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Farewell to our dear friend Anita
I’ve been sitting here staring at the blinking cursor and I’ve no idea for how long. Words don’t usually fail me but this weeks loss is devastating. You knew her here as Anita Figueras or SciFiKnitter. She was a blogger on this board when it was managed by Free to Breathe. If you have EGFR+ adenocarcinoma
I’ve been sitting here staring at the blinking cursor and I’ve no idea for how long. Words don’t usually fail me but this weeks loss is devastating. You knew her here as Anita Figueras or SciFiKnitter. She was a blogger on this board when it was managed by Free to Breathe. If you have EGFR+ adenocarcinoma
Denzie
Volunteer
in
Lung Cancer Support
5 years ago
Relapse 😔
I didn’t want to write this but yes, I relapsed.. it was a combination of drink and sorrow that led me to light up. My dog, my friend for over 15 years, died. I had him euthanized and that made it even harder. I have quit again - yesterday was completely smoke-free. I guess I smoked off and on for almost
I didn’t want to write this but yes, I relapsed.. it was a combination of drink and sorrow that led me to light up. My dog, my friend for over 15 years, died. I had him euthanized and that made it even harder. I have quit again - yesterday was completely smoke-free. I guess I smoked off and on for almost
ccurn
13 MONTHS WINNER
in
Quit Support
5 years ago
Who I am
I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.
I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.
orlanw
in
Lung Conditions Community Forum
5 years ago
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LDH markers
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
Goingcuckoo
in
Lung Cancer Support
5 years ago
KRAS mutation
What does the KRAS mean to a lung cancer patient? Is this really a bad mutation? Do you die sooner?
What does the KRAS mean to a lung cancer patient? Is this really a bad mutation? Do you die sooner?
Lovey1000
in
Lung Cancer Support
5 years ago
Recurrence generic testing
I was wondering why after right middle lung lobectomy for early stage adenocarcinoma they did not do genetic testing? Seems it would be better to know what paths to take if it recurs. Wouldn’t it be better to know before and not have to wait for these results then? Should I feel short changed?
I was wondering why after right middle lung lobectomy for early stage adenocarcinoma they did not do genetic testing? Seems it would be better to know what paths to take if it recurs. Wouldn’t it be better to know before and not have to wait for these results then? Should I feel short changed?
Metafran
in
Lung Cancer Support
5 years ago
It’s Official BURNT TOAST If WOMAN LADY LADIEs Is Cooking Your Beanzs
Anyway It’s all very complicated but rember when that talked about cooking meat 🍖 in beer 🍺 to reduce risk NOT sure that works with bread🍞 Talking about a mess I had lung flare up copd exacerbation AND it coincided with me burning my toast Toast was like glass ANYWAY after my fix felt ok 👌 So
Anyway It’s all very complicated but rember when that talked about cooking meat 🍖 in beer 🍺 to reduce risk NOT sure that works with bread🍞 Talking about a mess I had lung flare up copd exacerbation AND it coincided with me burning my toast Toast was like glass ANYWAY after my fix felt ok 👌 So
Hidden
in
Lung Conditions Community Forum
5 years ago
Maintenance treatment
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Ina3
in
The Roy Castle Lung Cancer Foundation
5 years ago
Maintenance treatment
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Ina3
in
Lung Cancer Support
5 years ago
LDH markers
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
Goingcuckoo
in
The Roy Castle Lung Cancer Foundation
5 years ago
Back pains
I had a lower left lung lobectomy 11 weeks ago with no real complication. I have now started chemo and had my first cycle 2 weeks ago. All was ok with that apart from feeling tired and fatigued. I am having pains now in my sides where as when I bend down they really hurt mainly around the base of the
I had a lower left lung lobectomy 11 weeks ago with no real complication. I have now started chemo and had my first cycle 2 weeks ago. All was ok with that apart from feeling tired and fatigued. I am having pains now in my sides where as when I bend down they really hurt mainly around the base of the
Happy64
in
The Roy Castle Lung Cancer Foundation
5 years ago
Happy Days Are Here Again
For those of you diagnosed with stage 4, don’t give up! Hope is a wonderful aid to healing. I had my usual three month scan and “there is no evidence of disease”. When I was diagnosed in 2013, it was assumed that I only had months to live. I am celebrating my news not only for me but those who are
For those of you diagnosed with stage 4, don’t give up! Hope is a wonderful aid to healing. I had my usual three month scan and “there is no evidence of disease”. When I was diagnosed in 2013, it was assumed that I only had months to live. I am celebrating my news not only for me but those who are
Ncpoet
in
Lung Cancer Support
5 years ago
PSMA Scan and Primary Lung Cancer
So as my father has a
collapsed
middle lobe with a potentially malignant lesion in his
lung
, so he is also under the care of a lung specialist. This lesion has been there for over 2 years now.
So as my father has a
collapsed
middle lobe with a potentially malignant lesion in his
lung
, so he is also under the care of a lung specialist. This lesion has been there for over 2 years now.
taylor123
in
Advanced Prostate Cancer
5 years ago
Ventolin Inhaler -Alternative
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesn’t seem to work
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesn’t seem to work
Joseph260268
in
Lung Conditions Community Forum
5 years ago
Improved Peak Flow
It’s been a busy few months..... Harefield have said I’m a good candidate for a lung transplant and once I’ve signed the forms I can go on the list!!!! We all know this is a double edged sword!!! Happy I’m viable but scared about the possible outcome!!! 2 weeks ago I saw my consultant, a locum at my
It’s been a busy few months..... Harefield have said I’m a good candidate for a lung transplant and once I’ve signed the forms I can go on the list!!!! We all know this is a double edged sword!!! Happy I’m viable but scared about the possible outcome!!! 2 weeks ago I saw my consultant, a locum at my
Lynnelovessunshine
in
Lung Conditions Community Forum
5 years ago
World first ?
I've just read about a 15yr old cystic fibrosis double lung transplant recipient who has been saved from a antibiotic resistant infection with something called phages, as far as I can gather these " phages" are friendly viruses that attack infections , under the microscope this particular phase looks
I've just read about a 15yr old cystic fibrosis double lung transplant recipient who has been saved from a antibiotic resistant infection with something called phages, as far as I can gather these " phages" are friendly viruses that attack infections , under the microscope this particular phase looks
soulboy118
in
Lung Conditions Community Forum
5 years ago
Lung cancer stage 4
My husband has lung cancer stage 4. He has been on a drug called Iressa for 5 weeks which he has to take 1 a day. Has anybody else taken this and what was the outcome. Did it reduce the tumour at all.
My husband has lung cancer stage 4. He has been on a drug called Iressa for 5 weeks which he has to take 1 a day. Has anybody else taken this and what was the outcome. Did it reduce the tumour at all.
Motherbird
in
The Roy Castle Lung Cancer Foundation
5 years ago
It’s been a while.
I haven’t posted in a while I haven’t really had anything to say, I’m 2 years on since my diagnoses 24% lung function and still on oxygen when I sleep. Haven’t had any hospital trips & only 1 round off antibiotics so my consultant is very happy with me as I’m still off the cigarettes and Still very
I haven’t posted in a while I haven’t really had anything to say, I’m 2 years on since my diagnoses 24% lung function and still on oxygen when I sleep. Haven’t had any hospital trips & only 1 round off antibiotics so my consultant is very happy with me as I’m still off the cigarettes and Still very
insanemoose
in
Lung Conditions Community Forum
5 years ago
Undiagnosed since 10/2018
So I have a pneumothorax October 27, 2018 was released from the hospital November 8, 2018 with not understanding why my
lung
collapsed
.
So I have a pneumothorax October 27, 2018 was released from the hospital November 8, 2018 with not understanding why my
lung
collapsed
.
Looved75
in
Lung Cancer Support
5 years ago
Stage 4 NSCLC with metatasis to brain
Hi Someone really close to me has been diagnosed in April with lung cancer that had spread to the brain. We are in complete shock. As this is stage 4 it’s non treatable but they suggest radiotherapy to the whole brain And then immunotherapy to the lung. We have been told they have limited time. With
Hi Someone really close to me has been diagnosed in April with lung cancer that had spread to the brain. We are in complete shock. As this is stage 4 it’s non treatable but they suggest radiotherapy to the whole brain And then immunotherapy to the lung. We have been told they have limited time. With
Chipmonk23
in
The Roy Castle Lung Cancer Foundation
5 years ago
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