid" BBC World Service ~ first aired Tuesday 3rd March 2023 early a.m. ) will be repeated ... also available on BBC Sounds.
"....When we walk them up and down for 6 minutes their blood looks like they've
tattybogle
in
Thyroid UK
1 year ago
Covid vaccine?
I’m preparing for our next frozen embryo transfer, should start drug protocol next month. It just dawned on me today that I should check if I need any Covid boosters? Anyone know the current advice on this? I had my first covid jab April 2021, 2nd in June 2021 & not had any since. Am I due a booster
I’m preparing for our next frozen embryo transfer, should start drug protocol next month. It just dawned on me today that I should check if I need any Covid boosters? Anyone know the current advice on this? I had my first covid jab April 2021, 2nd in June 2021 & not had any since. Am I due a booster
jengi
in
Fertility Network UK
1 year ago
blood test results
good day to everyone I have not been on for a long time but just an update that might help other people … I had a Blood Test for my thyroid a while back now as all of a sudden our doctors which is a teaching doctors as is my local hospital decide certain blood tests are not neccesary unless the patient
good day to everyone I have not been on for a long time but just an update that might help other people … I had a Blood Test for my thyroid a while back now as all of a sudden our doctors which is a teaching doctors as is my local hospital decide certain blood tests are not neccesary unless the patient
Gettingoldnow
in
Thyroid UK
1 year ago
Forstair runs out before I can get the next prescription. The next installment
I’m being prescribed a forstair every 30 days. I’ve spoken to the pharmacist at the practice and she says: There are 120 doses in an inhaler, 120/4 =30, therefore a new inhaler every 30 days is sufficient. Plus, inhalers have 10% leeway so it’s fine. I’m saying: . it takes 3 to 4 actuations to prime
I’m being prescribed a forstair every 30 days. I’ve spoken to the pharmacist at the practice and she says: There are 120 doses in an inhaler, 120/4 =30, therefore a new inhaler every 30 days is sufficient. Plus, inhalers have 10% leeway so it’s fine. I’m saying: . it takes 3 to 4 actuations to prime
Ts777
in
Asthma Community Forum
1 year ago
Dr Yusuf (YP) Saleeby- LDN & Covid &Long Covid
COVID, Long COVID and LDN https://vimeo.com/799076388
COVID, Long COVID and LDN https://vimeo.com/799076388
Shewulf
Administrator
in
LDN Research Trust
1 year ago
Patient Initiated Returns List
I last saw my rheumatologist nearly 18 months ago and it was only after I had my appointment that I realised I hadn't been given a date for my next appointment, as was usually the case. I assumed that this was due to the backlog caused by Covid and thought nothing more about it until last autumn. But
I last saw my rheumatologist nearly 18 months ago and it was only after I had my appointment that I realised I hadn't been given a date for my next appointment, as was usually the case. I assumed that this was due to the backlog caused by Covid and thought nothing more about it until last autumn. But
MrsMouseSJ
in
Hughes Syndrome APS Forum
1 year ago
Patient Initiated Returns List
I last saw my rheumatologist nearly 18 months ago and it was only after I had my appointment that I realised I hadn't been given a date for my next appointment, as was usually the case. I assumed that this was due to the backlog caused by Covid and thought nothing more about it until last autumn. But
I last saw my rheumatologist nearly 18 months ago and it was only after I had my appointment that I realised I hadn't been given a date for my next appointment, as was usually the case. I assumed that this was due to the backlog caused by Covid and thought nothing more about it until last autumn. But
MrsMouseSJ
in
LUPUS UK
1 year ago
Fibro and COVID
Hi allI have suffered with fibro since 2012 after my right hip was replaced. It has varied a bit in how debilitating it has been for me. Unfortunately I was walloped by the Milanese variant of Covid when the whole Covid nightmare kicked off in Europe in earnest. I thankfully did not end up in hospital
Hi allI have suffered with fibro since 2012 after my right hip was replaced. It has varied a bit in how debilitating it has been for me. Unfortunately I was walloped by the Milanese variant of Covid when the whole Covid nightmare kicked off in Europe in earnest. I thankfully did not end up in hospital
shushkin
in
Fibromyalgia Action UK
1 year ago
Worsening burning, restless, pins and needles in both feet and calves - is this related to the prednisolone, PMR, or something related?
I cannot fathom why this is happening and why it is becoming worse. I just cannot sleep for this. I take Magnesium Glycenate each day, and have not been troubled by restess legs for several years. I had been on 8mg preds since August 2021, Since this past autumn what with Covid, bronchial infection
I cannot fathom why this is happening and why it is becoming worse. I just cannot sleep for this. I take Magnesium Glycenate each day, and have not been troubled by restess legs for several years. I had been on 8mg preds since August 2021, Since this past autumn what with Covid, bronchial infection
Bennijax
in
PMRGCAuk
1 year ago
Chronic fatigue/ long covid and fitness journey.
hi! Just asking if anyone who has had long covid with fatigue being the main symptom has started their journey back to health again? I was a casual runner before and regret pounding away on the treadmill whilst struggling to breathe when I had covid. My lungs have been damaged but I need to try
hi! Just asking if anyone who has had long covid with fatigue being the main symptom has started their journey back to health again? I was a casual runner before and regret pounding away on the treadmill whilst struggling to breathe when I had covid. My lungs have been damaged but I need to try
Esra82
in
Couch to 5K
1 year ago
New test detects COVID accurately, within hours of infection
https://www.simonsfoundation.org/2023/02/27/new-testing-approach-diagnoses-covid-19-with-near-perfect-accuracy/ SNIP, with my emphasis \\ [i]Most existing COVID-19 tests “rely on the same principle, which is that you have accumulated a detectable amount of viral material, for example, in your nose,
https://www.simonsfoundation.org/2023/02/27/new-testing-approach-diagnoses-covid-19-with-near-perfect-accuracy/ SNIP, with my emphasis \\ [i]Most existing COVID-19 tests “rely on the same principle, which is that you have accumulated a detectable amount of viral material, for example, in your nose,
bennevisplace
in
CLL Support
1 year ago
Off Treatment Thoughts
Wondering if anyone has experienced this or has thoughts: 13 q Muted. Was on ibrutinib followed by zanubrutinib for consecutive 24 months. Labs normalized and stayed that way within 6 weeks of initiating treatment. So was on BTKi therapy for two years Have been off zanubrutinib since July 2022
Wondering if anyone has experienced this or has thoughts: 13 q Muted. Was on ibrutinib followed by zanubrutinib for consecutive 24 months. Labs normalized and stayed that way within 6 weeks of initiating treatment. So was on BTKi therapy for two years Have been off zanubrutinib since July 2022
Davidcara
in
CLL Support
1 year ago
CA27-29 numbers and Covid
Has anyone experienced their CA 27-29 numbers going up due to their having Covid or another of the nasty viruses going around these days? I’ve been sick the past two months. Home test was negative for Covid but we seem to have some viruses that are every bit as bad and my tumor markers crept up to 49
Has anyone experienced their CA 27-29 numbers going up due to their having Covid or another of the nasty viruses going around these days? I’ve been sick the past two months. Home test was negative for Covid but we seem to have some viruses that are every bit as bad and my tumor markers crept up to 49
Ilovehorses
in
SHARE Metastatic Breast Cancer
1 year ago
Activities during 2ww - how careful are you about attending social events etc?
Hello, I've got an FET coming up and am on steroids for this one. I've got a few planned activities which involves a gig which I'd loved to go to but I'm just not sure its worth the risk with COVID still about, especially if my immune system is slightly dampened with the drugs. Wondering what other people
Hello, I've got an FET coming up and am on steroids for this one. I've got a few planned activities which involves a gig which I'd loved to go to but I'm just not sure its worth the risk with COVID still about, especially if my immune system is slightly dampened with the drugs. Wondering what other people
Bookbroad
in
Fertility Network UK
1 year ago
Long covid and prosthetic issues
I have not been able to get the covid omicron booster because I am allergic to an ingredient in the Moderna and Phizer. But I have had 2 JandJs, and a mild case of covid a year ago. After a morning of sneezing 2weeks ago I tested and was surprised to see the dreaded pink line indicating I was positive
I have not been able to get the covid omicron booster because I am allergic to an ingredient in the Moderna and Phizer. But I have had 2 JandJs, and a mild case of covid a year ago. After a morning of sneezing 2weeks ago I tested and was surprised to see the dreaded pink line indicating I was positive
GinaD
in
Hughes Syndrome APS Forum
1 year ago
SLE patients may have reduced response to COVID-19 vaccination
Some immunosuppressive treatments also have an effect, study finds by Andrea Lobo, PhD | February 23, 2023 Patients with systemic lupus erythematosus (SLE) have a reduced response to COVID-19 vaccination, an effect made worse by specific immunosuppressive treatments, a recent study reports. A
Some immunosuppressive treatments also have an effect, study finds by Andrea Lobo, PhD | February 23, 2023 Patients with systemic lupus erythematosus (SLE) have a reduced response to COVID-19 vaccination, an effect made worse by specific immunosuppressive treatments, a recent study reports. A
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
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