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Latest Fish test results??
I just had another Fish test completed due to the fact that the Ibrutinib that I have been on for almost 5 years is not working as well anymore. In my first Fish test many many years ago I was Trisomy 12 .The new report now shows that I have acquired both deletions of 13q and 17p and still have Trisomy
I just had another Fish test completed due to the fact that the Ibrutinib that I have been on for almost 5 years is not working as well anymore. In my first Fish test many many years ago I was Trisomy 12 .The new report now shows that I have acquired both deletions of 13q and 17p and still have Trisomy
rcusher
in
CLL Support
1 year ago
What is Next? Dx 07/2022 PSA 942.40 current 0.24 Starting 5th cycle of Docetaxel Chemotherapy, Discuss Radical Prostatectomy or Radiation?
Currently on Firmagon, Zytiga with Prednisone, Vit D, Metformin Will be starting Otelza for very severe made worse by ADT plaque psoriasis From what I heard there are some clinical trials and cancer centers/hospitals conducting surgery, radical prostatectomy for men with advanced metastatic prostate
Currently on Firmagon, Zytiga with Prednisone, Vit D, Metformin Will be starting Otelza for very severe made worse by ADT plaque psoriasis From what I heard there are some clinical trials and cancer centers/hospitals conducting surgery, radical prostatectomy for men with advanced metastatic prostate
Shorehousejam
in
Advanced Prostate Cancer
1 year ago
Copd medication
I have just been given Uniphyllin Continus by my study doctor (Copd study for new drug) but forgot to ask if I should continue to use my ventolin during the day, does anyone know
I have just been given Uniphyllin Continus by my study doctor (Copd study for new drug) but forgot to ask if I should continue to use my ventolin during the day, does anyone know
Oldhippylynn
in
Lung Conditions Community Forum
2 years ago
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What do you do with your anger?
What do I do with all my pent up anger? I feel extremely worthless, inadequate, a loser, frustrated that I screw up over and over and over again. I hate the way I am. I hate myself. I have no friends, no family, and now no wife. My wife is divorcing me. Am I really that unlovable? I ask myself why
What do I do with all my pent up anger? I feel extremely worthless, inadequate, a loser, frustrated that I screw up over and over and over again. I hate the way I am. I hate myself. I have no friends, no family, and now no wife. My wife is divorcing me. Am I really that unlovable? I ask myself why
Dfnym
in
Anxiety and Depression Support
2 years ago
anxiety and depression back, same as last year
Last summer I was enjoying relief from what had been several years of a deep depression. I came out of in in the fall of 2020 and felt good for the first time in years. Then within a week or so in July 2021 I was sucked back into anxiety and depression which lasted for months. I came out of it in
Last summer I was enjoying relief from what had been several years of a deep depression. I came out of in in the fall of 2020 and felt good for the first time in years. Then within a week or so in July 2021 I was sucked back into anxiety and depression which lasted for months. I came out of it in
repeatOffender
in
Anxiety and Depression Support
2 years ago
Tipa for getting over past failures?
I have let my past failures of ~5 years ago bring me into a dark place where I have cut myself off from the world. I have no friends, my mom is the person i’m able to talk to, but being a male makes that more difficult as she doesn’t fully understand certain things in my life. this post is not a pity
I have let my past failures of ~5 years ago bring me into a dark place where I have cut myself off from the world. I have no friends, my mom is the person i’m able to talk to, but being a male makes that more difficult as she doesn’t fully understand certain things in my life. this post is not a pity
futuretravels
in
Anxiety and Depression Support
2 years ago
Concise summary of the treatment history of CLL from the 1950s to the present, by Dr Bruce Cheson, contributor to the iwCLL and much more
I knew Chlorambucil use for CLL dated back to the 1950's but I hadn't appreciated that was also the case for cyclophosphamide, (the 'C' in FCR). It took until the early 90's before Fludarabine, the 'F' in FCR joined, then Rituximab (the 'R') just over 20 years ago, started the long reign of FCR as the
I knew Chlorambucil use for CLL dated back to the 1950's but I hadn't appreciated that was also the case for cyclophosphamide, (the 'C' in FCR). It took until the early 90's before Fludarabine, the 'F' in FCR joined, then Rituximab (the 'R') just over 20 years ago, started the long reign of FCR as the
AussieNeil
Administrator
in
CLL Support
1 year ago
My first counselling session - not what I imagined
I finally picked up the courage to seek help, I thought talking to someone will enable me to move forward as I still don’t think I’m in a good place mentally after 7 weeks of finding out about our failed cycle. Firstly it was super disorganised, it took a lot for me to ask for help and get this session
I finally picked up the courage to seek help, I thought talking to someone will enable me to move forward as I still don’t think I’m in a good place mentally after 7 weeks of finding out about our failed cycle. Firstly it was super disorganised, it took a lot for me to ask for help and get this session
BleuHope
in
Fertility Network UK
2 years ago
birth trauma, postnatalPTSD.. links to PPP
I had PP 27 years ago , back in the day understanding and treatment was very poor.i have just finished 6 monthsof therapy, due to PTSD which has stemmed from the birth, plus general psychiatric hospital treatment which was very non existent and they have put it down in my diagnosis now as abuse
I had PP 27 years ago , back in the day understanding and treatment was very poor.i have just finished 6 monthsof therapy, due to PTSD which has stemmed from the birth, plus general psychiatric hospital treatment which was very non existent and they have put it down in my diagnosis now as abuse
guinea1
in
Action on Postpartum Psychosis
2 years ago
Sudy shows Stereotactic Radiotherapy safe for treating oligometastases
From Renal and Urology news Home » News » Urology » Prostate Cancer Publish DateNovember 11, 2022 SABR ‘Quite Safe’ for Treating Oligometastases John Schieszer, M Share on Facebook Share on Twitter Share on LinkedIn Share on Reddit Print Share by Email A new population-based phase 2 trial suggests
From Renal and Urology news Home » News » Urology » Prostate Cancer Publish DateNovember 11, 2022 SABR ‘Quite Safe’ for Treating Oligometastases John Schieszer, M Share on Facebook Share on Twitter Share on LinkedIn Share on Reddit Print Share by Email A new population-based phase 2 trial suggests
Graham49
in
Advanced Prostate Cancer
1 year ago
Cardiotoxicity in patients treated with acalabrutinib
The latest edition of the journal Blood has two articles that highlight the issue of cardiotoxicity in patients treated with acalabrutinib. The cardiotoxicity of ibrutinib has been well recorded but the situation with the newer BTK inhibitor, acalabrutinib, has been less clear. In the first article
The latest edition of the journal Blood has two articles that highlight the issue of cardiotoxicity in patients treated with acalabrutinib. The cardiotoxicity of ibrutinib has been well recorded but the situation with the newer BTK inhibitor, acalabrutinib, has been less clear. In the first article
CLLerinOz
Volunteer
in
CLL Support
1 year ago
What is CVS? (Has nothing too do with MS))
Because I can't seem to do anything half way, let me explain alittle bit what CVS is .1 st? It's Not the drug store! It's not 😂 it stands for Cyclic Vomiting Syndrome. It's horrible! I would not wish it on any one! I still sleep on the couch because of it... I wake up every morning panicked because
Because I can't seem to do anything half way, let me explain alittle bit what CVS is .1 st? It's Not the drug store! It's not 😂 it stands for Cyclic Vomiting Syndrome. It's horrible! I would not wish it on any one! I still sleep on the couch because of it... I wake up every morning panicked because
Jesmcd2
CommunityAmbassador
in
My MSAA Community
2 years ago
Update to Pluvicto Consult, and Question
My dad's PSMA scan lit up like a Christmas tree! 😂 excuse my dark humor to get through this... Anyway, he is a great candidate for Pluvicto! He meets with Radiation Oncologist on the 29th. The one downside is they have a supply shortage and he may not be able to start until end December-end Jan.
My dad's PSMA scan lit up like a Christmas tree! 😂 excuse my dark humor to get through this... Anyway, he is a great candidate for Pluvicto! He meets with Radiation Oncologist on the 29th. The one downside is they have a supply shortage and he may not be able to start until end December-end Jan.
Sunnyday1122
in
Advanced Prostate Cancer
1 year ago
Treatment-naive or relapsed CLL patients will soon have zanubrutinib/Brukinsa as a treatment option in the EU
[i]The EC approval is based on positive results from two Phase 3 clinical trials: SEQUOIA (NCT03336333), in patients with previously untreated CLL, and ALPINE (NCT03734016), in patients with R/R CLL. In these two trials, BRUKINSA demonstrated superior efficacy versus either bendamustine plus rituximab
[i]The EC approval is based on positive results from two Phase 3 clinical trials: SEQUOIA (NCT03336333), in patients with previously untreated CLL, and ALPINE (NCT03734016), in patients with R/R CLL. In these two trials, BRUKINSA demonstrated superior efficacy versus either bendamustine plus rituximab
AussieNeil
Administrator
in
CLL Support
1 year ago
Prolactin-dependent malignancy- Case Report: Successful Termination of Untreatable Androgen-independent PCa with Cabergoline treatment
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6578577/ Has anyone here tried Cabergoline to suppress prolactin and slow their prostate cancer growth? The Intro, Results, Discussion and Conclusions below are short and easy to understand. For more detailed info, you can read below that or click on the
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6578577/ Has anyone here tried Cabergoline to suppress prolactin and slow their prostate cancer growth? The Intro, Results, Discussion and Conclusions below are short and easy to understand. For more detailed info, you can read below that or click on the
GeorgeGlass
in
Advanced Prostate Cancer
1 year ago
Seeking people with Parkinson's disease on apomorphine therapy for compensated interview
To make syringe therapy easier for people with chronic diseases, we are working on improving syringes, pens, auto-injectors and pump systems. For this purpose, we are looking for people with Parkinson's disease to tell us how they cope with the handling of the apomorphine pens and pumps they use. We
To make syringe therapy easier for people with chronic diseases, we are working on improving syringes, pens, auto-injectors and pump systems. For this purpose, we are looking for people with Parkinson's disease to tell us how they cope with the handling of the apomorphine pens and pumps they use. We
USEing
in
Cure Parkinson's
1 year ago
New standard on IMRT number of sessions?
My younger brother is currently undergoing IMRT sessions at 2Gy per session. Can anyone here show a clinical study report that shows the efficacy of less sessions? He was told that the new IMRT machine they are using only needed 28 sessions. I can understand it if it was hypofractionated, but he was
My younger brother is currently undergoing IMRT sessions at 2Gy per session. Can anyone here show a clinical study report that shows the efficacy of less sessions? He was told that the new IMRT machine they are using only needed 28 sessions. I can understand it if it was hypofractionated, but he was
Cmdrdata
in
Advanced Prostate Cancer
1 year ago
From Oncology 2022 Nov 11: "Acupuncture Reduces Aromatase Inhibitor-Related Joint Pain"
Although this study used early breast cancer patients, I assume the findings would also apply to MBC patients... [u]
Importance :
[/u] "Aromatase inhibitors (AIs) have proven efficacy for the treatment of hormone-sensitive breast cancer; however, arthralgias (pain and stiffness) contribute to
Although this study used early breast cancer patients, I assume the findings would also apply to MBC patients... [u]
Importance :
[/u] "Aromatase inhibitors (AIs) have proven efficacy for the treatment of hormone-sensitive breast cancer; however, arthralgias (pain and stiffness) contribute to
Hazelgreen
in
SHARE Metastatic Breast Cancer
1 year ago
VACCINE MAY PREVENT LONG COVID; OXYGEN MIGHT HELP CURE IT
Israeli experts continue seeing post-Covid symptoms that affect quality of life even in young, healthy patients.
By Abigail Klein Leichman, November 16, 2022 It’s tempting to believe that the SARS-CoV-2 virus is gone, but the World Health Organization’s coronavirus dashboard is recording
Israeli experts continue seeing post-Covid symptoms that affect quality of life even in young, healthy patients.
By Abigail Klein Leichman, November 16, 2022 It’s tempting to believe that the SARS-CoV-2 virus is gone, but the World Health Organization’s coronavirus dashboard is recording
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Wondering about a member who was in a clinical trial, doing great and as he stated brashly ended the treatment to see what would happen.
I can't remember the trial or the member but perhaps he will see this, he was supposed to have another PSA Test in Oct and update us.
I can't remember the trial or the member but perhaps he will see this, he was supposed to have another PSA Test in Oct and update us.
TJGuy
in
Advanced Prostate Cancer
2 years ago
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