Search
Search
About
Log in
Join
Experiences with
Chronic pain
Posts
Communities
19,952 public posts
Filter results
Richter's Transformation: standardized therapy or clinical trial
My father was diagnosed CLL 4 years ago and hasn't been treated. Recently he did a PET CT because of enlarged lmpth nodes and doctor said it's very possible he has Richter's Transformation. May I know if any one has same experience with Richters but not treated before? Could you share the treatment and
My father was diagnosed CLL 4 years ago and hasn't been treated. Recently he did a PET CT because of enlarged lmpth nodes and doctor said it's very possible he has Richter's Transformation. May I know if any one has same experience with Richters but not treated before? Could you share the treatment and
janeychen5712
in
CLL Support
6 months ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
6 months ago
is this also pudendal neuralgia?
hello all, i was diagnosed with left side only pudendal neuralgia in 2004 and have lived with it since then largely managing it with the help of pain killers and changes to lifestyle. i know it well after 2 decades; what sets it off, how long flares tend to last and how to keep fairly sane despite the
hello all, i was diagnosed with left side only pudendal neuralgia in 2004 and have lived with it since then largely managing it with the help of pain killers and changes to lifestyle. i know it well after 2 decades; what sets it off, how long flares tend to last and how to keep fairly sane despite the
Jane1945
in
Pelvic Pain Support Network
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Daughter endo pain management
Hi my 17 year old daughter has been told she had endometriosis after seeing a gynae after an extended period of stomach pain. She was prescribed the combined pain but had headaches so now just started mini pill. She is still having pain particularly after eating. Today is very bad as she has started
Hi my 17 year old daughter has been told she had endometriosis after seeing a gynae after an extended period of stomach pain. She was prescribed the combined pain but had headaches so now just started mini pill. She is still having pain particularly after eating. Today is very bad as she has started
Islas_mum
in
Endometriosis UK
3 months ago
Dealing with feelings of a kind of "imposter syndrome."
Between the intense
pain
of standing over the sink (my
chronic
pain
is in my back), and the incredible resistance I feel trying to choose to do this fundamental task, I feel so boxed in. And my teeth are in very bad shape because of it.
Between the intense
pain
of standing over the sink (my
chronic
pain
is in my back), and the incredible resistance I feel trying to choose to do this fundamental task, I feel so boxed in. And my teeth are in very bad shape because of it.
mmcaulay
in
CHADD's Adult ADHD Support
10 months ago
CLL leukemia
What does it mean when your white blood count increases from 27 to 30.6 10^9/L 4.0-10.0 10^9/L
What does it mean when your white blood count increases from 27 to 30.6 10^9/L 4.0-10.0 10^9/L
Bobby13
in
CLL Support
6 months ago
A walking revelation for running C25K
I started C25K a little over 12 years ago now. And I started because a) I had found myself at the obese end of the NHS BMI chart b) a hormonal shift had either caused or coincided with being able to be a little more active than previously and I was well aware that having a disorder that compromises
I started C25K a little over 12 years ago now. And I started because a) I had found myself at the obese end of the NHS BMI chart b) a hormonal shift had either caused or coincided with being able to be a little more active than previously and I was well aware that having a disorder that compromises
GoogleMe
Graduate
in
Couch to 5K
3 months ago
Pain pills
So. IV had fibromyalgia since Oct 2021 after an accident at work left me with it,took forever to diagnose blah blah. At that time I was already long awaiting a hip replacement which ground away and was sufficient agony without all this, IV had every tablet going,the celex didn't help a thing, duloxetine
So. IV had fibromyalgia since Oct 2021 after an accident at work left me with it,took forever to diagnose blah blah. At that time I was already long awaiting a hip replacement which ground away and was sufficient agony without all this, IV had every tablet going,the celex didn't help a thing, duloxetine
Cazza2243
in
Fibromyalgia Action UK
3 months ago
Vasospastic angina pain relief
Hi folks, Just wondering if anyone has been prescribed decent pain relief to take at home instead of having to call an ambulance? I’ve been admitted 5 times in the last 14 months with severe pain due to VSA which the GTN didn’t touch. Mine can last almost all day and go on for several days at a time
Hi folks, Just wondering if anyone has been prescribed decent pain relief to take at home instead of having to call an ambulance? I’ve been admitted 5 times in the last 14 months with severe pain due to VSA which the GTN didn’t touch. Mine can last almost all day and go on for several days at a time
Wildswimmer73
in
British Heart Foundation
3 months ago
is this neuropathy?
As explained in previous posts I have two spinal fractures from X-ray January. Pain still bad and osteoporosis nurse pressed me to get stronger painkillers. Last week GP gave me 30mg codeine, taking with paracetamol but only slightly improved things. Pain is unpredictable, suddenly excruciating, shooting
As explained in previous posts I have two spinal fractures from X-ray January. Pain still bad and osteoporosis nurse pressed me to get stronger painkillers. Last week GP gave me 30mg codeine, taking with paracetamol but only slightly improved things. Pain is unpredictable, suddenly excruciating, shooting
Japsquar
in
PMRGCAuk
3 months ago
New Rheumatology Referral - hope it comes through quickly!
Hello folks, I’ve had fairly mild Reynaud’s for a long time and have more recently been diagnosed with fibromyalgia due to ongoing raised glands, pain & fatigue without infection/ inflammation. This was after seeing a rheumatologist who did a thorough examination, in-depth interview and blood/urine tests
Hello folks, I’ve had fairly mild Reynaud’s for a long time and have more recently been diagnosed with fibromyalgia due to ongoing raised glands, pain & fatigue without infection/ inflammation. This was after seeing a rheumatologist who did a thorough examination, in-depth interview and blood/urine tests
Purple_Badgers
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Three weeks after open heart surgery
During the day I feel ok, walking around, doing light jobs around the house. In the morning I feel sore and struggle to get out of bed, in the evening I have a painful pain across my left breast, ribs and down my back and continues even after taking painkillers.
During the day I feel ok, walking around, doing light jobs around the house. In the morning I feel sore and struggle to get out of bed, in the evening I have a painful pain across my left breast, ribs and down my back and continues even after taking painkillers.
AH31
in
British Heart Foundation
3 months ago
Total knee replacement
Had a total right knee replacement Tuesday. But unfortunately i have bursitis of that hip ( which is usually not troubling) but the operation has upset it big time do finding it difficult to sleep and do exercises. Anyone got any ideas how to manage. I am obviously using knee and taking the strong
Had a total right knee replacement Tuesday. But unfortunately i have bursitis of that hip ( which is usually not troubling) but the operation has upset it big time do finding it difficult to sleep and do exercises. Anyone got any ideas how to manage. I am obviously using knee and taking the strong
annpavitt250448
in
Arthritis Action
3 months ago
mother of all flare ups
help!!!! My IBS is out of control, I don’t know what to do. About 2 weeks ago I went to the hospital with really bad stomach pains and sickness, had a check and some bloods don, Saw the doctor whom said it was gastritis, I was given 2 different antibiotics and pain killers to take. Well I’ve finished
help!!!! My IBS is out of control, I don’t know what to do. About 2 weeks ago I went to the hospital with really bad stomach pains and sickness, had a check and some bloods don, Saw the doctor whom said it was gastritis, I was given 2 different antibiotics and pain killers to take. Well I’ve finished
Cimmy
in
IBS Network
3 months ago
Back Pain
Can anyone tell me what painkillers I can take for persistent low back pain. I have tried most of them but for some reason nothing seems to work. I have heart failure and CKD, so can’t take Ibuprofen. At the moment I’m on dihydrocodiene and paracetamol which I know is strong but unfortunately it doesn
Can anyone tell me what painkillers I can take for persistent low back pain. I have tried most of them but for some reason nothing seems to work. I have heart failure and CKD, so can’t take Ibuprofen. At the moment I’m on dihydrocodiene and paracetamol which I know is strong but unfortunately it doesn
Lovedogs1
in
Atrial Fibrillation Support
3 months ago
Cryoablation and recovery so far - my experience
Hi everybody. Just wanted to share some info about my current recovery. This is more of information/personal experience post for someone waiting or considering ablation. But if you have some tips for me feel free to drop it. :) It's been 5 months since my paroxsysmal AF diagnosis, male 41. Changed my
Hi everybody. Just wanted to share some info about my current recovery. This is more of information/personal experience post for someone waiting or considering ablation. But if you have some tips for me feel free to drop it. :) It's been 5 months since my paroxsysmal AF diagnosis, male 41. Changed my
NewOne2023
in
Atrial Fibrillation Support
3 months ago
Advice for pelvic pain please!!
I'm a 29 year old female who has been suffering with issues with my bladder for around 5 years. I've not had any children and never been pregnant. 5 years ago I started getting re- occuring UTI's quite regularly and was referred to a urologist. I, then, started to get bladder incontinence- I was sent
I'm a 29 year old female who has been suffering with issues with my bladder for around 5 years. I've not had any children and never been pregnant. 5 years ago I started getting re- occuring UTI's quite regularly and was referred to a urologist. I, then, started to get bladder incontinence- I was sent
DisneyLover1994
in
Pelvic Pain Support Network
3 months ago
Could I have endometriosis?
Hello, I am really struggling with symptoms at the moment and I still have no answers so would love some input from others who know what this is like. I have always had heavy painful periods since day 1, along with bowel and stomach issues. I remember being at school and being sent home because I was
Hello, I am really struggling with symptoms at the moment and I still have no answers so would love some input from others who know what this is like. I have always had heavy painful periods since day 1, along with bowel and stomach issues. I remember being at school and being sent home because I was
PennyCrowe
in
Endometriosis UK
3 months ago
Second opinion Dr implies no Endo!
Hi Everyone! So I work abroad on and off and in the UK, I was ‘kinda’ diagnosed with endometriosis, based on a teeny tiny left side ovary cyst they found and the fact that my womb or something was stuck to the back wall of something (uterus?) 🙈🙈 so in the country where I am working, I finally managed
Hi Everyone! So I work abroad on and off and in the UK, I was ‘kinda’ diagnosed with endometriosis, based on a teeny tiny left side ovary cyst they found and the fact that my womb or something was stuck to the back wall of something (uterus?) 🙈🙈 so in the country where I am working, I finally managed
SunSeaNoSex
in
Endometriosis UK
3 months ago
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
6 months ago
1
...
19
20
21
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
3062 results
Pain Concern
1745 results
Fertility Network UK
1652 results
View top 10 communities
Sort by
Most Relevant
Newest