Search
Search
About
Log in
Join
Experiences with
Coronary vasospastic disease
Posts
Communities
45,956 public posts
Filter results
Inflammatory arthritis & worse circulation
Hi, was diagnosed with seronegative inflammatory arthritis in April. I have noticed that my fingers and toes are permanently cold and can turn white.Many years ago so was told I had Raynauds . But other than in very cold conditions it has been quite settled. Does Raynauds flare up more with arthritis
Hi, was diagnosed with seronegative inflammatory arthritis in April. I have noticed that my fingers and toes are permanently cold and can turn white.Many years ago so was told I had Raynauds . But other than in very cold conditions it has been quite settled. Does Raynauds flare up more with arthritis
hazelcats
in
NRAS
2 days ago
Take part in the PLAN-HERACLES survey
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Aribah-NRAS
NRAS
in
NRAS
2 days ago
The Wren Project
If you are feeling distressed and have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support with a volunteer at The Wren Project, a charity supporting people living with autoimmune disease. For more information and to
If you are feeling distressed and have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support with a volunteer at The Wren Project, a charity supporting people living with autoimmune disease. For more information and to
TUKOffice
Thyroid UK
in
Thyroid UK
2 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Thyroid antibodies
Hello everyone, Just asking for some advice or thoughts as I have the thyroid antibodies but ‘normal thyroid’. The thyroid antibodies were found when my first private endo ran tests for my hypoPARA. I have been confused about what they are going to do about it as all they have said it ‘your thyroid
Hello everyone, Just asking for some advice or thoughts as I have the thyroid antibodies but ‘normal thyroid’. The thyroid antibodies were found when my first private endo ran tests for my hypoPARA. I have been confused about what they are going to do about it as all they have said it ‘your thyroid
Owl84
in
Thyroid UK
3 days ago
I think I have Lupus but not diagnosed yet
hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue for a few years and put this down to IBS and getting older (late 30’s) but despite my IBS being well controlled now, recently my symptoms have
hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue for a few years and put this down to IBS and getting older (late 30’s) but despite my IBS being well controlled now, recently my symptoms have
Zephyrspurple
in
LUPUS UK
4 days ago
PSORIATIC ARTHRITIS
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
Cheylann
in
NRAS
4 days ago
Rising PSA … Clear PSMA SCAN
My husband sees Dr. Rahul Aggarwal at UCSF. I’m surprised by his treatment plan. hubby has been on Lupron & NUBEQA since April. At first it brought PSA down but now it is up to 6.5 His last PSMA SCAN was in October when PSA was 4.3 Next PSMA scan is mid January. Aggarwal says PSA # is no longer of
My husband sees Dr. Rahul Aggarwal at UCSF. I’m surprised by his treatment plan. hubby has been on Lupron & NUBEQA since April. At first it brought PSA down but now it is up to 6.5 His last PSMA SCAN was in October when PSA was 4.3 Next PSMA scan is mid January. Aggarwal says PSA # is no longer of
JolleySprings
in
Advanced Prostate Cancer
5 months ago
How long does a coeliacs blood test take to come back?
Exactly that! I had bloods done on Friday lunch time, including a FBC, B12, folate, and ferritin. Also Coeliac screen (TTG). All the others are back but not the coeliac screen yet. Is that usual?
Exactly that! I had bloods done on Friday lunch time, including a FBC, B12, folate, and ferritin. Also Coeliac screen (TTG). All the others are back but not the coeliac screen yet. Is that usual?
WitchingHour2point0
in
Thyroid UK
7 days ago
Breakthrough with the cause of IBD - may lead to similar discoveries with other autoimmune diseases?
Just spotted this on my BBC News notifications. BBC News - Major cause of inflammatory bowel disease found https://www.bbc.com/news/articles/c1wwdd6v2wjo It's written in layman's language, but seems to say they have found that there is a genetic link and that they have drugs already that might treat
Just spotted this on my BBC News notifications. BBC News - Major cause of inflammatory bowel disease found https://www.bbc.com/news/articles/c1wwdd6v2wjo It's written in layman's language, but seems to say they have found that there is a genetic link and that they have drugs already that might treat
Broseley
in
PMRGCAuk
8 days ago
Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!
Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until 9pm. This is a brilliant opportunity to learn about the charity and the many
Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until 9pm. This is a brilliant opportunity to learn about the charity and the many
michaellasmith
Administrator
in
LUPUS UK
8 days ago
Investigational MS Med Nearly Eliminates Disease Activity on MRI
NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high degree, new trial data suggested.
https://www.mdedge.com/neurology/article/269463/multiple-sclerosis/investigational-ms-med-nearly-eliminates-disease
NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high degree, new trial data suggested.
https://www.mdedge.com/neurology/article/269463/multiple-sclerosis/investigational-ms-med-nearly-eliminates-disease
BettysMom
in
My MSAA Community
9 days ago
Indapamide & Potassium
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
yewotc23
in
Thyroid UK
9 days ago
still anxious about pancreatic cancer
hey, so I've been told I have Gilbert syndrome as although my bloods have shown elevated bilirubin (23 u/mol and then 2nd blood test 32 u/mol) my liver function is fine, I have also had a clear ultrasound. have been having middle to upper back ache on and off for months and I'm now worried again that
hey, so I've been told I have Gilbert syndrome as although my bloods have shown elevated bilirubin (23 u/mol and then 2nd blood test 32 u/mol) my liver function is fine, I have also had a clear ultrasound. have been having middle to upper back ache on and off for months and I'm now worried again that
Megaaalee
in
British Liver Trust
9 days ago
self-inject intramuscular vitamin B12
Hi all,I often read these posts but not very often write in. I was diagnosed with PA in 2000 using the schillings test. I have been having IM injections every 3 months ever since. However since COVID I have been self injecting. My surgery does not really support that, so I just buy supplies from Germany
Hi all,I often read these posts but not very often write in. I was diagnosed with PA in 2000 using the schillings test. I have been having IM injections every 3 months ever since. However since COVID I have been self injecting. My surgery does not really support that, so I just buy supplies from Germany
Tonyworks
in
Pernicious Anaemia Society
10 days ago
B12 deficiency and night sweats query
Hi - I don't have a diagnosis but I hope you don't mind if I pick your expert brains 🙏 I (Female, 45) have fairly regular blood tests due to medication I take for inflammatory arthritis. My MCV has been a little bit high for years (up to 102). Early on doctors would question it and because of a family
Hi - I don't have a diagnosis but I hope you don't mind if I pick your expert brains 🙏 I (Female, 45) have fairly regular blood tests due to medication I take for inflammatory arthritis. My MCV has been a little bit high for years (up to 102). Early on doctors would question it and because of a family
rmros
in
Pernicious Anaemia Society
10 days ago
IVF - After a Miscarriage
Hi All I’ve had SLE since 2014, and I had a miscarriage in my first trimester in Jan 24. Since, I’ve been referred for IVF and in parallel I am trying to get a referral to a Lupus In Pregnancy clinic so both the fertility and lupus clinic that specialises in pregnancy can help build a plan for me.
Hi All I’ve had SLE since 2014, and I had a miscarriage in my first trimester in Jan 24. Since, I’ve been referred for IVF and in parallel I am trying to get a referral to a Lupus In Pregnancy clinic so both the fertility and lupus clinic that specialises in pregnancy can help build a plan for me.
Heal-
in
LUPUS UK
10 days ago
autoimmune left or right bias?
Adult Onset Stills Disease is categorised as autoimmune /auto inflammatory. Over the years I’ve developed several other AI conditions such as Interstitial Cystitis and Lichen Sclerous. I have fungal nail disease on my left foot, gout in left toe, finger warts on my left hand, over growth of soft gum
Adult Onset Stills Disease is categorised as autoimmune /auto inflammatory. Over the years I’ve developed several other AI conditions such as Interstitial Cystitis and Lichen Sclerous. I have fungal nail disease on my left foot, gout in left toe, finger warts on my left hand, over growth of soft gum
Stills
in
PMRGCAuk
10 days ago
My big discovery. Sjogren’s UCTD Fibro…
in my constant quest for understanding so I can help myself I have made a big discovery. About 5 years ago I was diagnosed with Sjogren’s and I understood to be Raynauds, and dry eyes, mouth and vagina. This never sat comfortably with me, it didn’t cover my symptoms. I’m still struggling a lot with
in my constant quest for understanding so I can help myself I have made a big discovery. About 5 years ago I was diagnosed with Sjogren’s and I understood to be Raynauds, and dry eyes, mouth and vagina. This never sat comfortably with me, it didn’t cover my symptoms. I’m still struggling a lot with
IsleofWight1
in
LUPUS UK
11 days ago
MCTD diagnosis, finally!
Hi everyone. If you've been following my posts, you probably know I've been very frustrated with the NHS. I decided to go to India and get all my tests done and see a doctor as well. I'm in the clear for Hashimoto's, Coeliac disease, RA and lupus. I have mixed connective tissue disease. The increasing
Hi everyone. If you've been following my posts, you probably know I've been very frustrated with the NHS. I decided to go to India and get all my tests done and see a doctor as well. I'm in the clear for Hashimoto's, Coeliac disease, RA and lupus. I have mixed connective tissue disease. The increasing
MauveMouse
in
Thyroid UK
11 days ago
JUNE NEWSLETTER
our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society https://pernicious-anaemia-society.org/member/ so you don't miss out! If you are a member and are not getting your newsletter make sure to check in Spam/Junk or check that we
our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society https://pernicious-anaemia-society.org/member/ so you don't miss out! If you are a member and are not getting your newsletter make sure to check in Spam/Junk or check that we
PAScomms
in
Pernicious Anaemia Society
11 days ago
1
...
49
50
51
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5650 results
British Liver Trust
4493 results
Advanced Prostate Cancer
4410 results
View top 10 communities
Sort by
Most Relevant
Newest