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Lymphedema & Knee bursitis
I have Inflammatory arthritis, Sjogren's and OA. I have been on Methotrexate and Imraldi since 2017, before that I was on Benepali. I have had a new hip in 2017 and I also suffered with my knees which despite many steroid injections they are no longer having any effect. I saw my rheumatologist
I have Inflammatory arthritis, Sjogren's and OA. I have been on Methotrexate and Imraldi since 2017, before that I was on Benepali. I have had a new hip in 2017 and I also suffered with my knees which despite many steroid injections they are no longer having any effect. I saw my rheumatologist
Bailybiscuit
in
NRAS
4 months ago
Hip Replacement while on treatment??
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
laurieq
in
CLL Support
4 months ago
What cold med with Zoloft
Can anyone give me advice on what cold meds they use while on Zoloft? I have sinusitis and am used to taking Sudafed but just read that it may cause seratonin syndrome with Zoloft. What cold meds can I take with Zoloft? Thank you.
Can anyone give me advice on what cold meds they use while on Zoloft? I have sinusitis and am used to taking Sudafed but just read that it may cause seratonin syndrome with Zoloft. What cold meds can I take with Zoloft? Thank you.
Ley97
in
Anxiety and Depression Support
6 months ago
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Tigger is bouncing around Winnie the Pooh, because he is happy his RLS is better
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
HipHop1972
in
Restless Legs Syndrome
2 days ago
Dr Glen Z brooks NYC
I met with Glen a couple of weeks ago , he is now 76 and no longer taking in new RLS patients It has become increasingly difficult for him to prescribe Buprenorphine the biggest problem is he cannot find doctors who will continue to prescribe for Buprenorphine when he is no longer working. Glen said
I met with Glen a couple of weeks ago , he is now 76 and no longer taking in new RLS patients It has become increasingly difficult for him to prescribe Buprenorphine the biggest problem is he cannot find doctors who will continue to prescribe for Buprenorphine when he is no longer working. Glen said
Shumbah
in
Restless Legs Syndrome
6 days ago
Had doctors appointment this morning sigh
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Elisse3
in
Restless Legs Syndrome
14 days ago
covid afibs???/
I had covid in September of 2023 and soon thereafter developed a fibs, which I have never had in my life! I am 69. My question is this: Has this happened to anyone else and did they eventually go away, or is it a permanent thing?
I had covid in September of 2023 and soon thereafter developed a fibs, which I have never had in my life! I am 69. My question is this: Has this happened to anyone else and did they eventually go away, or is it a permanent thing?
peachtreepiggy
in
Atrial Fibrillation Support
4 months ago
Mirapexin Oxycodone
Hi, I have just had an appointment with a neurologist at UCL neurological hospital in London Queens Sq. I need to come off Mirapexin for the second time and ha ve been managing the withdrawals myself with the help of TramadolI had set such store to this appointment but came away so disappointed. The
Hi, I have just had an appointment with a neurologist at UCL neurological hospital in London Queens Sq. I need to come off Mirapexin for the second time and ha ve been managing the withdrawals myself with the help of TramadolI had set such store to this appointment but came away so disappointed. The
keiralee
in
Restless Legs Syndrome
17 days ago
From Buprenorphine Patch to Tablet: A Memoir
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
RiversW
in
Restless Legs Syndrome
19 days ago
Mirena coil
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
Hidden
in
Endometriosis UK
6 months ago
Covid vaccine
I am going to put it out there . Did anyone get ill with encephalitis after taking the Covid vaccine? This has been something that has been playing in my mind for a while My mom was in later 60s in good health and active before having the vaccine.
I am going to put it out there . Did anyone get ill with encephalitis after taking the Covid vaccine? This has been something that has been playing in my mind for a while My mom was in later 60s in good health and active before having the vaccine.
GIL910
in
Encephalitis Society
4 months ago
horizant awful
Today was my first day taking horizant and probably my last. I cant lay down for more than a secon d. I am in such agony. tomorrow i will go back on mirapex if my legs dont get better. since it is a long weekend o dr. is not available I am walking and crying all night long. I think I need a new
Today was my first day taking horizant and probably my last. I cant lay down for more than a secon d. I am in such agony. tomorrow i will go back on mirapex if my legs dont get better. since it is a long weekend o dr. is not available I am walking and crying all night long. I think I need a new
lorri214
in
Restless Legs Syndrome
23 days ago
My PMR is basically gone, but now I got shingles on my right side of face.
All the drugs I took, take lowers my immune system. No prednisone anymore, but Methotrexate lowers immune response. About 4 days ago, got shingles on my face and forehead. It is super pain, bad pain. Before the shingles, I felt like my eyes were infected, eyes and skin all red and sore. Pain not quite
All the drugs I took, take lowers my immune system. No prednisone anymore, but Methotrexate lowers immune response. About 4 days ago, got shingles on my face and forehead. It is super pain, bad pain. Before the shingles, I felt like my eyes were infected, eyes and skin all red and sore. Pain not quite
sdowney717
in
PMRGCAuk
6 months ago
bulge at the front of vagina / not prolapse
Hey so during ovulation I have crazy pain, and a sensation of buzzing / vibrating that is so strong. In march the vibrations were worse than ever then one morning I woke up and there was a feeling of pressure in my vagina. I looked and it looked like there was something partially blocking the hole.
Hey so during ovulation I have crazy pain, and a sensation of buzzing / vibrating that is so strong. In march the vibrations were worse than ever then one morning I woke up and there was a feeling of pressure in my vagina. I looked and it looked like there was something partially blocking the hole.
RGEB
in
Women's Health
24 days ago
Paxlovid for “mild” COVID?
hello all. Just wondering what your experiences have been regarding taking Paxlovid. I realize you can’t advise but I would love to hear from fellow immune suppressed types like me. I have taken it before but when I had it last year I felt pretty bad and taking the Paxlovid was a no brainer. This time
hello all. Just wondering what your experiences have been regarding taking Paxlovid. I realize you can’t advise but I would love to hear from fellow immune suppressed types like me. I have taken it before but when I had it last year I felt pretty bad and taking the Paxlovid was a no brainer. This time
Bon1
in
NRAS
4 months ago
Back to square one
Hi, I first started having coughing problems back in November 2022 when I caught what I thought was just a bad cold or covid, I was getting phlegm stuck in my airways which was tough to get out when coughing, and sometimes I struggled to breath. Sometimes to the point where I actually cried because
Hi, I first started having coughing problems back in November 2022 when I caught what I thought was just a bad cold or covid, I was getting phlegm stuck in my airways which was tough to get out when coughing, and sometimes I struggled to breath. Sometimes to the point where I actually cried because
amygx25
in
Asthma Community Forum
4 months ago
11 months on.
Hiya,I was in a coma in jan-march for mixed overdose, CLABSI, cellulitis, gangrene to left thigh, sepsis, multi organ failure, end stage renal failure/on diyalsis, ventilation associated pneumonia and the list goes on. I came out of the hospital on 5th may with a walking frame and still 0 ability to
Hiya,I was in a coma in jan-march for mixed overdose, CLABSI, cellulitis, gangrene to left thigh, sepsis, multi organ failure, end stage renal failure/on diyalsis, ventilation associated pneumonia and the list goes on. I came out of the hospital on 5th may with a walking frame and still 0 ability to
Jjones210519
in
ICUsteps
6 months ago
COVID-19
Been battling Covid for 17 days. I am negative but have a lot of physical issues achy big time. Always exhausted. No motivation. Starting to take a toll on me mentally. Doctor says that sometimes it takes weeks or months to get rid of everything. I hate feeling like this
Been battling Covid for 17 days. I am negative but have a lot of physical issues achy big time. Always exhausted. No motivation. Starting to take a toll on me mentally. Doctor says that sometimes it takes weeks or months to get rid of everything. I hate feeling like this
Trainchaser
in
Anxiety and Depression Support
4 months ago
Sadly Not Just Thyroid Patients
I've been following the infected blood scandal with interest, basically thousands of patients in the 70's, 80's and early 90's were given blood transfusions/ products that were cheaply imported, often from USA, and not screened for Hep C. This was to save the NHS money. Unfortunately many people became
I've been following the infected blood scandal with interest, basically thousands of patients in the 70's, 80's and early 90's were given blood transfusions/ products that were cheaply imported, often from USA, and not screened for Hep C. This was to save the NHS money. Unfortunately many people became
Sparklingsunshine
in
Thyroid UK
1 month ago
COVID & sulfasalazine?
After all these years hubby has passed COVID to me! Contacted GP, they have referred me to respiratory@home still waiting for them to call. Question is do I keep taking sulfasalazine.? I've called my Rheumy helpline but they've not got back to me and I've looked on here but can't find anything saying
After all these years hubby has passed COVID to me! Contacted GP, they have referred me to respiratory@home still waiting for them to call. Question is do I keep taking sulfasalazine.? I've called my Rheumy helpline but they've not got back to me and I've looked on here but can't find anything saying
Haz58
in
NRAS
4 months ago
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