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Experiences with
Chronic kidney disease (CKD)
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24 Urine Test=Higher GFR-Risk of no transplant??
I'm have stage 4
CKD
. My current blood test showed my GFR at 16% function. Thankfully, I have been approved by my transplant team for a transplant once my GFR reaches 15%. Even more amazing is that I have a living donor that has also been approved.
I'm have stage 4
CKD
. My current blood test showed my GFR at 16% function. Thankfully, I have been approved by my transplant team for a transplant once my GFR reaches 15%. Even more amazing is that I have a living donor that has also been approved.
Lebrat
in
Kidney Disease
2 years ago
Newbie first post on here.
Morning all, hope everyone is well and warm this cold Sunday morning. Just thought I'd introduce myself as I've just recently joined the forum but I'm also on the bhf and health unlocked site too so here's a brief outline of my journey so far. I've been under the cardiologist for 3 years now with ectopics
Morning all, hope everyone is well and warm this cold Sunday morning. Just thought I'd introduce myself as I've just recently joined the forum but I'm also on the bhf and health unlocked site too so here's a brief outline of my journey so far. I've been under the cardiologist for 3 years now with ectopics
Taz70
in
AF Association
1 year ago
Potential New Treatment for “Brain Fog” in Long COVID Patients
Although brain fog in thyroid patients has often been dismissed by medics (whether not understood, not believed, or some other reason, I cannot say). However, it is coming through as a recognised symptom of Long Covid. Hopefully, even if the actual detailed causes are slightly or radically different
Although brain fog in thyroid patients has often been dismissed by medics (whether not understood, not believed, or some other reason, I cannot say). However, it is coming through as a recognised symptom of Long Covid. Hopefully, even if the actual detailed causes are slightly or radically different
helvella
Thyroid UK
in
Thyroid UK
1 year ago
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progressing
Ckd
I was diagnosed with
Ckd
more than 20 yrs ago. It was considered at the time that I had IgA nephropathy but decided against biopsy as eGFR was stable. I now live in Spain and have my kidney function checked by GP. Over the yrs it was continued to stay around mid 50's to high40's.
progressing
Ckd
I was diagnosed with
Ckd
more than 20 yrs ago. It was considered at the time that I had IgA nephropathy but decided against biopsy as eGFR was stable. I now live in Spain and have my kidney function checked by GP. Over the yrs it was continued to stay around mid 50's to high40's.
Guapa18
in
Kidney Disease
2 years ago
Constipation ....
Sooooo, while there are some things which are considered "unmentionable", they are often the things where a chat can be very helpful. Many of us are on heavy pain medications, most of which cause constipation. Personally, I can go eight days and end up with nausea and stomach pain. Yes, I have tried
Sooooo, while there are some things which are considered "unmentionable", they are often the things where a chat can be very helpful. Many of us are on heavy pain medications, most of which cause constipation. Personally, I can go eight days and end up with nausea and stomach pain. Yes, I have tried
LhasaMomma
in
Fibromyalgia Action UK
1 year ago
Thanks for all your support & update from yesterday
Just an update as everyone has been so kind in replying with support, I’ve seen the GP had some bloods taken and saw the cardiologist again this evening. Following an ECG & heart scan all seems to be well. No fluid in the pericardial spaces has happened with the last two ablations. My heart is remaining
Just an update as everyone has been so kind in replying with support, I’ve seen the GP had some bloods taken and saw the cardiologist again this evening. Following an ECG & heart scan all seems to be well. No fluid in the pericardial spaces has happened with the last two ablations. My heart is remaining
Afibflipper
in
AF Association
1 year ago
Breathless all the time
I have AF, which was controlled until recently by Flecanaide. When my heart rhythm became irregular again my GP took me off Flecanaide and put me on Carvedilol. However, this made me very breathless so he took me off that and now I’m taking nothing for my heart condition except Apixaban. When I saw the
I have AF, which was controlled until recently by Flecanaide. When my heart rhythm became irregular again my GP took me off Flecanaide and put me on Carvedilol. However, this made me very breathless so he took me off that and now I’m taking nothing for my heart condition except Apixaban. When I saw the
Lenathesinger
in
AF Association
1 year ago
3 month check after 2nd ablation . “ not happy and rubbish Xmas present “
hi All So I’ve been PAF since my diagnosis 18 months ago Discovered I had AF and a flutter after one 20 second dizzy spell 18 months ago . Didn’t really have symptoms other than tired and very minor light headed ness from time to time . 18 months on and been on Bisop and Flec along with 2 ablations
hi All So I’ve been PAF since my diagnosis 18 months ago Discovered I had AF and a flutter after one 20 second dizzy spell 18 months ago . Didn’t really have symptoms other than tired and very minor light headed ness from time to time . 18 months on and been on Bisop and Flec along with 2 ablations
mjm1971
in
AF Association
1 year ago
0ne year on from AF ablation.
Positive changes since my ablation in Dec 2021: my AF episodes and panic attacks have become less intense. My heart rate never goes beyond 120 BPM during an AF episode now, and the longest episode I've had has been about 90 seconds. My panic attacks have probably become less severe due to Bisoprolol,
Positive changes since my ablation in Dec 2021: my AF episodes and panic attacks have become less intense. My heart rate never goes beyond 120 BPM during an AF episode now, and the longest episode I've had has been about 90 seconds. My panic attacks have probably become less severe due to Bisoprolol,
John3333333
in
AF Association
1 year ago
here’s my Christmas carol
🎤We 3 Kings of AF are; Bearing ectopics we traverse afar; Chest and neck, eyes and forehead ; Following AF route, oooohhhh; Star of AF, star of night , star with awful loss of sight , Palpitations leading , still proceeding , Guide us on to SINUS RHYTHM (🤞🤞🤞) 🎼🎹 Merry Christmas fellow
🎤We 3 Kings of AF are; Bearing ectopics we traverse afar; Chest and neck, eyes and forehead ; Following AF route, oooohhhh; Star of AF, star of night , star with awful loss of sight , Palpitations leading , still proceeding , Guide us on to SINUS RHYTHM (🤞🤞🤞) 🎼🎹 Merry Christmas fellow
Ossie7
in
Atrial Fibrillation Support
1 year ago
MPN's and afib
Hi, Hi, I'm curious if anyone has had afib after you were dx with an MPN? I had it for the first time on December 1. Besremi was ruled out as the cause, so the cardio team landed on age (I'm 64) as I have no structural issues with my heart. We all know as MPN suffers we have higher risk for
Hi, Hi, I'm curious if anyone has had afib after you were dx with an MPN? I had it for the first time on December 1. Besremi was ruled out as the cause, so the cardio team landed on age (I'm 64) as I have no structural issues with my heart. We all know as MPN suffers we have higher risk for
Elizka
in
MPN Voice
1 year ago
Thrombosis score
Is there such a thing as a thrombosis score? I see it mentioned in the odd article? If so what affects this risk. I have a follow up appointment next week. At the moment I am on watch and wait for primary MF intermediate 1, with mutations JAK 2, 32% and DNMT3A 20%. Abnormaility in chromosome 9 and
Is there such a thing as a thrombosis score? I see it mentioned in the odd article? If so what affects this risk. I have a follow up appointment next week. At the moment I am on watch and wait for primary MF intermediate 1, with mutations JAK 2, 32% and DNMT3A 20%. Abnormaility in chromosome 9 and
artydutch
in
MPN Voice
1 year ago
Stage5 CKD and High creatinine
Has anyone taken chitosan for
CKD
I read it helps lower Creatinine
Has anyone taken chitosan for
CKD
I read it helps lower Creatinine
TDPowers
in
Kidney Disease
2 years ago
Coming off Amitriptyline
I have been on amitriptyline for the past 12 years to help with fibro and insomnia. My dose was 10 mgs. I have never felt well. Always groggy but put up with it as I had tried a lot of other drugs but could not tolerate them. I used to take my ami early evening to try to stop the tiredness but to no
I have been on amitriptyline for the past 12 years to help with fibro and insomnia. My dose was 10 mgs. I have never felt well. Always groggy but put up with it as I had tried a lot of other drugs but could not tolerate them. I used to take my ami early evening to try to stop the tiredness but to no
lizzie1
in
Fibromyalgia Action UK
2 years ago
Not sure what these readings mean?? Do I have high cholesterol??
NON FASTING LIPDS Serum cholesterol level 5.40 mmol/L [0.0 - 5.2]; Above high reference limit Plasma triglyceride level 1.07 mmol/L [0.0 - 1.7] Plasma HDL cholesterol level 1.91 mmol/L Plasma LDL cholesterol level 3.3 mmol/L [0.0 - 3.0]; Above high reference limit Serum cholesterol/HDL ratio 2.8
NON FASTING LIPDS Serum cholesterol level 5.40 mmol/L [0.0 - 5.2]; Above high reference limit Plasma triglyceride level 1.07 mmol/L [0.0 - 1.7] Plasma HDL cholesterol level 1.91 mmol/L Plasma LDL cholesterol level 3.3 mmol/L [0.0 - 3.0]; Above high reference limit Serum cholesterol/HDL ratio 2.8
Loobs39
in
Cholesterol Support
1 year ago
Cardioversion for Flutter now
Hi all, I went to Cardiologist today who put me on ECG and said my AF has gone... the Flecainide worked but I did a running session before I took it to see if I could shock it back into Sinus maybe the combo of both worked. However she detected Flutter, which is new to me and possibly caused by the Flecainide
Hi all, I went to Cardiologist today who put me on ECG and said my AF has gone... the Flecainide worked but I did a running session before I took it to see if I could shock it back into Sinus maybe the combo of both worked. However she detected Flutter, which is new to me and possibly caused by the Flecainide
OzJames
in
AF Association
1 year ago
Heart update
At snail's pace the tests and investigations continue. My GP lives in cloud cuckoo land if he thinks the six months ago referral to a cardiologist should have borne fruit by now! I anticipate seeing someone before the end of the decade. However I did have a cardiac ultrasound a couple of weeks ago
At snail's pace the tests and investigations continue. My GP lives in cloud cuckoo land if he thinks the six months ago referral to a cardiologist should have borne fruit by now! I anticipate seeing someone before the end of the decade. However I did have a cardiac ultrasound a couple of weeks ago
HeronNS
in
PMRGCAuk
1 year ago
Aching feet at night
I’ve been taking Carvedilol for 9 months after AFIB . Had Cardioversion and Ablation but still have occasional AFIB. Now experiencing pain in my feet at night. Had anyone had the same issues and found relief?
I’ve been taking Carvedilol for 9 months after AFIB . Had Cardioversion and Ablation but still have occasional AFIB. Now experiencing pain in my feet at night. Had anyone had the same issues and found relief?
1Golf
in
AF Association
1 year ago
AF and now coronary artery disease at 47. I recently had a CT angiogram and the results aren’t great. Back to being scared and worried.
So I first came on this forum with my Afib diagnosis and was terrified and depressed about the diagnosis and medications. I had good news from my echocardiogram as I had no damage at all. The last hurdle was a CT angiogram sadly I’ve not made it so well past this hurdle. I’m absolutely gutted to be honest
So I first came on this forum with my Afib diagnosis and was terrified and depressed about the diagnosis and medications. I had good news from my echocardiogram as I had no damage at all. The last hurdle was a CT angiogram sadly I’ve not made it so well past this hurdle. I’m absolutely gutted to be honest
Dadtoalad23
in
AF Association
1 year ago
CBD gummies - time to work?
hi, I’ve bought some of the Goodrays CBD gummies that Shumbah posted about & took 1 X 25mg the 1st night & 2 x 25mg ( max dose on bottle ) the last 4 nights with sadly no positive ( or negative ) effect. I read it can take 5 days to work. Does anyone have any experience of CBD oil & can advise if
hi, I’ve bought some of the Goodrays CBD gummies that Shumbah posted about & took 1 X 25mg the 1st night & 2 x 25mg ( max dose on bottle ) the last 4 nights with sadly no positive ( or negative ) effect. I read it can take 5 days to work. Does anyone have any experience of CBD oil & can advise if
Butterflysun1
in
Restless Legs Syndrome
2 years ago
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