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Rickyfish56 "Introduction"
Reviewed my "Bio" and it said I needed to "introduce" myself? Mostly just read postings and try to gather information. But, here is my " introduction", family history of Prostate cancer, Dad diagnosed at 59, removed prostate old fashion slice and dice, never regained any sexual function, but alive today
Reviewed my "Bio" and it said I needed to "introduce" myself? Mostly just read postings and try to gather information. But, here is my " introduction", family history of Prostate cancer, Dad diagnosed at 59, removed prostate old fashion slice and dice, never regained any sexual function, but alive today
rickyfish56
in
Advanced Prostate Cancer
5 months ago
Diarrhea after 8th IMRT
Hello, We were told one of the side effects of radiation could be diarrhea. My husband has felt the effects after his last 2 treatments. I was reading that the use of strong probiotics like VSL #3 helped patients. Any thoughts on this issue? Did it go away after the first two weeks or did it get worse
Hello, We were told one of the side effects of radiation could be diarrhea. My husband has felt the effects after his last 2 treatments. I was reading that the use of strong probiotics like VSL #3 helped patients. Any thoughts on this issue? Did it go away after the first two weeks or did it get worse
Oatmeal2
in
Advanced Prostate Cancer
6 months ago
What Treatment - Or No Treatment Advice?
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
Nordman
in
Advanced Prostate Cancer
6 months ago
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SpaceOAR Gel - Extracapsular Extension
Hello Everyone, Just wanted to see if anyone had similar situation and how you dealt with it. I have advanced cancer with Extracapsular Extension. I decided to do a radiation treatments: IMRT and HDR Brachy. My Radiation Oncologist says that since I have
extracapsular extension
, placing spacer
Hello Everyone, Just wanted to see if anyone had similar situation and how you dealt with it. I have advanced cancer with Extracapsular Extension. I decided to do a radiation treatments: IMRT and HDR Brachy. My Radiation Oncologist says that since I have
extracapsular extension
, placing spacer
FightCancer101
in
Advanced Prostate Cancer
7 months ago
RT without HT
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
Nordman
in
Prostate Cancer Network
7 months ago
UCLA RO says that since it's been only 4 mo since stop of 4 ms RT & 4ms orgo and my T is 80 - more t than baseline (286) may trigger cancer
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
JWS13
in
Advanced Prostate Cancer
7 months ago
5 months after stopping the 4 mos of taking orgovyx still very symptomatic of low t (miserable)..told t may never recover (79),take trt? ?
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
JWS13
in
Advanced Prostate Cancer
7 months ago
Update: PSA after IMRT
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
Smarks42
in
Prostate Cancer Network
7 months ago
My son’s Testosterone results:
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Cactus297
in
Advanced Prostate Cancer
7 months ago
Does pee urgency get worse after radiation?
I had IMRT 60 Gy circa August 2022. Since then sometimes it is very hard to hold a pee back. I'm concerned it might be getting worse. This is probably going to get a lot of responses -- please bring them on!
I had IMRT 60 Gy circa August 2022. Since then sometimes it is very hard to hold a pee back. I'm concerned it might be getting worse. This is probably going to get a lot of responses -- please bring them on!
Derf4223
in
Advanced Prostate Cancer
7 months ago
abiraterone first line use in high risk in U.K. debate after stampede research results
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
SimMartin
in
Advanced Prostate Cancer
7 months ago
My son’s PSA rose a bit today.
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
Cactus297
in
Advanced Prostate Cancer
8 months ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer And Gay Men
8 months ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer Under 60
8 months ago
SBRT alternative
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
MauiJef
in
Prostate Cancer Network
8 months ago
[b]HOW LONG TO GET YOUR TESTOSTERONE BACK TO NORMAL (4-500) AFTER 4 MOS Treatment WITH ORGOVYX. It is now 5 months post treatment with Orgovyx.[/b]
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
JWS13
in
Advanced Prostate Cancer
8 months ago
Scary PSA results
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
7OaksTom
in
Advanced Prostate Cancer
23 hours ago
Hypogonadal - 4 months Orgovyxx- 1 year later- No recovery to baseline 286 only at 98- No libido- TRT?
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
JWS13
in
Advanced Prostate Cancer
20 days ago
If PSA is Suppressed by Doublet ADT, Will Salvage IMRT Cause a PSA Rise?
Hello everyone, My husband is nearing completion of his extended pelvic salvage IMRT with boost to retrocaval lymph nodes. His radiation oncologist said it may take several months before the psa calms down, so he would like to see him in July. My question is that, since he is already undetectable due
Hello everyone, My husband is nearing completion of his extended pelvic salvage IMRT with boost to retrocaval lymph nodes. His radiation oncologist said it may take several months before the psa calms down, so he would like to see him in July. My question is that, since he is already undetectable due
103532
in
Advanced Prostate Cancer
1 month ago
What is Your Opinion on Docetaxel Added to Doublet Therapy for Early Oligorecurrent Metaststic M1a Prostate Cancer?
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
103532
in
Advanced Prostate Cancer
2 months ago
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