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Weird optical lights/constant bad headache
Hi everyone ❤️ OK for a while now I've been having bad headaches just thought it was apart of everything I've been going through... Struggling with thyroid medication, and being diagnosed with primary hyperparathyroidism. About 3 weeks ago I started seeing weird optical lights and strange light disturbances
Hi everyone ❤️ OK for a while now I've been having bad headaches just thought it was apart of everything I've been going through... Struggling with thyroid medication, and being diagnosed with primary hyperparathyroidism. About 3 weeks ago I started seeing weird optical lights and strange light disturbances
birkie
in
Thyroid UK
8 months ago
Dual Action Hormone Therapy Targeting Two Parts of Androgen Receptor for mCRPC
Phase I/II trial of masofaniten combined with enzalutamide, a novel hormonal therapy for mCRPC. Masofaniten, a first-in-class N-terminal ligand antagonist for the androgen receptor, shows promise in overcoming resistance to current hormonal therapies. Hopefully a new weapon for us!
Phase I/II trial of masofaniten combined with enzalutamide, a novel hormonal therapy for mCRPC. Masofaniten, a first-in-class N-terminal ligand antagonist for the androgen receptor, shows promise in overcoming resistance to current hormonal therapies. Hopefully a new weapon for us!
Maxone73
in
Advanced Prostate Cancer
6 months ago
Anyone tried cabazitaxel (Jevtana) monotherapy?
If you've tried cabazitaxel [u]
without
[/u] ADT, I would appreciate hearing about your side effects and effectiveness. I'm currently in excellent shape at age 72. Previously I tolerated docetaxel (which along with radiation of abdominal lymph nodes helped me return to undetectable PSA for 4+ years
If you've tried cabazitaxel [u]
without
[/u] ADT, I would appreciate hearing about your side effects and effectiveness. I'm currently in excellent shape at age 72. Previously I tolerated docetaxel (which along with radiation of abdominal lymph nodes helped me return to undetectable PSA for 4+ years
ron_bucher
in
Advanced Prostate Cancer
6 months ago
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I have questions about Tamoxifen, aka Hormonal Therapy
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
gta03
in
SHARE Ovarian Cancer Support
6 months ago
Ovaries or no Ovaries
I'm 46 next week and have recently been diagnosed with a large fibroid approx 15cm x 10cm and also an ovarian cyst. Consultant has recommended an hysterectomy as I'm also having severe bleeding during my period and am very anaemic. Hysterectomy is also being recommended as my mother had breast cancer
I'm 46 next week and have recently been diagnosed with a large fibroid approx 15cm x 10cm and also an ovarian cyst. Consultant has recommended an hysterectomy as I'm also having severe bleeding during my period and am very anaemic. Hysterectomy is also being recommended as my mother had breast cancer
Pizzame
in
Pelvic Pain Support Network
6 months ago
Creatine?
I have a new personal trainer who I am using to help build and maintain muscle mass. I am not yet on ADT (TBD), but I want to have good habits for strength training if indeed I end up going that way. He mentioned recently that he might recommend creatine to me. I did some brief research and it seems
I have a new personal trainer who I am using to help build and maintain muscle mass. I am not yet on ADT (TBD), but I want to have good habits for strength training if indeed I end up going that way. He mentioned recently that he might recommend creatine to me. I did some brief research and it seems
MakeItRainbows
in
Advanced Prostate Cancer
6 months ago
Newly diagnosed
Hiya all I'm 46 and just been diagnosed with endometriosis. I've always had bad periods and have IBS so I have always put everything down to that. However in April this year I noticed how much worse it had become and went to see my GP.... I had scan in September where they could see they endometriosis
Hiya all I'm 46 and just been diagnosed with endometriosis. I've always had bad periods and have IBS so I have always put everything down to that. However in April this year I noticed how much worse it had become and went to see my GP.... I had scan in September where they could see they endometriosis
Sunshinecab
in
Endometriosis UK
6 months ago
Studies help explain why some prostate cancers become resistant to hormone therapy
https://www.sciencedaily.com/releases/2023/12/231204135037.htm
https://www.sciencedaily.com/releases/2023/12/231204135037.htm
zeitgeistxx
in
Advanced Prostate Cancer
6 months ago
stopping HRT patches
hello, I hope this is not an insensitive question. I’m waiting for a date for a colonoscopy and a gyne referral following 10 months of [i]malaise [/i]with cancer flag bloods in February and ongoing symptoms of bloating, spotting, RHS side pelvic sharp stabbing pain, period like pain (61) and back ache
hello, I hope this is not an insensitive question. I’m waiting for a date for a colonoscopy and a gyne referral following 10 months of [i]malaise [/i]with cancer flag bloods in February and ongoing symptoms of bloating, spotting, RHS side pelvic sharp stabbing pain, period like pain (61) and back ache
Stills
in
My Ovacome
6 months ago
Stuck. Help Plz.
Hi, thanks for all the info here. I’ve been reading for hours, think I’ve tried to absorb too much too quickly as my brain feels like it’s going to pop! I’ve been feeling nauseous with low pain headaches for a month so had a GP apt last week. Bloods were done and all appears normal apart from thyroid
Hi, thanks for all the info here. I’ve been reading for hours, think I’ve tried to absorb too much too quickly as my brain feels like it’s going to pop! I’ve been feeling nauseous with low pain headaches for a month so had a GP apt last week. Bloods were done and all appears normal apart from thyroid
MandyJR1
in
Thyroid UK
6 months ago
Working with Stage IV
First time posting (be gentle) Anybody else still at work with the disease. I’ve contributed to a pension for 24 years, and with being diagnosed, am I being foolish staying at work. Note-minimum retirement is 58 at my work. Also, did read this right, ADT only gives about 10 mos. to 1 year increase
First time posting (be gentle) Anybody else still at work with the disease. I’ve contributed to a pension for 24 years, and with being diagnosed, am I being foolish staying at work. Note-minimum retirement is 58 at my work. Also, did read this right, ADT only gives about 10 mos. to 1 year increase
BigJ32
in
Advanced Prostate Cancer
5 months ago
Advice about recent NDT thyroid blood tests and high SHBG
Hi there! Is there any connection between high SHBG and taking NDT thyroid medication? I've been feeling better than ever on my Erfa thyroid medication and I don't feel over medicated at all, but I had high SHBG. My estradiol also seems high. I've read that one reason for high SHBG can be hyperthyroidism
Hi there! Is there any connection between high SHBG and taking NDT thyroid medication? I've been feeling better than ever on my Erfa thyroid medication and I don't feel over medicated at all, but I had high SHBG. My estradiol also seems high. I've read that one reason for high SHBG can be hyperthyroidism
RatherBeSleeping
in
Thyroid UK
6 months ago
Break from ADT or not?
Hi everyone, my Dad was recommended 18-24 months of Lupron/Zytiga/Prednisone after Radiation Therapy. We reached that time and MO said that is up to my Dad if he wants to continue the treatment or not. Lately my dad had high blood pressure over 200 and he ended up in ER, but now the blood pressure is
Hi everyone, my Dad was recommended 18-24 months of Lupron/Zytiga/Prednisone after Radiation Therapy. We reached that time and MO said that is up to my Dad if he wants to continue the treatment or not. Lately my dad had high blood pressure over 200 and he ended up in ER, but now the blood pressure is
Simonapo
in
Advanced Prostate Cancer
6 months ago
Blood Pressure experience and views sought
Hi allI have been feeling ropey,v lethargic and a bit slow for a few months now, despite increase in Levothyroxine. I had attributed this to constant blood loss(months) following HRT which didn't suit me,however this stopped 2 months ago. Previous blood tests showed haemoglobin on the low side so have
Hi allI have been feeling ropey,v lethargic and a bit slow for a few months now, despite increase in Levothyroxine. I had attributed this to constant blood loss(months) following HRT which didn't suit me,however this stopped 2 months ago. Previous blood tests showed haemoglobin on the low side so have
Pebble23
in
Thyroid UK
6 months ago
Barrigel is now preferred over "SpaceOAR" gel?
Consulted by video with the doctor who is supposed to install my SpaceOAR in preparation for my IMRT. His first words were "we don't use SpaceOAR gel anymore. We use Barrigel." He explains it has fewer side effects but the same radiation absorption characteristics. Here is what "UroToday" says:
Consulted by video with the doctor who is supposed to install my SpaceOAR in preparation for my IMRT. His first words were "we don't use SpaceOAR gel anymore. We use Barrigel." He explains it has fewer side effects but the same radiation absorption characteristics. Here is what "UroToday" says:
mababa
in
Advanced Prostate Cancer
3 months ago
ADT therapy and breast enlargement
Hello, any feedback on outlook for breast enlargement with ADT therapy ..currently taking Lupron and Bicalutmide? Diagnosed in Japan this June , 56, Gleason 7 , 4+3, PSA18, most likely no metastasis..was fairly fit…165, 5’10 but gaining weight and some man boobs. I generally was working out 4 days a
Hello, any feedback on outlook for breast enlargement with ADT therapy ..currently taking Lupron and Bicalutmide? Diagnosed in Japan this June , 56, Gleason 7 , 4+3, PSA18, most likely no metastasis..was fairly fit…165, 5’10 but gaining weight and some man boobs. I generally was working out 4 days a
Yokohama2023
in
Advanced Prostate Cancer
6 months ago
Stopped taking Orgovyx 7 months ago (T recovery only 80 baseline was 286 ) do I start TRT? am I risking Reoccurrence?
I stopped RT (IMRT 20 tx ) on 2/28/23. I stopped orgovyx (4 months) on 5/31/23 . (It has now been 6 months since stopping orgovyx. My T has recovered to 80. My baseline is 286.(which was fine) Advised when given choice of adt -4 months of orgovyxx- then 4 months for recovery of T- that didn't happen
I stopped RT (IMRT 20 tx ) on 2/28/23. I stopped orgovyx (4 months) on 5/31/23 . (It has now been 6 months since stopping orgovyx. My T has recovered to 80. My baseline is 286.(which was fine) Advised when given choice of adt -4 months of orgovyxx- then 4 months for recovery of T- that didn't happen
JWS13
in
Advanced Prostate Cancer
6 months ago
HRT and migraines
I'd be interested to know if there are women out there who can definitely say that taking HRT has helped them with migraines. I know that the research says that there is no evidence that it helps, if anything, probably makes it worse. Or were you prescribed some medication for menopause and it actually
I'd be interested to know if there are women out there who can definitely say that taking HRT has helped them with migraines. I know that the research says that there is no evidence that it helps, if anything, probably makes it worse. Or were you prescribed some medication for menopause and it actually
Chleo11
in
National Migraine Centre
6 months ago
Restless legs.
I have severe restless legs, as previously discussed within this forum. Over the past few years intercourse has become quite painful - middle age woman syndrome. Recently my GP started me on 10 milligrams estradiol vagifem pessaries. I understand that hrt has a significant impact on rls. My rls was
I have severe restless legs, as previously discussed within this forum. Over the past few years intercourse has become quite painful - middle age woman syndrome. Recently my GP started me on 10 milligrams estradiol vagifem pessaries. I understand that hrt has a significant impact on rls. My rls was
Trish8433
in
Restless Legs Syndrome
6 months ago
Recurrence after prostatectomy
I have a relative who had surgery 6.5 years ago. Pathology was very favorable, 3+3+tertiary 4 i.e. less than 5%, no pos margins, no ECE, no nodes. He remained undetectable for 6.5 years, but now is .07 verified. What would SOC be for him? Prostate bed or wide radiation, length of ADT, just Lupron or
I have a relative who had surgery 6.5 years ago. Pathology was very favorable, 3+3+tertiary 4 i.e. less than 5%, no pos margins, no ECE, no nodes. He remained undetectable for 6.5 years, but now is .07 verified. What would SOC be for him? Prostate bed or wide radiation, length of ADT, just Lupron or
Fred312
in
Advanced Prostate Cancer
6 months ago
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