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Chronic leukaemia
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Transplant at age 68 or not
I've had myelofibrosis for about 30 years and been on ruxolitinib successfully for about 8 years. We have just moved to Scotland and my new consultant has laid it on the line that rux doesn't go on working for ever and my only other option is transplant. This seems right to me but I am very nervous about
I've had myelofibrosis for about 30 years and been on ruxolitinib successfully for about 8 years. We have just moved to Scotland and my new consultant has laid it on the line that rux doesn't go on working for ever and my only other option is transplant. This seems right to me but I am very nervous about
Bullace
in
MPN Voice
3 years ago
Has anyone had their first beta/OTD on d8p5dt?
I have had faint positives on FRER for 72h (since PM d5p5dt) that are getting slowly darker and pinker but remaining quite pencil like. Last night I had a faint positive on a clear blue for the first time. But today I’ve done a dumb thing and got my hcg tested, 3 days before OTD 🤦🏻♀️. It’s really
I have had faint positives on FRER for 72h (since PM d5p5dt) that are getting slowly darker and pinker but remaining quite pencil like. Last night I had a faint positive on a clear blue for the first time. But today I’ve done a dumb thing and got my hcg tested, 3 days before OTD 🤦🏻♀️. It’s really
singleswimmer
in
Fertility Network UK
3 years ago
Tww for scan
i got 2100+ HCG at 15dp6dt. today is 17dp6dt now booked for another two weeks wait for the scan. I am super nervous. my heartbeat is so fast. all negative thoughts are coming over my mind. I don't know what should I do? This wait becomes very hard for me.
i got 2100+ HCG at 15dp6dt. today is 17dp6dt now booked for another two weeks wait for the scan. I am super nervous. my heartbeat is so fast. all negative thoughts are coming over my mind. I don't know what should I do? This wait becomes very hard for me.
Hiramunir78
in
Fertility Network UK
3 years ago
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Greater Understanding of PV, ET Drives Potential New Treatment Options
“Continued high-impact research may soon foster the development of disease-modifying therapies for PV and ET and satisfy this need for the optimal management of patients with these MPNs,” they said. Researchers are also determining how to best optimize current treatment options, including JAK inhibitors
“Continued high-impact research may soon foster the development of disease-modifying therapies for PV and ET and satisfy this need for the optimal management of patients with these MPNs,” they said. Researchers are also determining how to best optimize current treatment options, including JAK inhibitors
Manouche
in
MPN Voice
3 years ago
Should FISH test be repeated?
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Myfavoritecat
in
CLL Support
3 years ago
NICE Recommends Acalabrutinib for treating CLL for certain groups
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated
chronic
lymphocytic
leukaemia
(CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and fludarabine plus cyclophosphamide and rituximab
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated
chronic
lymphocytic
leukaemia
(CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and fludarabine plus cyclophosphamide and rituximab
Jm954
Administrator
in
CLL Support
3 years ago
6.3 weeks no symptoms!?!?
Hey lovley ladies xx So I'm 6. 3 weeks pregnant I had my beta HCG on the 23rd it came back as low at 66, did a repeat the nurse said congratulations your beta rose to 227 so a good increase and something to calm the worry for probably an hour before I realised I have the dreaded scan to look forward
Hey lovley ladies xx So I'm 6. 3 weeks pregnant I had my beta HCG on the 23rd it came back as low at 66, did a repeat the nurse said congratulations your beta rose to 227 so a good increase and something to calm the worry for probably an hour before I realised I have the dreaded scan to look forward
Helensafc
in
Fertility Network UK
3 years ago
Sensitive post... BFP finally❤️✌️Allhamdulillah
387.87 beta hcg value at day 12 of FET... Is it a good one? Having bloating and pressure in lower pelvis area.. Constipated🙄
387.87 beta hcg value at day 12 of FET... Is it a good one? Having bloating and pressure in lower pelvis area.. Constipated🙄
Rihab1
in
Fertility Network UK
3 years ago
HCG at 107 on d9p5dt
Is this good? 2nd blood test on Monday
Is this good? 2nd blood test on Monday
Snurf
in
Fertility Network UK
3 years ago
Suggestions where to find CBC pre-made spreadsheets
I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ... well a challenge I admit I failed at. So taking the easier route thought I’d ask question in a post. New in the CLL “adventure” and so I’m gonna
I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ... well a challenge I admit I failed at. So taking the easier route thought I’d ask question in a post. New in the CLL “adventure” and so I’m gonna
Pin57
in
CLL Support
3 years ago
Joint Committee on Vaccination and Immunisation (JCVI) advice on third primary dose vaccination
lymphoid
leukaemia
, myeloma, Waldenstrom’s macroglobulinemia and other plasma cell dyscrasias (note: this list is not exhaustive) immunosuppression due to HIV/AIDS with a current CD4 count of <200 cells/µl for adults or children primary or acquired cellular and combined immune deficiencies – those with
lymphoid
leukaemia
, myeloma, Waldenstrom’s macroglobulinemia and other plasma cell dyscrasias (note: this list is not exhaustive) immunosuppression due to HIV/AIDS with a current CD4 count of <200 cells/µl for adults or children primary or acquired cellular and combined immune deficiencies – those with
crashdoll
in
Lung Conditions Community Forum
3 years ago
I have had both doses of the Pfizer vaccine, while they applauded me after I got my 2nd dose, 90 days later I found that I have no immunity!
I took Ibrutinib prior to January 20 when it gave me AFib and a few other problems, then stated Venetoclax in July of 2020, and in August started the first of six doses of Rituxan. It would seem that Rituxan is the main culprit, as in my research I found that no immunity was created in cases which
I took Ibrutinib prior to January 20 when it gave me AFib and a few other problems, then stated Venetoclax in July of 2020, and in August started the first of six doses of Rituxan. It would seem that Rituxan is the main culprit, as in my research I found that no immunity was created in cases which
KevinCLLITP
in
CLL Support
3 years ago
Real-World Study Shows Limited Implementation of Reccomended Biomarker Testing in CLL
Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial Sloan Kettering Cancer Center, discusssed biomarker testing in CLL, and the future of BTK inhibitors in the CLL paradigm. Data presented at the
Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial Sloan Kettering Cancer Center, discusssed biomarker testing in CLL, and the future of BTK inhibitors in the CLL paradigm. Data presented at the
Jm954
Administrator
in
CLL Support
3 years ago
Ruxolitinib discontinuation in polycythemia vera:
« After discontinuation, only 4 patients (18 %) received subsequent cytoreductive therapy, including hydroxyurea in one patient and pegylated interferon α-2a in three patients »… « discontinuation of ruxolitinib in PV was associated with generally favorable outcomes. However, there is a lack of available
« After discontinuation, only 4 patients (18 %) received subsequent cytoreductive therapy, including hydroxyurea in one patient and pegylated interferon α-2a in three patients »… « discontinuation of ruxolitinib in PV was associated with generally favorable outcomes. However, there is a lack of available
Manouche
in
MPN Voice
3 years ago
Flair trial ends MRD negative
Looking back on my journey started just over 8yrs ago I can remember the GP telling me you have
chronic
lymphocytic
leukaemia
but not to worry my mother had it for years and didn’t need treatment (well she got that wrong) and sent me off with a print out saying you will get a appointment from the hospital
Looking back on my journey started just over 8yrs ago I can remember the GP telling me you have
chronic
lymphocytic
leukaemia
but not to worry my mother had it for years and didn’t need treatment (well she got that wrong) and sent me off with a print out saying you will get a appointment from the hospital
buzzybab
in
CLL Support
3 years ago
Sunday Lunches
My sister lives abroad and comes over to the UK each year for our summer months. Last year with all that was going on only stayed 4/5wks in case Barbados put the UK on their no entry list etc. I was fine meeting her at our favourite restaurants for Sunday lunch and/or even additional mid week, as
My sister lives abroad and comes over to the UK each year for our summer months. Last year with all that was going on only stayed 4/5wks in case Barbados put the UK on their no entry list etc. I was fine meeting her at our favourite restaurants for Sunday lunch and/or even additional mid week, as
Makingmebetter
in
Lung Conditions Community Forum
3 years ago
mpal leukaemia
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
su0906
in
Leukaemia CARE
3 years ago
PREDNISONE, NK cells, Recurrent Miscarriage - 4th pregnancy and anxiety is through the roof
Hello ladies, those of you who have had NK cells blood test, can you all kindly share what level your nk cell was at? I did the chicago test and my nk cells was 27 vs normal of 10. When i did the test, I had just miscarried for the third time so just wanted them checked. I am now pregnant again (naturally
Hello ladies, those of you who have had NK cells blood test, can you all kindly share what level your nk cell was at? I did the chicago test and my nk cells was 27 vs normal of 10. When i did the test, I had just miscarried for the third time so just wanted them checked. I am now pregnant again (naturally
joey81
in
Fertility Network UK
3 years ago
High HCG reading
Hi lovely Ladies I’ve just received the best news that my 3rd attempt has resulted in a big fat positive test, the thing that I’m worried about is my HCG is over 700 which is very high only 14 days after that little egg was put into me. Have anyone had the same thing happen and everything worked out
Hi lovely Ladies I’ve just received the best news that my 3rd attempt has resulted in a big fat positive test, the thing that I’m worried about is my HCG is over 700 which is very high only 14 days after that little egg was put into me. Have anyone had the same thing happen and everything worked out
GreenAunt3
in
Fertility Network UK
3 years ago
“I think we’ll cure leukemia in my lifetime”
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
Manouche
in
MPN Voice
3 years ago
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