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Hi. I have been very unwell for two years. After many different hospitals and doctors i have been diagnosed with Behcets. I have all the symptoms that i have read on here. I also get a very stiff painful neck, does anyone else have this also? I am under Addenbrooke hospital who seem very good. I am
Hi. I have been very unwell for two years. After many different hospitals and doctors i have been diagnosed with Behcets. I have all the symptoms that i have read on here. I also get a very stiff painful neck, does anyone else have this also? I am under Addenbrooke hospital who seem very good. I am
joannebond360
in
Behçet's UK
12 years ago
Ahh when will this thing give me a break?
I went back to the hospital last week after a bad bout of mouth ulcers. The consultant stepped up my meds by giving me a high dose injection of steroids and started me on Azathioprine along side the Colchicine I was already taking. All was ok until Sunday............... I kept breaking out in sweats
I went back to the hospital last week after a bad bout of mouth ulcers. The consultant stepped up my meds by giving me a high dose injection of steroids and started me on Azathioprine along side the Colchicine I was already taking. All was ok until Sunday............... I kept breaking out in sweats
Hidden
in
Behçet's UK
12 years ago
Snakes and ladders and cats
Hello. I haven't posted for a while so I thought I'd give you all a quick update. After changing GPs, I finally managed to get referred to rheumatology but the rheumatologist refused the referral because my blood tests showed slightly raised urate levels. Although my GP agreed with me that I didn't have
Hello. I haven't posted for a while so I thought I'd give you all a quick update. After changing GPs, I finally managed to get referred to rheumatology but the rheumatologist refused the referral because my blood tests showed slightly raised urate levels. Although my GP agreed with me that I didn't have
GreenFlower
in
NRAS
12 years ago
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'Big Girl' medications
Do you have to ASK for them? I have an appointment with a new Rheumatologist this November...thus far have been treated sporadically with steroids and colchicine. I still have many issues despite current treatment. I am so tired and would love to have a med (or meds) that would give better quality
Do you have to ASK for them? I have an appointment with a new Rheumatologist this November...thus far have been treated sporadically with steroids and colchicine. I still have many issues despite current treatment. I am so tired and would love to have a med (or meds) that would give better quality
supernova
in
Behçet's UK
12 years ago
Went back to hospital yesterday
Following advice from you guys, I contacted my hospitals helpline and explained my situation of symptoms coming back in force. The nurse I spoke to e-mailed the my consultant and then the consultant arranged an appointment for me the following Tuesday(Yesterday). My appointment went really well and
Following advice from you guys, I contacted my hospitals helpline and explained my situation of symptoms coming back in force. The nurse I spoke to e-mailed the my consultant and then the consultant arranged an appointment for me the following Tuesday(Yesterday). My appointment went really well and
Hidden
in
Behçet's UK
12 years ago
really fed up !
am being seen at maidstone hospital every six months (when the app not cancelled) and they say as i cant take colchicine they wont give me anything else as i am not ill enough despite severe tiredness .genital ulcers and joint pain ! apparently its my age ime 52 not 72 ........ so its probably me
am being seen at maidstone hospital every six months (when the app not cancelled) and they say as i cant take colchicine they wont give me anything else as i am not ill enough despite severe tiredness .genital ulcers and joint pain ! apparently its my age ime 52 not 72 ........ so its probably me
chocalatedog
in
Behçet's UK
12 years ago
Numbness of the extremities
Behçet's disease of the hands and feet, numbness, using Colchicine friends, if you notice. In the long term, you should consult your doctor whether the side effect of the drug use
Behçet's disease of the hands and feet, numbness, using Colchicine friends, if you notice. In the long term, you should consult your doctor whether the side effect of the drug use
Sunset
in
Behçet's UK
12 years ago
Australian sufferer
Hi my name is Lesley, I'm very pleased to have found your group. After over 10 years of being told there is nothing wrong with me I was finally diagnosed at RPA in Sydney Australia 2 years ago. Have tried Infliximab, Colchicine, Cyclosporine.and Thalidomide. I'm not tolerating the Thalidomide
Hi my name is Lesley, I'm very pleased to have found your group. After over 10 years of being told there is nothing wrong with me I was finally diagnosed at RPA in Sydney Australia 2 years ago. Have tried Infliximab, Colchicine, Cyclosporine.and Thalidomide. I'm not tolerating the Thalidomide
lesleyg
in
Behçet's UK
12 years ago
Is it possible to be symptom free?
Hi everyone I have a rhuemy appointment tomorrow and im hoping I get some medication which will help...been hoping for past year though! Just wondering am I been naive in thinking its possible to be totally symptom free? I was given Colchicine to try at the beginning of April when I finally
Hi everyone I have a rhuemy appointment tomorrow and im hoping I get some medication which will help...been hoping for past year though! Just wondering am I been naive in thinking its possible to be totally symptom free? I was given Colchicine to try at the beginning of April when I finally
LULU85
in
Behçet's UK
12 years ago
IM NEW TO THE SIGHT and need to know,how is the type diagnosed? what treatment is best ?
I was diagnosed with Vasculitis 2 years ago after lots of tests and eventually a biopsy, I had never heard of it before so after being prescribed Prednisolone for the condition started looking into it a bit and found there are lots of different types! When I next seen my consultant (a dermatologist)
I was diagnosed with Vasculitis 2 years ago after lots of tests and eventually a biopsy, I had never heard of it before so after being prescribed Prednisolone for the condition started looking into it a bit and found there are lots of different types! When I next seen my consultant (a dermatologist)
debbie123
in
Vasculitis UK
12 years ago
tips/advice to help with joint pain due to 'possible' Behcets
Hi everyone I was recently told by the rhuematology team that I had possible Behcets. I suffer with mouth ulcers (which I would describe more like blisters), genital ulcers, headaches, unexplained anxiety,fatigue, weight loss, trouble sleeping and joint pain, I also get a share pain in my right
Hi everyone I was recently told by the rhuematology team that I had possible Behcets. I suffer with mouth ulcers (which I would describe more like blisters), genital ulcers, headaches, unexplained anxiety,fatigue, weight loss, trouble sleeping and joint pain, I also get a share pain in my right
LULU85
in
Behçet's UK
12 years ago
Hi I'm new to this site BUT NOT the disease. I have been dealing with PBC for 10 years now.Anyone live in Sydney Australia out there?
I am just starting a new drug trial ,Colchicine and Methotrexate plus Folate to settle side effects (has anyone tried these?)This is sort of a last ditch effort as i am not responding to all other tried and tested drugs. I also take Urso. Prednisone is for a lung disease i cant shake called B.O.O.P,
I am just starting a new drug trial ,Colchicine and Methotrexate plus Folate to settle side effects (has anyone tried these?)This is sort of a last ditch effort as i am not responding to all other tried and tested drugs. I also take Urso. Prednisone is for a lung disease i cant shake called B.O.O.P,
SNOOZY
in
PBC Foundation
12 years ago
hi any one cane tel me more abut medicine calld azathioprine ?
hi i have been sufer frome behcet`s since i was 8 late ley jonint pain are wors my rheumatologst ask me to have lotsof blood test so from colchicine to change azathioprine kine regarads
hi i have been sufer frome behcet`s since i was 8 late ley jonint pain are wors my rheumatologst ask me to have lotsof blood test so from colchicine to change azathioprine kine regarads
diyar99
in
Behçet's UK
12 years ago
Is anyone else taking Colchicine?
After seeing a Behcet's specialist last week I've been prescribed a drug called Colchicine and just wondered if anyone else is on/ has taken this drug and, if so, did it make a difference? I'm to try this drug before they can consider me for Infliximab which will have to be applied for due to it being
After seeing a Behcet's specialist last week I've been prescribed a drug called Colchicine and just wondered if anyone else is on/ has taken this drug and, if so, did it make a difference? I'm to try this drug before they can consider me for Infliximab which will have to be applied for due to it being
Kelly_Jefferies
in
Vasculitis UK
13 years ago
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