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Anxiety/peri menopause
hi So in Nov 2022 I had a hysterectomy but kept my ovaries at my 3mth phone call following the doctor said happy to put you on HRT. I was like no it’s ok will see how I go mainly because I felt too young am 44. however as the months have gone by am becoming worse to the point it’s affecting my life
hi So in Nov 2022 I had a hysterectomy but kept my ovaries at my 3mth phone call following the doctor said happy to put you on HRT. I was like no it’s ok will see how I go mainly because I felt too young am 44. however as the months have gone by am becoming worse to the point it’s affecting my life
Bassem1979
in
Menopause and Perimenopause Support
9 months ago
Anyone w Xofigo experience?
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
JDN0415
in
Advanced Prostate Cancer
9 months ago
ADT/Exercise and QoL thanks
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
LongevityAT
in
Advanced Prostate Cancer
9 months ago
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Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
8 months ago
Dentist/Root canal
hey guys. I had the dentist yesterday and they told me I needed root canal on my lower back tooth. I’ve never had any fillings ect from the dentist so didn’t know what to expect. Anyway, they injected my mouth twice and I didn’t feel fully numb so they done another 2 injections which they said was the
hey guys. I had the dentist yesterday and they told me I needed root canal on my lower back tooth. I’ve never had any fillings ect from the dentist so didn’t know what to expect. Anyway, they injected my mouth twice and I didn’t feel fully numb so they done another 2 injections which they said was the
Littlechopsxo
in
Anxiety and Depression Support
10 months ago
Amitriptyline! Treatment for nerve damage.Anyone had this for nerve damage?
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and total hysterectomy .The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and total hysterectomy .The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
K2023
in
Endometriosis UK
9 months ago
speech and language therapy
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
Maychristine
in
Headway
1 year ago
Oligomets and SBRT: "Whack a Mole"?
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
FrankyB4
in
Advanced Prostate Cancer
9 months ago
When to introduce ADT after RP failure
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
LakeT
in
Advanced Prostate Cancer
9 months ago
pBAT update after two cycles.
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
KocoPr
in
Fight Prostate Cancer
9 months ago
perimenopause and heart stuff!
at 49 I’ve finally realised the not sleeping and feeling head fog for the past years is not having a late child (7 now) and a stent (1.5 now), it’s perimenpause as I’m now getting a lot of hot flushes (heat not helping here!). Periods still normal if closer together. But I’ve also being having more
at 49 I’ve finally realised the not sleeping and feeling head fog for the past years is not having a late child (7 now) and a stent (1.5 now), it’s perimenpause as I’m now getting a lot of hot flushes (heat not helping here!). Periods still normal if closer together. But I’ve also being having more
Mangojamontoast
in
British Heart Foundation
9 months ago
Update: PSA after IMRT
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
Smarks42
in
Prostate Cancer Network
7 months ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
9 months ago
Zoladex and HRT
Spoke to surgeonSo my surgeon rang yesterday and explained why they aborted the hysterectomy on Tuesday. He said my cervix was fused to my bowel and possibly left ovary and my rectum had been pulled down too. He said it looked to be endometriosis that had been there a long, long time and they wouldn't
Spoke to surgeonSo my surgeon rang yesterday and explained why they aborted the hysterectomy on Tuesday. He said my cervix was fused to my bowel and possibly left ovary and my rectum had been pulled down too. He said it looked to be endometriosis that had been there a long, long time and they wouldn't
Sunset-lady
in
Endometriosis UK
9 months ago
coming off oxicodone
Despite the victorious stopping of my RLS, i am still struggling with sleep. I have been taking 10mg of oxicodone. One dose at night. But it had been making me dog tired and zombie like during day. I have read lots on here about spreading the dose but i want to come off it. I am starting to cut it down
Despite the victorious stopping of my RLS, i am still struggling with sleep. I have been taking 10mg of oxicodone. One dose at night. But it had been making me dog tired and zombie like during day. I have read lots on here about spreading the dose but i want to come off it. I am starting to cut it down
Jukebox55
in
Restless Legs Syndrome
9 months ago
ADT for a year?
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Photographerhere
in
Prostate Cancer Network
9 months ago
Cortisone Injections?
Hi Does anyone have information on whether one can receive cortisone shots for various injuries unrelated to PC without adversely impacting one’s ADT treatment? I am in physical therapy for an injured shoulder and recently had a cortisone shot and forgot to consult my MO before receiving it. I was
Hi Does anyone have information on whether one can receive cortisone shots for various injuries unrelated to PC without adversely impacting one’s ADT treatment? I am in physical therapy for an injured shoulder and recently had a cortisone shot and forgot to consult my MO before receiving it. I was
jfoesq
in
Advanced Prostate Cancer
9 months ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
9 months ago
Acupuncture and Hot Flashes
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Huzzah1
in
Advanced Prostate Cancer
9 months ago
My son’s Testosterone results:
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Cactus297
in
Advanced Prostate Cancer
7 months ago
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