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it has been quite a while since I have been on this message board, life just happens as we all know with Lupus. Many changes have occurred from multifocal, pneumonia, aspergillus in my lung and tumor in my lung upper right lobe… however, it is benign right now and they’re just going to watch it. I
it has been quite a while since I have been on this message board, life just happens as we all know with Lupus. Many changes have occurred from multifocal, pneumonia, aspergillus in my lung and tumor in my lung upper right lobe… however, it is benign right now and they’re just going to watch it. I
SunflowerYiayia
in
LUPUS UK
3 months ago
Wish me luck.
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
punkster
in
Anxiety and Depression Support
6 months ago
Struggling with antibiotics on chemo
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Lyndy
in
My Ovacome
3 months ago
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Covid
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Belfastman
in
PMRGCAuk
6 months ago
When on a weekly dose of Pegasys is it ok to occasionally alter the day you inject?
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Na56
in
MPN Voice
3 months ago
MSA-C with ataxia rebound
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
rideabike
in
Multiple System Atrophy Trust
6 months ago
GNRH Injections and Fibroids
Dear all, I have had painful periods since the age of 12 and I am now 53 years old and they are getting worse. The pain each month is unbearable and I have to take a combination of paracetamol and ibuprofen daily to take the edge off the pain. I had a long period of reduced pain because I went
Dear all, I have had painful periods since the age of 12 and I am now 53 years old and they are getting worse. The pain each month is unbearable and I have to take a combination of paracetamol and ibuprofen daily to take the edge off the pain. I had a long period of reduced pain because I went
Melons70
in
Pelvic Pain Support Network
10 months ago
Help me! behcet syndrome with tuberculosis
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hulusi
in
Behçet's UK
3 months ago
Covid has just hit our Thanksgiving plans!
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
PJBinMI
in
SHARE Metastatic Breast Cancer
6 months ago
When to restart Biologics after Covid Infection
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Intheend
in
NRAS
6 months ago
Mouth Ulcers and Taste issue
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
BigH63
in
ICUsteps
6 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
3 months ago
Bile acid malabsorption
I got diagnosed with bam over a year ago taking colesevelam for it i take 1 or 2 a day but it has my bowel movements all over the place its all or nothing and usually in a formed mush and sticky i try to eat healthy but just wondering if any one else has bowel movements like this i have ibs aswell and
I got diagnosed with bam over a year ago taking colesevelam for it i take 1 or 2 a day but it has my bowel movements all over the place its all or nothing and usually in a formed mush and sticky i try to eat healthy but just wondering if any one else has bowel movements like this i have ibs aswell and
Netbet22
in
IBS Network
3 months ago
Covid antibodies
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
jbzm
in
NRAS
6 months ago
Mouthwash
I am on 320 of alvesco a day at present along with fostair mart taken with my trusty aero chamber. I was on 640 of alvesco, however for the first time I was starting to get some irritations from this, mild oral thrush, joint pain, weight gain and some odd eye issues. So my consultant said to drop
I am on 320 of alvesco a day at present along with fostair mart taken with my trusty aero chamber. I was on 640 of alvesco, however for the first time I was starting to get some irritations from this, mild oral thrush, joint pain, weight gain and some odd eye issues. So my consultant said to drop
Homely2
Administrator
in
Asthma Community Forum
3 months ago
Confused about AMH and letrozole/trigger and IVF
Hi, I have a history of early miscarriages. Under recurrent miscarriage clinic, I am told to take progesterone and aspirin from positive results, and clexane from 6 week scan. I've not had any medicine under previous pregnancies that led to miscarriages. I also have very low AMH. Experts have said usually
Hi, I have a history of early miscarriages. Under recurrent miscarriage clinic, I am told to take progesterone and aspirin from positive results, and clexane from 6 week scan. I've not had any medicine under previous pregnancies that led to miscarriages. I also have very low AMH. Experts have said usually
PenpalLdn
in
Fertility Network UK
3 months ago
Anybody left with servere virtigo after covid ?
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
Jillymo
in
Pernicious Anaemia Society
6 months ago
Sharp pains in head - lupus related or something else?
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Treetop33
in
LUPUS UK
6 months ago
Bloody Covid can sod off!
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Washo66
in
British Heart Foundation
6 months ago
Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
6 months ago
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