Search
Search
About
Log in
Join
Experiences with
Chronic renal failure
Posts
Communities
4,696 public posts
Filter results
Very High Reverse T3 level. Should I be concerned.
Out of the blue I decided to get my Reverse T3 level checked as I’ve never had it done before and I was rather curious. I have Central hypothyroidism. I currently take 150 mcgs of Levo , 20 mcgs T3 and 10 mgs of hydrocortisone. My most recent blood results were - TSH - 0 ulU/ml
Out of the blue I decided to get my Reverse T3 level checked as I’ve never had it done before and I was rather curious. I have Central hypothyroidism. I currently take 150 mcgs of Levo , 20 mcgs T3 and 10 mgs of hydrocortisone. My most recent blood results were - TSH - 0 ulU/ml
Joesmum
in
Thyroid UK
11 months ago
p17 deletion. Can anyone advise or cheer me up?!
Hi! I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic leukaemia (CLL) and suspected Chronic myelomonocytic leukaemia (CMML), I have been still at early stage and not needing treatment. However, yesterday I received a copy of my consultant’s latest report with new blood
Hi! I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic leukaemia (CLL) and suspected Chronic myelomonocytic leukaemia (CMML), I have been still at early stage and not needing treatment. However, yesterday I received a copy of my consultant’s latest report with new blood
Fogey
in
CLL Support
8 months ago
Struggling to put on weight
Hi I wonder if there is anybody struggling to put on weight in spite of having 1800-2000 calorie input a day. On this site I usually find only posts in which people complain of not being able to lose weight. I have persistent AF, heart failure and CKD stage 3a. Whenever I ask my doctor why I cannot
Hi I wonder if there is anybody struggling to put on weight in spite of having 1800-2000 calorie input a day. On this site I usually find only posts in which people complain of not being able to lose weight. I have persistent AF, heart failure and CKD stage 3a. Whenever I ask my doctor why I cannot
Csingicsong
in
Atrial Fibrillation Support
11 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Update.
Had my last infusion of Rituximab today. A doctor came to speak with me, apparently my cll is not responding to the infusions. They are hoping that this last dose will trigger a reaction but she is doubtful. She asked if I had ever taken acalabrutinib to which I said no and I think i have heard that
Had my last infusion of Rituximab today. A doctor came to speak with me, apparently my cll is not responding to the infusions. They are hoping that this last dose will trigger a reaction but she is doubtful. She asked if I had ever taken acalabrutinib to which I said no and I think i have heard that
Jacksc06
in
CLL Support
8 months ago
Lymphatic drainage massages
After reading CLL is dormant in the blood stream but active in the lymph nodes I wondered if it might be be beneficial to keep the cells circulating out of the lymph nodes as much as possible. It seems intuitive exercise and hydration would be good for this potentially but should have no real negative
After reading CLL is dormant in the blood stream but active in the lymph nodes I wondered if it might be be beneficial to keep the cells circulating out of the lymph nodes as much as possible. It seems intuitive exercise and hydration would be good for this potentially but should have no real negative
Rando21
in
CLL Support
8 months ago
A ‘wobble’ caused by subset 6 CLL.
Hi all, a very ocasional póster here but avid reader of the many highly informed contributors that make this site what it is. I was diagnosed with stage ‘A’ CLL in 2021 and continue to be on W & W. I have many of the classic symptoms but not severe enough to warrant treatment - yet! I’ve recently been
Hi all, a very ocasional póster here but avid reader of the many highly informed contributors that make this site what it is. I was diagnosed with stage ‘A’ CLL in 2021 and continue to be on W & W. I have many of the classic symptoms but not severe enough to warrant treatment - yet! I’ve recently been
Petroc
in
CLL Support
9 months ago
Post Ablation Diagnosis
I have been very fortunate and had my Afib ablation in Leicester in May. I had excellent treatment with very minimal side effects from the procedure and am back doing exercise and best of all, no episodes of Afib - so all very positive even though it is very early days. My follow up appointment is in
I have been very fortunate and had my Afib ablation in Leicester in May. I had excellent treatment with very minimal side effects from the procedure and am back doing exercise and best of all, no episodes of Afib - so all very positive even though it is very early days. My follow up appointment is in
Nakesero
in
Atrial Fibrillation Support
11 months ago
Peritoneal dialysis and Neck pain at night during exchanges ……any help? Asking for my mother
Reaching out to this expert community to see if anyone has any experience and advice so I can help my mother. She has been on peritoneal dialysis for about 3-4years. Her exchanges happen at night on machine (not manually). Most recently she has been dealing with pretty significant neck pain. That happens
Reaching out to this expert community to see if anyone has any experience and advice so I can help my mother. She has been on peritoneal dialysis for about 3-4years. Her exchanges happen at night on machine (not manually). Most recently she has been dealing with pretty significant neck pain. That happens
Fight2016
in
Kidney Dialysis
1 year ago
Venetoclax has been added to the Pharmaceutical Benefits Scheme in Australia for use as a retreatment for CLL/SLL
In more good news, today the Pharmaceutical Benefits Scheme (PBS) in Australia added venetoclax to its listings for the retreatment of CLL/SLL in those whose disease relapses/progresses after an initial venetoclax-based therapy has controlled it. The PBS Listing states: [i]"Chronic lymphocytic leukaemia
In more good news, today the Pharmaceutical Benefits Scheme (PBS) in Australia added venetoclax to its listings for the retreatment of CLL/SLL in those whose disease relapses/progresses after an initial venetoclax-based therapy has controlled it. The PBS Listing states: [i]"Chronic lymphocytic leukaemia
CLLerinOz
Volunteer
in
CLL Support
9 months ago
Is MBL the same as CLL stage 0?
hi. I recently got diagnosed with MBL and I’m reading a lot about CLL stage zero on this board. I’m a little confused with the terminology. I’m trying to understand if it is the same thing or not can anyone help?
hi. I recently got diagnosed with MBL and I’m reading a lot about CLL stage zero on this board. I’m a little confused with the terminology. I’m trying to understand if it is the same thing or not can anyone help?
Jazzandblues
in
CLL Support
9 months ago
I make trying to suppress EBV a leg of my supplement strategy.
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
Bolt_Upright
in
Cure Parkinson's
4 months ago
Dehydration.
I am on Bumetanide twice daily for mild heart failure. We all know what it does but in this weather we are encouraged not to become dehydrated. I am drinking loads of fluids but should I expect more or less loo trips under these circumstances. Still no rain here.
I am on Bumetanide twice daily for mild heart failure. We all know what it does but in this weather we are encouraged not to become dehydrated. I am drinking loads of fluids but should I expect more or less loo trips under these circumstances. Still no rain here.
Tykelady
in
Lung Conditions Community Forum
1 year ago
MY DIAGNOSIS FROM TODAY'S VISIT
Chronic kidney disease, stage IV (severe) (HCC) - Primary Essential hypertension Hypervolemia associated with
renal
insufficiency Anemia of
chronic
renal
failure
, unspecified CKD stage Other iron deficiency anemias Secondary hyperparathyroidism (HCC) InstructionsOrdered Medications ferrous sulfate
Chronic kidney disease, stage IV (severe) (HCC) - Primary Essential hypertension Hypervolemia associated with
renal
insufficiency Anemia of
chronic
renal
failure
, unspecified CKD stage Other iron deficiency anemias Secondary hyperparathyroidism (HCC) InstructionsOrdered Medications ferrous sulfate
MSTAUF
in
Early CKD Support
1 year ago
Liver Transplant first then kidney transplant after recovery
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
Canttakemyeyesoffyou
in
British Liver Trust
1 year ago
NT-proBNP test shows over 1800 (2,255) Does it indicate heart failure?
Latest info: When I saw my doctor, having experienced some worry about this test, he was immediately aware that the high BNP level was directly attributable to my permanent AF. He explained that he had only asked for the test to establish a 'base level' for my proBNP reading and despite the relatively
Latest info: When I saw my doctor, having experienced some worry about this test, he was immediately aware that the high BNP level was directly attributable to my permanent AF. He explained that he had only asked for the test to establish a 'base level' for my proBNP reading and despite the relatively
oscarfox49
in
AF Association
1 year ago
Lymphoma or unconnected New Tumour.
Hi All, further to my recent 'post' re the Bells Palsy' that never was, I want to thank you all for your support and advice. I am still waiting on a 'Biopsy' date, followed by the three week wait for results. After which I will know better, where I stand. I have received my recent Bloods from my
Hi All, further to my recent 'post' re the Bells Palsy' that never was, I want to thank you all for your support and advice. I am still waiting on a 'Biopsy' date, followed by the three week wait for results. After which I will know better, where I stand. I have received my recent Bloods from my
Vindicatrix
in
CLL Support
10 months ago
Afib and heart failure
Does afib always lead to heart failure?I have just had a medication review with a specialist who works with our GP surgery and doctors. He claims that any afib present leads to heart failure between 1 and 20% in the early stages. This is frightening. My afib episodes are very symptomatic and come around
Does afib always lead to heart failure?I have just had a medication review with a specialist who works with our GP surgery and doctors. He claims that any afib present leads to heart failure between 1 and 20% in the early stages. This is frightening. My afib episodes are very symptomatic and come around
Karendeena
in
AF Association
1 year ago
Developing Oral LT3 Therapy for Heart Failure - HFpEF (DOT3HF-HFpEF)
Just looking for something else, and noticed this ongoing study. [i]
Developing Oral LT3 Therapy for Heart Failure - HFpEF (DOT3HF-HFpEF)
[/i] [i]Study Overview[/i] [i]Brief Summary:[/i] [i]Investigation of the safety, feasibility, and preliminary efficacy of thyroid hormone therapy with Liothyronine
Just looking for something else, and noticed this ongoing study. [i]
Developing Oral LT3 Therapy for Heart Failure - HFpEF (DOT3HF-HFpEF)
[/i] [i]Study Overview[/i] [i]Brief Summary:[/i] [i]Investigation of the safety, feasibility, and preliminary efficacy of thyroid hormone therapy with Liothyronine
helvella
Thyroid UK
in
Thyroid UK
1 year ago
NSR...out of the blue!!
Last year I had 3 ablations for persistent AF, all deemed to be unsuccessful. 5 months after number 2 , I had 9 days of NSR but then went back into persistent AF with no further breakthroughs. Number 3 was arranged as a top up but after that did not result in NSR for more than a day it was decided AF
Last year I had 3 ablations for persistent AF, all deemed to be unsuccessful. 5 months after number 2 , I had 9 days of NSR but then went back into persistent AF with no further breakthroughs. Number 3 was arranged as a top up but after that did not result in NSR for more than a day it was decided AF
Fullofheart
in
AF Association
1 year ago
What does bone pain feel like?
My bf keeps having this recurrent pain in his elbow. I know CLL can cause bone pain but how would he know if that’s what he’s experiencing?
My bf keeps having this recurrent pain in his elbow. I know CLL can cause bone pain but how would he know if that’s what he’s experiencing?
karmacrepe
in
CLL Support
10 months ago
1
...
9
10
11
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
1514 results
CLL Support
1431 results
Lung Conditions Community Forum
358 results
View top 10 communities
Sort by
Most Relevant
Newest