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New patient-driven group for EGFR patients with resistance to targeted treatment
In case anyone has been wondering what I've been doing lately, I've been working on this project with 3 other EGFR+ lung cancer patients. A new patient-driven group is forming for lung cancer patients with EGFR mutations who have developed resistance to at least one EGFR targeted treatment drug. This
In case anyone has been wondering what I've been doing lately, I've been working on this project with 3 other EGFR+ lung cancer patients. A new patient-driven group is forming for lung cancer patients with EGFR mutations who have developed resistance to at least one EGFR targeted treatment drug. This
scifiknitter
Blogger
in
Lung Cancer Support
7 years ago
COPD OXYGEN
Hi my name is Linda, have COPD awaiting double lung transplant, just been put on oxygen 3Ltr 15 hrs, my 4yr old granddaughter stays once a week, can she still sleep with me in my bed, as I have oxygen through the night. Thanks for any replies :)
Hi my name is Linda, have COPD awaiting double lung transplant, just been put on oxygen 3Ltr 15 hrs, my 4yr old granddaughter stays once a week, can she still sleep with me in my bed, as I have oxygen through the night. Thanks for any replies :)
xxtango14459xx
in
Lung Conditions Community Forum
7 years ago
stage 4 mutations question
Hello. My grandmother (88) was diagnosed with stage 4 lung cancer 10 days ago. I am trying to help her and my parents make decisions. She has a tumor in her right lung and the doctor says that cancer cells are present in the fluid in her lung (which makes the stage 4). No other cancer is present
Hello. My grandmother (88) was diagnosed with stage 4 lung cancer 10 days ago. I am trying to help her and my parents make decisions. She has a tumor in her right lung and the doctor says that cancer cells are present in the fluid in her lung (which makes the stage 4). No other cancer is present
christine6
in
Lung Cancer Support
7 years ago
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Treatment dilemma with stage IV squamous cell
My girlfriend has stage IV squamous cell carcinoma and has been offered pembrolizumab which if successful may give her some extra months. However she has also been told the side effects can be very nasty, and some people have died from the treatment. She already has bowel diseases and a weak heart so
My girlfriend has stage IV squamous cell carcinoma and has been offered pembrolizumab which if successful may give her some extra months. However she has also been told the side effects can be very nasty, and some people have died from the treatment. She already has bowel diseases and a weak heart so
tonyp62
in
The Roy Castle Lung Cancer Foundation
7 years ago
Mets to ribs and spine confirmed.
Hi all I spoke to my mums CNS today and he confirmed that the uptake on the PET scan indicates cancerous deposits on 2 of my mums ribs and also the base of her spine. We don't know for sure that it is from the lung cancer or previous breast cancer but the specialists are going with it is more likely
Hi all I spoke to my mums CNS today and he confirmed that the uptake on the PET scan indicates cancerous deposits on 2 of my mums ribs and also the base of her spine. We don't know for sure that it is from the lung cancer or previous breast cancer but the specialists are going with it is more likely
MissyD1
in
Lung Cancer Support
7 years ago
Mets to ribs and spine confirmed.
Hi all I spoke to my mums CNS today and he confirmed that the uptake on the PET scan indicates cancerous deposits on 2 of my mums ribs and also the base of her spine. We don't know for sure that it is from the lung cancer or previous breast cancer but the specialists are going with it is more likely
Hi all I spoke to my mums CNS today and he confirmed that the uptake on the PET scan indicates cancerous deposits on 2 of my mums ribs and also the base of her spine. We don't know for sure that it is from the lung cancer or previous breast cancer but the specialists are going with it is more likely
MissyD1
in
The Roy Castle Lung Cancer Foundation
7 years ago
Update - my Foundation One report is in. 😯
Friends, My last scan at the end of June made it official: no new spots, but everything is growing. I had already had a biopsy with a removal of a lymph node by that time so that we could get a comprehensive genomic analysis of where I'm at right now. The past month has been an exercise in patience as
Friends, My last scan at the end of June made it official: no new spots, but everything is growing. I had already had a biopsy with a removal of a lymph node by that time so that we could get a comprehensive genomic analysis of where I'm at right now. The past month has been an exercise in patience as
scifiknitter
Blogger
in
Lung Cancer Support
7 years ago
Cat scan report after one year of lung lobectomy surgery
Greetings and blessings to this wonderful community. My report was slightly indeterminate, which, has me feeling edgy. It states numerous new bilateral tiny subsolid lung nodules might be infection or inflammatory, but neoplama cannot be excluded. Oncologist didn't seem to be worried and recommended
Greetings and blessings to this wonderful community. My report was slightly indeterminate, which, has me feeling edgy. It states numerous new bilateral tiny subsolid lung nodules might be infection or inflammatory, but neoplama cannot be excluded. Oncologist didn't seem to be worried and recommended
Faith17
in
Lung Cancer Support
7 years ago
CT scan Saturday...very frightened
Hi...I posted previously about a small lung opacity being picked up by x-ray. I have got my appointment through today for my ct scan...its on Saturday. I'm pleased it's so soon but have no idea what to expect, and am terrified of the outcome. There's part of me thinking this time next week my anxiety
Hi...I posted previously about a small lung opacity being picked up by x-ray. I have got my appointment through today for my ct scan...its on Saturday. I'm pleased it's so soon but have no idea what to expect, and am terrified of the outcome. There's part of me thinking this time next week my anxiety
evizza
in
Lung Conditions Community Forum
7 years ago
Opdivo vs katruda?
My husband has stage 4 nsc lung cancer. Diagnosed in 2011. He first had proton radiation therapy but mass was behind his heart so they didn't get it all. He had 2 Opdivo last year but got bilateral pneumonia and blood clots in his lung. He survived but had a hard time of it. Pet showed reduction because
My husband has stage 4 nsc lung cancer. Diagnosed in 2011. He first had proton radiation therapy but mass was behind his heart so they didn't get it all. He had 2 Opdivo last year but got bilateral pneumonia and blood clots in his lung. He survived but had a hard time of it. Pet showed reduction because
GMC1
in
Lung Cancer Support
7 years ago
Lung transplant register
Well I went to Wythenshawe hospital last week to see a transplant consultant, my next step is my 3 day assessment for all the test on my other organs and then fingers crossed I may be placed on the register. Small Steps but feeling positive.
Well I went to Wythenshawe hospital last week to see a transplant consultant, my next step is my 3 day assessment for all the test on my other organs and then fingers crossed I may be placed on the register. Small Steps but feeling positive.
Joseph260268
in
Lung Conditions Community Forum
7 years ago
Anyone had these symptoms
For over a year now I've had something when I lay on back or right side it feels like after a few minutes of laying on back when I take deep breath it's Luke my
lung
has been
collapsed
. And I can feel it getting the air back in it. It's weird.
For over a year now I've had something when I lay on back or right side it feels like after a few minutes of laying on back when I take deep breath it's Luke my
lung
has been
collapsed
. And I can feel it getting the air back in it. It's weird.
Hunterchase
in
Lung Conditions Community Forum
7 years ago
How to identify the correct symptoms of lung cancer?
A cancer that begins in the lungs and most often occurs in people who have a habit of smoking but it is can be caused to passive smokers too. Here are the symptoms to identify lung cancer: 1.A cough that does not go away or gets worse 2.Coughing up blood or rust-colored sputum (spit or phlegm) 3.
A cancer that begins in the lungs and most often occurs in people who have a habit of smoking but it is can be caused to passive smokers too. Here are the symptoms to identify lung cancer: 1.A cough that does not go away or gets worse 2.Coughing up blood or rust-colored sputum (spit or phlegm) 3.
LindaMa
in
The Roy Castle Lung Cancer Foundation
7 years ago
just found out i have lung cancer
Hi this is my first post , found out i have lung cancer 3 days ago. I went to my DR,late April for joint pain . She arranged for bloods and 2 xrays 1 for my hands and the other for chest i asked her why chest ?you have clubbing nails and this is a sign of lung problems !! never heard of this and
Hi this is my first post , found out i have lung cancer 3 days ago. I went to my DR,late April for joint pain . She arranged for bloods and 2 xrays 1 for my hands and the other for chest i asked her why chest ?you have clubbing nails and this is a sign of lung problems !! never heard of this and
hollyboo
in
Lung Conditions Community Forum
7 years ago
NSCLC EDFR Migration Stage 4 LC at 37.
Hi guys. I'm Adam, I was diagnosed last April at the age of 37 with Stage 4 Lung Cancer which had spread to my spine. It was caught on an X-ray of my throat completely unrelated to the cancer. As a lifetime non-smoker it was a complete shock (and still is). Turns out it was due to DNA mutation). Ive
Hi guys. I'm Adam, I was diagnosed last April at the age of 37 with Stage 4 Lung Cancer which had spread to my spine. It was caught on an X-ray of my throat completely unrelated to the cancer. As a lifetime non-smoker it was a complete shock (and still is). Turns out it was due to DNA mutation). Ive
AdamLaver
in
The Roy Castle Lung Cancer Foundation
7 years ago
PIP payments after a double lung transplant
I wonder if anyone from the UK could answer this questions. If you are receiving PIP payment do you have to inform them before your operation or after? Once you have had your operation will your PIP payment be stopped? All responses would be welcome Kind regards Joe
I wonder if anyone from the UK could answer this questions. If you are receiving PIP payment do you have to inform them before your operation or after? Once you have had your operation will your PIP payment be stopped? All responses would be welcome Kind regards Joe
Joseph260268
in
Lung Conditions Community Forum
7 years ago
Collapsed Lung
I have been diagnosed with cancer of the lymphnode in my chest. I have had no chemo or radiation treatment. I have been on steroid tablets and have subsequently developed water retention in chest and ankles. My SATS levels are between 88% & 90% without oxygen. I have had a drain in my chest to drain
I have been diagnosed with cancer of the lymphnode in my chest. I have had no chemo or radiation treatment. I have been on steroid tablets and have subsequently developed water retention in chest and ankles. My SATS levels are between 88% & 90% without oxygen. I have had a drain in my chest to drain
Labtec
in
Lung Conditions Community Forum
7 years ago
Newbie here
62 years old, PCD with SI and polysplenia. Have a 66yo sister PCD/SI, too. Normal sister and brother as well. On oxygen 24/7, currently living at sea level, but am about to move in next couple of months; we'll see if I can tolerate 1800 feet above sea level or not. But I need a dryer climate, now
62 years old, PCD with SI and polysplenia. Have a 66yo sister PCD/SI, too. Normal sister and brother as well. On oxygen 24/7, currently living at sea level, but am about to move in next couple of months; we'll see if I can tolerate 1800 feet above sea level or not. But I need a dryer climate, now
shannielars
in
PCD Family Support Group (UK)
7 years ago
SCLC
Hi folks I wondered if any of you guys had had experience with Small cell lung cancer and confusing diagnosis. In terms of limited or extensive. When I asked they said stage 3 but not cureable and although it's limited that it's borderline limited? This is a family member and not myself. Treatment is
Hi folks I wondered if any of you guys had had experience with Small cell lung cancer and confusing diagnosis. In terms of limited or extensive. When I asked they said stage 3 but not cureable and although it's limited that it's borderline limited? This is a family member and not myself. Treatment is
Joanne1st
in
The Roy Castle Lung Cancer Foundation
7 years ago
BBC Breakfast.
Excellent piece on Hospices on BBC breakfast program @ 8.20am this morning. Watch on iPlayer if you missed it. Full marks to BBC for highlighting the work hospices do for COPD suffers approaching end of life.
Excellent piece on Hospices on BBC breakfast program @ 8.20am this morning. Watch on iPlayer if you missed it. Full marks to BBC for highlighting the work hospices do for COPD suffers approaching end of life.
Hidden
in
Lung Conditions Community Forum
7 years ago
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