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Coagulation factor IX
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Flare up after a pretty settled period
Two years ago I had a massive flare and was in a lot of pain / extreme fatigue. I was on prednisolone which was like a magic cure initially and then caused a host of gastric problems. I also trialled methotrexate tablets and methotrexate injections and really struggled with the side effects. After about
Two years ago I had a massive flare and was in a lot of pain / extreme fatigue. I was on prednisolone which was like a magic cure initially and then caused a host of gastric problems. I also trialled methotrexate tablets and methotrexate injections and really struggled with the side effects. After about
sazkabaz
in
NRAS
1 year ago
Blood Tests are in....? Help and advice on these v welcome :-)
Hello lovely Thyroid Folks - Well, after some hectic Facebook marketplace efforts, and delay for holidays till next year - my private blood test results are in. Some results are B12 focused as I looking for asnwers from that Forum as well. So please bear with. I am not on any Thyroid meds - in fact
Hello lovely Thyroid Folks - Well, after some hectic Facebook marketplace efforts, and delay for holidays till next year - my private blood test results are in. Some results are B12 focused as I looking for asnwers from that Forum as well. So please bear with. I am not on any Thyroid meds - in fact
Treesong2023
in
Thyroid UK
1 year ago
More Test Results ...any advice very warmly welcomed..
Hello lovely PA Folks - Well, after some hectic Facebook marketplace efforts, and delay for holidays till next year - my private blood test results are in. Some results are Thyroid focused and I am popping these results in that Forum as well. So please bear with. Here they are...its a mixed
Hello lovely PA Folks - Well, after some hectic Facebook marketplace efforts, and delay for holidays till next year - my private blood test results are in. Some results are Thyroid focused and I am popping these results in that Forum as well. So please bear with. Here they are...its a mixed
Treesong2023
in
Pernicious Anaemia Society
1 year ago
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So many questions!
Hello again! Thank you so much to everyone who responded to me last week when I asked for feedback on my vitamins. You all helped so much, I took everything on board and also had enough conviction in myself to follow up with my doctors because I'm not a hypochondriac (probably). Seaside Susie told
Hello again! Thank you so much to everyone who responded to me last week when I asked for feedback on my vitamins. You all helped so much, I took everything on board and also had enough conviction in myself to follow up with my doctors because I'm not a hypochondriac (probably). Seaside Susie told
Myalikki
in
Thyroid UK
1 year ago
Advice please so confused
I was on longterm PPI for 14 years.In 2016 I had course of antibiotics for a sinus infection. A few days later I couldn't walk in straight line,terrible headaches,burning sensation in skin.Thought I was going to collapse.My GP ordered blood tests and my B12 was 50!!! I had 6 loading injections then
I was on longterm PPI for 14 years.In 2016 I had course of antibiotics for a sinus infection. A few days later I couldn't walk in straight line,terrible headaches,burning sensation in skin.Thought I was going to collapse.My GP ordered blood tests and my B12 was 50!!! I had 6 loading injections then
Paula1710
in
Pernicious Anaemia Society
1 year ago
RA or LUPUS Lab Results
RDW
16.0 H
(11.5-15.0 %) SEDIMENTATION RATE:
35 H
(0-20 MM/HOUR) RHEUMATOID FACTOR, QUANT
181 H
(<14 IU/ML) ANA POSITIVE - SPECKLED - TITER 1:160 SJOGREN'S SS-A ANTIBODY
>8.0 H
(<1.0 AI) dsDNA ANTIBODY
15.0 H
(POSITIVE >=3.0 U/ML) HEMOGLOBIN /
RDW
16.0 H
(11.5-15.0 %) SEDIMENTATION RATE:
35 H
(0-20 MM/HOUR) RHEUMATOID FACTOR, QUANT
181 H
(<14 IU/ML) ANA POSITIVE - SPECKLED - TITER 1:160 SJOGREN'S SS-A ANTIBODY
>8.0 H
(<1.0 AI) dsDNA ANTIBODY
15.0 H
(POSITIVE >=3.0 U/ML) HEMOGLOBIN /
Hypocon1
in
NRAS
1 year ago
Doctor put my b12 schedule on my records.
this week after a visit to the ED and changed symptoms related to my spine degenerative disease, I saw a different doctor at the practice, as she was going through my history, she asked about my B12 and It’s diagnosis, including the hospital discharge saying I did it EOD. I explained I had been diagnosed
this week after a visit to the ED and changed symptoms related to my spine degenerative disease, I saw a different doctor at the practice, as she was going through my history, she asked about my B12 and It’s diagnosis, including the hospital discharge saying I did it EOD. I explained I had been diagnosed
Scott-rock
in
Pernicious Anaemia Society
1 year ago
Suspected B12 deficiency and about to start SI
Hi everyone, I’ve had ID anaemia (microcytic hypochromic) for over 20 years and was told by a GP many years ago that this was due to malabsorption. I’ve had hypothyroidism since 2014, long covid for the past 2 years, and a vax injury from March 2021 that is only just being investigated by rheumatology
Hi everyone, I’ve had ID anaemia (microcytic hypochromic) for over 20 years and was told by a GP many years ago that this was due to malabsorption. I’ve had hypothyroidism since 2014, long covid for the past 2 years, and a vax injury from March 2021 that is only just being investigated by rheumatology
Gecko22
in
Pernicious Anaemia Society
1 year ago
How food additives can perhaps affect us: a chocolate story.
I can eat Galaxy chocolate. No problem, and it doesn't trigger my IBS. The other day I ate a Galaxy Ripple bar instead of the ordinary block chocolate. I thought nothing of it, just thought it would be the same as the block chocolate. But it affected my bowel movements the next day, and there
I can eat Galaxy chocolate. No problem, and it doesn't trigger my IBS. The other day I ate a Galaxy Ripple bar instead of the ordinary block chocolate. I thought nothing of it, just thought it would be the same as the block chocolate. But it affected my bowel movements the next day, and there
Luisa22
in
IBS Network
1 year ago
Webinar - Biosimilars
Professor of Ophthalmology Richard Gale from the Hull York Medical School, will be joining us for our next My Macular and Me webinar, to discuss the introduction of biosimilars on the NHS. A biosimilar is a medicine that is developed to be highly similar to an existing biological medicine. They might
Professor of Ophthalmology Richard Gale from the Hull York Medical School, will be joining us for our next My Macular and Me webinar, to discuss the introduction of biosimilars on the NHS. A biosimilar is a medicine that is developed to be highly similar to an existing biological medicine. They might
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
Protein deficiency and B12?
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Below range Active B12, Increasing serum B12, Low folate
Hi My health board (in Scotland) doesn’t use the Active B12 test so they are unwilling to accept the Medichecks test I had done which showed a slightly below range result - 36pmol (37.5 - 188) They have retested my serum B12 and folate: Serum B12 315ng/L (187-883) Folate 2.7 (3-20) My serum
Hi My health board (in Scotland) doesn’t use the Active B12 test so they are unwilling to accept the Medichecks test I had done which showed a slightly below range result - 36pmol (37.5 - 188) They have retested my serum B12 and folate: Serum B12 315ng/L (187-883) Folate 2.7 (3-20) My serum
GW1000
in
Pernicious Anaemia Society
1 year ago
Can anyone recommend a good private pernicious anemia doctor anywhere in Scotland? Two NHS GPs ignored my symptoms they don't listen
Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell antibodies, my B12 levels are 444 (should be between 200-883) so nobody takes me seriously because it's not low. GPs won't even consider injections
Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell antibodies, my B12 levels are 444 (should be between 200-883) so nobody takes me seriously because it's not low. GPs won't even consider injections
Patient300
in
Pernicious Anaemia Society
2 years ago
B-12 is Low (398), Folate is High, HCY is 55.6, uMMA is 1.7 , vitamin D and C and Magnesium are Low, all B vitamins are low.
Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my DNA, GP declined to do a MMA Blood serum test, I have been allergic to milk and beef since birth, peanuts followed with life threatening allergies
Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my DNA, GP declined to do a MMA Blood serum test, I have been allergic to milk and beef since birth, peanuts followed with life threatening allergies
Hoyle
in
Pernicious Anaemia Society
2 years ago
Newbie here, tests/symptoms suggest PA or AAG
Hi everyone. My medical adventures have been ongoing for years but, like many others, I have struggled to find a definitive diagnosis for my symptoms. My spouse is the only person I've shared all this with. He's been by my side and supportive throughout numerous doctors shrugging their shoulders — and
Hi everyone. My medical adventures have been ongoing for years but, like many others, I have struggled to find a definitive diagnosis for my symptoms. My spouse is the only person I've shared all this with. He's been by my side and supportive throughout numerous doctors shrugging their shoulders — and
Pante
in
Pernicious Anaemia Society
2 years ago
Ferritin that will not raise - what to investigate?
Hi everyone, I've had huge issues with ferritin since diagnosis in 2019 and I cannot get it to raise higher than the early 20s and the doctors are absolutely no help with trying to find the cause. My ferritin is currently 23 range 30-250 and I have been taking iron medicine and eating liver consistently
Hi everyone, I've had huge issues with ferritin since diagnosis in 2019 and I cannot get it to raise higher than the early 20s and the doctors are absolutely no help with trying to find the cause. My ferritin is currently 23 range 30-250 and I have been taking iron medicine and eating liver consistently
liaratsoni
in
Thyroid UK
2 years ago
Intrinsic Factor Test
Hi Community :) For the last 3 years, I've had increasing numbness and burning pins and needles, headaches, fatigue, brain fog, and have been shedding weight. My GP has had me tested for MS (MRI scan says "no") and Neurology have diagnosed "funtional neurological disorder - FND". I then researched
Hi Community :) For the last 3 years, I've had increasing numbness and burning pins and needles, headaches, fatigue, brain fog, and have been shedding weight. My GP has had me tested for MS (MRI scan says "no") and Neurology have diagnosed "funtional neurological disorder - FND". I then researched
Sean2310
in
Pernicious Anaemia Society
2 years ago
Could ET mask a diagnosis of Vitamin B12 deficiency/Pernicious anaemia?
I have an ET JAK2 mutation diagnosis (on aspirin) and have some neurological type symptoms that are similar to those associated with a Vit B12 deficiency. Athough I'm now taking a B12 supplement, I was wanting to see if I could get a B12 injection in case my issue related to an inability to absorb B12
I have an ET JAK2 mutation diagnosis (on aspirin) and have some neurological type symptoms that are similar to those associated with a Vit B12 deficiency. Athough I'm now taking a B12 supplement, I was wanting to see if I could get a B12 injection in case my issue related to an inability to absorb B12
Cb1001
in
MPN Voice
2 years ago
Testing coming up
I read this helpful info on a forum post here from the admin: “Taking supplements that contain B12 will affect any tests ordered by your doctor to assess your B12 status. You should not take any supplement with B12 before having your B12 assessed (including MMA/homocysteine/Active B12). For testing
I read this helpful info on a forum post here from the admin: “Taking supplements that contain B12 will affect any tests ordered by your doctor to assess your B12 status. You should not take any supplement with B12 before having your B12 assessed (including MMA/homocysteine/Active B12). For testing
kushami36
in
Pernicious Anaemia Society
2 years ago
GP refusing to offer IFAB Test
I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was negative/normal. The Parietal Cell test was done in Jan 2021 and I assumed the IFAB was done at the same time and also came back normal. (I was unaware
I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was negative/normal. The Parietal Cell test was done in Jan 2021 and I assumed the IFAB was done at the same time and also came back normal. (I was unaware
cloudspotting
in
Pernicious Anaemia Society
2 years ago
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