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I thought I’d give you an update on my husband. You guys are very helpful in his reduction in ropinerole last year, he was taking 8 mg a day and is currently down to four but cannot get past 4 mg. Since last he’s been diagnosed with Waldenstrom Macroglobulinemia lymphoma, and is currently flaring
I thought I’d give you an update on my husband. You guys are very helpful in his reduction in ropinerole last year, he was taking 8 mg a day and is currently down to four but cannot get past 4 mg. Since last he’s been diagnosed with Waldenstrom Macroglobulinemia lymphoma, and is currently flaring
Sandalsforever
in
Restless Legs Syndrome
8 days ago
Liver Beef Glandular pills for iron?
Hi. Has anyone tried Liver Beef Glandular pills to increase iron rather than iron pills directly? My naturopathic doctor prefers this for RLS, because he says that iron pills are oxidizing. My Ferritin is ~80. And, I'm new here -- super helpful community. Now that I understand RLS, as I look back,
Hi. Has anyone tried Liver Beef Glandular pills to increase iron rather than iron pills directly? My naturopathic doctor prefers this for RLS, because he says that iron pills are oxidizing. My Ferritin is ~80. And, I'm new here -- super helpful community. Now that I understand RLS, as I look back,
JaggySr
in
Restless Legs Syndrome
11 days ago
CBD (thc free) for pain relief
I’ve had a Triple Heart Bypass and Mitral Valve Repair. Before that I had a Lumber Spinal Laminectomy (which only worked for about 4 months). I’ve since also been diagnosed with Heart Failure so pain relief is very difficult. The Spinal Stenosis is now severe all down the Lumbar Region. I was given
I’ve had a Triple Heart Bypass and Mitral Valve Repair. Before that I had a Lumber Spinal Laminectomy (which only worked for about 4 months). I’ve since also been diagnosed with Heart Failure so pain relief is very difficult. The Spinal Stenosis is now severe all down the Lumbar Region. I was given
Davewm
in
Pain Concern
12 days ago
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THC , CBD
hi During my annual swaree down to South Africa , I came across a health guru, advised Me to try THC , the only problem is I’m about to finish my small bottle , I’ve been putting couple of drops under my tongue when my off period starts after madopar , why are we so stuck up in the uk , with all these
hi During my annual swaree down to South Africa , I came across a health guru, advised Me to try THC , the only problem is I’m about to finish my small bottle , I’ve been putting couple of drops under my tongue when my off period starts after madopar , why are we so stuck up in the uk , with all these
Troongolfer
in
Cure Parkinson's
14 days ago
Links between TSH and RLS. Have I found my cause in sub clinical hypothyroidism due to autoimmune disease Hashimoto syndrome?
As my RLS was under pretty good control I decided to see how I would go if I stopped my Tramadol 50-100mg daily, and tried CBD/THC oil instead. The answer was badly. My symptoms came back to the point I barely slept for 6 nights. And of course I also had withdrawal symptoms to deal with. As most of
As my RLS was under pretty good control I decided to see how I would go if I stopped my Tramadol 50-100mg daily, and tried CBD/THC oil instead. The answer was badly. My symptoms came back to the point I barely slept for 6 nights. And of course I also had withdrawal symptoms to deal with. As most of
TheGiz
in
Restless Legs Syndrome
23 days ago
Change in Carcinoma
I had low dose brachytherapy in 2010 with seeds and success. My PSA started raising again in 2021. I opted for high dose brachytherapy and my PSA is 0.1. This year I had difficulty urinating and recently had a procedure similar to a TURP to remove tissue in my urethra near my prostate. This procedure
I had low dose brachytherapy in 2010 with seeds and success. My PSA started raising again in 2021. I opted for high dose brachytherapy and my PSA is 0.1. This year I had difficulty urinating and recently had a procedure similar to a TURP to remove tissue in my urethra near my prostate. This procedure
gegan01
in
Prostate Cancer Network
10 months ago
Update on Weaning off of Pramipexole
Hello Everyone, I am posting in case this might be helpful to those going through getting off Pramipexole (PRAM) or thinking about it. I posted last Sunday about not feeling comfortable reducing the PRAM, but through encouragement on this site, I took the deep dive. I was taking .25 for about 5 years
Hello Everyone, I am posting in case this might be helpful to those going through getting off Pramipexole (PRAM) or thinking about it. I posted last Sunday about not feeling comfortable reducing the PRAM, but through encouragement on this site, I took the deep dive. I was taking .25 for about 5 years
abby1003
in
Restless Legs Syndrome
1 month ago
Sleeping w/out THC for the first time in 5 years
I'm still trying to figure out several PD issues that I think are related to the estrogen patch I started about a year ago, and I intend to post about that eventually, but I wanted to give a quick update because my severe insomnia seems to be resolved. The last time I tried sleeping without THC was
I'm still trying to figure out several PD issues that I think are related to the estrogen patch I started about a year ago, and I intend to post about that eventually, but I wanted to give a quick update because my severe insomnia seems to be resolved. The last time I tried sleeping without THC was
1LittleWillow
in
Cure Parkinson's
2 months ago
Advice sought on switching from Tramadol to THC/CBD
I'm on 50 - 100mg of tramadol a day and slowly getting augmentation. Started with 50mg and now I alternate nights at 100mg. I'm reluctant to go to 100mg everyday yet but most nights 50mg doesn't work great. My Dr has suggested I try a THC 10mg/CBD 10mg medication and stopping Tramadol, so I will give
I'm on 50 - 100mg of tramadol a day and slowly getting augmentation. Started with 50mg and now I alternate nights at 100mg. I'm reluctant to go to 100mg everyday yet but most nights 50mg doesn't work great. My Dr has suggested I try a THC 10mg/CBD 10mg medication and stopping Tramadol, so I will give
TheGiz
in
Restless Legs Syndrome
2 months ago
Simple Prostatectomy
Hello everyone , My father was diagnosed with locally advanced prostate cancer in March of 2021, PSA 6900 … After 3 months on Eligard his PSA dropped to 0.6 and it has been so for more than 2 years now. He has been on foley catheter since March of 2021 because of a very enlarged prostate and has refused
Hello everyone , My father was diagnosed with locally advanced prostate cancer in March of 2021, PSA 6900 … After 3 months on Eligard his PSA dropped to 0.6 and it has been so for more than 2 years now. He has been on foley catheter since March of 2021 because of a very enlarged prostate and has refused
naples2021
in
Advanced Prostate Cancer
10 months ago
Ex-THC Vape user with lung pains
I will just repost my Bio here. It covers most everything. I’m just looking for help and maybe (hopefully) reassurance. I’m 35, I have 2 beautiful kids. I just want to see them grow up. I made mistakes and wish I could change things. Here is my story: I started vaping THC around 2015. I really didn’
I will just repost my Bio here. It covers most everything. I’m just looking for help and maybe (hopefully) reassurance. I’m 35, I have 2 beautiful kids. I just want to see them grow up. I made mistakes and wish I could change things. Here is my story: I started vaping THC around 2015. I really didn’
BaroniF88
in
Lung Conditions Community Forum
3 months ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
3 months ago
Ferrittin level (Different Opinions)
Last Wednesday (26th July) I had my 3 monthly blood test in relation to my Myelofibrosis and asked for my Ferrittin level and TSATS to be checked also. The Nurse/Clinician found Ferrittin on the data base but not TSATS and was a bit baffled by the whole TSATS thing. I concluded that I would only get
Last Wednesday (26th July) I had my 3 monthly blood test in relation to my Myelofibrosis and asked for my Ferrittin level and TSATS to be checked also. The Nurse/Clinician found Ferrittin on the data base but not TSATS and was a bit baffled by the whole TSATS thing. I concluded that I would only get
SaltyUK
in
Restless Legs Syndrome
10 months ago
Advice needed?
Cutting a long story short I signed up to Sapphire Clinic who are now Curleaf and they recommended THC/CBD oil which didn't work for me as it give me terrible headaches and stomach issues. I got back in touch and they have said that my options are gummies and vaporizing. The gummies are full of sugar
Cutting a long story short I signed up to Sapphire Clinic who are now Curleaf and they recommended THC/CBD oil which didn't work for me as it give me terrible headaches and stomach issues. I got back in touch and they have said that my options are gummies and vaporizing. The gummies are full of sugar
Jezee
in
Restless Legs Syndrome
3 months ago
A Neophyte's Experience with a Gummy
Some of you might be interested in my gummy experience. I do not advocate anything here, but just want to share a new experience. Outside of four episodes in my eighty-four plus years, I have not used marijuana or other drugs beyond alcohol, coffee, maté from the Pampas of Argentina, and whatever uppers
Some of you might be interested in my gummy experience. I do not advocate anything here, but just want to share a new experience. Outside of four episodes in my eighty-four plus years, I have not used marijuana or other drugs beyond alcohol, coffee, maté from the Pampas of Argentina, and whatever uppers
Worked_the_World
in
Advanced Prostate Cancer
3 months ago
Indica variety of THC infused sour gummies
I take 10 mg of Indica variety of THC, not Sativa, every night. Indica doesn’t have as much of a psychotropic effect. Sometimes there’s a little feeling of paranoia ( what’s that sound downstairs? What’s that feeling in my chest? ) but nothing bad and usually I just smile to myself, recognizing the
I take 10 mg of Indica variety of THC, not Sativa, every night. Indica doesn’t have as much of a psychotropic effect. Sometimes there’s a little feeling of paranoia ( what’s that sound downstairs? What’s that feeling in my chest? ) but nothing bad and usually I just smile to myself, recognizing the
Dgags
in
Restless Legs Syndrome
4 months ago
Sharing my recent journey with Parkinson's-induced insomnia
Hello everyone, Parkinson's-induced insomnia is a very common problem. I just wanted to share my recent experience, in the hope that it might help others I was diagnosed 4 years ago (symptomatic for 6 years) and, until recently, I would wake up a few times at night, but a few mg of melatonin would
Hello everyone, Parkinson's-induced insomnia is a very common problem. I just wanted to share my recent experience, in the hope that it might help others I was diagnosed 4 years ago (symptomatic for 6 years) and, until recently, I would wake up a few times at night, but a few mg of melatonin would
Michel0220
in
Cure Parkinson's
4 months ago
THC Gummies and psilocybin
Has anyone tried THC/CBD gummies or psilocybin for mitigating some of the side effects of ADT and Orgovyx? Were they beneficial?
Has anyone tried THC/CBD gummies or psilocybin for mitigating some of the side effects of ADT and Orgovyx? Were they beneficial?
Worked_the_World
in
Advanced Prostate Cancer
4 months ago
Blood in cather
Hello everyone, I am posting today for my father who was diagnosed with advanced prosate cancer in March of 2020 with a PSA of 6700 .. He is been taking eligard every 6 months and this PSA has been stable to 0.5. He has a very enlarged prostrate but is refusing to do the TURP so he is been using the
Hello everyone, I am posting today for my father who was diagnosed with advanced prosate cancer in March of 2020 with a PSA of 6700 .. He is been taking eligard every 6 months and this PSA has been stable to 0.5. He has a very enlarged prostrate but is refusing to do the TURP so he is been using the
naples2021
in
Advanced Prostate Cancer
11 months ago
Opinions on THC and CBD gummies for cancer pain.
Have you or do you use gummies to help manage cancer pain? Do you use THC, or CBD, or blended? How much do you take in 1 dose? How often per day do you dose? How effective has it been? Do you use it instead of opiates or as an add on? Any side effects to be aware of? Thanks in advance!
Have you or do you use gummies to help manage cancer pain? Do you use THC, or CBD, or blended? How much do you take in 1 dose? How often per day do you dose? How effective has it been? Do you use it instead of opiates or as an add on? Any side effects to be aware of? Thanks in advance!
skiingfiend
in
Advanced Prostate Cancer
4 months ago
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